Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Tipo de documento: | Tese |
Idioma: | por |
Título da fonte: | Manancial - Repositório Digital da UFSM |
Texto Completo: | http://repositorio.ufsm.br/handle/1/25808 |
Resumo: | Objective: to interpret the cultural modulation of family care for children dependent on health technology in the different contexts in which they are inserted. Method: ethnographic study with a qualitative approach. The informants of the study were the technology-dependent children, their families and people around them, completing ten general informants and 5 keys. The selection of families occurred intentionally from the database of the researcher's master's dissertation. Data production completed 300 hours, in a period of 10 months, from June 2019 to April 2020 in Santa Maria. It started at the families' homes and the researcher was able to accompany them in their places of conviviality (school, health spaces and community). Participant observation and ethnographic interviews with field diary records were used, and the genogram and ecomap were used as collection instruments. For the interpretation of data, the following phases proposed by ethnonursing were followed: (1) collection, description and documentation of raw data; (2) identification and characterization of descriptors and components; (3) patterns and contextual analysis and (4) main themes, research findings, theoretical formulations and recommendations. Ethical precepts were respected in accordance with Resolution 466/12 and Resolution 510/16. The study has been approved by the Research Ethics Committee of the institution with opinion number 3,319,351. Results: they were divided into two chapters, one dealing with the organization and family configuration, for the care of the child dependent on health technology, as well as the available support network. Families need the support of people beyond the family nucleus to guarantee care and consider the school and health services as part of this network. The second talks about the limits and possibilities found in the course of care, where socioeconomic difficulties arise, the lack of coverage on the part of public policies, mothers as main caregivers, fathers providers of sustenance, the social space being the space of care , the prejudice that still exists, the school inclusion of children, the lack of listening. Conclusion: families of children dependent on health technologies need to carry out cultural modulations to face the limits they encounter during the course of care and reinvent themselves within the family configuration and support network to transform these limits into possibilities to guarantee the quality of care. these children's lives. |
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Modulação cultural do cuidado familial à criança dependente de tecnologia em saúdeCultural modulation of family care to health technology dependent childrenTecnologia em saúdeEnfermagemCriançaFamíliaAntropologia culturalHealth technologyNursingChildFamilyCultural anthropologyCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMObjective: to interpret the cultural modulation of family care for children dependent on health technology in the different contexts in which they are inserted. Method: ethnographic study with a qualitative approach. The informants of the study were the technology-dependent children, their families and people around them, completing ten general informants and 5 keys. The selection of families occurred intentionally from the database of the researcher's master's dissertation. Data production completed 300 hours, in a period of 10 months, from June 2019 to April 2020 in Santa Maria. It started at the families' homes and the researcher was able to accompany them in their places of conviviality (school, health spaces and community). Participant observation and ethnographic interviews with field diary records were used, and the genogram and ecomap were used as collection instruments. For the interpretation of data, the following phases proposed by ethnonursing were followed: (1) collection, description and documentation of raw data; (2) identification and characterization of descriptors and components; (3) patterns and contextual analysis and (4) main themes, research findings, theoretical formulations and recommendations. Ethical precepts were respected in accordance with Resolution 466/12 and Resolution 510/16. The study has been approved by the Research Ethics Committee of the institution with opinion number 3,319,351. Results: they were divided into two chapters, one dealing with the organization and family configuration, for the care of the child dependent on health technology, as well as the available support network. Families need the support of people beyond the family nucleus to guarantee care and consider the school and health services as part of this network. The second talks about the limits and possibilities found in the course of care, where socioeconomic difficulties arise, the lack of coverage on the part of public policies, mothers as main caregivers, fathers providers of sustenance, the social space being the space of care , the prejudice that still exists, the school inclusion of children, the lack of listening. Conclusion: families of children dependent on health technologies need to carry out cultural modulations to face the limits they encounter during the course of care and reinvent themselves within the family configuration and support network to transform these limits into possibilities to guarantee the quality of care. these children's lives.Objetivo: interpretar a modulação cultural do cuidado familial à criança dependente de tecnologia em saúde nos diferentes contextos em que estão inseridos. Método: estudo etnográfico, com abordagem qualitativa. Os informantes do estudo, foram as crianças dependentes de tecnologia, seus familiares e pessoas do seu convívio, completando dez informantes gerais e 5 chaves. A seleção das famílias ocorreu de maneira intencional a partir do banco de dados da dissertação de mestrado da pesquisadora. A produção dos dados completou 300 horas, em um período de 10 meses, de junho de 2019 a abril de 2020 em Santa Maria. Teve início no domicílio das famílias e a pesquisadora pôde acompanha-las em seus locais de convívio (escola, espaços de saúde e comunidade). Foi utilizada a observação participante e a entrevista etnográfica com registros em diário de campo, e, o genograma e o ecomapa, como instrumentos de coleta. Para a interpretação dos dados foram seguidas as seguintes fases propostas pela etnoenfermagem: (1) coleta, descrição e documentação de dados brutos; (2) identificação e caracterização dos descritores e componentes; (3) padrões e análise contextual e (4) temas principais, resultados da pesquisa, formulações teóricas e recomendações. Os preceitos éticos foram respeitados conforme a Resolução 466/12 e a Resolução 510/16. O estudo possui aprovação pelo Comitê de Ética em Pesquisa da instituição com o número do parecer 3.319.351. Resultados: apontaram aspectos da organização e configuração familiar, para o cuidado da criança dependente de tecnologia em saúde