Overload level in informal caregivers of children with cerebral palsy
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Brasileira de Qualidade de Vida |
Texto Completo: | https://periodicos.utfpr.edu.br/rbqv/article/view/13337 |
Resumo: | OBJECTIVE: To identify the physical, emotional and social burden of informal caregivers of children with Cerebral Palsy (CP) treated at the outpatient clinic of the Faculty of Physiotherapy and Occupational Therapy (FFTO) of the Federal University of Pará (UFPA).METHODS: This is a descriptive and cross-sectional study with caregivers of children with a clinical diagnosis of CP attended at the FFTO-UFPA physiotherapy sector. The Informal Caregiver Burden Assessment Questionnaire (QASCI) and a form with identification and sociodemographic data of the caregivers were used. The collected data were transcribed to a database in the Excel® program. In order to describe the findings, descriptive statistics (mean, standard deviation, percentage) was used.RESULTS: The sample consisted of six mothers with a mean age of 30.6 + 4.6 years. The subcategory “Implications in personal life” (40.9%), “Family support” (29.1%) and “Financial burden” (29%) were the categories that obtained the highest score in the QASCI questionnaire among the participating caregivers, being classified as moderate.CONCLUSIONS: The increased burden on caregivers was identified in subcategories related to greater physical strain on the caregiver, the lack of a family support network and the increased financial impact on family income. These factors can compromise the caregiver's participation in social activities that are not directly related to the child's care. Emotional factors in this study were not related to the increased burden on caregivers. |
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Overload level in informal caregivers of children with cerebral palsyNível de sobrecarga em cuidadores informais de crianças com paralisia cerebralfisioterapia e Terapia OcupacionalParalisia cerebral; cuidadores; pessoas com deficiência; crianças com deficiência; cuidado da criança.cerebral palsy; caregivers; disabled people; disabled children; child care.OBJECTIVE: To identify the physical, emotional and social burden of informal caregivers of children with Cerebral Palsy (CP) treated at the outpatient clinic of the Faculty of Physiotherapy and Occupational Therapy (FFTO) of the Federal University of Pará (UFPA).METHODS: This is a descriptive and cross-sectional study with caregivers of children with a clinical diagnosis of CP attended at the FFTO-UFPA physiotherapy sector. The Informal Caregiver Burden Assessment Questionnaire (QASCI) and a form with identification and sociodemographic data of the caregivers were used. The collected data were transcribed to a database in the Excel® program. In order to describe the findings, descriptive statistics (mean, standard deviation, percentage) was used.RESULTS: The sample consisted of six mothers with a mean age of 30.6 + 4.6 years. The subcategory “Implications in personal life” (40.9%), “Family support” (29.1%) and “Financial burden” (29%) were the categories that obtained the highest score in the QASCI questionnaire among the participating caregivers, being classified as moderate.CONCLUSIONS: The increased burden on caregivers was identified in subcategories related to greater physical strain on the caregiver, the lack of a family support network and the increased financial impact on family income. These factors can compromise the caregiver's participation in social activities that are not directly related to the child's care. Emotional factors in this study were not related to the increased burden on caregivers.OBJETIVO: Identificar a sobrecarga física, emocional e social dos cuidadores informais de crianças com paralisia cerebral (PC) atendidos no ambulatório da Faculdade de Fisioterapia e Terapia Ocupacional (FFTO) da Universidade Federal do Pará (UFPA).MÉTODOS: Trata-se de um estudo descritivo e transversal com cuidadores de crianças com o diagnóstico clínico de PC, atendidas no setor de fisioterapia da FFTO-UFPA. Para a coleta de dados utilizou-se o questionário de Avaliação da Sobrecarga do Cuidador Informal (QASCI) e um formulário com identificação e dados sociodemográficos dos cuidadores. Os dados coletados foram transcritos para um banco de dados no programa Excel®. No intuito de descrever os achados, foi utilizada a estatística descritiva (média, desvio padrão, percentual).RESULTADOS: A amostra foi composta por seis mães com média de idade de 30,6+4,6 anos. As subdimensões Implicações na vida pessoal (40,9%), Suporte familiar (29,1%) e Sobrecarga financeira (29%) foram as categorias que obtiveram maior escore no questionário QASCI dentre os cuidadores participantes, sendo classificadas com nível moderado.CONCLUSÕES: O aumento da sobrecarga das cuidadoras foi identificado em subcategorias relacionadas ao maior desgaste físico da cuidadora, da falta de uma rede de apoio familiar e do aumento do impacto financeiro na renda familiar. Esses fatores podem comprometer a participação da cuidadora em atividades sociais que não estejam diretamente relacionados ao cuidado da criança. Os fatores emocionais, neste estudo, não foram relacionados ao aumento da sobrecarga das cuidadoras.Universidade Tecnológica Federal do Paraná (UTFPR)financiamento PróprioCastro, Ketlin Jaquelline Santana deda Silva, Tâmara FurtadoCabral, Thais GomesOliveira, Thianne Suellen SantosRodrigues, Emanuele de Cássia RodriguesPinto, Denise da Silva2022-08-27info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.utfpr.edu.br/rbqv/article/view/1333710.3895/rbqv.v14n0.13337Revista Brasileira de Qualidade de Vida; v. 14 (2022)2175-085810.3895/rbqv.v14n0reponame:Revista Brasileira de Qualidade de Vidainstname:Universidade Tecnológica Federal do Paraná (UTFPR)instacron:UTFPRporhttps://periodicos.utfpr.edu.br/rbqv/article/view/13337/pdfDireitos autorais 2022 CC-BYhttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccess2024-05-01T10:37:38Zoai:periodicos.utfpr:article/13337Revistahttps://periodicos.utfpr.edu.br/rbqvPUBhttp://periodicos.utfpr.edu.br/rbqv/oai||rbqv-pg@utfpr.edu.br2175-08582175-0858opendoar:2024-05-01T10:37:38Revista Brasileira de Qualidade de Vida - Universidade Tecnológica Federal do Paraná (UTFPR)false |
