The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy
Autor(a) principal: | |
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Data de Publicação: | 2003 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Brasileira de Cancerologia (Online) |
Texto Completo: | https://rbc.inca.gov.br/index.php/revista/article/view/2119 |
Resumo: | The general purpose of this work was to describe the experience of laryngectomized patients and their relatives in dealing with radiotherapy efects. Nine laryngectomees who had been submitted to treatment within the past 12 months and seven relatives took part in the study. Data were collected from September 2001 to April 2002, and the collection was guided by a questionnaire with open and closed questions. Data were analyzed according to the frequency of the issues. Results showed that the most frequent and worst reactions to treatment were skin burns and assailment of the oropharynx. Some of the actions used to minimize them stemmed from cultural beliefs regarding treatment. The feelings about the treatment were fear, disbelief, indifference and of a traumatic experience. The relatives' difficulties in dealing with the experience were related to the increase in the caregivers' responsibilities, the lack of information for provision of support, the concern and discouragement about the patient's situation. The radiotherapy experience showed it to be a process that increases patients' suffering and that the information provided was insufficient, which led to inadequate actions. |
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The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapyA experiência do laringectomizado e do familiar em lidar com as conseqüências da radioterapiaLaringectomiaPacientesFamíliaCuidadoresPsicologiaRadioterapiaEfeitos AdversosCuidados de EnfermagemLaryngectomyPatientsFamilyCaregiversPsychologyRadiotherapyAdverse EffectsNursing CareThe general purpose of this work was to describe the experience of laryngectomized patients and their relatives in dealing with radiotherapy efects. Nine laryngectomees who had been submitted to treatment within the past 12 months and seven relatives took part in the study. Data were collected from September 2001 to April 2002, and the collection was guided by a questionnaire with open and closed questions. Data were analyzed according to the frequency of the issues. Results showed that the most frequent and worst reactions to treatment were skin burns and assailment of the oropharynx. Some of the actions used to minimize them stemmed from cultural beliefs regarding treatment. The feelings about the treatment were fear, disbelief, indifference and of a traumatic experience. The relatives' difficulties in dealing with the experience were related to the increase in the caregivers' responsibilities, the lack of information for provision of support, the concern and discouragement about the patient's situation. The radiotherapy experience showed it to be a process that increases patients' suffering and that the information provided was insufficient, which led to inadequate actions.O objetivo geral deste estudo foi descrever a experiência do laringectomizado e familiar em lidar com as reações provocadas pela radioterapia. Participaram do estudo nove laringectomizados submetidos ao tratamento nos últimos 12 meses e sete familiares. Os dados foram coletados de setembro/2001 a abril/2002. A coleta de dados foi direcionada por um instrumento com questões abertas e fechadas. Os dados foram analisados em relação à freqüência dos conteúdos. Os resultados mostraram que as reações mais freqüentes e consideradas como piores foram a queimadura na pele e as reações na orofaringe; algumas das ações usadas para minimizá-las são derivadas das crenças culturais acerca do tratamento. As percepções do tratamento foram descritas pelos sentimentos de medo, descrença, indiferença e como traumática. As dificuldades dos familiares em lidar com a experiência estavam relacionadas com o aumento da responsabilidade do cuidador, a falta de informação para oferecer apoio, a preocupação e o desânimo com a situação do paciente. Concluímos que a experiência da radioterapia mostrou ser um processo que acentua o sofrimento do paciente, pois as informações recebidas foram insuficientes, levando a ações nem sempre efetivas. Ressaltamos a importância da atuação dos profissionais na avaliação contínua das condições físicas e emocionais do paciente, no processo educativo do paciente e família e na elaboração de um folheto informativo para suprir as necessidades comuns aos envolvidos.INCA2003-03-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/211910.32635/2176-9745.RBC.2003v49n1.2119Revista Brasileira de Cancerologia; Vol. 49 No. 1 (2003): Jan./Feb./Mar; 17-25Revista Brasileira de Cancerologia; Vol. 49 Núm. 1 (2003): ene./feb./mar.; 17-25Revista Brasileira de Cancerologia; v. 49 n. 1 (2003): jan./fev./mar.; 17-252176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporhttps://rbc.inca.gov.br/index.php/revista/article/view/2119/1314Oliveira, Fabiana Schirato de Zago, Márcia Maria Fontão info:eu-repo/semantics/openAccess2021-11-29T20:36:18Zoai:rbc.inca.gov.br:article/2119Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2021-11-29T20:36:18Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false |
