Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2020 |
| Outros Autores: | , , , , , , , , , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Institucional da FIOCRUZ (ARCA) |
| Texto Completo: | https://www.arca.fiocruz.br/handle/icict/42535 |
Resumo: | London School of Hygiene & Tropical Medicine. Department of Infectious Disease Epidemiology. London. UK. |
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Simas, ClarissaPenn-Kekana, LovedayKuper, HannahLyra, Tereza MacielMoreira, Maria Elisabeth LopesAlbuquerque, Maria do Socorro Veloso deAraújo, Thália Velho Barreto deMelo, Ana Paula Lopes deMendes, Corina Helena FigueiraMoreira, Martha Cristina NunesNascimento, Marcos Antonio Ferreira doPimentel, CamilaPinto, MarciaValongueiro, SandraLarson, Heidi2020-08-04T18:44:56Z2020-08-04T18:44:56Z2020SIMAS, Clarissa et al. Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil. Health Policy Plan, p. 1-9, 2020.0268-1080https://www.arca.fiocruz.br/handle/icict/4253510.1093/heapol/czaa042engOxford University PressEsperançaZika virusHopeZika virusCaregiversCongenital Zika syndromeHealthcare workersMicrocephalyTrustHope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazilinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleLondon School of Hygiene & Tropical Medicine. Department of Infectious Disease Epidemiology. London. UK.London School of Hygiene & Tropical Medicine. Department of Infectious Disease Epidemiology. London. UK.London School of Hygiene & Tropical Medicine. International Centre for Evidence in Disability. Clinical Research Department.. London. UK.Fundação Oswaldo Cruz. Instituto Aggeu Magalhães. Recife, PE. Brasil. / Universidade Federal de Pernambuco, Faculdade de Medicina. Departamento de Medicina Social.Recife, PE. Brasil.Fundação Oswaldo Cruz. Instituto Nacional da Saúde da Mulher da Criança e do Adolescente Fernandes Figueira. Rio de Janeiro, RJ. Brasil,Universidade Federal de Pernambuco, Faculdade de Medicina. Centro de Medicina Social.Pós Graduação em Saúde Pública.Recife, PE. Brasil.Universidade Federal de Pernambuco, Faculdade de Medicina. Centro de Medicina Social.Pós Graduação em Saúde Pública.Recife, PE. Brasil.Fundação Oswaldo Cruz. Instituto Aggeu Magalhães. Recife, PE. Brasil. / Universidade Federal de Pernambuco, Núcleo de Saúde Coletiva.Recife, PE. Brasil.Fundação Oswaldo Cruz. Instituto Nacional da Saúde da Mulher da Criança e do Adolescente Fernandes Figueira. Rio de Janeiro, RJ. Brasil.Fundação Oswaldo Cruz. Instituto Nacional da Saúde da Mulher da Criança e do Adolescente Fernandes Figueira. Rio de Janeiro, RJ. Brasil.Fundação Oswaldo Cruz. Instituto Nacional da Saúde da Mulher da Criança e do Adolescente Fernandes Figueira. Rio de Janeiro, RJ. Brasil.Fundação Oswaldo Cruz. Instituto Aggeu Magalhães. Recife, PE. Brasil.Fundação Oswaldo Cruz. Instituto Nacional da Saúde da Mulher da Criança e do Adolescente Fernandes Figueira. Rio de Janeiro, RJ. Brasil.Universidade Federal de Pernambuco, Faculdade de Medicina. Centro de Medicina Social.Pós Graduação em Saúde Pública.Recife, PE. Brasil.London School of Hygiene & Tropical Medicine. Department of Infectious Disease Epidemiology. London. UK.This article investigates how hope and trust played out for two groups at the forefront of the Zika epidemic: caregivers of children with congenital Zika syndrome and healthcare workers. We conducted 76 in-depth interviews with members of both groups to examine hope and trust in clinical settings, as well as trust in public institutions, in the health system and in the government of Brazil. During and after the Zika epidemic, hope and trust were important to manage uncertainty and risk, given the lack of scientific evidence about the neurological consequences of Zika virus infection. The capacity of healthcare workers and caregivers to trust and to co-create hope seems to have allowed relationships to develop that cushioned social impacts, reinforced adherence to therapeutics and enabled information flow. Hope facilitated parents to trust healthcare workers and interventions. Hope and trust appeared to be central in the establishment of support networks for caregivers. At the same time, mistrust in the government and state institutions may have allowed rumours and alternative explanations about Zika to spread. It may also have strengthened activism in mother's associations, which seemed to have both positive and negative implications for healthcare service delivery. The findings also point to distrust in international health