Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Tipo de documento: | Tese |
Idioma: | por |
Título da fonte: | Manancial - Repositório Digital da UFSM |
Texto Completo: | http://repositorio.ufsm.br/handle/1/22030 |
Resumo: | The family of the pregnant/postpartum woman experiences with them the joys and fears inherent in the birth of a child and is organized to meet new care needs. The diagnosis of cancer, in this context, makes the family need to reorganize itself for another type of demand, different from the one for which it was preparing. Pregnancy complicated by cancer is a relatively rare condition that occurs in one in every 1000 pregnancies. As women currently tend to postpone pregnancy to the third or fourth decade of life, this phenomenon has become more and more frequent. The objectives of this study were, therefore: to understand the experience of families facing the illness of a family member due to gestational cancer; apprehend the meanings of the family's actions in the face of illness due to gestational cancer and elaborate a substantive theory representative of the families' experience. Symbolic Interactionism was the theoretical framework used, and Grounded Theory, the methodological framework. The study participants were twelve families who had the experience of having, among its members, a woman who fell ill from cancer or during pregnancy or up to one year postpartum. As a criterion for inclusion to participate in the interview, it was having a family bond (biological, emotional or affinity) with the woman who was diagnosed with cancer during pregnancy and having accompanied her during her illness and treatment. As a family, it was considered to have, at the time of the interview, at least two people, one of whom may be the woman herself. Data collection took place through an instrument of social and clinical characterization of women and information about family members and included the genogram; also by in-depth interview. The organization, description and analysis of the information followed the Constant Comparative Method. The analysis of the data took place through the substantive and theoretical coding, which allowed the elaboration of the substantive theory “Living among weaknesses and motivations: experiences of families with gestational cancer”, which has, as its central concept “Living among losses that weaken and the arrival of the child who strengthens”, built from six concepts with contextual relationships, cause, conditions and consequences. All ethical precepts that govern research with human beings were respected, according to Resolution No. 466/2012. The research project was approved by the research ethics committee due to the opinion of 2,435,385. The substantive theory allowed the knowledge that families that go through gestational cancer perceive themselves in a situation of duality, a condition that needs to be valued with a view to individualized and comprehensive care for these families. There is potential in the study of innovation since the theme is little explored and, therefore, provides visibility to the occurrence and experience with gestational cancer. As an impact for the nursing practice, there is a need for the particularities of the experience to be considered in the care planning for this group and that these are directed to the needs punctuated by the family. Equally important are professional actions for the early detection of cancer during pregnancy and postpartum and health education practices that make women and families co-participants in care. |
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Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacionalLiving between fragilities and motivations: experiences of families with gestational cancerFamíliaNeoplasiasGravidezTeoria fundamentadaInteracionismo simbólicoEnfermagemFamilyNeoplasmsPregnancyGrounded theorySymbolic interactionismNursingCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMThe family of the pregnant/postpartum woman experiences with them the joys and fears inherent in the birth of a child and is organized to meet new care needs. The diagnosis of cancer, in this context, makes the family need to reorganize itself for another type of demand, different from the one for which it was preparing. Pregnancy complicated by cancer is a relatively rare condition that occurs in one in every 1000 pregnancies. As women currently tend to postpone pregnancy to the third or fourth decade of life, this phenomenon has become more and more frequent. The objectives of this study were, therefore: to understand the experience of families facing the illness of a family member due to gestational cancer; apprehend the meanings of the family's actions in the face of illness due to gestational cancer and elaborate a substantive theory representative of the families' experience. Symbolic Interactionism was the theoretical framework used, and Grounded Theory, the methodological framework. The study participants were twelve families who had the experience of having, among its members, a woman who fell ill from cancer or during pregnancy or up to one year postpartum. As a criterion for inclusion to participate in the interview, it was having a family bond (biological, emotional or affinity) with the woman who was diagnosed with cancer during pregnancy and having accompanied her during her illness and treatment. As a family, it was considered to have, at the time of the interview, at least two people, one of whom may be the woman herself. Data collection took place through an instrument of social and clinical characterization of women and information about family members and included the genogram; also by in-depth interview. The organization, description and analysis of the information followed the Constant Comparative Method. The analysis of the data took place through the substantive and theoretical coding, which allowed the elaboration of the substantive theory “Living among weaknesses and motivations: experiences of families with gestational cancer”, which has, as its central concept “Living among losses that weaken and the arrival of the child who strengthens”, built from six concepts with contextual relationships, cause, conditions and