Carriers of sickle cell disease: reflections of the Black people history on access to the health

• Autor(a) principal: Ramos, Edith Maria Barbosa
• Data de Publicação: 2020
• Outros Autores: Ramos, Paulo Roberto Barbosa, Carvalho, Márcia Haydee Porto de, Silva, Delmo Mattos da, Dutra Júnior, Paulo Henrique de Freitas
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: RECIIS (Online)
• Texto Completo: https://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/1882
• topic: Sickle cell disease; Historic; Public policy; Right to health; Black population.; Anemia de células falciformes; Historia; Políticas públicas; Derecho a la salud; Población negra.; Doença falciforme; Histórico; Políticas públicas; Direito à saúde; População negra.

Sickle cell disease is the most prevalent genetic disorder in Brazil; according to the PNTN – Programa Nacional de Triagem Neonatal (National Neonatal Screening Program), approximately 3,500 (three thousand, fie hundred) babies with haemoglobin disorders are born each year that is to say 1/1,000 live-born in Brazil. Since the high degree of its incidence, it is necessary to observe how the access to the health is given to patients with this disease, and the diffiulties that afflct this population segment and the effectiveness of existing public policies to confront this kind of genetic hemoglobinopath should be analyzed. Through descriptive and explanatory methodology, it was found that the social segment affected by this disease is historically associated with people of African descent, due to its mutant origin in the African continent in response to the spread of malaria, fact that combines the disease with the factors of historical discrimination against the Black population. Sickle cell disease, in certain cases, was used as a basis for exclusion of Black people from society, as an argument for racial segregation in the United States and as a basis for the idea of whitening the Brazilian population.