Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://hdl.handle.net/1822/70759 |
Resumo: | Objective Cancer diagnosis affects patients, their families, and their caregivers in particular. This study focused on the validation of the CareGiver Oncology Quality of Life (CarGOQoL) questionnaire in Portuguese caregivers of patients with multiple myeloma, from the caregiver's point of view. Method This was a cross-sectional study with 146 caregivers of patients with multiple myeloma from outpatient medical oncology and clinical hematology consultations from five hospitals in north and central Portugal. Participants were assessed on quality of life (QoL), psychological morbidity and social support. Result The Portuguese version maintains 17 of the original 29 items version, maintaining general coherence and a dimensional structure that is clinically interpretable. Reliability findings indicated good internal consistency for the total scale (0.86) and respective subscales (0.75 to 0.88), which is in agreement with the alpha values from the previous CarGOQoL validation study for the corresponding subscales (0.74 to 0.89) and total scale (0.90). |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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7160 |
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Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patientsMultiple myelomaCaregiverQuestionnaire validationQuality of lifePsychological morbidityScience & TechnologyObjective Cancer diagnosis affects patients, their families, and their caregivers in particular. This study focused on the validation of the CareGiver Oncology Quality of Life (CarGOQoL) questionnaire in Portuguese caregivers of patients with multiple myeloma, from the caregiver's point of view. Method This was a cross-sectional study with 146 caregivers of patients with multiple myeloma from outpatient medical oncology and clinical hematology consultations from five hospitals in north and central Portugal. Participants were assessed on quality of life (QoL), psychological morbidity and social support. Result The Portuguese version maintains 17 of the original 29 items version, maintaining general coherence and a dimensional structure that is clinically interpretable. Reliability findings indicated good internal consistency for the total scale (0.86) and respective subscales (0.75 to 0.88), which is in agreement with the alpha values from the previous CarGOQoL validation study for the corresponding subscales (0.74 to 0.89) and total scale (0.90).This study was supported by a grant from the Portuguese Association Against Leukemia and the Portuguese Leukemia and Lymphoma Association.Cambridge University PressUniversidade do MinhoPereira, M. GraçaVilaça, MargaridaPereira, MartaBacalhau, RosarioMonteiro, SaraFernandes, BrunaFaria, SaraFerreira, Gabriela2020-04-012020-04-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://hdl.handle.net/1822/70759eng1478-951510.1017/S147895151900047631317865info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-10-07T01:22:22Zoai:repositorium.sdum.uminho.pt:1822/70759Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T19:52:39.549789Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients |
title |
Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients |
spellingShingle |
Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients Pereira, M. Graça Multiple myeloma Caregiver Questionnaire validation Quality of life Psychological morbidity Science & Technology |
title_short |
Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients |
title_full |
Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients |
title_fullStr |
Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients |
title_full_unstemmed |
Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients |
title_sort |
Validation of the caregiver oncology quality of life questionnaire in portuguese caregivers of myeloma patients |
author |
Pereira, M. Graça |
author_facet |
Pereira, M. Graça Vilaça, Margarida Pereira, Marta Bacalhau, Rosario Monteiro, Sara Fernandes, Bruna Faria, Sara Ferreira, Gabriela |
author_role |
author |
author2 |
Vilaça, Margarida Pereira, Marta Bacalhau, Rosario Monteiro, Sara Fernandes, Bruna Faria, Sara Ferreira, Gabriela |
author2_role |
author author author author author author author |
dc.contributor.none.fl_str_mv |
Universidade do Minho |
dc.contributor.author.fl_str_mv |
Pereira, M. Graça Vilaça, Margarida Pereira, Marta Bacalhau, Rosario Monteiro, Sara Fernandes, Bruna Faria, Sara Ferreira, Gabriela |
dc.subject.por.fl_str_mv |
Multiple myeloma Caregiver Questionnaire validation Quality of life Psychological morbidity Science & Technology |
topic |
Multiple myeloma Caregiver Questionnaire validation Quality of life Psychological morbidity Science & Technology |
description |
Objective Cancer diagnosis affects patients, their families, and their caregivers in particular. This study focused on the validation of the CareGiver Oncology Quality of Life (CarGOQoL) questionnaire in Portuguese caregivers of patients with multiple myeloma, from the caregiver's point of view. Method This was a cross-sectional study with 146 caregivers of patients with multiple myeloma from outpatient medical oncology and clinical hematology consultations from five hospitals in north and central Portugal. Participants were assessed on quality of life (QoL), psychological morbidity and social support. Result The Portuguese version maintains 17 of the original 29 items version, maintaining general coherence and a dimensional structure that is clinically interpretable. Reliability findings indicated good internal consistency for the total scale (0.86) and respective subscales (0.75 to 0.88), which is in agreement with the alpha values from the previous CarGOQoL validation study for the corresponding subscales (0.74 to 0.89) and total scale (0.90). |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-04-01 2020-04-01T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://hdl.handle.net/1822/70759 |
url |
https://hdl.handle.net/1822/70759 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
1478-9515 10.1017/S1478951519000476 31317865 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Cambridge University Press |
publisher.none.fl_str_mv |
Cambridge University Press |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799133119249383424 |