Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil

Detalhes bibliográficos
Autor(a) principal: Massato Harayama, Rui
Data de Publicação: 2020
Tipo de documento: Artigo
Idioma: por
Título da fonte: Cadernos Ibero-Americanos de Direito Sanitário (Online)
Texto Completo: https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702
Resumo: Objective: to discuss the bioethical implications from the announcement of Digital Health by the World Health Organization and the use of big data in the production of predictive health surveillance systems in Brazil. Methods: conducted a narrative review based on the search for articles on Scielo, Bireme, Jstor platforms and at the World Health Organization and the Ministry of Health of Brazil webpages, with the keywords big data, bioethics and ethics, from May to July 2020. Results: limits were evidenced in the use of big data as an epidemiological forecasting surveillance tool, notably with its use during the Covid-19 pandemic, although justified by the Bioethics of Protection Theory and Public Health Ethics. The greatest limits observed were the absence of adequate data protection legislation and bias in the data obtained. Conclusion: in order to analyze the bioethical impacts of the use of big data in the medicine of the future, it is essential to deepen the discussion on the possible impacts that the use of these technologies can have on life in society, with an emphasis on the development of surveillance capitalism, on interference in life and the intensification of regional inequalities.
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spelling Reflections on the use of big data in predictive models for epidemiological surveillance in BrazilReflexiones sobre el uso de macrodatos en modelos predictivos de vigilancia epidemiológica en BrasilReflexões sobre o uso do big data em modelos preditivos de vigilância epidemiológica no BrasilBioethicsBig dataPublic health surveillanceEthicsBioéticaMacrodatosVigilancia de salud públicaPrincipio moralBioéticaBig dataVigilância em saúde públicaÉticaObjective: to discuss the bioethical implications from the announcement of Digital Health by the World Health Organization and the use of big data in the production of predictive health surveillance systems in Brazil. Methods: conducted a narrative review based on the search for articles on Scielo, Bireme, Jstor platforms and at the World Health Organization and the Ministry of Health of Brazil webpages, with the keywords big data, bioethics and ethics, from May to July 2020. Results: limits were evidenced in the use of big data as an epidemiological forecasting surveillance tool, notably with its use during the Covid-19 pandemic, although justified by the Bioethics of Protection Theory and Public Health Ethics. The greatest limits observed were the absence of adequate data protection legislation and bias in the data obtained. Conclusion: in order to analyze the bioethical impacts of the use of big data in the medicine of the future, it is essential to deepen the discussion on the possible impacts that the use of these technologies can have on life in society, with an emphasis on the development of surveillance capitalism, on interference in life and the intensification of regional inequalities.Objetivo: discutir las implicaciones bioéticas del anuncio de la Salud Digital por la Organización Mundial de la Salud y el uso de macrodatos en la producción de sistemas de vigilancia predictiva de salud en Brasil. Metodología: se realizó una revisión narrativa a partir de la búsqueda de artículos en las plataformas Scielo, Bireme, Jstor y en la página de la Organización Mundial de la Salud y el Ministerio de Salud de Brasil, con las palabras clave macrodatos, bioética y ética, de mayo a julio, 2020. Resultados: se evidenciaron límites en el uso de macrodatos como herramienta de vigilancia epidemiológica predictiva, destacando su uso durante la pandemia Covid-19, aunque justificado a partir de la teoría de la Bioética de Protección y la Ética en Salud Pública. Los mayores límites observados fueron la ausencia de una legislación de protección de datos adecuada y el sesgo en los datos obtenidos. Conclusión: para analizar los impactos bioéticos del uso de macrodatos en la medicina del futuro, es fundamental profundizar la discusión sobre los posibles impactos que el uso de estas tecnologías puede tener en la vida en sociedad, con énfasis en el desarrollo del capitalismo de vigilancia, en la interferencia en la vida y la intensificación de las desigualdades regionales.Objetivo: discutir as implicações bioéticas a partir do anúncio da Saúde Digital por parte da Organização Mundial da Saúde e do uso do big data na produção de sistemas preditivos de vigilância em saúde no Brasil. Metodologia: realizou-se revisão narrativa a partir da busca de artigos nas plataformas Scielo, Bireme, Jstor e na página da Organização Mundial da Saúde e do Ministério da Saúde do Brasil, com os descritores big data, bioética e ética, de maio a julho de 2020. Resultados: foram evidenciados limites no uso do big data como ferramenta de vigilância epidemiológica preditiva, notadamente com o seu uso durante a pandemia de Covid-19, apesar de justificável a partir da teoria da bioética da proteção e da ética da saúde pública. Os maiores limites observados foram ausência de legislação de proteção de dados adequada e viés dos dados obtidos. Conclusão: para análise dos impactos bioéticos do uso do big data na medicina do futuro é imprescindível aprofundar a discussão sobre os possíveis impactos que o uso dessas tecnologias pode gerar na vida em sociedade, com ênfase no desenvolvimento do capitalismo de vigilância, na interferência na vida social e no acirramento das desigualdades regionais.  