e da rede de apoio disponível. As famílias precisam do apoio de pessoas para além do núcleo familiar para garantir o cuidado e consideram a escola e os serviços de saúde como parte dessa rede. Os limites e possibilidades encontrados no decorrer do cuidado, perpassam pelas dificuldades socioeconômicas, a falta de abrangência por parte das políticas públicas, as mães como cuidadoras principais, os pais provedores do sustento, o espaço social sendo o espaço de cuidado, o preconceito existente, a inclusão escolar das crianças, a falta de escuta. Conclusão: as famílias de crianças dependentes de tecnologias em saúde precisam realizar modulações culturais para enfrentar os limites que encontram no decorrer do percurso de cuidado e se reinventar dentro da configuração familiar e da rede de apoio para transformar esses limites em possibilidades em prol da qualidade de vida dessas crianças.Universidade Federal de Santa MariaBrasilEnfermagemUFSMPrograma de Pós-Graduação em EnfermagemCentro de Ciências da SaúdeNeves, Eliane Tatschhttp://lattes.cnpq.br/2267710105940770Wilhelm, Laís AntunesToso, Beatriz Rosana Gonçalves de OliveiraPrates, Lisie AlendeSchimith, Maria DeniseSantos, Raissa Passos dosSilva, Júlia Heinz da2022-08-05T13:14:08Z2022-08-05T13:14:08Z2022-06-20info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisapplication/pdfhttp://repositorio.ufsm.br/handle/1/25808porAttribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessreponame:Manancial - Repositório Digital da UFSMinstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSM2022-08-05T13:14:08Zoai:repositorio.ufsm.br:1/25808Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufsm.br/ONGhttps://repositorio.ufsm.br/oai/requestatendimento.sib@ufsm.br||tedebc@gmail.comopendoar:2022-08-05T13:14:08Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde Cultural modulation of family care to health technology dependent children |
title |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
spellingShingle |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde Silva, Júlia Heinz da Tecnologia em saúde Enfermagem Criança Família Antropologia cultural Health technology Nursing Child Family Cultural anthropology CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
title_short |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
title_full |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
title_fullStr |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
title_full_unstemmed |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
title_sort |
Modulação cultural do cuidado familial à criança dependente de tecnologia em saúde |
author |
Silva, Júlia Heinz da |
author_facet |
Silva, Júlia Heinz da |
author_role |
author |
dc.contributor.none.fl_str_mv |
Neves, Eliane Tatsch http://lattes.cnpq.br/2267710105940770 Wilhelm, Laís Antunes Toso, Beatriz Rosana Gonçalves de Oliveira Prates, Lisie Alende Schimith, Maria Denise Santos, Raissa Passos dos |
dc.contributor.author.fl_str_mv |
Silva, Júlia Heinz da |
dc.subject.por.fl_str_mv |
Tecnologia em saúde Enfermagem Criança Família Antropologia cultural Health technology Nursing Child Family Cultural anthropology CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
topic |
Tecnologia em saúde Enfermagem Criança Família Antropologia cultural Health technology Nursing Child Family Cultural anthropology CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
description |
Objective: to interpret the cultural modulation of family care for children dependent on health technology in the different contexts in which they are inserted. Method: ethnographic study with a qualitative approach. The informants of the study were the technology-dependent children, their families and people around them, completing ten general informants and 5 keys. The selection of families occurred intentionally from the database of the researcher's master's dissertation. Data production completed 300 hours, in a period of 10 months, from June 2019 to April 2020 in Santa Maria. It started at the families' homes and the researcher was able to accompany them in their places of conviviality (school, health spaces and community). Participant observation and ethnographic interviews with field diary records were used, and the genogram and ecomap were used as collection instruments. For the interpretation of data, the following phases proposed by ethnonursing were followed: (1) collection, description and documentation of raw data; (2) identification and characterization of descriptors and components; (3) patterns and contextual analysis and (4) main themes, research findings, theoretical formulations and recommendations. Ethical precepts were respected in accordance with Resolution 466/12 and Resolution 510/16. The study has been approved by the Research Ethics Committee of the institution with opinion number 3,319,351. Results: they were divided into two chapters, one dealing with the organization and family configuration, for the care of the child dependent on health technology, as well as the available support network. Families need the support of people beyond the family nucleus to guarantee care and consider the school and health services as part of this network. The second talks about the limits and possibilities found in the course of care, where socioeconomic difficulties arise, the lack of coverage on the part of public policies, mothers as main caregivers, fathers providers of sustenance, the social space being the space of care , the prejudice that still exists, the school inclusion of children, the lack of listening. Conclusion: families of children dependent on health technologies need to carry out cultural modulations to face the limits they encounter during the course of care and reinvent themselves within the family configuration and support network to transform these limits into possibilities to guarantee the quality of care. these children's lives. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-08-05T13:14:08Z 2022-08-05T13:14:08Z 2022-06-20 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/doctoralThesis |
format |
doctoralThesis |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://repositorio.ufsm.br/handle/1/25808 |
url |
http://repositorio.ufsm.br/handle/1/25808 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.rights.driver.fl_str_mv |
Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria Brasil Enfermagem UFSM Programa de Pós-Graduação em Enfermagem Centro de Ciências da Saúde |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria Brasil Enfermagem UFSM Programa de Pós-Graduação em Enfermagem Centro de Ciências da Saúde |
dc.source.none.fl_str_mv |
reponame:Manancial - Repositório Digital da UFSM instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
instname_str |
Universidade Federal de Santa Maria (UFSM) |
instacron_str |
UFSM |
institution |
UFSM |
reponame_str |
Manancial - Repositório Digital da UFSM |
collection |
Manancial - Repositório Digital da UFSM |
repository.name.fl_str_mv |
Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
atendimento.sib@ufsm.br||tedebc@gmail.com |
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1805922129956306944 |