A standard set of person-centred outcomes for diabetes mellitus
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , , , , , , , , , , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10362/147417 |
Resumo: | Aims: To select a core list of standard outcomes for diabetes to be routinely applied internationally, including patient-reported outcomes. Methods: We conducted a structured systematic review of outcome measures, focusing on adults with either type 1 or type 2 diabetes. This process was followed by a consensus-driven modified Delphi panel, including a multidisciplinary group of academics, health professionals and people with diabetes. External feedback to validate the set of outcome measures was sought from people with diabetes and health professionals. Results: The panel identified an essential set of clinical outcomes related to diabetes control, acute events, chronic complications, health service utilisation, and survival that can be measured using routine administrative data and/or clinical records. Three instruments were recommended for annual measurement of patient-reported outcome measures: the WHO Well-Being Index for psychological well-being; the depression module of the Patient Health Questionnaire for depression; and the Problem Areas in Diabetes scale for diabetes distress. A range of factors related to demographic, diagnostic profile, lifestyle, social support and treatment of diabetes were also identified for case-mix adjustment. Conclusions: We recommend the standard set identified in this study for use in routine practice to monitor, benchmark and improve diabetes care. The inclusion of patient-reported outcomes enables people living with diabetes to report directly on their condition in a structured way. |
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A standard set of person-centred outcomes for diabetes mellitusresults of an international and unified approachInternal MedicineEndocrinology, Diabetes and MetabolismEndocrinologySDG 3 - Good Health and Well-beingAims: To select a core list of standard outcomes for diabetes to be routinely applied internationally, including patient-reported outcomes. Methods: We conducted a structured systematic review of outcome measures, focusing on adults with either type 1 or type 2 diabetes. This process was followed by a consensus-driven modified Delphi panel, including a multidisciplinary group of academics, health professionals and people with diabetes. External feedback to validate the set of outcome measures was sought from people with diabetes and health professionals. Results: The panel identified an essential set of clinical outcomes related to diabetes control, acute events, chronic complications, health service utilisation, and survival that can be measured using routine administrative data and/or clinical records. Three instruments were recommended for annual measurement of patient-reported outcome measures: the WHO Well-Being Index for psychological well-being; the depression module of the Patient Health Questionnaire for depression; and the Problem Areas in Diabetes scale for diabetes distress. A range of factors related to demographic, diagnostic profile, lifestyle, social support and treatment of diabetes were also identified for case-mix adjustment. Conclusions: We recommend the standard set identified in this study for use in routine practice to monitor, benchmark and improve diabetes care. The inclusion of patient-reported outcomes enables people living with diabetes to report directly on their condition in a structured way.NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)RUNNano, J.Carinci, F.Okunade, O.Whittaker, S.Walbaum, M.Barnard-Kelly, K.Barthelmes, D.Benson, T.Calderon-Margalit, R.Dennaoui, J.Fraser, S.Haig, R.Hernández-Jimenéz, S.Levitt, N.Mbanya, J. C.Naqvi, S.Peters, A. L.Peyrot, M.Prabhaharan, M.Pumerantz, A.Raposo, J.Santana, M.Schmitt, A.Skovlund, S. E.Garcia-Ulloa, A. C.Wee, H. L.Zaletel, J.Massi-Benedetti, M.2023-01-12T22:13:49Z2020-122020-12-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10362/147417eng0742-3071PURE: 17782900https://doi.org/10.1111/dme.14286info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T05:28:30Zoai:run.unl.pt:10362/147417Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:52:54.662301Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
