Enfrentamento e resiliência de cuidadores informais de idosos com demência
Autor(a) principal: | |
---|---|
Data de Publicação: | 2021 |
Tipo de documento: | Tese |
Idioma: | por |
Título da fonte: | Repositório Institucional da UFSCAR |
Texto Completo: | https://repositorio.ufscar.br/handle/ufscar/14179 |
Resumo: | Knowing and recognizing positive aspects, which can assist in understanding the best adaptation to the role of caregiver, is an important gerontological investigation path, in a scenario where care for the elderly with dementia becomes a serious public health problem. The main objectives of this study were: to analyze the factors related to resilience and coping in caregivers of elderly people with dementia; compare these variables with a group of non-caregivers; and reevaluate them over a period of one year. This is a longitudinal and exploratory study, with quantitative analyzes. The research was carried out in the coverage area of 19 Family Heath Units in the urban area of the city of São Carlos-SP, with two groups: the first, formed by informal caregivers of elderly people with dementia (n=70) and the second, formed by non-caregivers, matched by sex, age and education (n=70). The instruments used for data collection with the research participants were: questionnaire of sociodemographic and health characterization, Zarit Overload Scale (ZOS), Perceived Stress Scale (PSS), Addenbrooke’s Cognitive Examination – Revised (ACE-R), Coping Strategies Inventory (CSI) an Resilience Scale (RS). The evaluations were previously scheduled and carried out on the participants’ homes. The data were analyzed using descriptive comparative statistics and regression. The results showed: (a) A strong negative correlation between RS and PSS (rho= -0.78; p<0.01) and ZOS (rho= -0.79; p<0.01). (b) The score obtained in the CSI also showed a strong and inversely proportional relationship with the score obtained in the PSS (rho= -0.85; p<0.01) and with the score obtained in the ZOS (rho= -0.86; p<0.01). (c) In the multiple regression model using the RS, the variables overload and stress presented negative coefficients (-0.816 and -1.554, respectively), indicating that when we add a unit on the ZOS or on the PSS, we have a decrease in the variable Resilience. (d) In the multiple regression model using the CSI, the stress variables and the attention and orientation domains of the ACE-R showed negative coefficients (-1.027 and -1.056, respectively), indicating that when adding a unit on the PSS or on the ACE-R attention and orientation, we have a decrease in the Coping variable. (e) The participant’s chance of being a caregiver decreases by 3.7% (OR=0.963) when increasing a unit in the RS and increases by 13.1% (OR=1.131) when increasing a unit in the CSI. That is, the greater the resilience, the lower the chances of being a caregiver. And the grater the coping strategies, the greater the chances of being a caregiver. (f) Caregivers’ perceived stress decreased over time (p=0.039). Therefore, for this sample of participants, the length of care had a positive influence on the care experience, confirming the study hypothesis. |
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Santos, Bruna Rodrigues dosPavarini, Sofia Cristina Iosthttp://lattes.cnpq.br/1983620301963081http://lattes.cnpq.br/221809221785042515d5602a-8575-4e6c-bf6f-cc35ff1926d02021-04-27T11:41:20Z2021-04-27T11:41:20Z2021-02-23SANTOS, Bruna Rodrigues dos. Enfrentamento e resiliência de cuidadores informais de idosos com demência. 2021. Tese (Doutorado em Enfermagem) – Universidade Federal de São Carlos, São Carlos, 2021. Disponível em: https://repositorio.ufscar.br/handle/ufscar/14179.https://repositorio.ufscar.br/handle/ufscar/14179Knowing and recognizing positive aspects, which can assist in understanding the best adaptation to the role of caregiver, is an important gerontological investigation path, in a scenario where care for the elderly with dementia becomes a serious public health problem. The main objectives of this study were: to analyze the factors related to resilience and coping in caregivers of elderly people with dementia; compare these variables with a group of non-caregivers; and reevaluate them over a period of one year. This is a longitudinal and exploratory study, with quantitative analyzes. The research was carried out in the coverage area of 19 Family Heath Units in the urban area of the city of São Carlos-SP, with two groups: the first, formed by informal caregivers of elderly people with dementia (n=70) and the second, formed by non-caregivers, matched by sex, age and education (n=70). The instruments used for data collection with the research participants were: questionnaire of sociodemographic