Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process

Detalhes bibliográficos
Autor(a) principal: Hilário, Ana Patrícia
Data de Publicação: 2021
Outros Autores: Augusto, Fábio Rafael
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Pesquisa Qualitativa (Online)
Texto Completo: https://editora.sepq.org.br/rpq/article/view/379
Resumo: Drawing upon a research on the dying process, this article seeks to discuss some of the challenges that have emerged in the context of a qualitative health research ethnography. The sensitivity of the topic and the vulnerability of the participants led to the need to create strategies to mitigate the potential undesirable effects for those involved in the research. The ethical and methodological aspects, as well as the impact that the research can assume for the participants and for the researcher are discussed. The conclusions point, on the one hand, to the need to create well-defined guidelines for research with human subjects and, on the other, to the importance of adapting the data collection instruments to create proximity and safeguard the well-being of all the actors. This article aims to contribute to the debate around the “backstage” of the research, revealing the dilemmas that across several studies. Keywords: Qualitative research; Sensitivity; Vulnerability; Ethics.
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spelling Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying processDesafios éticos, metodológicos e práticos na pesquisa qualitativa em saúde: um olhar a partir de um estudo em torno do processo de morrerDrawing upon a research on the dying process, this article seeks to discuss some of the challenges that have emerged in the context of a qualitative health research ethnography. The sensitivity of the topic and the vulnerability of the participants led to the need to create strategies to mitigate the potential undesirable effects for those involved in the research. The ethical and methodological aspects, as well as the impact that the research can assume for the participants and for the researcher are discussed. The conclusions point, on the one hand, to the need to create well-defined guidelines for research with human subjects and, on the other, to the importance of adapting the data collection instruments to create proximity and safeguard the well-being of all the actors. This article aims to contribute to the debate around the “backstage” of the research, revealing the dilemmas that across several studies. Keywords: Qualitative research; Sensitivity; Vulnerability; Ethics.Partindo de uma experiência de investigação em torno do processo de morrer, este artigo procura discutir alguns dos desafios que emergiram no âmbito de uma pesquisa qualitativa de natureza etnográfica no campo da saúde. A sensibilidade do tema e a vulnerabilidade dos participantes conduziu à necessidade de criar estratégias que mitigassem potenciais efeitos indesejados para os atores envolvidos. Desta forma, discutem-se questões ético-metodológicas e o impacto que a pesquisa assumiu para os participantes e investigador.  As principais conclusões apontam, por um lado, para a necessidade de criar diretrizes bem definidas no que diz respeito à pesquisa com sujeitos humanos e, por outro, para a importância de adequar os instrumentos de recolha no sentido de criar proximidade e salvaguardar o bem-estar de todos os intervenientes. Este artigo procura contribuir para um debate em torno dos “bastidores” da pesquisa, dando a conhecer dilemas transversais à investigação. Palavras-chave: Pesquisa qualitativa; Sensibilidade; Vulnerabilidade; Ética.Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ2021-08-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://editora.sepq.org.br/rpq/article/view/37910.33361/RPQ.2021.v.9.n.21.379Qualitative Research Journal ; Vol. 9 No. 21 (2021); 306-321Revista Pesquisa Qualitativa; v. 9 n. 21 (2021); 306-3212525-82221809-025710.33361/RPQ.v.9.n.21reponame:Revista Pesquisa Qualitativa (Online)instname:Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)instacron:SE&PQporhttps://editora.sepq.org.br/rpq/article/view/379/276Copyright (c) 2021 Revista Pesquisa Qualitativahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessHilário, Ana PatríciaAugusto, Fábio Rafael2021-08-31T17:25:04Zoai:editora.sepq.org.br:article/379Revistahttps://editora.sepq.org.br/index.php/rpq/indexONGhttps://editora.sepq.org.br/index.php/rpq/oai||revista.rpq@gmail.com2525-82221809-0257opendoar:2021-08-31T17:25:04Revista Pesquisa Qualitativa (Online) - Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)false
dc.title.none.fl_str_mv Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
Desafios éticos, metodológicos e práticos na pesquisa qualitativa em saúde: um olhar a partir de um estudo em torno do processo de morrer
title Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
spellingShingle Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
Hilário, Ana Patrícia
title_short Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
title_full Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
title_fullStr Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
title_full_unstemmed Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
title_sort Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
author Hilário, Ana Patrícia
author_facet Hilário, Ana Patrícia
Augusto, Fábio Rafael
author_role author
author2 Augusto, Fábio Rafael
author2_role author
dc.contributor.author.fl_str_mv Hilário, Ana Patrícia
Augusto, Fábio Rafael
description Drawing upon a research on the dying process, this article seeks to discuss some of the challenges that have emerged in the context of a qualitative health research ethnography. The sensitivity of the topic and the vulnerability of the participants led to the need to create strategies to mitigate the potential undesirable effects for those involved in the research. The ethical and methodological aspects, as well as the impact that the research can assume for the participants and for the researcher are discussed. The conclusions point, on the one hand, to the need to create well-defined guidelines for research with human subjects and, on the other, to the importance of adapting the data collection instruments to create proximity and safeguard the well-being of all the actors. This article aims to contribute to the debate around the “backstage” of the research, revealing the dilemmas that across several studies. Keywords: Qualitative research; Sensitivity; Vulnerability; Ethics.
publishDate 2021
dc.date.none.fl_str_mv 2021-08-31
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
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dc.identifier.uri.fl_str_mv https://editora.sepq.org.br/rpq/article/view/379
10.33361/RPQ.2021.v.9.n.21.379
url https://editora.sepq.org.br/rpq/article/view/379
identifier_str_mv 10.33361/RPQ.2021.v.9.n.21.379
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://editora.sepq.org.br/rpq/article/view/379/276
dc.rights.driver.fl_str_mv Copyright (c) 2021 Revista Pesquisa Qualitativa
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2021 Revista Pesquisa Qualitativa
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ
publisher.none.fl_str_mv Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ
dc.source.none.fl_str_mv Qualitative Research Journal ; Vol. 9 No. 21 (2021); 306-321
Revista Pesquisa Qualitativa; v. 9 n. 21 (2021); 306-321
2525-8222
1809-0257
10.33361/RPQ.v.9.n.21
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