Avaliação do padrão de sono, resiliência e qualidade de vida de crianças e adolescentes com condições crônicas hospitalizadas

• Autor(a) principal: Xavier, Welker da Silva
• Data de Publicação: 2023
• Outros Autores: [e-mail]
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Biblioteca Digital de Teses e Dissertações da UERJ
• Texto Completo: http://www.bdtd.uerj.br/handle/1/20361
• topic: Child; Adolescent; Chronic disease; Sleep wake disorders; Resilience, psychological; Quality of life; Pediatric nursing; Criança; Adolescente; Doença crônica; Transtornos do sono-vigília; Resiliência psicológica; Qualidade de vida; Enfermagem pediátrica; CIENCIAS DA SAUDE::ENFERMAGEM::ENFERMAGEM PEDIATRICA

Introduction: Children and adolescents with chronic conditions experience significant changes in their daily lives and that of their families, with numerous readaptations and coping strategies, in addition to frequently presenting multiple symptoms, which include sleep disturbances, fatigue, pain, nausea, among others, and compromise their quality of life. Objective: To explore sleep, resilience and health-related quality of life in children and adolescents with chronic conditions during hospitalization. Method: Quantitative, described and cross-sectional study. Participants were children and adolescents with chronic conditions. The instrument used to assess the sleep pattern was the wrist ActiGraph; to assess resilience, the Resilience Scale for Children and Adolescents by Sandra Prince-Embury was used, and to assess quality of life, the Pediatric Quality of Life Inventory; both have valid and reliable Brazilian versions. For data analysis, specific software for data analysis of ActiGraph, descriptive statistics and correlation test were used. Results: 40 children and adolescents between 9 and 18 years old, with chronic conditions, from two reference hospitals in Rio de Janeiro participated. The results showed compromised sleep, with a median sleep duration of 3.7 hours (IIQ = 109.35), median time awake after sleep onset of 39.62 minutes (IIQ = 31.65), percentage of 70.16% sleep (IIQ = 16.35) and sleep efficiency 89.43% (IIQ = 7.90). The scores for total health-related quality of life (Md = 60.86; IIQ = 22.83) and its physical dimensions (Md = 64.06; IIQ = 38.28), emotional (Md = 50.00; IIQ = 25.00) and school (Md = 50.00; IIQ = 31.25) were low. However, resilience levels were classified between medium and high. Correlations were found between health-related quality of life and resilience: the greater the social dimension of health-related quality of life, the greater the resilience control subscale. There was also a correlation between resilience and sleep, showing that the higher the emotional reactivity score, the longer the participants remained awake after falling asleep and the lower their sleep efficiency. In addition, health-related quality of life was influenced by time since diagnosis; resilience, due to age, skin color, diagnosis and other chronic conditions; and sleep, by diagnosis and treatment. Conclusion: Children and adolescents hospitalized with chronic conditions experience significant sleep disorders and have a low quality of life, but have satisfactory levels of resilience. Furthermore, the better the quality of life social functioning, the better the resilience control, and the better emotional reactivity, the participants woke up less after sleep onset and had better sleep efficiency. New studies are needed, especially with larger populations, to develop strategies for managing sleep disorders and favoring quality of life and resilience.