Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers

Detalhes bibliográficos
Autor(a) principal: Vaz, Jéssica Cardoso
Data de Publicação: 2021
Outros Autores: Milbrath, Viviane Marten, Gabatz, Ruth Irmgard Bärtschi, Hense, Tuize Damé, Macluf, Simone Pont Zambonato
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/20726
Resumo: Objective: To know the situations of vulnerability experienced by family members/caregivers when receiving the diagnosis of the child's chronic condition. Methodology: This is exploratory descriptive research with a qualitative approach in which 10 family members/caregivers of children with chronic conditions who were hospitalized in pediatric units in a city in southern Brazil participated. Information was collected through interviews and analyzed using the Thematic Analysis. The research was approved by the Research Ethics Committee at Plataforma Brazil. Results: The presence of ontological, ethical, social and cultural vulnerability was identified. Feelings such as suffering, shock and anguish related to the diagnosis of the chronic condition were revealed, which imposed several difficulties to be faced by family members/caregivers. Conclusion: It was identified that with the diagnosis of the child's chronic condition, several changes occur in the habits of family members/caregivers, often requiring the family to reorganize its entire structure, from food to its external activities, such as work and socialization.
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spelling Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregiversDiagnóstico de la condición crónica del niño: situaciones de vulnerabilidad vividas por familiares/cuidadoresDiagnóstico da condição crônica da criança: situações de vulnerabilidade vivenciadas pelos familiares/cuidadoresNiñoEnfermedad crónicaFamiliaDiagnósticoCuidadores.CriançaDoença crônicaFamíliaDiagnósticoCuidadores.ChildChronic diseaseFamilyDiagnosisCaregivers.Objective: To know the situations of vulnerability experienced by family members/caregivers when receiving the diagnosis of the child's chronic condition. Methodology: This is exploratory descriptive research with a qualitative approach in which 10 family members/caregivers of children with chronic conditions who were hospitalized in pediatric units in a city in southern Brazil participated. Information was collected through interviews and analyzed using the Thematic Analysis. The research was approved by the Research Ethics Committee at Plataforma Brazil. Results: The presence of ontological, ethical, social and cultural vulnerability was identified. Feelings such as suffering, shock and anguish related to the diagnosis of the chronic condition were revealed, which imposed several difficulties to be faced by family members/caregivers. Conclusion: It was identified that with the diagnosis of the child's chronic condition, several changes occur in the habits of family members/caregivers, often requiring the family to reorganize its entire structure, from food to its external activities, such as work and socialization.Objetivo: Conocer las situaciones de vulnerabilidad que viven los familiares/cuidadores al recibir el diagnóstico de la condición crónica del niño. Metodología: Se trata de una investigación descriptiva exploratoria con abordaje cualitativo en la que participaron 10 familiares/cuidadores de niños con enfermedades crónicas que fueron hospitalizados en unidades pediátricas de una ciudad del sur de Brasil. La información se recopiló a través de entrevistas y se analizó mediante el análisis temático. La investigación fue aprobada por el Comité de Ética en Investigación de Plataforma Brasil. Resultados: Se identificó la presencia de vulnerabilidad ontológica, ética, social y cultural. Se revelaron sentimientos como sufrimiento, conmoción y angustia relacionados con el diagnóstico de la condición crónica, que impuso varias dificultades a ser enfrentadas por familiares/cuidadores. Conclusión: Se identificó que, con el diagnóstico de la condición crónica del niño, ocurren varios cambios en los hábitos de los familiares/cuidadores, requiriendo muchas veces que la familia reorganice toda su estructura, desde la alimentación hasta sus actividades externas, como el trabajo y la socialización.Objetivo: Conhecer as situações de vulnerabilidade vivenciadas pelos familiares/cuidadores na recepção do diagnóstico da condição crônica da criança. Metodologia: Trata-se de uma pesquisa descritiva exploratória com abordagem qualitativa da qual participaram 10 familiares/cuidadores de crianças com condição crônica, que estiveram hospitalizadas em unidades pediátricas de um município ao Sul do Brasil. As informações foram coletadas por meio de entrevista e analisadas a partir da Análise Temática. A pesquisa foi aprovada pelo Comitê de Ética em Pesquisa na Plataforma Brasil. Resultados: Identificou-se a presença da vulnerabilidade ontológica, ética, social e cultural.  