and health characterization, Zarit Overload Scale (ZOS), Perceived Stress Scale (PSS), Addenbrooke’s Cognitive Examination – Revised (ACE-R), Coping Strategies Inventory (CSI) an Resilience Scale (RS). The evaluations were previously scheduled and carried out on the participants’ homes. The data were analyzed using descriptive comparative statistics and regression. The results showed: (a) A strong negative correlation between RS and PSS (rho= -0.78; p<0.01) and ZOS (rho= -0.79; p<0.01). (b) The score obtained in the CSI also showed a strong and inversely proportional relationship with the score obtained in the PSS (rho= -0.85; p<0.01) and with the score obtained in the ZOS (rho= -0.86; p<0.01). (c) In the multiple regression model using the RS, the variables overload and stress presented negative coefficients (-0.816 and -1.554, respectively), indicating that when we add a unit on the ZOS or on the PSS, we have a decrease in the variable Resilience. (d) In the multiple regression model using the CSI, the stress variables and the attention and orientation domains of the ACE-R showed negative coefficients (-1.027 and -1.056, respectively), indicating that when adding a unit on the PSS or on the ACE-R attention and orientation, we have a decrease in the Coping variable. (e) The participant’s chance of being a caregiver decreases by 3.7% (OR=0.963) when increasing a unit in the RS and increases by 13.1% (OR=1.131) when increasing a unit in the CSI. That is, the greater the resilience, the lower the chances of being a caregiver. And the grater the coping strategies, the greater the chances of being a caregiver. (f) Caregivers’ perceived stress decreased over time (p=0.039). Therefore, for this sample of participants, the length of care had a positive influence on the care experience, confirming the study hypothesis.Conhecer e reconhecer aspectos positivos, que possam auxiliar na compreensão da melhor adaptação para o papel de cuidador é um caminho de investigação gerontológica importante, em um cenário em que o cuidado ao idoso com demência se torna um grave problema de saúde pública. Os objetivos principais deste estudo foram: analisar os fatores relacionados à resiliência e ao enfrentamento em cuidadores de idosos com demência; comparar essas variáveis com um grupo de não cuidadores; e reavaliá-las em um período de um ano. Trata-se de um estudo longitudinal e exploratório, com análises quantitativas. A pesquisa foi realizada na área de abrangência de 19 Unidades de Saúde da Família da área urbana do município de São Carlos-SP, com dois grupos: o primeiro, formado por cuidadores informais de idosos com demência (n=70) e o segundo, formado por não cuidadores, pareados por sexo, idade e escolaridade (n=70). Os instrumentos utilizados para coleta de dados com os participantes da pesquisa foram: questionário de caracterização sociodemográfica e de saúde, Escala de Sobrecarga de Zarit (ESZ), Escala de Estresse Percebido (EEP), Addenbrooke’s Cognitive Examination – Revised (ACE-R), Inventário de Estratégias de Enfrentamento (IEE) e Escala de Resiliência (ER). As avaliações foram previamente agendadas e realizadas no domícilio dos participantes. Os dados foram analisados por meio de estatística descritiva, comparativa e regressão. Os resultados mostraram: (a) Uma forte correlação negativa entre a ER e a EEP (rho= -0,78; p<0,01) e a ESZ (rho= -0,79; p<0,01). (b) A pontuação obtida no IEE também apresentou relação forte e inversamente proporcional com a pontuação obtida na EEP (rho= -0,85, p<0,01) e com a pontuação obtida na ESZ (rho= -0,86, p<0,01). (c) No modelo de regressão múltipla utilizando a ER, as variáveis sobrecarga e estresse apresentaram coeficientes negativos (-0,816 e -1,554, respectivamente), indicando que ao acrescentarmos uma unidade sobre a ESZ ou sobre a EEP, temos uma diminuição na variável Resiliência. (d) No modelo de regressão múltipla utilizando o IEE, as variáveis estresse e os domínios de atenção e orientação do ACE-R apresentaram coeficientes negativos (-1,027 e -1,056, respectivamente), indicando que ao acrescentarmos uma unidade sobre a EEP ou sobre o ACE-R atenção e orientação, temos uma diminuição na variável Enfrentamento. (e) A chance do participante ser cuidador diminui em 3,7% (OR=0,963) ao aumentar uma unidade na ER e aumenta em 13,1% (OR=1,131) ao aumentar uma unidade no IEE. Ou seja, quanto maior a resiliência, menor são as chances de ser cuidador. E quanto maior as estratégias de enfrentamento, maior são as chances de ser cuidador. (f) O estresse percebido dos cuidadores diminuiu ao longo do tempo (p=0,039). Portanto, para esta amostra de participantes, o tempo de cuidado teve influência positiva na experiência de cuidar, confirmando a hipótese estudo.Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES)CAPES: código de financiamento - 001porUniversidade Federal de São CarlosCâmpus São CarlosPrograma de Pós-Graduação em Enfermagem - PPGEnfUFSCarAttribution-NonCommercial-NoDerivs 3.0 Brazilhttp://creativecommons.org/licenses/by-nc-nd/3.0/br/info:eu-repo/semantics/openAccessCuidadoresIdosoDemênciaEnfrentamentoResiliência psicológicaCaregiversAgedDementiaCopingPsychological resilienceCIENCIAS DA SAUDE::ENFERMAGEM::ENFERMAGEM DE SAUDE PUBLICAEnfrentamento e resiliência de cuidadores informais de idosos com demênciaCoping and resilience of informal carers of elderly with dementiainfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesis60060071880179-0ac7-4645-bc58-acd14aed23fereponame:Repositório Institucional da UFSCARinstname:Universidade Federal de São Carlos (UFSCAR)instacron:UFSCARORIGINALTese - Bruna Rodrigues dos Santos.pdfTese - Bruna Rodrigues dos Santos.pdfTese - Bruna Rodrigues dos Santosapplication/pdf5333217https://repositorio.ufscar.br/bitstream/ufscar/14179/4/Tese%20-%20Bruna%20Rodrigues%20dos%20Santos.pdf8b3675e14722248b86cd5c80754e2fc4MD54Carta comprovante assinada.pdfCarta comprovante assinada.pdfCarta comprovanteapplication/pdf1063722https://repositorio.ufscar.br/bitstream/ufscar/14179/3/Carta%20comprovante%20assinada.pdf6039592ba1bba16013226ed52b516e17MD53CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-8811https://repositorio.ufscar.br/bitstream/ufscar/14179/5/license_rdfe39d27027a6cc9cb039ad269a5db8e34MD55TEXTTese - Bruna Rodrigues dos Santos.pdf.txtTese - Bruna Rodrigues dos Santos.pdf.txtExtracted texttext/plain193558https://repositorio.ufscar.br/bitstream/ufscar/14179/6/Tese%20-%20Bruna%20Rodrigues%20dos%20Santos.pdf.txtfb128bccbcd46e859c4547d6a0c5ab03MD56Carta comprovante assinada.pdf.txtCarta comprovante assinada.pdf.txtExtracted texttext/plain1https://repositorio.ufscar.br/bitstream/ufscar/14179/8/Carta%20comprovante%20assinada.pdf.txt68b329da9893e34099c7d8ad5cb9c940MD58THUMBNAILTese - Bruna Rodrigues dos Santos.pdf.jpgTese - Bruna Rodrigues dos Santos.pdf.jpgIM Thumbnailimage/jpeg6151https://repositorio.ufscar.br/bitstream/ufscar/14179/7/Tese%20-%20Bruna%20Rodrigues%20dos%20Santos.pdf.jpg07c952d847d178ebf0afd963b1cd680eMD57Carta comprovante assinada.pdf.jpgCarta comprovante assinada.pdf.jpgIM Thumbnailimage/jpeg11465https://repositorio.ufscar.br/bitstream/ufscar/14179/9/Carta%20comprovante%20assinada.pdf.jpg9031633a4c396196db17caa54f7a2a12MD59ufscar/141792023-09-18 18:32:09.798oai:repositorio.ufscar.br:ufscar/14179Repositório InstitucionalPUBhttps://repositorio.ufscar.br/oai/requestopendoar:43222023-09-18T18:32:09Repositório Institucional da UFSCAR - Universidade Federal de São Carlos (UFSCAR)false |
dc.title.por.fl_str_mv |
Enfrentamento e resiliência de cuidadores informais de idosos com demência |
dc.title.alternative.eng.fl_str_mv |
Coping and resilience of informal carers of elderly with dementia |
title |
Enfrentamento e resiliência de cuidadores informais de idosos com demência |
spellingShingle |
Enfrentamento e resiliência de cuidadores informais de idosos com demência Santos, Bruna Rodrigues dos Cuidadores Idoso Demência Enfrentamento Resiliência psicológica Caregivers Aged Dementia Coping Psychological resilience CIENCIAS DA SAUDE::ENFERMAGEM::ENFERMAGEM DE SAUDE PUBLICA |
title_short |
Enfrentamento e resiliência de cuidadores informais de idosos com demência |
title_full |
Enfrentamento e resiliência de cuidadores informais de idosos com demência |
title_fullStr |
Enfrentamento e resiliência de cuidadores informais de idosos com demência |
title_full_unstemmed |
Enfrentamento e resiliência de cuidadores informais de idosos com demência |
title_sort |
Enfrentamento e resiliência de cuidadores informais de idosos com demência |
author |
Santos, Bruna Rodrigues dos |
author_facet |
Santos, Bruna Rodrigues dos |
author_role |
author |
dc.contributor.authorlattes.por.fl_str_mv |
http://lattes.cnpq.br/2218092217850425 |
dc.contributor.author.fl_str_mv |
Santos, Bruna Rodrigues dos |
dc.contributor.advisor1.fl_str_mv |
Pavarini, Sofia Cristina Iost |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/1983620301963081 |
dc.contributor.authorID.fl_str_mv |
15d5602a-8575-4e6c-bf6f-cc35ff1926d0 |
contributor_str_mv |
Pavarini, Sofia Cristina Iost |
dc.subject.por.fl_str_mv |
Cuidadores Idoso Demência Enfrentamento Resiliência psicológica |
topic |
Cuidadores Idoso Demência Enfrentamento Resiliência psicológica Caregivers Aged Dementia Coping Psychological resilience CIENCIAS DA SAUDE::ENFERMAGEM::ENFERMAGEM DE SAUDE PUBLICA |
dc.subject.eng.fl_str_mv |
Caregivers Aged Dementia Coping Psychological resilience |
dc.subject.cnpq.fl_str_mv |
