Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães

Detalhes bibliográficos
Autor(a) principal: Almeida, Pâmela Batista de
Data de Publicação: 2012
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Manancial - Repositório Digital da UFSM
Texto Completo: http://repositorio.ufsm.br/handle/1/7375
Resumo: The main aim consisted in comprehend attributed meanings by biological mothers to the process of diagnosis disclosure of HIV/aids to children infected through vertical transmission (VT). It is a qualitative, descriptive-exploratory research. Data production happened from April to June 2012, through semi-structured interviews, respecting ethical aspects of researches with human beings in the Resolution 196/96, following the National Health Board. Subjects were seven biological mothers that assisted their HIV infected children in the Infectious Diseases Services/Pediatric Ambulatory in the University Hospital of Santa Maria. Data were submitted to Thematic Content Analysis, emerging three main categories: I didn t know I had it , The Disease brought good and bad things and Process of diagnosis disclosure to the child. We found that the mother is the main care giver to the infected child, participating on consults, being responsible for the adherence of the child to the treatment and, above all by the diagnosis disclosure. Therefore, the meanings of disclosure are constructed and elaborated since the moment that the mother knows her diagnosis, being characterized as a scary moment, facing questioning of health professionals and through probability of vertical transmission to the child. In addition, the mother also is involved through doubt about fidelity of her partner, holding him responsible by his health condition. But, gradually the mother identifies other factors that favor new meanings to life. Some factors related to quality of life were identified by mothers as positive changes that gave the disease to his life, and others who refer the condition of being sick with aids, how bad situations that have arisen with the disease. Thus, the revelation was characterized as a process in which the information was revealed gradually, as asked by your child or as treatment adherence, presenting or facilitating factors of resistance to the beginning of the process. Finally, as vertical transmission specificity, there were mother s fears of being judged by children for the transmission of the virus.
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spelling Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mãesDiagnosis disclosure for children infected by vertical transmission of HIV: meaning for mothersSíndrome da imunodeficiência adquiridaHIVRevelação da verdadeSaúde da criançaSaúde do adolescenteAcquired immunodeficiency syndromeHIVRevelation of truthChild healthAdolescent healthCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMThe main aim consisted in comprehend attributed meanings by biological mothers to the process of diagnosis disclosure of HIV/aids to children infected through vertical transmission (VT). It is a qualitative, descriptive-exploratory research. Data production happened from April to June 2012, through semi-structured interviews, respecting ethical aspects of researches with human beings in the Resolution 196/96, following the National Health Board. Subjects were seven biological mothers that assisted their HIV infected children in the Infectious Diseases Services/Pediatric Ambulatory in the University Hospital of Santa Maria. Data were submitted to Thematic Content Analysis, emerging three main categories: I didn t know I had it , The Disease brought good and bad things and Process of diagnosis disclosure to the child. We found that the mother is the main care giver to the infected child, participating on consults, being responsible for the adherence of the child to the treatment and, above all by the diagnosis disclosure. Therefore, the meanings of disclosure are constructed and elaborated since the moment that the mother knows her diagnosis, being characterized as a scary moment, facing questioning of health professionals and through probability of vertical transmission to the child. In addition, the mother also is involved through doubt about fidelity of her partner, holding him responsible by his health condition. But, gradually the mother identifies other factors that favor new meanings to life. Some factors related to quality of life were identified by mothers as positive changes that gave the disease to his life, and others who refer the condition of being sick with aids, how bad situations that have arisen with the disease. Thus, the revelation was characterized as a process in which the information was revealed gradually, as asked by your child or as treatment adherence, presenting or facilitating factors