Experience of mothers after the diagnosis of congenital malformation and the expectations of care

Detalhes bibliográficos
Autor(a) principal: Zampoli, Ana Cláudia Monzon
Data de Publicação: 2022
Outros Autores: Caldeira, Sebastião, Santos, Karine Brito dos, Nihei, Oscar Kenji, Silva, Rosane Meire Munhak da
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Rev Rene (Online)
Texto Completo: http://periodicos.ufc.br/rene/article/view/78408
Resumo: Objective: to understand the experience of mothers after the diagnosis of congenital malformation and the expectations of care from the health and social network. Methods: qualitative research based on Social Phenomenology, with the participation of six mothers living in border towns, by means of semi-structured interviews. Results: the reports brought information about the diagnosis of congenital malformation, the experience of pregnancy, becoming a mother of a child with malformation and the expectations of health and social care. Conclusion: the social group studied experienced the diagnosis of malformation with suffering, emotional repercussions and changes in their daily lives. Contributions to practice: communication by the health team contributes to understanding and facing the malformation. The importance of the family and social network support was highlighted. It is necessary to develop professional skills related to communication and to make more investments in training and working conditions that allow more time for the care of this public.
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spelling Experience of mothers after the diagnosis of congenital malformation and the expectations of careExperiência de mães após o diagnóstico de malformação congênita e as expectativas de cuidadoMaternal and Child Health; Fetal Diseases; Perinatal Care; Qualitative Research.Saúde Materno-Infantil; Doenças Fetais; Assistência Perinatal; Pesquisa Qualitativa.Objective: to understand the experience of mothers after the diagnosis of congenital malformation and the expectations of care from the health and social network. Methods: qualitative research based on Social Phenomenology, with the participation of six mothers living in border towns, by means of semi-structured interviews. Results: the reports brought information about the diagnosis of congenital malformation, the experience of pregnancy, becoming a mother of a child with malformation and the expectations of health and social care. Conclusion: the social group studied experienced the diagnosis of malformation with suffering, emotional repercussions and changes in their daily lives. Contributions to practice: communication by the health team contributes to understanding and facing the malformation. The importance of the family and social network support was highlighted. It is necessary to develop professional skills related to communication and to make more investments in training and working conditions that allow more time for the care of this public.Objetivo: compreender a experiência de mães após o diagnóstico de malformação congênita e as expectativas de cuidado da rede de saúde e social. Métodos: pesquisa qualitativa com embasamento na Fenomenologia Social, com a participação de seis mães residentes em municípios de fronteira, por meio de entrevista semiestruturada. Resultados: os relatos trouxeram informações sobre o diagnóstico de malformação congênita, a experiência da gravidez, o tornar-se mãe de criança com malformação e as expectativas de cuidado de saúde e social. Conclusão: o grupo social estudado experienciou o diagnóstico de malformação com sofrimento, repercussões emocionais e com mudanças no cotidiano vivido. Contribuições para a prática: a comunicação por parte da equipe de saúde contribui para a compreensão e enfrentamento da malformação. Destacou-se a importância do apoio da rede familiar e social. É preciso desenvolver competências profissionais relacionadas à comunicação e a maiores investimentos para a formação e condições de trabalho que possibilitem maior tempo destinado ao atendimento deste público.Universidade Federal do Ceará2022-06-03info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontexto application/pdfapplication/pdfhttp://periodicos.ufc.br/rene/article/view/7840810.15253/2175-6783.20222378408Rev Rene; Vol 23 (2022): Rev Rene; e78408Rev Rene; v. 23 (2022): Rev Rene; e784082175-67831517-3852reponame:Rev Rene (Online)instname:Universidade Federal do Ceará (UFC)instacron:UFCporenghttp://periodicos.ufc.br/rene/article/view/78408/225594http://periodicos.ufc.br/rene/article/view/78408/225595Copyright (c) 2022 Rev Renehttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessZampoli, Ana Cláudia MonzonCaldeira, SebastiãoSantos, Karine Brito dosNihei, Oscar KenjiSilva, Rosane Meire Munhak da2022-06-23T17:00:42Zoai:periodicos.ufc:article/78408Revistahttp://periodicos.ufc.br/renePUBhttp://periodicos.ufc.br/rene/oairene@ufc.br||2175-67831517-3852opendoar:2022-06-23T17:00:42Rev Rene (Online) - Universidade Federal do Ceará (UFC)false
dc.title.none.fl_str_mv Experience of mothers after the diagnosis of congenital malformation and the expectations of care
Experiência de mães após o diagnóstico de malformação congênita e as expectativas de cuidado
title Experience of mothers after the diagnosis of congenital malformation and the expectations of care
spellingShingle Experience of mothers after the diagnosis of congenital malformation and the expectations of care
Zampoli, Ana Cláudia Monzon
Maternal and Child Health; Fetal Diseases; Perinatal Care; Qualitative Research.