Desvelaram-se sentimentos como sofrimento, choque e angústia relacionados ao diagnóstico da condição crônica que impôs várias dificuldades a serem enfrentadas pelos familiares/cuidadores. Conclusão: Identificou-se que com o diagnóstico da condição crônica da criança ocorrem diversas mudanças nos hábitos dos familiares/cuidadores, necessitando muitas vezes que a família reorganize toda a sua estrutura, desde a alimentação até suas atividades externas, como trabalho e socialização.Research, Society and Development2021-10-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/2072610.33448/rsd-v10i12.20726Research, Society and Development; Vol. 10 No. 12; e552101220726Research, Society and Development; Vol. 10 Núm. 12; e552101220726Research, Society and Development; v. 10 n. 12; e5521012207262525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/20726/18543Copyright (c) 2021 Jéssica Cardoso Vaz; Viviane Marten Milbrath; Ruth Irmgard Bärtschi Gabatz; Tuize Damé Hense; Simone Pont Zambonato Maclufhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessVaz, Jéssica Cardoso Milbrath, Viviane Marten Gabatz, Ruth Irmgard Bärtschi Hense, Tuize Damé Macluf, Simone Pont Zambonato 2021-11-14T20:26:51Zoai:ojs.pkp.sfu.ca:article/20726Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:40:17.185532Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
Diagnóstico de la condición crónica del niño: situaciones de vulnerabilidad vividas por familiares/cuidadores
Diagnóstico da condição crônica da criança: situações de vulnerabilidade vivenciadas pelos familiares/cuidadores
title Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
spellingShingle Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
Vaz, Jéssica Cardoso
Niño
Enfermedad crónica
Familia
Diagnóstico
Cuidadores.
Criança
Doença crônica
Família
Diagnóstico
Cuidadores.
Child
Chronic disease
Family
Diagnosis
Caregivers.
title_short Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
title_full Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
title_fullStr Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
title_full_unstemmed Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
title_sort Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
author Vaz, Jéssica Cardoso
author_facet Vaz, Jéssica Cardoso
Milbrath, Viviane Marten
Gabatz, Ruth Irmgard Bärtschi
Hense, Tuize Damé
Macluf, Simone Pont Zambonato
author_role author
author2 Milbrath, Viviane Marten
Gabatz, Ruth Irmgard Bärtschi
Hense, Tuize Damé
Macluf, Simone Pont Zambonato
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Vaz, Jéssica Cardoso
Milbrath, Viviane Marten
Gabatz, Ruth Irmgard Bärtschi
Hense, Tuize Damé
Macluf, Simone Pont Zambonato
dc.subject.por.fl_str_mv Niño
Enfermedad crónica
Familia
Diagnóstico
Cuidadores.
Criança
Doença crônica
Família
Diagnóstico
Cuidadores.
Child
Chronic disease
Family
Diagnosis
Caregivers.
topic Niño
Enfermedad crónica
Familia
Diagnóstico
Cuidadores.
Criança
Doença crônica
Família
Diagnóstico
Cuidadores.
Child
Chronic disease
Family
Diagnosis
Caregivers.
description Objective: To know the situations of vulnerability experienced by family members/caregivers when receiving the diagnosis of the child's chronic condition. Methodology: This is exploratory descriptive research with a qualitative approach in which 10 family members/caregivers of children with chronic conditions who were hospitalized in pediatric units in a city in southern Brazil participated. Information was collected through interviews and analyzed using the Thematic Analysis. The research was approved by the Research Ethics Committee at Plataforma Brazil. Results: The presence of ontological, ethical, social and cultural vulnerability was identified. Feelings such as suffering, shock and anguish related to the diagnosis of the chronic condition were revealed, which imposed several difficulties to be faced by family members/caregivers. Conclusion: It was identified that with the diagnosis of the child's chronic condition, several changes occur in the habits of family members/caregivers, often requiring the family to reorganize its entire structure, from food to its external activities, such as work and socialization.
publishDate 2021
dc.date.none.fl_str_mv 2021-10-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/20726
10.33448/rsd-v10i12.20726
url https://rsdjournal.org/index.php/rsd/article/view/20726
identifier_str_mv 10.33448/rsd-v10i12.20726
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/20726/18543
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 10 No. 12; e552101220726
Research, Society and Development; Vol. 10 Núm. 12; e552101220726
Research, Society and Development; v. 10 n. 12; e552101220726
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
instacron:UNIFEI
instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
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