of resistance to the beginning of the process. Finally, as vertical transmission specificity, there were mother s fears of being judged by children for the transmission of the virus.O objetivo geral da pesquisa consistiu em compreender as significações atribuídas pelas mães biológicas ao processo de revelação do diagnóstico de HIV/aids para os filhos infectados por transmissão vertical. Trata-se de uma pesquisa qualitativa, de natureza exploratório descritiva. A produção dos dados ocorreu no período de abril a junho de 2012, por meio de entrevistas semiestruturadas, respeitando os aspectos éticos das pesquisas com seres humanos, seguindo a Resolução 196/96 do Conselho Nacional de Saúde. Os sujeitos foram sete mães biológicas que acompanham seus filhos infectados pelo HIV ao Serviço de Infectologia/Ambulatório Pediátrico do Hospital Universitário de Santa Maria. Os dados foram submetidos à Análise de Conteúdo modalidade Temática, emergindo três categorias principais: Eu não sabia que eu tinha ; A doença me trouxe coisas boas e coisas ruins ; e Processo de Revelação do diagnóstico ao filho. Evidenciou-se que a mãe é a principal cuidadora da criança infectada, participando das consultas, responsabilizando-se pela adesão do filho ao tratamento e, sobretudo pela revelação do diagnóstico. Assim, tem-se que os significados da revelação são construídos e elaborados desde o momento que a mãe tem conhecimento do seu diagnóstico, sendo caracterizado como um momento assustador, diante dos questionamentos dos profissionais de saúde e pela probabilidade de transmissão vertical ao filho. Além disso, a mãe também é envolvida pela dúvida sobre a fidelidade do seu companheiro, o responsabilizado pela sua condição de saúde. Porém, aos poucos a mãe identifica outros fatores que favoreçam novos sentidos à vida. Alguns fatores ligados à qualidade de vida foram identificados pelas mães como mudanças positivas que a doença proporcionou à sua vida, e outros que remetem à condição de estar doente de aids, como situações ruins que surgiram com a doença. Assim, a revelação caracterizou-se como um processo, no qual as informações foram reveladas gradualmente, conforme questionado pela criança ou conforme a sua adesão ao tratamento, apresentando fatores facilitadores ou de resistência para o início do processo. Por fim, evidenciou-se como uma especificidade da transmissão vertical o receio das mães em serem julgadas pelos filhos pela transmissão do vírus.Universidade Federal de Santa MariaBREnfermagemUFSMPrograma de Pós-Graduação em EnfermagemQuintana, Alberto Manuelhttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4798750D8Paula, Cristiane Cardoso dehttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4733546E8Ribeiro, Circéa Amaliahttp://lattes.cnpq.br/2300731487624854Velho, Maria Teresa Aquino de Camposhttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4721796E5Padoin, Stela Maris de Mellohttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4762908D7Almeida, Pâmela Batista de2013-08-262013-08-262012-11-28info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisapplication/pdfapplication/pdfALMEIDA, Pâmela Batista de. DIAGNOSIS DISCLOSURE FOR CHILDREN INFECTED BY VERTICAL TRANSMISSION OF HIV: MEANING FOR MOTHERS. 2012. 87 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2012.http://repositorio.ufsm.br/handle/1/7375porinfo:eu-repo/semantics/openAccessreponame:Manancial - Repositório Digital da UFSMinstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSM2017-11-20T11:58:31Zoai:repositorio.ufsm.br:1/7375Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufsm.br/ONGhttps://repositorio.ufsm.br/oai/requestatendimento.sib@ufsm.br||tedebc@gmail.comopendoar:2017-11-20T11:58:31Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)false
dc.title.none.fl_str_mv Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães
Diagnosis disclosure for children infected by vertical transmission of HIV: meaning for mothers
title Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães
spellingShingle Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães
Almeida, Pâmela Batista de
Síndrome da imunodeficiência adquirida
HIV
Revelação da verdade
Saúde da criança
Saúde do adolescente
Acquired immunodeficiency syndrome
HIV
Revelation of truth
Child health
Adolescent health
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
title_short Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães
title_full Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães
title_fullStr Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães
title_full_unstemmed Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães
title_sort Revelação do diagnóstico aos filhos infectados por Transmissão vertical do HIV: significados para as mães
author Almeida, Pâmela Batista de
author_facet Almeida, Pâmela Batista de
