Cohort Study Good Practices: Design Guidelines for a Preparatory Stage

Detalhes bibliográficos
Autor(a) principal: Marques, Daniela Sofia Faria
Data de Publicação: 2023
Tipo de documento: Dissertação
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.8/8669
Resumo: health literacy is recognized as one of the most important predictors of poor health outcomes, with a stronger effect than age, race, income, employment status or education level. In Leiria's county, it is speculated that an appreciable part of the population’s morbidity and poor health habits might be attributable to low health literacy. However, no formal studies were conducted to explore this hypothesis. To address it, institutions in Leiria such as the City Hall, Polytechnic of Leiria and ACES Pinhal Litoral decided to conduct a longitudinal and prospective cohort study, where a sample of the population is followed throughout time to understand if their choices regarding health and lifestyle habits are indeed affected by their health literacy levels. The choice for a cohort study is associated with the ongoing process of "improving literacy", bringing out the interest to know about people’s health literacy currently, and in a future time (10 years). Also, the institutions involved are planning to study, gather more information, and to apply some interventions that aim to improve health literacy, being this type of study the most suitable since it allows them to see if those interventions are having the desired effect (improvement of population’s health literacy). Focused on the preparatory part of this cohort study, this project aims to improve the communication effectiveness between these parts in the county of Leiria, interviewers and population, to avoid common cohort problems, such as: 1) gathering a suitable number of participants that can represent the population; 2) follow-up maintenance of participants; 3) keeping the interviewers and participants engaged with the study, after the first contact. The first step of this project is the development and creation of a distinctive brand, whose identity can be maintained throughout all its communication and dissemination media, so that the population can identify, the cohort study to which it refers and awaken their curiosity to participate.
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spelling Cohort Study Good Practices: Design Guidelines for a Preparatory StageCohort StudyGuidelinesGood PracticesCapacitationService DesignParticipatory DesignDomínio/Área Científica::Humanidades::Arteshealth literacy is recognized as one of the most important predictors of poor health outcomes, with a stronger effect than age, race, income, employment status or education level. In Leiria's county, it is speculated that an appreciable part of the population’s morbidity and poor health habits might be attributable to low health literacy. However, no formal studies were conducted to explore this hypothesis. To address it, institutions in Leiria such as the City Hall, Polytechnic of Leiria and ACES Pinhal Litoral decided to conduct a longitudinal and prospective cohort study, where a sample of the population is followed throughout time to understand if their choices regarding health and lifestyle habits are indeed affected by their health literacy levels. The choice for a cohort study is associated with the ongoing process of "improving literacy", bringing out the interest to know about people’s health literacy currently, and in a future time (10 years). Also, the institutions involved are planning to study, gather more information, and to apply some interventions that aim to improve health literacy, being this type of study the most suitable since it allows them to see if those interventions are having the desired effect (improvement of population’s health literacy). Focused on the preparatory part of this cohort study, this project aims to improve the communication effectiveness between these parts in the county of Leiria, interviewers and population, to avoid common cohort problems, such as: 1) gathering a suitable number of participants that can represent the population; 2) follow-up maintenance of participants; 3) keeping the interviewers and participants engaged with the study, after the first contact. The first step of this project is the development and creation of a distinctive brand, whose identity can be maintained throughout all its communication and dissemination media, so that the population can identify, the cohort study to which it refers and awaken their curiosity to participate.Towards addressing the cohort studies problems, mentioned above, capacitation processes were applied, oriented by Service Design and Participatory Design methodologies, such as, informal interviews and user group definition, that helped in the comprehension of the study and also allowed the creation of personas to characterize the interviewers of the cohort study and