“Eu não sou uma meia mulher”: deficiência, trabalho do care e interseccionalidades nas relações de cuidado de mulheres com deficiência física

• Autor(a) principal: Sá, Fernanda Diniz de
• Data de Publicação: 2021
• Tipo de documento: Tese
• Idioma: por
• Título da fonte: Biblioteca Digital de Teses e Dissertações da UFPB
• Texto Completo: https://repositorio.ufpb.br/jspui/handle/123456789/29858
• topic: Deficiência; Gênero; Trabalho do care; Interseccionalidades; Disability; Gender; Care work; Intersectionality; Handicap; Genre; Travail du care; Intersectionnalité; CNPQ::CIENCIAS HUMANAS::SOCIOLOGIA

This thesis sought to understand how the strategies and discourses adopted for the distribution of responsibilities in the relationships of providing and receiving care are constructed in the experience of women with physical disabilities, in contexts of inequality and lack of public policies, analyzing the dynamics with the family and in the networks of community relations of friendship, neighborhood and institutional. The research was conducted in the metropolitan region of João Pessoa and was based on interviews and biographical accounts using as theoretical-analytical axis the intersectional strands of the fields of care and disability studies, to understand the ambiguities arising from overlapping identities and oppressions, of gender, class and disability. In the narratives of the life stories followed and presented along the course of this research, this thesis ended up revealing that even being judged as dependent, in face of the barriers imposed by disability and amplified by the hierarchical positions of gender and class that isolate these women in the domestic environment they assume the conventional roles, remaining tied to a vicious circle in which, in order to reaffirm their potential for autonomy and of being a "complete woman", they end up subjectively defining their value through socially despised roles, since they do not participate in a fair way in the ample field of opportunities in public life. In an attempt to approach normative standards and distance themselves from the stigma of a "half-woman", which assigns them a place of dependence and infantilization, the participants in this study were subjected to efforts that entailed physical, psychological, and social burdens, some since childhood, dealing with male absences and without support in social rights to balance these multiple inequalities. In all the categories identified in the most diverse domains and social experiences that permeated these women's relationships of involving care, of caring and being cared for, the moral imperative to avoid seeking or not needing help was almost always present, an orientation that goes against the ethics of care as a social value. The quest for independence, represented by the figure of "overcoming," can therefore become another form of oppression, both subtle and perverse, by coercing these subjects to conform to conservative roles at the expense of individual efforts in a hostile social environment that disdains diverse ways of living in the world. Thus, the personal costs involved are high and are not defined as something inherent to the fact of being a person with disability, but, after all, are a consequence of socially and politically induced incapacitation by discourses, social practices, territories, and policies of exclusion, aggravated by gender and class crossings, among others.