Saúde Materno-Infantil; Doenças Fetais; Assistência Perinatal; Pesquisa Qualitativa.
title_short Experience of mothers after the diagnosis of congenital malformation and the expectations of care
title_full Experience of mothers after the diagnosis of congenital malformation and the expectations of care
title_fullStr Experience of mothers after the diagnosis of congenital malformation and the expectations of care
title_full_unstemmed Experience of mothers after the diagnosis of congenital malformation and the expectations of care
title_sort Experience of mothers after the diagnosis of congenital malformation and the expectations of care
author Zampoli, Ana Cláudia Monzon
author_facet Zampoli, Ana Cláudia Monzon
Caldeira, Sebastião
Santos, Karine Brito dos
Nihei, Oscar Kenji
Silva, Rosane Meire Munhak da
author_role author
author2 Caldeira, Sebastião
Santos, Karine Brito dos
Nihei, Oscar Kenji
Silva, Rosane Meire Munhak da
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Zampoli, Ana Cláudia Monzon
Caldeira, Sebastião
Santos, Karine Brito dos
Nihei, Oscar Kenji
Silva, Rosane Meire Munhak da
dc.subject.por.fl_str_mv Maternal and Child Health; Fetal Diseases; Perinatal Care; Qualitative Research.
Saúde Materno-Infantil; Doenças Fetais; Assistência Perinatal; Pesquisa Qualitativa.
topic Maternal and Child Health; Fetal Diseases; Perinatal Care; Qualitative Research.
Saúde Materno-Infantil; Doenças Fetais; Assistência Perinatal; Pesquisa Qualitativa.
description Objective: to understand the experience of mothers after the diagnosis of congenital malformation and the expectations of care from the health and social network. Methods: qualitative research based on Social Phenomenology, with the participation of six mothers living in border towns, by means of semi-structured interviews. Results: the reports brought information about the diagnosis of congenital malformation, the experience of pregnancy, becoming a mother of a child with malformation and the expectations of health and social care. Conclusion: the social group studied experienced the diagnosis of malformation with suffering, emotional repercussions and changes in their daily lives. Contributions to practice: communication by the health team contributes to understanding and facing the malformation. The importance of the family and social network support was highlighted. It is necessary to develop professional skills related to communication and to make more investments in training and working conditions that allow more time for the care of this public.
publishDate 2022
dc.date.none.fl_str_mv 2022-06-03
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
texto
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufc.br/rene/article/view/78408
10.15253/2175-6783.20222378408
url http://periodicos.ufc.br/rene/article/view/78408
identifier_str_mv 10.15253/2175-6783.20222378408
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv http://periodicos.ufc.br/rene/article/view/78408/225594
http://periodicos.ufc.br/rene/article/view/78408/225595
dc.rights.driver.fl_str_mv Copyright (c) 2022 Rev Rene
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2022 Rev Rene
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade Federal do Ceará
publisher.none.fl_str_mv Universidade Federal do Ceará
dc.source.none.fl_str_mv Rev Rene; Vol 23 (2022): Rev Rene; e78408
Rev Rene; v. 23 (2022): Rev Rene; e78408
2175-6783
1517-3852
reponame:Rev Rene (Online)
instname:Universidade Federal do Ceará (UFC)
instacron:UFC
instname_str Universidade Federal do Ceará (UFC)
instacron_str UFC
institution UFC
reponame_str Rev Rene (Online)
collection Rev Rene (Online)
repository.name.fl_str_mv Rev Rene (Online) - Universidade Federal do Ceará (UFC)
repository.mail.fl_str_mv rene@ufc.br||
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