consequences. All ethical precepts that govern research with human beings were respected, according to Resolution No. 466/2012. The research project was approved by the research ethics committee due to the opinion of 2,435,385. The substantive theory allowed the knowledge that families that go through gestational cancer perceive themselves in a situation of duality, a condition that needs to be valued with a view to individualized and comprehensive care for these families. There is potential in the study of innovation since the theme is little explored and, therefore, provides visibility to the occurrence and experience with gestational cancer. As an impact for the nursing practice, there is a need for the particularities of the experience to be considered in the care planning for this group and that these are directed to the needs punctuated by the family. Equally important are professional actions for the early detection of cancer during pregnancy and postpartum and health education practices that make women and families co-participants in care.A família da gestante/puérpera vivencia com ela as alegrias e os medos inerentes ao nascimento de uma criança e se organiza para atender novas necessidades de cuidado. O diagnóstico de câncer, nesse contexto, faz com que a família precise se reorganizar para um outro tipo de demanda, diferente daquela para o qual estava se preparando. Gestação complicada por câncer é condição relativamente rara que ocorre em uma a cada 1000 gestações. Como, atualmente, as mulheres tendem a adiar a gestação para a terceira ou para a quarta década de vida, esse fenômeno tem se tornado cada vez mais frequente. Foram objetivos deste estudo, portanto: compreender a experiência de famílias diante do adoecimento de familiar por câncer gestacional; apreender os significados das ações da família diante do adoecimento por câncer gestacional e elaborar uma teoria substantiva representativa da experiência das famílias. O Interacionismo Simbólico foi o referencial teórico utilizado, e a Teoria Fundamentada nos Dados, o referencial metodológico. Os participantes do estudo foram doze famílias que passaram pela experiência de ter, dentre seus membros, uma mulher que adoeceu por câncer ou no período da gestação ou até um ano pós-parto. Como critério para inclusão para participar da entrevista, foi ter vínculo familiar (biológico, afetivo ou por afinidade) com a mulher que teve diagnóstico de câncer no período gestacional e ter a acompanhado durante o seu adoecimento e o seu tratamento. Como família, foi considerado ter, no momento da entrevista, no mínimo, duas pessoas, podendo uma delas ser a própria mulher. A coleta dos dados aconteceu por instrumento de caracterização social e clínica da mulher e informações sobre os familiares e incluiu o genograma; também por entrevista em profundidade. A organização, a descrição e a análise das informações seguiram o Método Comparativo Constante. A análise dos dados se deu por meio da codificação substantiva e teórica, o que permitiu elaborar a teoria substantiva “Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional”, que tem, como conceito central “Vivendo entre perdas que fragilizam e a chegada da criança que fortalece”, construída a partir de seis conceitos com relações de contexto, causa, condições e consequências. Todos os preceitos éticos que regem a pesquisa com seres humanos foram respeitados, conforme Resolução nº 466/2012. O projeto de pesquisa foi aprovado por comitê de ética em pesquisa por parecer consubstanciado 2.435.385. A teoria substantiva permitiu o conhecimento de que as famílias que passam pelo câncer gestacional percebem-se em um situação de dualidade, condição que precisa ser valorizada com vista ao cuidado individualizado e integral à essas famílias. Tem-se no estudo potencial de inovação já que a temática é pouco explorada e, portanto, proporciona visibilidade à ocorrência e experiência com o câncer gestacional. Como impacto para a prática de enfermagem evidencia-se necessidade de que as particularidades da experiência sejam consideradas no planejamento de cuidados para esse grupo e que estas sejam direcionadas às necessidades pontuadas pela família. Também são importantes ações profissionais para a detecção precoce do câncer na gestação e no pós-parto e práticas de educação em saúde que tornem mulheres e famílias coparticipantes do cuidado.Universidade Federal de Santa MariaBrasilEnfermagemUFSMPrograma de Pós-Graduação em EnfermagemCentro de Ciências da SaúdeGirardon-Perlini, Nara Marilene Oliveirahttp://lattes.cnpq.br/4867558399150837Sand, Isabel Cristina Pacheco Van derÂngelo, MargarethMazza, Verônica de AzevedoCabral, Fernanda BeheregarayBeuter, MargridGomes, Joseila Sonego2021-08-23T19:32:43Z2021-08-23T19:32:43Z2020-07-15info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisapplication/pdfhttp://repositorio.ufsm.br/handle/1/22030porAttribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessreponame:Manancial - Repositório Digital da UFSMinstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSM2021-08-24T06:03:14Zoai:repositorio.ufsm.br:1/22030Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufsm.br/ONGhttps://repositorio.ufsm.br/oai/requestatendimento.sib@ufsm.br||tedebc@gmail.comopendoar:2021-08-24T06:03:14Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional Living between fragilities and motivations: experiences of families with gestational cancer |
title |
Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional |
spellingShingle |
Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional Gomes, Joseila Sonego Família Neoplasias Gravidez Teoria fundamentada Interacionismo simbólico Enfermagem Family Neoplasms Pregnancy Grounded theory Symbolic interactionism Nursing CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
title_short |
Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional |
title_full |
Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional |
title_fullStr |
Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional |
title_full_unstemmed |
Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional |
title_sort |
Convivendo entre fragilidades e motivações: experiências de famílias com o câncer gestacional |
author |
