Experience of mothers after the diagnosis of congenital malformation and the expectations of care
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Rev Rene (Online) |
Texto Completo: | http://periodicos.ufc.br/rene/article/view/78408 |
Resumo: | Objective: to understand the experience of mothers after the diagnosis of congenital malformation and the expectations of care from the health and social network. Methods: qualitative research based on Social Phenomenology, with the participation of six mothers living in border towns, by means of semi-structured interviews. Results: the reports brought information about the diagnosis of congenital malformation, the experience of pregnancy, becoming a mother of a child with malformation and the expectations of health and social care. Conclusion: the social group studied experienced the diagnosis of malformation with suffering, emotional repercussions and changes in their daily lives. Contributions to practice: communication by the health team contributes to understanding and facing the malformation. The importance of the family and social network support was highlighted. It is necessary to develop professional skills related to communication and to make more investments in training and working conditions that allow more time for the care of this public. |
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Experience of mothers after the diagnosis of congenital malformation and the expectations of careExperiência de mães após o diagnóstico de malformação congênita e as expectativas de cuidadoMaternal and Child Health; Fetal Diseases; Perinatal Care; Qualitative Research.Saúde Materno-Infantil; Doenças Fetais; Assistência Perinatal; Pesquisa Qualitativa.Objective: to understand the experience of mothers after the diagnosis of congenital malformation and the expectations of care from the health and social network. Methods: qualitative research based on Social Phenomenology, with the participation of six mothers living in border towns, by means of semi-structured interviews. Results: the reports brought information about the diagnosis of congenital malformation, the experience of pregnancy, becoming a mother of a child with malformation and the expectations of health and social care. Conclusion: the social group studied experienced the diagnosis of malformation with suffering, emotional repercussions and changes in their daily lives. Contributions to practice: communication by the health team contributes to understanding and facing the malformation. The importance of the family and social network support was highlighted. It is necessary to develop professional skills related to communication and to make more investments in training and working conditions that allow more time for the care of this public.Objetivo: compreender a experiência de mães após o diagnóstico de malformação congênita e as expectativas de cuidado da rede de saúde e social. Métodos: pesquisa qualitativa com embasamento na Fenomenologia Social, com a participação de seis mães residentes em municípios de fronteira, por meio de entrevista semiestruturada. Resultados: os relatos trouxeram informações sobre o diagnóstico de malformação congênita, a experiência da gravidez, o tornar-se mãe de criança com malformação e as expectativas de cuidado de saúde e social. Conclusão: o grupo social estudado experienciou o diagnóstico de malformação com sofrimento, repercussões emocionais e com mudanças no cotidiano vivido. Contribuições para a prática: a comunicação por parte da equipe de saúde contribui para a compreensão e enfrentamento da malformação. Destacou-se a importância do apoio da rede familiar e social. É preciso desenvolver competências profissionais relacionadas à comunicação e a maiores investimentos para a formação e condições de trabalho que possibilitem maior tempo destinado ao atendimento deste público.Universidade Federal do Ceará2022-06-03info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontexto application/pdfapplication/pdfhttp://periodicos.ufc.br/rene/article/view/7840810.15253/2175-6783.20222378408Rev Rene; Vol 23 (2022): Rev Rene; e78408Rev Rene; v. 23 (2022): Rev Rene; e784082175-67831517-3852reponame:Rev Rene (Online)instname:Universidade Federal do Ceará (UFC)instacron:UFCporenghttp://periodicos.ufc.br/rene/article/view/78408/225594http://periodicos.ufc.br/rene/article/view/78408/225595Copyright (c) 2022 Rev Renehttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessZampoli, Ana Cláudia MonzonCaldeira, SebastiãoSantos, Karine Brito dosNihei, Oscar KenjiSilva, Rosane Meire Munhak da2022-06-23T17:00:42Zoai:periodicos.ufc:article/78408Revistahttp://periodicos.ufc.br/renePUBhttp://periodicos.ufc.br/rene/oairene@ufc.br||2175-67831517-3852opendoar:2022-06-23T17:00:42Rev Rene (Online) - Universidade Federal do Ceará (UFC)false |