the population. This supported the formation of archetypes that were studied on how different communication techniques and strategies work. To complement, workshops were conducted to understand how the chosen interviewers interact, preparing them to adapt their communication when facing people from different generations, education, and social backgrounds. By carrying out this project simultaneously with the cohort study, it’s possible to evaluate, over time, how the design methodologies can empower and facilitate communication and intervene, changing tactics in case it’s needed. Additionally, since there’s a lack of information about the way the preparatory phase of cohort studies is designed, it was also envisaged the creation of guidelines that can be replicated in future cohort studies that can take place in other communities, cities, or even other countries.Santiago, Eliana Isabel Saraiva Pereira dos PenedosSantos, Estêvão Soares dosIC-OnlineMarques, Daniela Sofia Faria2023-07-13T09:10:04Z2023-07-112023-07-11T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisapplication/pdfhttp://hdl.handle.net/10400.8/8669TID:203329791enginfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-01-17T15:57:52Zoai:iconline.ipleiria.pt:10400.8/8669Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T01:51:20.739777Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Cohort Study Good Practices: Design Guidelines for a Preparatory Stage
title Cohort Study Good Practices: Design Guidelines for a Preparatory Stage
spellingShingle Cohort Study Good Practices: Design Guidelines for a Preparatory Stage
Marques, Daniela Sofia Faria
Cohort Study
Guidelines
Good Practices
Capacitation
Service Design
Participatory Design
Domínio/Área Científica::Humanidades::Artes
title_short Cohort Study Good Practices: Design Guidelines for a Preparatory Stage
title_full Cohort Study Good Practices: Design Guidelines for a Preparatory Stage
title_fullStr Cohort Study Good Practices: Design Guidelines for a Preparatory Stage
title_full_unstemmed Cohort Study Good Practices: Design Guidelines for a Preparatory Stage
title_sort Cohort Study Good Practices: Design Guidelines for a Preparatory Stage
author Marques, Daniela Sofia Faria
author_facet Marques, Daniela Sofia Faria
author_role author
dc.contributor.none.fl_str_mv Santiago, Eliana Isabel Saraiva Pereira dos Penedos
Santos, Estêvão Soares dos
IC-Online
dc.contributor.author.fl_str_mv Marques, Daniela Sofia Faria
dc.subject.por.fl_str_mv Cohort Study
Guidelines
Good Practices
Capacitation
Service Design
Participatory Design
Domínio/Área Científica::Humanidades::Artes
topic Cohort Study
Guidelines
Good Practices
Capacitation
Service Design
Participatory Design
Domínio/Área Científica::Humanidades::Artes
description health literacy is recognized as one of the most important predictors of poor health outcomes, with a stronger effect than age, race, income, employment status or education level. In Leiria's county, it is speculated that an appreciable part of the population’s morbidity and poor health habits might be attributable to low health literacy. However, no formal studies were conducted to explore this hypothesis. To address it, institutions in Leiria such as the City Hall, Polytechnic of Leiria and ACES Pinhal Litoral decided to conduct a longitudinal and prospective cohort study, where a sample of the population is followed throughout time to understand if their choices regarding health and lifestyle habits are indeed affected by their health literacy levels. The choice for a cohort study is associated with the ongoing process of "improving literacy", bringing out the interest to know about people’s health literacy currently, and in a future time (10 years). Also, the institutions involved are planning to study, gather more information, and to apply some interventions that aim to improve health literacy, being this type of study the most suitable since it allows them to see if those interventions are having the desired effect (improvement of population’s health literacy). Focused on the preparatory part of this cohort study, this project aims to improve the communication effectiveness between these parts in the county of Leiria, interviewers and population, to avoid common cohort problems, such as: 1) gathering a suitable number of participants that can represent the population; 2) follow-up maintenance of participants; 3) keeping the interviewers and participants engaged with the study, after the first contact. The first step of this project is the development and creation of a distinctive brand, whose identity can be maintained throughout all its communication and dissemination media, so that the population can identify, the cohort study to which it refers and awaken their curiosity to participate.
publishDate 2023
dc.date.none.fl_str_mv 2023-07-13T09:10:04Z
2023-07-11
2023-07-11T00:00:00Z
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