Crianças e adolescentes com câncer e suas mães: vivência do tratamento da doença, redes de apoio e processos proximais durante e após a hospitalização

• Autor(a) principal: Hostert, Paula Coimbra da Costa Pereira
• Data de Publicação: 2015
• Tipo de documento: Tese
• Idioma: por
• Título da fonte: Repositório Institucional da Universidade Federal do Espírito Santo (riUfes)
• Texto Completo: http://repositorio.ufes.br/handle/10/9092
• topic: Children with neoplasia; Family of children with neoplasia; Support network; Proximal processes; Enfants atteints de néoplasie; Famille d’enfants avec néoplasie; Reseaux de soutien; Processus proximaux; Apoio social; Teoria bioecológica; Crianças com neoplasia; Família de crianças com neoplasia; Redes de apoio; Processos proximais; Psicologia; Câncer em crianças - Aspectos psicológicos; Câncer em adolescentes - Aspectos psicológicos; 159.9

Hospitalization, specially resulting of chronic diseases like cancer, affects infant behavior and development, besides generating impacts on the family, which needs to handle with this new reality. Therefore, this thesis was aimed to investigate interpersonal aspects of the support network and of the experience of treatment of the disease during hospitalization and after discharge of children and adolescents with cancer and their mothers. Twelve children and adolescents participated in the study, including four boys and eight girls aged between 06 and 15 years old, diagnosed with cancer and hospitalized in a public hospital in Vitória (ES). Besides these, their mothers participated in the study totaling 24 subjects. The survey was conducted in two contexts, at home and in the hospital, wherein the period between the two samples ranged six to ten months, depending on the physical and social necessities of each family. Five instruments for data collection were used: sociodemographic data form, consultation protocol for the medical data, two semi-structured interview scripts and the Five Field Map. The results indicated that the larger and most significant the support network, the better was adoption and mood of the participants and of their mothers while facing the treatment. The support network at home environment was bigger in eight subjects, however the twelve patients recognized the obtained support in the hospital. Furthermore, proximal processes established between mothers and children during hospitalization were strengthened after disease treatment and remained after discharge, because in the report of eight mothers and seven children/adolescents the interaction through care and company made them develop friendship and intimacy, making hospitalization less painful. At home, ten mother-child pairs recognized that the benefits of those interactions were extended to the whole family, reducing the impacts of hospitalization. In respect of disease handling, it were described four categories: experience of disease and hospitalization, feelings and emotions related to the treatment, relationships with relatives and medical staff, and disease coping. It follows that the support from the mother, friends and medical staff was a determinant factor to make the hospitalization process more easy and adaptive. Thus, based on this study, it is expected to provide subsidies to reinforce support network contributions in cancer treatment, favoring the coping with the disease, the development of the affected and the recovery from hospitalization.