How to Advance Palliative Care Research in South America? Findings From a Delphi Study
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Institucional da UNESP |
Texto Completo: | http://dx.doi.org/10.1016/j.jpainsymman.2022.11.020 http://hdl.handle.net/11449/248063 |
Resumo: | Context: Progress in palliative care (PC) necessarily involves scientific development. However, research conducted in South America (SA) needs to be improved. Objectives: To develop a set of recommendations to advance PC research in SA. Methods: Eighteen international PC experts participated in a Delphi study. In round one, items were developed (open-ended questions); in round two, each expert scored the importance of each item (from 0 to 10); in round three, they selected the 20 most relevant items. Throughout the rounds, the five main priority themes for research in SA were defined. In Round three, consensus was defined as an agreement of ≥75%. Results: 60 potential suggestions for overcoming research barriers in PC were developed in round one. Also in Round one, 88.2% (15 of 17) of the experts agreed to define a priority research agenda. In Round two, the 36 most relevant suggestions were defined and a new one added. Potential research priorities were investigated (open-ended). In Round three, from the 37 items, 10 were considered the most important. Regarding research priorities, symptom control, PC in primary care, public policies, education and prognosis were defined as the most relevant. Conclusion: Potential strategies to improve scientific research on PC in SA were defined, including stimulating the formation of collaborative research networks, offering courses and workshops on research, structuring centers with infrastructure resources and trained researchers, and lobbying governmental organizations to convince about the importance of palliative care. In addition, priority research topics were identified in the region. |
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How to Advance Palliative Care Research in South America? Findings From a Delphi Studybarriersdelphi methodpalliative careResearchSouth AmericaContext: Progress in palliative care (PC) necessarily involves scientific development. However, research conducted in South America (SA) needs to be improved. Objectives: To develop a set of recommendations to advance PC research in SA. Methods: Eighteen international PC experts participated in a Delphi study. In round one, items were developed (open-ended questions); in round two, each expert scored the importance of each item (from 0 to 10); in round three, they selected the 20 most relevant items. Throughout the rounds, the five main priority themes for research in SA were defined. In Round three, consensus was defined as an agreement of ≥75%. Results: 60 potential suggestions for overcoming research barriers in PC were developed in round one. Also in Round one, 88.2% (15 of 17) of the experts agreed to define a priority research agenda. In Round two, the 36 most relevant suggestions were defined and a new one added. Potential research priorities were investigated (open-ended). In Round three, from the 37 items, 10 were considered the most important. Regarding research priorities, symptom control, PC in primary care, public policies, education and prognosis were defined as the most relevant. Conclusion: Potential strategies to improve scientific research on PC in SA were defined, including stimulating the formation of collaborative research networks, offering courses and workshops on research, structuring centers with infrastructure resources and trained researchers, and lobbying governmental organizations to convince about the importance of palliative care. In addition, priority research topics were identified in the region.Fundação de Amparo à Pesquisa do Estado de São Paulo (FAPESP)Palliative and Quality of Life Research Group (GPQual) (C.E.P. B.S.R.P.) Barretos Cancer HospitalDepartment of Health Sciences (P.B.S.) Private Technical University of LojaInstituto Pallium Latinoamérica (V.A.T. G.S.)Palliative Care Program Faculty of Medicine (A.R.N.) Pontificia Universidad Catolica de ChileItalian Hospital of Buenos Aires (L.H.R.)Internal Medicine Department Botucatu Medical School (E.L.O.V.) São Paulo State University (UNESP)Departamento de Cuidados Paliativos Hospital de Clinicas (M.R.R.) Universidad Nacional de AsunciónHospital das Clínicas Faculdade de Medicina FMUSP (D.H.C.) Universidade de São Paulo, SPSección Medicina Paliativa Facultad de Medicina (P.P.C.) Pontificia Universidad Católica de ChilePalliative Care Department (M.S.A.N.) Barretos Cancer HospitalSES-Hospital Universitario de Caldas (P.M.R.O.)International Association for Hospice and Palliative Care (IAHPC) (L.L.)Department of Palliative Medicine (T.P.) RWTH Aachen UniversityDepartment of Supportive Care (C.Z.) Princess Margaret Cancer Centre University Health NetworkDepartment of Palliative Care Rehabilitation and Integrative Medicine (D.H. E.B.) The University of Texas MD Anderson Cancer CenterInternal Medicine Department Botucatu Medical School (E.L.O.V.) São Paulo State University (UNESP)FAPESP: 2018/09836-8Barretos Cancer HospitalPrivate Technical University of LojaG.S.)Pontificia Universidad Catolica de ChileItalian Hospital of Buenos Aires (L.H.R.)Universidade Estadual Paulista (UNESP)Universidad Nacional de AsunciónUniversidade de São Paulo (USP)Pontificia Universidad Católica de ChileSES-Hospital Universitario de Caldas (P.M.R.O.)International Association for Hospice and Palliative Care (IAHPC) (L.L.)RWTH Aachen UniversityUniversity Health NetworkThe University of Texas MD Anderson Cancer CenterPaiva, Carlos EduardoBonilla-Sierra, PatriciaTripodoro, Vilma AdrianaRodríguez-Nunez, AlfredoDe Simone, GustavoRodriguez, Liliana Haydeede Oliveira Vidal, Edison Iglesias [UNESP]Ríos, Miriam RiverosCrispim, Douglas HenriquePérez-Cruz, Pedrode Angelis Nascimento, Maria SaleteOspina, Paola Marcela Ruizde Lima, LilianaPastrana, TaniaZimmerman, CamillaHui, DavidBruera, EduardoPaiva, Bianca Sakamoto Ribeiro2023-07-29T13:33:25Z2023-07-29T13:33:25Z2023-03-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article193-202http://dx.doi.org/10.1016/j.jpainsymman.2022.11.020Journal of Pain and Symptom Management, v. 65, n. 3, p. 193-202, 2023.1873-65130885-3924http://hdl.handle.net/11449/24806310.1016/j.jpainsymman.2022.11.0202-s2.0-85144479015Scopusreponame:Repositório Institucional da UNESPinstname:Universidade Estadual Paulista (UNESP)instacron:UNESPengJournal of Pain and Symptom Managementinfo:eu-repo/semantics/openAccess2024-08-14T17:23:00Zoai:repositorio.unesp.br:11449/248063Repositório InstitucionalPUBhttp://repositorio.unesp.br/oai/requestopendoar:29462024-08-14T17:23Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP)false |
dc.title.none.fl_str_mv |
How to Advance Palliative Care Research in South America? Findings From a Delphi Study |
title |
How to Advance Palliative Care Research in South America? Findings From a Delphi Study |
spellingShingle |
How to Advance Palliative Care Research in South America? Findings From a Delphi Study Paiva, Carlos Eduardo barriers delphi method palliative care Research South America |
title_short |
How to Advance Palliative Care Research in South America? Findings From a Delphi Study |
title_full |
How to Advance Palliative Care Research in South America? Findings From a Delphi Study |
title_fullStr |
How to Advance Palliative Care Research in South America? Findings From a Delphi Study |
title_full_unstemmed |
How to Advance Palliative Care Research in South America? Findings From a Delphi Study |
title_sort |
How to Advance Palliative Care Research in South America? Findings From a Delphi Study |
author |
Paiva, Carlos Eduardo |
author_facet |
Paiva, Carlos Eduardo Bonilla-Sierra, Patricia Tripodoro, Vilma Adriana Rodríguez-Nunez, Alfredo De Simone, Gustavo Rodriguez, Liliana Haydee de Oliveira Vidal, Edison Iglesias [UNESP] Ríos, Miriam Riveros Crispim, Douglas Henrique Pérez-Cruz, Pedro de Angelis Nascimento, Maria Salete Ospina, Paola Marcela Ruiz de Lima, Liliana Pastrana, Tania Zimmerman, Camilla Hui, David Bruera, Eduardo Paiva, Bianca Sakamoto Ribeiro |
author_role |
author |
author2 |
Bonilla-Sierra, Patricia Tripodoro, Vilma Adriana Rodríguez-Nunez, Alfredo De Simone, Gustavo Rodriguez, Liliana Haydee de Oliveira Vidal, Edison Iglesias [UNESP] Ríos, Miriam Riveros Crispim, Douglas Henrique Pérez-Cruz, Pedro de Angelis Nascimento, Maria Salete Ospina, Paola Marcela Ruiz de Lima, Liliana Pastrana, Tania Zimmerman, Camilla Hui, David Bruera, Eduardo Paiva, Bianca Sakamoto Ribeiro |