actors and global health agenda, which can impact community engagement in future outbreak responses in Brazil and other countries in Latin America.info:eu-repo/semantics/openAccessreponame:Repositório Institucional da FIOCRUZ (ARCA)instname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZLICENSElicense.txtlicense.txttext/plain; charset=utf-82991https://www.arca.fiocruz.br/bitstream/icict/42535/1/license.txt5a560609d32a3863062d77ff32785d58MD51ORIGINALczaa042.pdfczaa042.pdfapplication/pdf200701https://www.arca.fiocruz.br/bitstream/icict/42535/2/czaa042.pdf27da5005b8c75725f988f8b7cb99ce87MD52TEXTczaa042.pdf.txtczaa042.pdf.txtExtracted texttext/plain59871https://www.arca.fiocruz.br/bitstream/icict/42535/3/czaa042.pdf.txte22836ecbd3d277716f861322b43b238MD53icict/425352020-08-05 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| dc.title.pt_BR.fl_str_mv |
Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil |
| title |
Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil |
| spellingShingle |
Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil Simas, Clarissa Esperança Zika virus Hope Zika virus Caregivers Congenital Zika syndrome Healthcare workers Microcephaly Trust |
| title_short |
Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil |
| title_full |
Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil |
| title_fullStr |
Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil |
| title_full_unstemmed |
Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil |
| title_sort |
Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil |
| author |
Simas, Clarissa |
| author_facet |
Simas, Clarissa Penn-Kekana, Loveday Kuper, Hannah Lyra, Tereza Maciel Moreira, Maria Elisabeth Lopes Albuquerque, Maria do Socorro Veloso de Araújo, Thália Velho Barreto de Melo, Ana Paula Lopes de Mendes, Corina Helena Figueira Moreira, Martha Cristina Nunes Nascimento, Marcos Antonio Ferreira do Pimentel, Camila Pinto, Marcia Valongueiro, Sandra Larson, Heidi |
| author_role |
author |
| author2 |
Penn-Kekana, Loveday Kuper, Hannah Lyra, Tereza Maciel Moreira, Maria Elisabeth Lopes Albuquerque, Maria do Socorro Veloso de Araújo, Thália Velho Barreto de Melo, Ana Paula Lopes de Mendes, Corina Helena Figueira Moreira, Martha Cristina Nunes Nascimento, Marcos Antonio Ferreira do Pimentel, Camila Pinto, Marcia Valongueiro, Sandra Larson, Heidi |
| author2_role |
author author author author author author author author author author author author author author |
| dc.contributor.author.fl_str_mv |
Simas, Clarissa Penn-Kekana, Loveday Kuper, Hannah Lyra, Tereza Maciel Moreira, Maria Elisabeth Lopes Albuquerque, Maria do Socorro Veloso de Araújo, Thália Velho Barreto de Melo, Ana Paula Lopes de Mendes, Corina Helena Figueira Moreira, Martha Cristina Nunes Nascimento, Marcos Antonio Ferreira do Pimentel, Camila Pinto, Marcia Valongueiro, Sandra Larson, Heidi |
| dc.subject.other.pt_BR.fl_str_mv |
Esperança Zika virus |
| topic |
Esperança Zika virus Hope Zika virus Caregivers Congenital Zika syndrome Healthcare workers Microcephaly Trust |
| dc.subject.en.pt_BR.fl_str_mv |
Hope Zika virus Caregivers Congenital Zika syndrome Healthcare workers Microcephaly Trust |
| description |
London School of Hygiene & Tropical Medicine. Department of Infectious Disease Epidemiology. London. UK. |
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2020 |
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2020-08-04T18:44:56Z |
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2020-08-04T18:44:56Z |
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2020 |
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info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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SIMAS, Clarissa et al. Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil. Health Policy Plan, p. 1-9, 2020. |
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https://www.arca.fiocruz.br/handle/icict/42535 |
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0268-1080 |
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10.1093/heapol/czaa042 |
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SIMAS, Clarissa et al. Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil. Health Policy Plan, p. 1-9, 2020. 0268-1080 10.1093/heapol/czaa042 |
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Oxford University Press |
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Oxford University Press |
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