Access to timely formal dementia care in Europe

Detalhes bibliográficos
Autor(a) principal: Kerpershoek, Liselot
Data de Publicação: 2016
Outros Autores: De Vugt, Marjolein, Wolfs, Claire, Jelley, Hannah, Orrel, Martin, Woods, Bob, Stephan, Astrid, Bieber, Anja, Meyer, Gabriele, Engedal, Knut, Selbaek, Geir, Handels, Ron, Wimo, Anders, Hopper, Louise, Irving, Kate, Marques, Maria João Lopes, Gonçalves-Pereira, Manuel, Portolani, Elisa, Zanetti, Orazio, Verhey, Frans
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10362/95555
Resumo: The project is supported through the following funding organizations under the aegis of JPND - www.jpnd.eu. Germany, Ministry of Education and Research, Ireland, Health research board, Italy, Ministry of Health, the Netherlands, The Netherlands organization for Health Research and Development, Sweden, The Swedish Research Council for Health, Working Life and Welfare, Norway, The Research Council of Norway, Portugal, Foundation for Science and Technology, (Fundação para a Ciência e Tecnologia (FCT - JPND-HC/0001/2012), United Kingdom, Economic and Social Research Council. JPND has read and approved of the protocol of the Actifcare study.
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spelling Access to timely formal dementia care in EuropeProtocol of the Actifcare (ACcess to Timely Formal Care) studyDementiaFormal careNeedsService useHealth PolicySDG 3 - Good Health and Well-beingThe project is supported through the following funding organizations under the aegis of JPND - www.jpnd.eu. Germany, Ministry of Education and Research, Ireland, Health research board, Italy, Ministry of Health, the Netherlands, The Netherlands organization for Health Research and Development, Sweden, The Swedish Research Council for Health, Working Life and Welfare, Norway, The Research Council of Norway, Portugal, Foundation for Science and Technology, (Fundação para a Ciência e Tecnologia (FCT - JPND-HC/0001/2012), United Kingdom, Economic and Social Research Council. JPND has read and approved of the protocol of the Actifcare study.Background: Previous findings indicate that people with dementia and their informal carers experience difficulties accessing and using formal care services due to a mismatch between needs and service use. This mismatch causes overall dissatisfaction and is a waste of the scarce financial care resources. This article presents the background and methods of the Actifcare (ACcess to Timely Formal Care) project. This is a European study aiming at best-practice development in finding timely access to formal care for community-dwelling people with dementia and their informal carers. There are five main objectives: 1) Explore predisposing and enabling factors associated with the use of formal care, 2) Explore the association between the use of formal care, needs and quality of life and 3) Compare these across European countries, 4) Understand the costs and consequences of formal care services utilization in people with unmet needs, 5) Determine the major costs and quality of life drivers and their relationship with formal care services across European countries. Methods: In a longitudinal cohort study conducted in eight European countries approximately 450 people with dementia and informal carers will be assessed three times in 1 year (baseline, 6 and 12 months). In this year we will closely monitor the process of finding access to formal care. Data on service use, quality of life and needs will be collected. Discussion: The results of Actifcare are expected to reveal best-practices in organizing formal care. Knowledge about enabling and predisposing factors regarding access to care services, as well as its costs and consequences, can advance the state of the art in health systems research into pathways to dementia care, in order to benefit people with dementia and their informal carers.Centro de Estudos de Doenças Crónicas (CEDOC)NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)RUNKerpershoek, LiselotDe Vugt, MarjoleinWolfs, ClaireJelley, HannahOrrel, MartinWoods, BobStephan, AstridBieber, AnjaMeyer, GabrieleEngedal, KnutSelbaek, GeirHandels, RonWimo, AndersHopper, LouiseIrving, KateMarques, Maria João LopesGonçalves-Pereira, ManuelPortolani, ElisaZanetti, OrazioVerhey, Frans2020-04-02T22:28:19Z2016-08-232016-08-23T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10362/95555eng1472-6963PURE: 1693569https://doi.org/10.1186/s12913-016-1672-3info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T04:43:36Zoai:run.unl.pt:10362/95555Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:38:23.316692Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Access to timely formal dementia care in Europe
Protocol of the Actifcare (ACcess to Timely Formal Care) study
title Access to timely formal dementia care in Europe
spellingShingle Access to timely formal dementia care in Europe
Kerpershoek, Liselot
Dementia
Formal care
Needs
Service use
Health Policy
SDG 3 - Good Health and Well-being
title_short Access to timely formal dementia care in Europe
title_full Access to timely formal dementia care in Europe
title_fullStr Access to timely formal dementia care in Europe
title_full_unstemmed Access to timely formal dementia care in Europe
title_sort Access to timely formal dementia care in Europe
author Kerpershoek, Liselot
author_facet Kerpershoek, Liselot
De Vugt, Marjolein
Wolfs, Claire
Jelley, Hannah
Orrel, Martin
Woods, Bob
Stephan, Astrid
Bieber, Anja
Meyer, Gabriele
Engedal, Knut
Selbaek, Geir
Handels, Ron
Wimo, Anders
Hopper, Louise
Irving, Kate
Marques, Maria João Lopes
Gonçalves-Pereira, Manuel
Portolani, Elisa
Zanetti, Orazio
Verhey, Frans
author_role author
author2 De Vugt, Marjolein
Wolfs, Claire
Jelley, Hannah
Orrel, Martin
Woods, Bob
Stephan, Astrid
Bieber, Anja
Meyer, Gabriele
Engedal, Knut
Selbaek, Geir
Handels, Ron
Wimo, Anders
Hopper, Louise
Irving, Kate
Marques, Maria João Lopes
Gonçalves-Pereira, Manuel
Portolani, Elisa
Zanetti, Orazio
Verhey, Frans
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Centro de Estudos de Doenças Crónicas (CEDOC)
NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
RUN
dc.contributor.author.fl_str_mv Kerpershoek, Liselot
De Vugt, Marjolein
Wolfs, Claire
Jelley, Hannah
Orrel, Martin
Woods, Bob
Stephan, Astrid
Bieber, Anja
Meyer, Gabriele
Engedal, Knut
Selbaek, Geir
Handels, Ron
Wimo, Anders
Hopper, Louise
Irving, Kate
Marques, Maria João Lopes
Gonçalves-Pereira, Manuel
Portolani, Elisa
Zanetti, Orazio
Verhey, Frans
dc.subject.por.fl_str_mv Dementia
Formal care
Needs
Service use
Health Policy
SDG 3 - Good Health and Well-being
topic Dementia
Formal care
Needs
Service use
Health Policy
SDG 3 - Good Health and Well-being
description The project is supported through the following funding organizations under the aegis of JPND - www.jpnd.eu. Germany, Ministry of Education and Research, Ireland, Health research board, Italy, Ministry of Health, the Netherlands, The Netherlands organization for Health Research and Development, Sweden, The Swedish Research Council for Health, Working Life and Welfare, Norway, The Research Council of Norway, Portugal, Foundation for Science and Technology, (Fundação para a Ciência e Tecnologia (FCT - JPND-HC/0001/2012), United Kingdom, Economic and Social Research Council. JPND has read and approved of the protocol of the Actifcare study.
publishDate 2016
dc.date.none.fl_str_mv 2016-08-23
2016-08-23T00:00:00Z
2020-04-02T22:28:19Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10362/95555
url http://hdl.handle.net/10362/95555
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 1472-6963
PURE: 1693569
https://doi.org/10.1186/s12913-016-1672-3
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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