Gomes, Joseila Sonego |
author_facet |
Gomes, Joseila Sonego |
author_role |
author |
dc.contributor.none.fl_str_mv |
Girardon-Perlini, Nara Marilene Oliveira http://lattes.cnpq.br/4867558399150837 Sand, Isabel Cristina Pacheco Van der Ângelo, Margareth Mazza, Verônica de Azevedo Cabral, Fernanda Beheregaray Beuter, Margrid |
dc.contributor.author.fl_str_mv |
Gomes, Joseila Sonego |
dc.subject.por.fl_str_mv |
Família Neoplasias Gravidez Teoria fundamentada Interacionismo simbólico Enfermagem Family Neoplasms Pregnancy Grounded theory Symbolic interactionism Nursing CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
topic |
Família Neoplasias Gravidez Teoria fundamentada Interacionismo simbólico Enfermagem Family Neoplasms Pregnancy Grounded theory Symbolic interactionism Nursing CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
description |
The family of the pregnant/postpartum woman experiences with them the joys and fears inherent in the birth of a child and is organized to meet new care needs. The diagnosis of cancer, in this context, makes the family need to reorganize itself for another type of demand, different from the one for which it was preparing. Pregnancy complicated by cancer is a relatively rare condition that occurs in one in every 1000 pregnancies. As women currently tend to postpone pregnancy to the third or fourth decade of life, this phenomenon has become more and more frequent. The objectives of this study were, therefore: to understand the experience of families facing the illness of a family member due to gestational cancer; apprehend the meanings of the family's actions in the face of illness due to gestational cancer and elaborate a substantive theory representative of the families' experience. Symbolic Interactionism was the theoretical framework used, and Grounded Theory, the methodological framework. The study participants were twelve families who had the experience of having, among its members, a woman who fell ill from cancer or during pregnancy or up to one year postpartum. As a criterion for inclusion to participate in the interview, it was having a family bond (biological, emotional or affinity) with the woman who was diagnosed with cancer during pregnancy and having accompanied her during her illness and treatment. As a family, it was considered to have, at the time of the interview, at least two people, one of whom may be the woman herself. Data collection took place through an instrument of social and clinical characterization of women and information about family members and included the genogram; also by in-depth interview. The organization, description and analysis of the information followed the Constant Comparative Method. The analysis of the data took place through the substantive and theoretical coding, which allowed the elaboration of the substantive theory “Living among weaknesses and motivations: experiences of families with gestational cancer”, which has, as its central concept “Living among losses that weaken and the arrival of the child who strengthens”, built from six concepts with contextual relationships, cause, conditions and consequences. All ethical precepts that govern research with human beings were respected, according to Resolution No. 466/2012. The research project was approved by the research ethics committee due to the opinion of 2,435,385. The substantive theory allowed the knowledge that families that go through gestational cancer perceive themselves in a situation of duality, a condition that needs to be valued with a view to individualized and comprehensive care for these families. There is potential in the study of innovation since the theme is little explored and, therefore, provides visibility to the occurrence and experience with gestational cancer. As an impact for the nursing practice, there is a need for the particularities of the experience to be considered in the care planning for this group and that these are directed to the needs punctuated by the family. Equally important are professional actions for the early detection of cancer during pregnancy and postpartum and health education practices that make women and families co-participants in care. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-07-15 2021-08-23T19:32:43Z 2021-08-23T19:32:43Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/doctoralThesis |
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doctoralThesis |
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publishedVersion |
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http://repositorio.ufsm.br/handle/1/22030 |
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http://repositorio.ufsm.br/handle/1/22030 |
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por |
language |
por |
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Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ info:eu-repo/semantics/openAccess |
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Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ |
eu_rights_str_mv |
openAccess |
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application/pdf |
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Universidade Federal de Santa Maria Brasil Enfermagem UFSM Programa de Pós-Graduação em Enfermagem Centro de Ciências da Saúde |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria Brasil Enfermagem UFSM Programa de Pós-Graduação em Enfermagem Centro de Ciências da Saúde |
dc.source.none.fl_str_mv |
reponame:Manancial - Repositório Digital da UFSM instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
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Universidade Federal de Santa Maria (UFSM) |
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UFSM |
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UFSM |
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Manancial - Repositório Digital da UFSM |
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Manancial - Repositório Digital da UFSM |
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Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM) |
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atendimento.sib@ufsm.br||tedebc@gmail.com |
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