A standard set of person-centred outcomes for diabetes mellitus results of an international and unified approach |
title |
A standard set of person-centred outcomes for diabetes mellitus |
spellingShingle |
A standard set of person-centred outcomes for diabetes mellitus Nano, J. Internal Medicine Endocrinology, Diabetes and Metabolism Endocrinology SDG 3 - Good Health and Well-being |
title_short |
A standard set of person-centred outcomes for diabetes mellitus |
title_full |
A standard set of person-centred outcomes for diabetes mellitus |
title_fullStr |
A standard set of person-centred outcomes for diabetes mellitus |
title_full_unstemmed |
A standard set of person-centred outcomes for diabetes mellitus |
title_sort |
A standard set of person-centred outcomes for diabetes mellitus |
author |
Nano, J. |
author_facet |
Nano, J. Carinci, F. Okunade, O. Whittaker, S. Walbaum, M. Barnard-Kelly, K. Barthelmes, D. Benson, T. Calderon-Margalit, R. Dennaoui, J. Fraser, S. Haig, R. Hernández-Jimenéz, S. Levitt, N. Mbanya, J. C. Naqvi, S. Peters, A. L. Peyrot, M. Prabhaharan, M. Pumerantz, A. Raposo, J. Santana, M. Schmitt, A. Skovlund, S. E. Garcia-Ulloa, A. C. Wee, H. L. Zaletel, J. Massi-Benedetti, M. |
author_role |
author |
author2 |
Carinci, F. Okunade, O. Whittaker, S. Walbaum, M. Barnard-Kelly, K. Barthelmes, D. Benson, T. Calderon-Margalit, R. Dennaoui, J. Fraser, S. Haig, R. Hernández-Jimenéz, S. Levitt, N. Mbanya, J. C. Naqvi, S. Peters, A. L. Peyrot, M. Prabhaharan, M. Pumerantz, A. Raposo, J. Santana, M. Schmitt, A. Skovlund, S. E. Garcia-Ulloa, A. C. Wee, H. L. Zaletel, J. Massi-Benedetti, M. |
author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM) RUN |
dc.contributor.author.fl_str_mv |
Nano, J. Carinci, F. Okunade, O. Whittaker, S. Walbaum, M. Barnard-Kelly, K. Barthelmes, D. Benson, T. Calderon-Margalit, R. Dennaoui, J. Fraser, S. Haig, R. Hernández-Jimenéz, S. Levitt, N. Mbanya, J. C. Naqvi, S. Peters, A. L. Peyrot, M. Prabhaharan, M. Pumerantz, A. Raposo, J. Santana, M. Schmitt, A. Skovlund, S. E. Garcia-Ulloa, A. C. Wee, H. L. Zaletel, J. Massi-Benedetti, M. |
dc.subject.por.fl_str_mv |
Internal Medicine Endocrinology, Diabetes and Metabolism Endocrinology SDG 3 - Good Health and Well-being |
topic |
Internal Medicine Endocrinology, Diabetes and Metabolism Endocrinology SDG 3 - Good Health and Well-being |
description |
Aims: To select a core list of standard outcomes for diabetes to be routinely applied internationally, including patient-reported outcomes. Methods: We conducted a structured systematic review of outcome measures, focusing on adults with either type 1 or type 2 diabetes. This process was followed by a consensus-driven modified Delphi panel, including a multidisciplinary group of academics, health professionals and people with diabetes. External feedback to validate the set of outcome measures was sought from people with diabetes and health professionals. Results: The panel identified an essential set of clinical outcomes related to diabetes control, acute events, chronic complications, health service utilisation, and survival that can be measured using routine administrative data and/or clinical records. Three instruments were recommended for annual measurement of patient-reported outcome measures: the WHO Well-Being Index for psychological well-being; the depression module of the Patient Health Questionnaire for depression; and the Problem Areas in Diabetes scale for diabetes distress. A range of factors related to demographic, diagnostic profile, lifestyle, social support and treatment of diabetes were also identified for case-mix adjustment. Conclusions: We recommend the standard set identified in this study for use in routine practice to monitor, benchmark and improve diabetes care. The inclusion of patient-reported outcomes enables people living with diabetes to report directly on their condition in a structured way. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-12 2020-12-01T00:00:00Z 2023-01-12T22:13:49Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10362/147417 |
url |
http://hdl.handle.net/10362/147417 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
0742-3071 PURE: 17782900 https://doi.org/10.1111/dme.14286 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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