Problem-solving and coping in family adaptation of children with Down Syndrome
Autor(a) principal: | |
---|---|
Data de Publicação: | 2021 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Revista da Escola de Enfermagem da USP (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342021000100432 |
Resumo: | ABSTRACT Objective: To analyze problem-solving and coping strategies of parents of children with Down Syndrome in family adaptation. Method: This is a qualitative research that used the Resiliency Model of Family Stress, Adjustment, and Adaptation. Participants were mothers and/or fathers from 40 families of children aged 1 to 7 years diagnosed with DS. Directed content analysis was performed, supported by software and considering a code dictionary. Results: Problem-solving and coping proved to be a set of actions, behaviors, efforts, and communications that contributed to family adaptation and favored balance between the demands imposed by Down Syndrome and the acquisition of resources by the family. Conclusion: In the first moment, which corresponds to the time of news or diagnosis of the syndrome and the first days after birth, internal and external resources, which represent coping, are developed to accept and refocus ideas and feelings towards Down Syndrome. Over time these resources have an effect and cause changes in family functioning patterns and in the relationship of these families with the outside world, as they seek child development. |
id |
USP-24_083e9600a5a10cb01f1e7d581c7c0b32 |
---|---|
oai_identifier_str |
oai:scielo:S0080-62342021000100432 |
network_acronym_str |
USP-24 |
network_name_str |
Revista da Escola de Enfermagem da USP (Online) |
repository_id_str |
|
spelling |
Problem-solving and coping in family adaptation of children with Down SyndromeDown SyndromeFamilyAdaptation, PsychologicalPediatric NursingABSTRACT Objective: To analyze problem-solving and coping strategies of parents of children with Down Syndrome in family adaptation. Method: This is a qualitative research that used the Resiliency Model of Family Stress, Adjustment, and Adaptation. Participants were mothers and/or fathers from 40 families of children aged 1 to 7 years diagnosed with DS. Directed content analysis was performed, supported by software and considering a code dictionary. Results: Problem-solving and coping proved to be a set of actions, behaviors, efforts, and communications that contributed to family adaptation and favored balance between the demands imposed by Down Syndrome and the acquisition of resources by the family. Conclusion: In the first moment, which corresponds to the time of news or diagnosis of the syndrome and the first days after birth, internal and external resources, which represent coping, are developed to accept and refocus ideas and feelings towards Down Syndrome. Over time these resources have an effect and cause changes in family functioning patterns and in the relationship of these families with the outside world, as they seek child development.Universidade de São Paulo, Escola de Enfermagem2021-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342021000100432Revista da Escola de Enfermagem da USP v.55 2021reponame:Revista da Escola de Enfermagem da USP (Online)instname:Universidade de São Paulo (USP)instacron:USP10.1590/s1980-220x2020001803708info:eu-repo/semantics/openAccessBraga,Patrícia PintoSilva,Juliana Barony daGuimarães,Bárbara RadieddineRiper,Márcia VanDuarte,Elysângela Dittzeng2021-05-17T00:00:00Zoai:scielo:S0080-62342021000100432Revistahttp://www.scielo.br/reeuspPUBhttps://old.scielo.br/oai/scielo-oai.php||nursingscholar@usp.br1980-220X0080-6234opendoar:2021-05-17T00:00Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP)false |
dc.title.none.fl_str_mv |
Problem-solving and coping in family adaptation of children with Down Syndrome |
title |
Problem-solving and coping in family adaptation of children with Down Syndrome |
spellingShingle |
Problem-solving and coping in family adaptation of children with Down Syndrome Braga,Patrícia Pinto Down Syndrome Family Adaptation, Psychological Pediatric Nursing |
title_short |
Problem-solving and coping in family adaptation of children with Down Syndrome |
title_full |
Problem-solving and coping in family adaptation of children with Down Syndrome |
title_fullStr |
Problem-solving and coping in family adaptation of children with Down Syndrome |
title_full_unstemmed |
Problem-solving and coping in family adaptation of children with Down Syndrome |
title_sort |
Problem-solving and coping in family adaptation of children with Down Syndrome |
author |
Braga,Patrícia Pinto |
author_facet |
Braga,Patrícia Pinto Silva,Juliana Barony da Guimarães,Bárbara Radieddine Riper,Márcia Van Duarte,Elysângela Dittz |
author_role |
author |
author2 |
Silva,Juliana Barony da Guimarães,Bárbara Radieddine Riper,Márcia Van Duarte,Elysângela Dittz |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Braga,Patrícia Pinto Silva,Juliana Barony da Guimarães,Bárbara Radieddine Riper,Márcia Van Duarte,Elysângela Dittz |
dc.subject.por.fl_str_mv |
Down Syndrome Family Adaptation, Psychological Pediatric Nursing |
topic |
Down Syndrome Family Adaptation, Psychological Pediatric Nursing |
description |
ABSTRACT Objective: To analyze problem-solving and coping strategies of parents of children with Down Syndrome in family adaptation. Method: This is a qualitative research that used the Resiliency Model of Family Stress, Adjustment, and Adaptation. Participants were mothers and/or fathers from 40 families of children aged 1 to 7 years diagnosed with DS. Directed content analysis was performed, supported by software and considering a code dictionary. Results: Problem-solving and coping proved to be a set of actions, behaviors, efforts, and communications that contributed to family adaptation and favored balance between the demands imposed by Down Syndrome and the acquisition of resources by the family. Conclusion: In the first moment, which corresponds to the time of news or diagnosis of the syndrome and the first days after birth, internal and external resources, which represent coping, are developed to accept and refocus ideas and feelings towards Down Syndrome. Over time these resources have an effect and cause changes in family functioning patterns and in the relationship of these families with the outside world, as they seek child development. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-01-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342021000100432 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342021000100432 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1590/s1980-220x2020001803708 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Universidade de São Paulo, Escola de Enfermagem |
publisher.none.fl_str_mv |
Universidade de São Paulo, Escola de Enfermagem |
dc.source.none.fl_str_mv |
Revista da Escola de Enfermagem da USP v.55 2021 reponame:Revista da Escola de Enfermagem da USP (Online) instname:Universidade de São Paulo (USP) instacron:USP |
instname_str |
Universidade de São Paulo (USP) |
instacron_str |
USP |
institution |
USP |
reponame_str |
Revista da Escola de Enfermagem da USP (Online) |
collection |
Revista da Escola de Enfermagem da USP (Online) |
repository.name.fl_str_mv |
Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP) |
repository.mail.fl_str_mv |
||nursingscholar@usp.br |
_version_ |
1748936540989423616 |