author2_role |
author author author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Barretos Cancer Hospital Private Technical University of Loja G.S.) Pontificia Universidad Catolica de Chile Italian Hospital of Buenos Aires (L.H.R.) Universidade Estadual Paulista (UNESP) Universidad Nacional de Asunción Universidade de São Paulo (USP) Pontificia Universidad Católica de Chile SES-Hospital Universitario de Caldas (P.M.R.O.) International Association for Hospice and Palliative Care (IAHPC) (L.L.) RWTH Aachen University University Health Network The University of Texas MD Anderson Cancer Center |
dc.contributor.author.fl_str_mv |
Paiva, Carlos Eduardo Bonilla-Sierra, Patricia Tripodoro, Vilma Adriana Rodríguez-Nunez, Alfredo De Simone, Gustavo Rodriguez, Liliana Haydee de Oliveira Vidal, Edison Iglesias [UNESP] Ríos, Miriam Riveros Crispim, Douglas Henrique Pérez-Cruz, Pedro de Angelis Nascimento, Maria Salete Ospina, Paola Marcela Ruiz de Lima, Liliana Pastrana, Tania Zimmerman, Camilla Hui, David Bruera, Eduardo Paiva, Bianca Sakamoto Ribeiro |
dc.subject.por.fl_str_mv |
barriers delphi method palliative care Research South America |
topic |
barriers delphi method palliative care Research South America |
description |
Context: Progress in palliative care (PC) necessarily involves scientific development. However, research conducted in South America (SA) needs to be improved. Objectives: To develop a set of recommendations to advance PC research in SA. Methods: Eighteen international PC experts participated in a Delphi study. In round one, items were developed (open-ended questions); in round two, each expert scored the importance of each item (from 0 to 10); in round three, they selected the 20 most relevant items. Throughout the rounds, the five main priority themes for research in SA were defined. In Round three, consensus was defined as an agreement of ≥75%. Results: 60 potential suggestions for overcoming research barriers in PC were developed in round one. Also in Round one, 88.2% (15 of 17) of the experts agreed to define a priority research agenda. In Round two, the 36 most relevant suggestions were defined and a new one added. Potential research priorities were investigated (open-ended). In Round three, from the 37 items, 10 were considered the most important. Regarding research priorities, symptom control, PC in primary care, public policies, education and prognosis were defined as the most relevant. Conclusion: Potential strategies to improve scientific research on PC in SA were defined, including stimulating the formation of collaborative research networks, offering courses and workshops on research, structuring centers with infrastructure resources and trained researchers, and lobbying governmental organizations to convince about the importance of palliative care. In addition, priority research topics were identified in the region. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-07-29T13:33:25Z 2023-07-29T13:33:25Z 2023-03-01 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://dx.doi.org/10.1016/j.jpainsymman.2022.11.020 Journal of Pain and Symptom Management, v. 65, n. 3, p. 193-202, 2023. 1873-6513 0885-3924 http://hdl.handle.net/11449/248063 10.1016/j.jpainsymman.2022.11.020 2-s2.0-85144479015 |
url |
http://dx.doi.org/10.1016/j.jpainsymman.2022.11.020 http://hdl.handle.net/11449/248063 |
identifier_str_mv |
Journal of Pain and Symptom Management, v. 65, n. 3, p. 193-202, 2023. 1873-6513 0885-3924 10.1016/j.jpainsymman.2022.11.020 2-s2.0-85144479015 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Journal of Pain and Symptom Management |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
193-202 |
dc.source.none.fl_str_mv |
Scopus reponame:Repositório Institucional da UNESP instname:Universidade Estadual Paulista (UNESP) instacron:UNESP |
instname_str |
Universidade Estadual Paulista (UNESP) |
instacron_str |
UNESP |
institution |
UNESP |
reponame_str |
Repositório Institucional da UNESP |
collection |
Repositório Institucional da UNESP |
repository.name.fl_str_mv |
Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP) |
repository.mail.fl_str_mv |
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1808128147543031808 |