Good practice recommendations for information provision for those involved in reproductive donation

Detalhes bibliográficos
Autor(a) principal: Kirkman-Brown, Jackson
Data de Publicação: 2022
Outros Autores: Calhaz-Jorge, Carlos, Dancet, Eline A F, Lundin, Kersti, Martins, Mariana, Tilleman, Kelly, Thorn, Petra, Vermeulen, Nathalie, Frith, Lucy
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/51502
Resumo: © The Author(s) 2022. Published by Oxford University Press on behalf of European Society of Human Reproduction and Embryology. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
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spelling Good practice recommendations for information provision for those involved in reproductive donationCounsellingDirect-to-consumer genetic testingDisclosureDonor-conceptionGamete sharingInformationOocyte/egg donationSperm donation© The Author(s) 2022. Published by Oxford University Press on behalf of European Society of Human Reproduction and Embryology. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.comStudy question: What information and support should be offered to donors, intended parents and donor-conceived people, in general and in consideration of the availability of direct-to-consumer genetic testing and matching services? Summary answer: For donors, intended parents and donor-conceived offspring, recommendations are made that cover information needs and informed consent, psychosocial implications and disclosure. What is known already: Trends indicate that the use of donor-assisted conception is growing and guidance is needed to help these recipients/intended parents, the donors and offspring, navigate the rapidly changing environment in which donor-assisted conception takes place. Study design size duration: A working group (WG) collaborated on writing recommendations based, where available, on evidence collected from a literature search and expert opinion. Draft recommendations were published for stakeholder review and adapted where relevant based on the comments received. Participants/materials setting methods: Papers retrieved from PUBMED were included from 1 January 2014 up to 31 August 2020, focusing on studies published since direct-to-consumer genetic testing has become more widespread and accessible. The current paper is limited to reproductive donation performed in medically assisted reproduction (MAR) centres (and gamete banks): donation outside the medical context was not considered. Main results and the role of chance: In total, 32 recommendations were made for information provision and support to donors, 32 for intended parents and 27 for donor-conceived offspring requesting information/support. Limitations reasons for caution: The available evidence in the area of reproductive donation is limited and diverse with regards to the context and types of donation. General conclusions and recommendations are largely based on expert opinion and may need to be adapted in light of future research. Wider implications of the findings: These recommendations provide guidance to MAR centres and gamete banks on good practice in information provision and support but should also be considered by regulatory bodies and policymakers at a national and international level to guide regulatory and legislative efforts towards the protection of donors and donor-conceived offspring. Study funding/competing interests: The development of this good practice paper was funded by European Society of Human Reproduction and Embryology (ESHRE), covering expenses associated with the WG meetings, the literature searches and dissemination. The WG members did not receive any payment. The authors have no conflicts of interest to declare. Disclaimer: This document represents the views of ESHRE, which are the result of consensus between the relevant ESHRE stakeholders and where relevant based on the scientific evidence available at the time of preparation. The recommendations should be used for informational and educational purposes. They should not be interpreted as setting a standard of care, or be deemed inclusive of all proper methods of care nor exclusive of other methods of care reasonably directed to obtaining the same results. They do not replace the need for application of clinical judgement to each individual presentation, nor variations based on locality and facility type. †ESHRE pages content is not externally peer reviewed. The manuscript has been approved by the Executive Committee of ESHRE.Oxford University PressRepositório da Universidade de LisboaKirkman-Brown, JacksonCalhaz-Jorge, CarlosDancet, Eline A FLundin, KerstiMartins, MarianaTilleman, KellyThorn, PetraVermeulen, NathalieFrith, Lucy2022-02-24T16:51:11Z20222022-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/51502engHum Reprod Open. 2022 Feb 16;2022(1):hoac00110.1093/hropen/hoac0012399-3529info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:56:15Zoai:repositorio.ul.pt:10451/51502Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:02:47.519310Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Good practice recommendations for information provision for those involved in reproductive donation
title Good practice recommendations for information provision for those involved in reproductive donation
spellingShingle Good practice recommendations for information provision for those involved in reproductive donation
Kirkman-Brown, Jackson
Counselling
Direct-to-consumer genetic testing
Disclosure
Donor-conception
Gamete sharing
Information
Oocyte/egg donation
Sperm donation
title_short Good practice recommendations for information provision for those involved in reproductive donation
title_full Good practice recommendations for information provision for those involved in reproductive donation
title_fullStr Good practice recommendations for information provision for those involved in reproductive donation
title_full_unstemmed Good practice recommendations for information provision for those involved in reproductive donation
title_sort Good practice recommendations for information provision for those involved in reproductive donation
author Kirkman-Brown, Jackson
author_facet Kirkman-Brown, Jackson
Calhaz-Jorge, Carlos
Dancet, Eline A F
Lundin, Kersti
Martins, Mariana
Tilleman, Kelly
Thorn, Petra
Vermeulen, Nathalie
Frith, Lucy
author_role author
author2 Calhaz-Jorge, Carlos
Dancet, Eline A F
Lundin, Kersti
Martins, Mariana
Tilleman, Kelly
Thorn, Petra
Vermeulen, Nathalie
Frith, Lucy
author2_role author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Kirkman-Brown, Jackson
Calhaz-Jorge, Carlos
Dancet, Eline A F
Lundin, Kersti
Martins, Mariana
Tilleman, Kelly
Thorn, Petra
Vermeulen, Nathalie
Frith, Lucy
dc.subject.por.fl_str_mv Counselling
Direct-to-consumer genetic testing
Disclosure
Donor-conception
Gamete sharing
Information
Oocyte/egg donation
Sperm donation
topic Counselling
Direct-to-consumer genetic testing
Disclosure
Donor-conception
Gamete sharing
Information
Oocyte/egg donation
Sperm donation
description © The Author(s) 2022. Published by Oxford University Press on behalf of European Society of Human Reproduction and Embryology. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
publishDate 2022
dc.date.none.fl_str_mv 2022-02-24T16:51:11Z
2022
2022-01-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
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dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/51502
url http://hdl.handle.net/10451/51502
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Hum Reprod Open. 2022 Feb 16;2022(1):hoac001
10.1093/hropen/hoac001
2399-3529
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dc.publisher.none.fl_str_mv Oxford University Press
publisher.none.fl_str_mv Oxford University Press
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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