Fundação Oswaldo Cruz Brasília2020-09-29info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/70210.17566/ciads.v9i3.702Iberoamerican Journal of Health Law; Vol. 9 No. 3 (2020): (JUL./SEPT. 2020); 153-165Cuadernos Iberoamericanos de Derecho Sanitario; Vol. 9 Núm. 3 (2020): (JUL./SEPT. 2020); 153-165Cadernos Ibero-Americanos de Direito Sanitário; v. 9 n. 3 (2020): (JUL./SET. 2020); 153-1652358-18242317-839610.17566/ciads.v9i3reponame:Cadernos Ibero-Americanos de Direito Sanitário (Online)instname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZporhttps://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702/765https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702/1002Copyright (c) 2020 Rui Massato Harayamahttps://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessMassato Harayama, RuiMassato Harayama, RuiMassato Harayama, Rui2023-06-20T22:21:17Zoai:ojs.cadernos.prodisa.fiocruz.br:article/702Revistahttp://www.cadernos.prodisa.fiocruz.brPUBhttp://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/oaicadernos.direitosanitario@fiocruz.br2358-18242317-8396opendoar:2023-06-20T22:21:17Cadernos Ibero-Americanos de Direito Sanitário (Online) - Fundação Oswaldo Cruz (FIOCRUZ)false
dc.title.none.fl_str_mv Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
Reflexiones sobre el uso de macrodatos en modelos predictivos de vigilancia epidemiológica en Brasil
Reflexões sobre o uso do big data em modelos preditivos de vigilância epidemiológica no Brasil
title Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
spellingShingle Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
Massato Harayama, Rui
Bioethics
Big data
Public health surveillance
Ethics
Bioética
Macrodatos
Vigilancia de salud pública
Principio moral
Bioética
Big data
Vigilância em saúde pública
Ética
title_short Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
title_full Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
title_fullStr Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
title_full_unstemmed Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
title_sort Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
author Massato Harayama, Rui
author_facet Massato Harayama, Rui
author_role author
dc.contributor.author.fl_str_mv Massato Harayama, Rui
Massato Harayama, Rui
Massato Harayama, Rui
dc.subject.por.fl_str_mv Bioethics
Big data
Public health surveillance
Ethics
Bioética
Macrodatos
Vigilancia de salud pública
Principio moral
Bioética
Big data
Vigilância em saúde pública
Ética
topic Bioethics
Big data
Public health surveillance
Ethics
Bioética
Macrodatos
Vigilancia de salud pública
Principio moral
Bioética
Big data
Vigilância em saúde pública
Ética
description Objective: to discuss the bioethical implications from the announcement of Digital Health by the World Health Organization and the use of big data in the production of predictive health surveillance systems in Brazil. Methods: conducted a narrative review based on the search for articles on Scielo, Bireme, Jstor platforms and at the World Health Organization and the Ministry of Health of Brazil webpages, with the keywords big data, bioethics and ethics, from May to July 2020. Results: limits were evidenced in the use of big data as an epidemiological forecasting surveillance tool, notably with its use during the Covid-19 pandemic, although justified by the Bioethics of Protection Theory and Public Health Ethics. The greatest limits observed were the absence of adequate data protection legislation and bias in the data obtained. Conclusion: in order to analyze the bioethical impacts of the use of big data in the medicine of the future, it is essential to deepen the discussion on the possible impacts that the use of these technologies can have on life in society, with an emphasis on the development of surveillance capitalism, on interference in life and the intensification of regional inequalities.
publishDate 2020
dc.date.none.fl_str_mv 2020-09-29
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702
10.17566/ciads.v9i3.702
url https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702
identifier_str_mv 10.17566/ciads.v9i3.702
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702/765
https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702/1002
dc.rights.driver.fl_str_mv Copyright (c) 2020 Rui Massato Harayama
https://creativecommons.org/licenses/by-nc/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2020 Rui Massato Harayama
https://creativecommons.org/licenses/by-nc/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Fundação Oswaldo Cruz Brasília
publisher.none.fl_str_mv Fundação Oswaldo Cruz Brasília
dc.source.none.fl_str_mv Iberoamerican Journal of Health Law; Vol. 9 No. 3 (2020): (JUL./SEPT. 2020); 153-165
Cuadernos Iberoamericanos de Derecho Sanitario; Vol. 9 Núm. 3 (2020): (JUL./SEPT. 2020); 153-165
Cadernos Ibero-Americanos de Direito Sanitário; v. 9 n. 3 (2020): (JUL./SET. 2020); 153-165
2358-1824
2317-8396
10.17566/ciads.v9i3
reponame:Cadernos Ibero-Americanos de Direito Sanitário (Online)
instname:Fundação Oswaldo Cruz (FIOCRUZ)
instacron:FIOCRUZ
instname_str Fundação Oswaldo Cruz (FIOCRUZ)
instacron_str FIOCRUZ
institution FIOCRUZ
reponame_str Cadernos Ibero-Americanos de Direito Sanitário (Online)
collection Cadernos Ibero-Americanos de Direito Sanitário (Online)
repository.name.fl_str_mv Cadernos Ibero-Americanos de Direito Sanitário (Online) - Fundação Oswaldo Cruz (FIOCRUZ)
repository.mail.fl_str_mv cadernos.direitosanitario@fiocruz.br
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