Illness trajectory in heart failure: narratives of family caregivers
Autor(a) principal: | |
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Data de Publicação: | 2019 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Revista Brasileira de Enfermagem (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672019000100162 |
Resumo: | ABSTRACT Objective: To explore the meaning of being a family caregiver for a relative with advanced heart failure (HF) in their own home, and to gain an understanding of how dignity is upheld in family caregiving contexts. Method: We used a phenomenological-hermeneutical method inspired by the Ricoeurian philosophy. Portuguese caregivers for relatives with advanced HF participated in two reflective interviews over a four-month period. Results: The ten family caregivers enrolled in this study included two daughters and eight spouses with a mean age of 70 years. We identified two main themes: (1) Struggle between inner force and sense of duty; (2) Struggle between feelings of burden and security. Final considerations: People with HF have debilitating symptoms associated with psychological stress, which can burden both them and their family caregivers. Findings support that family caregivers require participation in the planning and execution of their relative's health care. |
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Revista Brasileira de Enfermagem (Online) |
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Illness trajectory in heart failure: narratives of family caregiversHeart FailureFamily CaregiversPersonal NarrativesQualitative ResearchCaringABSTRACT Objective: To explore the meaning of being a family caregiver for a relative with advanced heart failure (HF) in their own home, and to gain an understanding of how dignity is upheld in family caregiving contexts. Method: We used a phenomenological-hermeneutical method inspired by the Ricoeurian philosophy. Portuguese caregivers for relatives with advanced HF participated in two reflective interviews over a four-month period. Results: The ten family caregivers enrolled in this study included two daughters and eight spouses with a mean age of 70 years. We identified two main themes: (1) Struggle between inner force and sense of duty; (2) Struggle between feelings of burden and security. Final considerations: People with HF have debilitating symptoms associated with psychological stress, which can burden both them and their family caregivers. Findings support that family caregivers require participation in the planning and execution of their relative's health care.Associação Brasileira de Enfermagem2019-02-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672019000100162Revista Brasileira de Enfermagem v.72 n.1 2019reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2018-0645info:eu-repo/semantics/openAccessSampaio,CarlosRenaud,IsabelLeão,Paula Ponceeng2019-03-19T00:00:00Zoai:scielo:S0034-71672019000100162Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2019-03-19T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false |
dc.title.none.fl_str_mv |
Illness trajectory in heart failure: narratives of family caregivers |
title |
Illness trajectory in heart failure: narratives of family caregivers |
spellingShingle |
Illness trajectory in heart failure: narratives of family caregivers Sampaio,Carlos Heart Failure Family Caregivers Personal Narratives Qualitative Research Caring |
title_short |
Illness trajectory in heart failure: narratives of family caregivers |
title_full |
Illness trajectory in heart failure: narratives of family caregivers |
title_fullStr |
Illness trajectory in heart failure: narratives of family caregivers |
title_full_unstemmed |
Illness trajectory in heart failure: narratives of family caregivers |
title_sort |
Illness trajectory in heart failure: narratives of family caregivers |
author |
Sampaio,Carlos |
author_facet |
Sampaio,Carlos Renaud,Isabel Leão,Paula Ponce |
author_role |
author |
author2 |
Renaud,Isabel Leão,Paula Ponce |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Sampaio,Carlos Renaud,Isabel Leão,Paula Ponce |
dc.subject.por.fl_str_mv |
Heart Failure Family Caregivers Personal Narratives Qualitative Research Caring |
topic |
Heart Failure Family Caregivers Personal Narratives Qualitative Research Caring |
description |
ABSTRACT Objective: To explore the meaning of being a family caregiver for a relative with advanced heart failure (HF) in their own home, and to gain an understanding of how dignity is upheld in family caregiving contexts. Method: We used a phenomenological-hermeneutical method inspired by the Ricoeurian philosophy. Portuguese caregivers for relatives with advanced HF participated in two reflective interviews over a four-month period. Results: The ten family caregivers enrolled in this study included two daughters and eight spouses with a mean age of 70 years. We identified two main themes: (1) Struggle between inner force and sense of duty; (2) Struggle between feelings of burden and security. Final considerations: People with HF have debilitating symptoms associated with psychological stress, which can burden both them and their family caregivers. Findings support that family caregivers require participation in the planning and execution of their relative's health care. |
publishDate |
2019 |
dc.date.none.fl_str_mv |
2019-02-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672019000100162 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672019000100162 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1590/0034-7167-2018-0645 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Associação Brasileira de Enfermagem |
publisher.none.fl_str_mv |
Associação Brasileira de Enfermagem |
dc.source.none.fl_str_mv |
Revista Brasileira de Enfermagem v.72 n.1 2019 reponame:Revista Brasileira de Enfermagem (Online) instname:Associação Brasileira de Enfermagem (ABEN) instacron:ABEN |
instname_str |
Associação Brasileira de Enfermagem (ABEN) |
instacron_str |
ABEN |
institution |
ABEN |
reponame_str |
Revista Brasileira de Enfermagem (Online) |
collection |
Revista Brasileira de Enfermagem (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN) |
repository.mail.fl_str_mv |
reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br |
_version_ |
1754303035617574912 |