dc.title.none.fl_str_mv |
The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy A experiência do laringectomizado e do familiar em lidar com as conseqüências da radioterapia |
title |
The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy |
spellingShingle |
The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy Oliveira, Fabiana Schirato de Laringectomia Pacientes Família Cuidadores Psicologia Radioterapia Efeitos Adversos Cuidados de Enfermagem Laryngectomy Patients Family Caregivers Psychology Radiotherapy Adverse Effects Nursing Care |
title_short |
The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy |
title_full |
The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy |
title_fullStr |
The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy |
title_full_unstemmed |
The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy |
title_sort |
The experience of laryngectomized patients and their relatives in reacting to the consequences of radiotherapy |
author |
Oliveira, Fabiana Schirato de |
author_facet |
Oliveira, Fabiana Schirato de Zago, Márcia Maria Fontão |
author_role |
author |
author2 |
Zago, Márcia Maria Fontão |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Oliveira, Fabiana Schirato de Zago, Márcia Maria Fontão |
dc.subject.por.fl_str_mv |
Laringectomia Pacientes Família Cuidadores Psicologia Radioterapia Efeitos Adversos Cuidados de Enfermagem Laryngectomy Patients Family Caregivers Psychology Radiotherapy Adverse Effects Nursing Care |
topic |
Laringectomia Pacientes Família Cuidadores Psicologia Radioterapia Efeitos Adversos Cuidados de Enfermagem Laryngectomy Patients Family Caregivers Psychology Radiotherapy Adverse Effects Nursing Care |
description |
The general purpose of this work was to describe the experience of laryngectomized patients and their relatives in dealing with radiotherapy efects. Nine laryngectomees who had been submitted to treatment within the past 12 months and seven relatives took part in the study. Data were collected from September 2001 to April 2002, and the collection was guided by a questionnaire with open and closed questions. Data were analyzed according to the frequency of the issues. Results showed that the most frequent and worst reactions to treatment were skin burns and assailment of the oropharynx. Some of the actions used to minimize them stemmed from cultural beliefs regarding treatment. The feelings about the treatment were fear, disbelief, indifference and of a traumatic experience. The relatives' difficulties in dealing with the experience were related to the increase in the caregivers' responsibilities, the lack of information for provision of support, the concern and discouragement about the patient's situation. The radiotherapy experience showed it to be a process that increases patients' suffering and that the information provided was insufficient, which led to inadequate actions. |
publishDate |
2003 |
dc.date.none.fl_str_mv |
2003-03-31 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigos, Avaliado pelos pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/2119 10.32635/2176-9745.RBC.2003v49n1.2119 |
url |
https://rbc.inca.gov.br/index.php/revista/article/view/2119 |
identifier_str_mv |
10.32635/2176-9745.RBC.2003v49n1.2119 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/2119/1314 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
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application/pdf |
dc.publisher.none.fl_str_mv |
INCA |
publisher.none.fl_str_mv |
INCA |
dc.source.none.fl_str_mv |
Revista Brasileira de Cancerologia; Vol. 49 No. 1 (2003): Jan./Feb./Mar; 17-25 Revista Brasileira de Cancerologia; Vol. 49 Núm. 1 (2003): ene./feb./mar.; 17-25 Revista Brasileira de Cancerologia; v. 49 n. 1 (2003): jan./fev./mar.; 17-25 2176-9745 reponame:Revista Brasileira de Cancerologia (Online) instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) instacron:INCA |
instname_str |
Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
instacron_str |
INCA |
institution |
INCA |
reponame_str |
Revista Brasileira de Cancerologia (Online) |
collection |
Revista Brasileira de Cancerologia (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
repository.mail.fl_str_mv |
rbc@inca.gov.br |
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1797042249518809088 |