CIENCIAS DA SAUDE::ENFERMAGEM::ENFERMAGEM DE SAUDE PUBLICA |
description |
Knowing and recognizing positive aspects, which can assist in understanding the best adaptation to the role of caregiver, is an important gerontological investigation path, in a scenario where care for the elderly with dementia becomes a serious public health problem. The main objectives of this study were: to analyze the factors related to resilience and coping in caregivers of elderly people with dementia; compare these variables with a group of non-caregivers; and reevaluate them over a period of one year. This is a longitudinal and exploratory study, with quantitative analyzes. The research was carried out in the coverage area of 19 Family Heath Units in the urban area of the city of São Carlos-SP, with two groups: the first, formed by informal caregivers of elderly people with dementia (n=70) and the second, formed by non-caregivers, matched by sex, age and education (n=70). The instruments used for data collection with the research participants were: questionnaire of sociodemographic and health characterization, Zarit Overload Scale (ZOS), Perceived Stress Scale (PSS), Addenbrooke’s Cognitive Examination – Revised (ACE-R), Coping Strategies Inventory (CSI) an Resilience Scale (RS). The evaluations were previously scheduled and carried out on the participants’ homes. The data were analyzed using descriptive comparative statistics and regression. The results showed: (a) A strong negative correlation between RS and PSS (rho= -0.78; p<0.01) and ZOS (rho= -0.79; p<0.01). (b) The score obtained in the CSI also showed a strong and inversely proportional relationship with the score obtained in the PSS (rho= -0.85; p<0.01) and with the score obtained in the ZOS (rho= -0.86; p<0.01). (c) In the multiple regression model using the RS, the variables overload and stress presented negative coefficients (-0.816 and -1.554, respectively), indicating that when we add a unit on the ZOS or on the PSS, we have a decrease in the variable Resilience. (d) In the multiple regression model using the CSI, the stress variables and the attention and orientation domains of the ACE-R showed negative coefficients (-1.027 and -1.056, respectively), indicating that when adding a unit on the PSS or on the ACE-R attention and orientation, we have a decrease in the Coping variable. (e) The participant’s chance of being a caregiver decreases by 3.7% (OR=0.963) when increasing a unit in the RS and increases by 13.1% (OR=1.131) when increasing a unit in the CSI. That is, the greater the resilience, the lower the chances of being a caregiver. And the grater the coping strategies, the greater the chances of being a caregiver. (f) Caregivers’ perceived stress decreased over time (p=0.039). Therefore, for this sample of participants, the length of care had a positive influence on the care experience, confirming the study hypothesis. |
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2021 |
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2021-04-27T11:41:20Z |
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2021-04-27T11:41:20Z |
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2021-02-23 |
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SANTOS, Bruna Rodrigues dos. Enfrentamento e resiliência de cuidadores informais de idosos com demência. 2021. Tese (Doutorado em Enfermagem) – Universidade Federal de São Carlos, São Carlos, 2021. Disponível em: https://repositorio.ufscar.br/handle/ufscar/14179. |
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https://repositorio.ufscar.br/handle/ufscar/14179 |
identifier_str_mv |
SANTOS, Bruna Rodrigues dos. Enfrentamento e resiliência de cuidadores informais de idosos com demência. 2021. Tese (Doutorado em Enfermagem) – Universidade Federal de São Carlos, São Carlos, 2021. Disponível em: https://repositorio.ufscar.br/handle/ufscar/14179. |
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Attribution-NonCommercial-NoDerivs 3.0 Brazil http://creativecommons.org/licenses/by-nc-nd/3.0/br/ info:eu-repo/semantics/openAccess |
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Attribution-NonCommercial-NoDerivs 3.0 Brazil http://creativecommons.org/licenses/by-nc-nd/3.0/br/ |
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openAccess |
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Universidade Federal de São Carlos Câmpus São Carlos |
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Programa de Pós-Graduação em Enfermagem - PPGEnf |
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UFSCar |
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Universidade Federal de São Carlos Câmpus São Carlos |
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