author_role author
dc.contributor.none.fl_str_mv Quintana, Alberto Manuel
http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4798750D8
Paula, Cristiane Cardoso de
http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4733546E8
Ribeiro, Circéa Amalia
http://lattes.cnpq.br/2300731487624854
Velho, Maria Teresa Aquino de Campos
http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4721796E5
Padoin, Stela Maris de Mello
http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4762908D7
dc.contributor.author.fl_str_mv Almeida, Pâmela Batista de
dc.subject.por.fl_str_mv Síndrome da imunodeficiência adquirida
HIV
Revelação da verdade
Saúde da criança
Saúde do adolescente
Acquired immunodeficiency syndrome
HIV
Revelation of truth
Child health
Adolescent health
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
topic Síndrome da imunodeficiência adquirida
HIV
Revelação da verdade
Saúde da criança
Saúde do adolescente
Acquired immunodeficiency syndrome
HIV
Revelation of truth
Child health
Adolescent health
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
description The main aim consisted in comprehend attributed meanings by biological mothers to the process of diagnosis disclosure of HIV/aids to children infected through vertical transmission (VT). It is a qualitative, descriptive-exploratory research. Data production happened from April to June 2012, through semi-structured interviews, respecting ethical aspects of researches with human beings in the Resolution 196/96, following the National Health Board. Subjects were seven biological mothers that assisted their HIV infected children in the Infectious Diseases Services/Pediatric Ambulatory in the University Hospital of Santa Maria. Data were submitted to Thematic Content Analysis, emerging three main categories: I didn t know I had it , The Disease brought good and bad things and Process of diagnosis disclosure to the child. We found that the mother is the main care giver to the infected child, participating on consults, being responsible for the adherence of the child to the treatment and, above all by the diagnosis disclosure. Therefore, the meanings of disclosure are constructed and elaborated since the moment that the mother knows her diagnosis, being characterized as a scary moment, facing questioning of health professionals and through probability of vertical transmission to the child. In addition, the mother also is involved through doubt about fidelity of her partner, holding him responsible by his health condition. But, gradually the mother identifies other factors that favor new meanings to life. Some factors related to quality of life were identified by mothers as positive changes that gave the disease to his life, and others who refer the condition of being sick with aids, how bad situations that have arisen with the disease. Thus, the revelation was characterized as a process in which the information was revealed gradually, as asked by your child or as treatment adherence, presenting or facilitating factors of resistance to the beginning of the process. Finally, as vertical transmission specificity, there were mother s fears of being judged by children for the transmission of the virus.
publishDate 2012
dc.date.none.fl_str_mv 2012-11-28
2013-08-26
2013-08-26
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/masterThesis
format masterThesis
status_str publishedVersion
dc.identifier.uri.fl_str_mv ALMEIDA, Pâmela Batista de. DIAGNOSIS DISCLOSURE FOR CHILDREN INFECTED BY VERTICAL TRANSMISSION OF HIV: MEANING FOR MOTHERS. 2012. 87 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2012.
http://repositorio.ufsm.br/handle/1/7375
identifier_str_mv ALMEIDA, Pâmela Batista de. DIAGNOSIS DISCLOSURE FOR CHILDREN INFECTED BY VERTICAL TRANSMISSION OF HIV: MEANING FOR MOTHERS. 2012. 87 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2012.
url http://repositorio.ufsm.br/handle/1/7375
dc.language.iso.fl_str_mv por
language por
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eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade Federal de Santa Maria
BR
Enfermagem
UFSM
Programa de Pós-Graduação em Enfermagem
publisher.none.fl_str_mv Universidade Federal de Santa Maria
BR
Enfermagem
UFSM
Programa de Pós-Graduação em Enfermagem
dc.source.none.fl_str_mv reponame:Manancial - Repositório Digital da UFSM
instname:Universidade Federal de Santa Maria (UFSM)
instacron:UFSM
instname_str Universidade Federal de Santa Maria (UFSM)
instacron_str UFSM
institution UFSM
reponame_str Manancial - Repositório Digital da UFSM
collection Manancial - Repositório Digital da UFSM
repository.name.fl_str_mv Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)
repository.mail.fl_str_mv atendimento.sib@ufsm.br||tedebc@gmail.com
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