The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy

Detalhes bibliográficos
Autor(a) principal: Oliveira, Fabiana Schirato de
Data de Publicação: 2003
Outros Autores: Zago, Márcia Maria Fontão
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Brasileira de Cancerologia (Online)
Texto Completo: https://rbc.inca.gov.br/index.php/revista/article/view/2119
Resumo: The general purpose of this work was to describe the experience of laryngectomized patients and their relatives in dealing with radiotherapy efects. Nine laryngectomees who had been submitted to treatment within the past 12 months and seven relatives took part in the study. Data were collected from September 2001 to April 2002, and the collection was guided by a questionnaire with open and closed questions. Data were analyzed according to the frequency of the issues. Results showed that the most frequent and worst reactions to treatment were skin burns and assailment of the oropharynx. Some of the actions used to minimize them stemmed from cultural beliefs regarding treatment. The feelings about the treatment were fear, disbelief, indifference and of a traumatic experience. The relatives' difficulties in dealing with the experience were related to the increase in the caregivers' responsibilities, the lack of information for provision of support, the concern and discouragement about the patient's situation. The radiotherapy experience showed it to be a process that increases patients' suffering and that the information provided was insufficient, which led to inadequate actions.
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spelling The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapyA experiência do laringectomizado e do familiar em lidar com as conseqüências da radioterapiaLaringectomiaPacientesFamíliaCuidadoresPsicologiaRadioterapiaEfeitos AdversosCuidados de EnfermagemLaryngectomyPatientsFamilyCaregiversPsychologyRadiotherapyAdverse EffectsNursing CareThe general purpose of this work was to describe the experience of laryngectomized patients and their relatives in dealing with radiotherapy efects. Nine laryngectomees who had been submitted to treatment within the past 12 months and seven relatives took part in the study. Data were collected from September 2001 to April 2002, and the collection was guided by a questionnaire with open and closed questions. Data were analyzed according to the frequency of the issues. Results showed that the most frequent and worst reactions to treatment were skin burns and assailment of the oropharynx. Some of the actions used to minimize them stemmed from cultural beliefs regarding treatment. The feelings about the treatment were fear, disbelief, indifference and of a traumatic experience. The relatives' difficulties in dealing with the experience were related to the increase in the caregivers' responsibilities, the lack of information for provision of support, the concern and discouragement about the patient's situation. The radiotherapy experience showed it to be a process that increases patients' suffering and that the information provided was insufficient, which led to inadequate actions.O objetivo geral deste estudo foi descrever a experiência do laringectomizado e familiar em lidar com as reações provocadas pela radioterapia. Participaram do estudo nove laringectomizados submetidos ao tratamento nos últimos 12 meses e sete familiares. Os dados foram coletados de setembro/2001 a abril/2002. A coleta de dados foi direcionada por um instrumento com questões abertas e fechadas. Os dados foram analisados em relação à freqüência dos conteúdos. Os resultados mostraram que as reações mais freqüentes e consideradas como piores foram a queimadura na pele e as reações na orofaringe; algumas das ações usadas para minimizá-las são derivadas das crenças culturais acerca do tratamento. As percepções do tratamento foram descritas pelos sentimentos de medo, descrença, indiferença e como traumática. As dificuldades dos familiares em lidar com a experiência estavam relacionadas com o aumento da responsabilidade do cuidador, a falta de informação para oferecer apoio, a preocupação e o desânimo com a situação do paciente. Concluímos que a experiência da radioterapia mostrou ser um processo que acentua o sofrimento do paciente, pois as informações recebidas foram insuficientes, levando a ações nem sempre efetivas. Ressaltamos a importância da atuação dos profissionais na avaliação contínua das condições físicas e emocionais do paciente, no processo educativo do paciente e família e na elaboração de um folheto informativo para suprir as necessidades comuns aos envolvidos.INCA2003-03-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/211910.32635/2176-9745.RBC.2003v49n1.2119Revista Brasileira de Cancerologia; Vol. 49 No. 1 (2003): Jan./Feb./Mar; 17-25Revista Brasileira de Cancerologia; Vol. 49 Núm. 1 (2003): ene./feb./mar.; 17-25Revista Brasileira de Cancerologia; v. 49 n. 1 (2003): jan./fev./mar.; 17-252176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporhttps://rbc.inca.gov.br/index.php/revista/article/view/2119/1314Oliveira, Fabiana Schirato de Zago, Márcia Maria Fontão info:eu-repo/semantics/openAccess2021-11-29T20:36:18Zoai:rbc.inca.gov.br:article/2119Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2021-11-29T20:36:18Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false
