INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES

Detalhes bibliográficos
Autor(a) principal: Oliveira, Fabiana Aparecida de Melo
Data de Publicação: 2022
Outros Autores: Carvalho, Maria de Fátima
Tipo de documento: preprint
Idioma: por
Título da fonte: SciELO Preprints
Texto Completo: https://preprints.scielo.org/index.php/scielo/preprint/view/4839
Resumo: This article addresses challenges experienced with a child with a chronic disease in the process of school inclusion. It analyzes data built during the immersion in the daily life of a public school of early childhood education, an institution where a 5-year-old girl with a muscular dystrophy diagnosis and a physical disability is found. Its theoretical-methodological contribution is Vygotsky's cultural-historical psychology and his contributions to the studies of child development and the education of children with disabilities. Data were constructed from participant observation, elaboration of a field diary and semi-structured interviews. The investigation emphasizes the ideas of social development, mediation and experience, as well as the impact of architectural and locomotion barriers on the school community, seeking to highlight effective possibilities for this child's participation in the school environment. In this sense, it reveals the contradictions that constitute the process of inclusion in its development, emphasizing the role of the child and the school community in the search for strategies to overcome everyday challenges.
id SCI-1_625c9216bcef96f81695e71817157aa5
oai_identifier_str oai:ops.preprints.scielo.org:preprint/4839
network_acronym_str SCI-1
network_name_str SciELO Preprints
repository_id_str
spelling INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIESINCLUSIÓN DE UNA NIÑA CON DISTROFIA MUSCULAR CONGÉNITA EN LA EDUCACIÓN INFANTIL: DESAFÍOS Y ESTRATEGIASINCLUSÃO DE CRIANÇA COM DISTROFIA MUSCULAR CONGÊNITA NA EDUCAÇÃO INFANTIL: DESAFIOS E ESTRATÉGIASPsicologia histórico-culturaleducação infantil e inclusivadistrofia muscularacessibilidadecriançaHistorical-Cultural psychologyinclusive preschool educationmuscular dystrophyaccessibilitychildPsicología histórico culturaleducación infantil e inclusivadistrofia muscularaccesibilidadniñoThis article addresses challenges experienced with a child with a chronic disease in the process of school inclusion. It analyzes data built during the immersion in the daily life of a public school of early childhood education, an institution where a 5-year-old girl with a muscular dystrophy diagnosis and a physical disability is found. Its theoretical-methodological contribution is Vygotsky's cultural-historical psychology and his contributions to the studies of child development and the education of children with disabilities. Data were constructed from participant observation, elaboration of a field diary and semi-structured interviews. The investigation emphasizes the ideas of social development, mediation and experience, as well as the impact of architectural and locomotion barriers on the school community, seeking to highlight effective possibilities for this child's participation in the school environment. In this sense, it reveals the contradictions that constitute the process of inclusion in its development, emphasizing the role of the child and the school community in the search for strategies to overcome everyday challenges.Este artículo aborda desafíos enfrentados junto a una niña con enfermedad crónica en el proceso de inclusión escolar. Se analizan datos colectados en una escuela pública de educación infantil, institución donde se encuentra Leila, una niña de 5 años diagnosticada con distrofia muscular congénita y con discapacid física. La discusión tiene como base teórico-metodológica la psicología histórico-cultural de Vygotsky e sus aportes a los estudios del desarrollo infantil y a la educación de las personas con discapacidad. Los datos analizados fueron construidos a partir de la observación participante, elaboración de un diario de campo y entrevistas semi-estructuradas. La investigación enfatiza las ideas de desarrollo social y mediación, así como discute el impacto de las barreras arquitectónicas y de locomoción en la escuela. En la situación analizada, son explicitadas las contradicciones constitutivas del proceso de inclusión en su desarrollo, enfatizando el papel de la niña y de comunidad escolar en la búsqueda de superación de los desafíos por medio de una serie de estrategias construidas conjuntamente.Este artigo aborda os desafios vivenciados junto a uma criança com doença crônica em processo de inclusão escolar. Os dados foram construídos durante a educação infantil infantil no cotidiano de uma escola, instituição que se encontra uma menina de 5 anos com diagnóstico de criança de educação física e muscular. Tem como aporte teórico-metodológico a psicologia-cultural de Vigotski e suas contribuições aos estudos do desenvolvimento da criança e da educação histórica com deficiência. Os dados foram construídos a partir de observação participante, elaboração de diário de campo e entrevistas semiestruturadas. A investigação ressalta as ideias de desenvolvimento social, mediação e vivência, bem como o impacto de barreiras arquitetônicas e de locomoção sobre a comunidade escolar, buscando colocar em possibilidades de participação dessa criança na ambiência escolar. Nesse sentido, explicita as contradições constitutivas do processo de inclusão em