Family coping in caring for children with Down syndrome: a scoping review

• Autor(a) principal: Souza, Meriele Sabrina de
• Data de Publicação: 2024
• Outros Autores: Romano, Márcia Christina Caetano, Oliveira, Patrícia Peres de, Duarte , Elysângela Dittz, Braga, Patrícia Pinto
• Tipo de documento: Artigo
• Idioma: por; eng
• Título da fonte: Rev Rene (Online)
• Texto Completo: http://periodicos.ufc.br/rene/article/view/92092
• topic: Criança; Síndrome de Down; Adaptação Psicológica; Família; Enfermagem Pediátrica.; Child; Down Syndrome; Adaptation, Psychological; Family; Pediatric Nursing.

Objective: to map the coping strategies that contribute to family care for children with Down syndrome. Methods: scoping review, using the JBI method.  Six electronic databases and a virtual library were consulted with the support of the Rayyan platform. The criteria for eligibility were studies available and published in full, which addressed coping strategies in family care for children with Down syndrome. Data analysis was of the narrative type. Results: 381 records were retrieved and 14 remained in this review. Six coping styles were identified: managing emotions, decision-making, acquiring knowledge about Down's syndrome and situations involving it, seeking support, communicating within the family and with professionals, and practicing spirituality. Conclusion: in order to balance the demands presented by the children and the resources available, family members need to adopt cognitive and behavioral strategies to deal with the adversities of caring for a child with Down syndrome. Contributions to practice: the study presents evidence to guide nurses and other health professionals to help families use different ways of coping with the stressful events they experience.