dc.title.none.fl_str_mv |
Experience of mothers after the diagnosis of congenital malformation and the expectations of care Experiência de mães após o diagnóstico de malformação congênita e as expectativas de cuidado |
title |
Experience of mothers after the diagnosis of congenital malformation and the expectations of care |
spellingShingle |
Experience of mothers after the diagnosis of congenital malformation and the expectations of care Zampoli, Ana Cláudia Monzon Maternal and Child Health; Fetal Diseases; Perinatal Care; Qualitative Research. Saúde Materno-Infantil; Doenças Fetais; Assistência Perinatal; Pesquisa Qualitativa. |
title_short |
Experience of mothers after the diagnosis of congenital malformation and the expectations of care |
title_full |
Experience of mothers after the diagnosis of congenital malformation and the expectations of care |
title_fullStr |
Experience of mothers after the diagnosis of congenital malformation and the expectations of care |
title_full_unstemmed |
Experience of mothers after the diagnosis of congenital malformation and the expectations of care |
title_sort |
Experience of mothers after the diagnosis of congenital malformation and the expectations of care |
author |
Zampoli, Ana Cláudia Monzon |
author_facet |
Zampoli, Ana Cláudia Monzon Caldeira, Sebastião Santos, Karine Brito dos Nihei, Oscar Kenji Silva, Rosane Meire Munhak da |
author_role |
author |
author2 |
Caldeira, Sebastião Santos, Karine Brito dos Nihei, Oscar Kenji Silva, Rosane Meire Munhak da |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Zampoli, Ana Cláudia Monzon Caldeira, Sebastião Santos, Karine Brito dos Nihei, Oscar Kenji Silva, Rosane Meire Munhak da |
dc.subject.por.fl_str_mv |
Maternal and Child Health; Fetal Diseases; Perinatal Care; Qualitative Research. Saúde Materno-Infantil; Doenças Fetais; Assistência Perinatal; Pesquisa Qualitativa. |
topic |
Maternal and Child Health; Fetal Diseases; Perinatal Care; Qualitative Research. Saúde Materno-Infantil; Doenças Fetais; Assistência Perinatal; Pesquisa Qualitativa. |
description |
Objective: to understand the experience of mothers after the diagnosis of congenital malformation and the expectations of care from the health and social network. Methods: qualitative research based on Social Phenomenology, with the participation of six mothers living in border towns, by means of semi-structured interviews. Results: the reports brought information about the diagnosis of congenital malformation, the experience of pregnancy, becoming a mother of a child with malformation and the expectations of health and social care. Conclusion: the social group studied experienced the diagnosis of malformation with suffering, emotional repercussions and changes in their daily lives. Contributions to practice: communication by the health team contributes to understanding and facing the malformation. The importance of the family and social network support was highlighted. It is necessary to develop professional skills related to communication and to make more investments in training and working conditions that allow more time for the care of this public. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-06-03 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion texto |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://periodicos.ufc.br/rene/article/view/78408 10.15253/2175-6783.20222378408 |
url |
http://periodicos.ufc.br/rene/article/view/78408 |
identifier_str_mv |
10.15253/2175-6783.20222378408 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
http://periodicos.ufc.br/rene/article/view/78408/225594 http://periodicos.ufc.br/rene/article/view/78408/225595 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2022 Rev Rene https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2022 Rev Rene https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal do Ceará |
publisher.none.fl_str_mv |
Universidade Federal do Ceará |
dc.source.none.fl_str_mv |
Rev Rene; Vol 23 (2022): Rev Rene; e78408 Rev Rene; v. 23 (2022): Rev Rene; e78408 2175-6783 1517-3852 reponame:Rev Rene (Online) instname:Universidade Federal do Ceará (UFC) instacron:UFC |
instname_str |
Universidade Federal do Ceará (UFC) |
instacron_str |
UFC |
institution |
UFC |
reponame_str |
Rev Rene (Online) |
collection |
Rev Rene (Online) |
repository.name.fl_str_mv |
Rev Rene (Online) - Universidade Federal do Ceará (UFC) |
repository.mail.fl_str_mv |
rene@ufc.br|| |
_version_ |
1797174735307538432 |