dc.title.none.fl_str_mv The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
A experiência do laringectomizado e do familiar em lidar com as conseqüências da radioterapia
title The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
spellingShingle The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
Oliveira, Fabiana Schirato de
Laringectomia
Pacientes
Família
Cuidadores
Psicologia
Radioterapia
Efeitos Adversos
Cuidados de Enfermagem
Laryngectomy
Patients
Family
Caregivers
Psychology
Radiotherapy
Adverse Effects
Nursing Care
title_short The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
title_full The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
title_fullStr The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
title_full_unstemmed The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
title_sort The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
author Oliveira, Fabiana Schirato de
author_facet Oliveira, Fabiana Schirato de
Zago, Márcia Maria Fontão
author_role author
author2 Zago, Márcia Maria Fontão
author2_role author
dc.contributor.author.fl_str_mv Oliveira, Fabiana Schirato de
Zago, Márcia Maria Fontão
dc.subject.por.fl_str_mv Laringectomia
Pacientes
Família
Cuidadores
Psicologia
Radioterapia
Efeitos Adversos
Cuidados de Enfermagem
Laryngectomy
Patients
Family
Caregivers
Psychology
Radiotherapy
Adverse Effects
Nursing Care
topic Laringectomia
Pacientes
Família
Cuidadores
Psicologia
Radioterapia
Efeitos Adversos
Cuidados de Enfermagem
Laryngectomy
Patients
Family
Caregivers
Psychology
Radiotherapy
Adverse Effects
Nursing Care
description The general purpose of this work was to describe the experience of laryngectomized patients and their relatives in dealing with radiotherapy efects. Nine laryngectomees who had been submitted to treatment within the past 12 months and seven relatives took part in the study. Data were collected from September 2001 to April 2002, and the collection was guided by a questionnaire with open and closed questions. Data were analyzed according to the frequency of the issues. Results showed that the most frequent and worst reactions to treatment were skin burns and assailment of the oropharynx. Some of the actions used to minimize them stemmed from cultural beliefs regarding treatment. The feelings about the treatment were fear, disbelief, indifference and of a traumatic experience. The relatives' difficulties in dealing with the experience were related to the increase in the caregivers' responsibilities, the lack of information for provision of support, the concern and discouragement about the patient's situation. The radiotherapy experience showed it to be a process that increases patients' suffering and that the information provided was insufficient, which led to inadequate actions.
publishDate 2003
dc.date.none.fl_str_mv 2003-03-31
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Artigos, Avaliado pelos pares
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/2119
10.32635/2176-9745.RBC.2003v49n1.2119
url https://rbc.inca.gov.br/index.php/revista/article/view/2119
identifier_str_mv 10.32635/2176-9745.RBC.2003v49n1.2119
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/2119/1314
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv INCA
publisher.none.fl_str_mv INCA
dc.source.none.fl_str_mv Revista Brasileira de Cancerologia; Vol. 49 No. 1 (2003): Jan./Feb./Mar; 17-25
Revista Brasileira de Cancerologia; Vol. 49 Núm. 1 (2003): ene./feb./mar.; 17-25
Revista Brasileira de Cancerologia; v. 49 n. 1 (2003): jan./fev./mar.; 17-25
2176-9745
reponame:Revista Brasileira de Cancerologia (Online)
instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron:INCA
instname_str Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron_str INCA
institution INCA
reponame_str Revista Brasileira de Cancerologia (Online)
collection Revista Brasileira de Cancerologia (Online)
repository.name.fl_str_mv Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
repository.mail.fl_str_mv rbc@inca.gov.br
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