dc.title.none.fl_str_mv |
Overload level in informal caregivers of children with cerebral palsy Nível de sobrecarga em cuidadores informais de crianças com paralisia cerebral |
title |
Overload level in informal caregivers of children with cerebral palsy |
spellingShingle |
Overload level in informal caregivers of children with cerebral palsy Castro, Ketlin Jaquelline Santana de fisioterapia e Terapia Ocupacional Paralisia cerebral; cuidadores; pessoas com deficiência; crianças com deficiência; cuidado da criança. cerebral palsy; caregivers; disabled people; disabled children; child care. |
title_short |
Overload level in informal caregivers of children with cerebral palsy |
title_full |
Overload level in informal caregivers of children with cerebral palsy |
title_fullStr |
Overload level in informal caregivers of children with cerebral palsy |
title_full_unstemmed |
Overload level in informal caregivers of children with cerebral palsy |
title_sort |
Overload level in informal caregivers of children with cerebral palsy |
author |
Castro, Ketlin Jaquelline Santana de |
author_facet |
Castro, Ketlin Jaquelline Santana de da Silva, Tâmara Furtado Cabral, Thais Gomes Oliveira, Thianne Suellen Santos Rodrigues, Emanuele de Cássia Rodrigues Pinto, Denise da Silva |
author_role |
author |
author2 |
da Silva, Tâmara Furtado Cabral, Thais Gomes Oliveira, Thianne Suellen Santos Rodrigues, Emanuele de Cássia Rodrigues Pinto, Denise da Silva |
author2_role |
author author author author author |
dc.contributor.none.fl_str_mv |
financiamento Próprio |
dc.contributor.author.fl_str_mv |
Castro, Ketlin Jaquelline Santana de da Silva, Tâmara Furtado Cabral, Thais Gomes Oliveira, Thianne Suellen Santos Rodrigues, Emanuele de Cássia Rodrigues Pinto, Denise da Silva |
dc.subject.por.fl_str_mv |
fisioterapia e Terapia Ocupacional Paralisia cerebral; cuidadores; pessoas com deficiência; crianças com deficiência; cuidado da criança. cerebral palsy; caregivers; disabled people; disabled children; child care. |
topic |
fisioterapia e Terapia Ocupacional Paralisia cerebral; cuidadores; pessoas com deficiência; crianças com deficiência; cuidado da criança. cerebral palsy; caregivers; disabled people; disabled children; child care. |
description |
OBJECTIVE: To identify the physical, emotional and social burden of informal caregivers of children with Cerebral Palsy (CP) treated at the outpatient clinic of the Faculty of Physiotherapy and Occupational Therapy (FFTO) of the Federal University of Pará (UFPA).METHODS: This is a descriptive and cross-sectional study with caregivers of children with a clinical diagnosis of CP attended at the FFTO-UFPA physiotherapy sector. The Informal Caregiver Burden Assessment Questionnaire (QASCI) and a form with identification and sociodemographic data of the caregivers were used. The collected data were transcribed to a database in the Excel® program. In order to describe the findings, descriptive statistics (mean, standard deviation, percentage) was used.RESULTS: The sample consisted of six mothers with a mean age of 30.6 + 4.6 years. The subcategory “Implications in personal life” (40.9%), “Family support” (29.1%) and “Financial burden” (29%) were the categories that obtained the highest score in the QASCI questionnaire among the participating caregivers, being classified as moderate.CONCLUSIONS: The increased burden on caregivers was identified in subcategories related to greater physical strain on the caregiver, the lack of a family support network and the increased financial impact on family income. These factors can compromise the caregiver's participation in social activities that are not directly related to the child's care. Emotional factors in this study were not related to the increased burden on caregivers. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-08-27 |
dc.type.none.fl_str_mv |
|
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.utfpr.edu.br/rbqv/article/view/13337 10.3895/rbqv.v14n0.13337 |
url |
https://periodicos.utfpr.edu.br/rbqv/article/view/13337 |
identifier_str_mv |
10.3895/rbqv.v14n0.13337 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.utfpr.edu.br/rbqv/article/view/13337/pdf |
dc.rights.driver.fl_str_mv |
Direitos autorais 2022 CC-BY http://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Direitos autorais 2022 CC-BY http://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Tecnológica Federal do Paraná (UTFPR) |
publisher.none.fl_str_mv |
Universidade Tecnológica Federal do Paraná (UTFPR) |
dc.source.none.fl_str_mv |
Revista Brasileira de Qualidade de Vida; v. 14 (2022) 2175-0858 10.3895/rbqv.v14n0 reponame:Revista Brasileira de Qualidade de Vida instname:Universidade Tecnológica Federal do Paraná (UTFPR) instacron:UTFPR |
instname_str |
Universidade Tecnológica Federal do Paraná (UTFPR) |
instacron_str |
UTFPR |
institution |
UTFPR |
reponame_str |
Revista Brasileira de Qualidade de Vida |
collection |
Revista Brasileira de Qualidade de Vida |
repository.name.fl_str_mv |
Revista Brasileira de Qualidade de Vida - Universidade Tecnológica Federal do Paraná (UTFPR) |
repository.mail.fl_str_mv |
||rbqv-pg@utfpr.edu.br |
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1809282492738306048 |