seu desenvolvimento, ressaltando o papel da criança e da comunidade escolar na busca de estratégias para superação dos desafios cotidianos.SciELO PreprintsSciELO PreprintsSciELO Preprints2022-10-20info:eu-repo/semantics/preprintinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://preprints.scielo.org/index.php/scielo/preprint/view/483910.1590/SciELOPreprints.4839porhttps://preprints.scielo.org/index.php/scielo/article/view/4839/9386Copyright (c) 2022 Fabiana Aparecida de Melo Oliveira, Maria de Fátima Carvalhohttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessOliveira, Fabiana Aparecida de MeloCarvalho, Maria de Fátimareponame:SciELO Preprintsinstname:SciELOinstacron:SCI2022-10-10T19:27:14Zoai:ops.preprints.scielo.org:preprint/4839Servidor de preprintshttps://preprints.scielo.org/index.php/scieloONGhttps://preprints.scielo.org/index.php/scielo/oaiscielo.submission@scielo.orgopendoar:2022-10-10T19:27:14SciELO Preprints - SciELOfalse
dc.title.none.fl_str_mv INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES
INCLUSIÓN DE UNA NIÑA CON DISTROFIA MUSCULAR CONGÉNITA EN LA EDUCACIÓN INFANTIL: DESAFÍOS Y ESTRATEGIAS
INCLUSÃO DE CRIANÇA COM DISTROFIA MUSCULAR CONGÊNITA NA EDUCAÇÃO INFANTIL: DESAFIOS E ESTRATÉGIAS
title INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES
spellingShingle INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES
Oliveira, Fabiana Aparecida de Melo
Psicologia histórico-cultural
educação infantil e inclusiva
distrofia muscular
acessibilidade
criança
Historical-Cultural psychology
inclusive preschool education
muscular dystrophy
accessibility
child
Psicología histórico cultural
educación infantil e inclusiva
distrofia muscular
accesibilidad
niño
title_short INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES
title_full INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES
title_fullStr INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES
title_full_unstemmed INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES
title_sort INCLUSION OF CHILD WITH CONGENITAL MUSCULAR DYSTROPHY IN PRESCHOOL EDUCATION: CHALLENGES AND ESTRATEGIES
author Oliveira, Fabiana Aparecida de Melo
author_facet Oliveira, Fabiana Aparecida de Melo
Carvalho, Maria de Fátima
author_role author
author2 Carvalho, Maria de Fátima
author2_role author
dc.contributor.author.fl_str_mv Oliveira, Fabiana Aparecida de Melo
Carvalho, Maria de Fátima
dc.subject.por.fl_str_mv Psicologia histórico-cultural
educação infantil e inclusiva
distrofia muscular
acessibilidade
criança
Historical-Cultural psychology
inclusive preschool education
muscular dystrophy
accessibility
child
Psicología histórico cultural
educación infantil e inclusiva
distrofia muscular
accesibilidad
niño
topic Psicologia histórico-cultural
educação infantil e inclusiva
distrofia muscular
acessibilidade
criança
Historical-Cultural psychology
inclusive preschool education
muscular dystrophy
accessibility
child
Psicología histórico cultural
educación infantil e inclusiva
distrofia muscular
accesibilidad
niño
description This article addresses challenges experienced with a child with a chronic disease in the process of school inclusion. It analyzes data built during the immersion in the daily life of a public school of early childhood education, an institution where a 5-year-old girl with a muscular dystrophy diagnosis and a physical disability is found. Its theoretical-methodological contribution is Vygotsky's cultural-historical psychology and his contributions to the studies of child development and the education of children with disabilities. Data were constructed from participant observation, elaboration of a field diary and semi-structured interviews. The investigation emphasizes the ideas of social development, mediation and experience, as well as the impact of architectural and locomotion barriers on the school community, seeking to highlight effective possibilities for this child's participation in the school environment. In this sense, it reveals the contradictions that constitute the process of inclusion in its development, emphasizing the role of the child and the school community in the search for strategies to overcome everyday challenges.
publishDate 2022
dc.date.none.fl_str_mv 2022-10-20
dc.type.driver.fl_str_mv info:eu-repo/semantics/preprint
info:eu-repo/semantics/publishedVersion
format preprint
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://preprints.scielo.org/index.php/scielo/preprint/view/4839
10.1590/SciELOPreprints.4839
url https://preprints.scielo.org/index.php/scielo/preprint/view/4839
identifier_str_mv 10.1590/SciELOPreprints.4839
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://preprints.scielo.org/index.php/scielo/article/view/4839/9386
dc.rights.driver.fl_str_mv Copyright (c) 2022 Fabiana Aparecida de Melo Oliveira, Maria de Fátima Carvalho
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2022 Fabiana Aparecida de Melo Oliveira, Maria de Fátima Carvalho
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv SciELO Preprints
SciELO Preprints
SciELO Preprints
publisher.none.fl_str_mv SciELO Preprints
SciELO Preprints
SciELO Preprints
dc.source.none.fl_str_mv reponame:SciELO Preprints
instname:SciELO
instacron:SCI
instname_str SciELO
instacron_str SCI
institution SCI
reponame_str SciELO Preprints
collection SciELO Preprints
repository.name.fl_str_mv SciELO Preprints - SciELO
repository.mail.fl_str_mv scielo.submission@scielo.org
_version_ 1797047830403088384