Qualidade de vida de cuidadores de crianças e adolescentes asmáticos

• Autor(a) principal: Fernandes, Isabela Cristine Ferreira
• Data de Publicação: 2014
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Repositório Institucional da UFG
• Texto Completo: http://repositorio.bc.ufg.br/tede/handle/tede/3855
• topic: Qualidade de vida; Cuidador; Pediatria; Asma; Quality of life; Caregiver; Pediatrics; Asthma; CIENCIAS DA SAUDE::ENFERMAGEM

INTRODUCTION: chronic diseases, especially asthma, are of complex treatment, requiring adaptation and modification of lifestyle habits of own asthmatic and their caregivers. Thus, it becomes essential to prioritize not only information and clinical care, but also aspects related to the subjectivity involved in the disease process and also its influence on quality of life of this people. OBJECTIVE: to evaluate the quality of life of caregivers of asthmatic children and adolescents accompanied in a specialized outpatient care. METHODS: cross-sectional, descriptive study with a quantitative approach, performed in outpatient clinic for asthmatic childhood in a public teaching hospital in the city of Goiania, Goias, Brasil. Data collection was conducted through a questionnaire containing questions related to social , economic and demographic aspects and the generic quality of life instrument for World Health Organization Quality of Life - Bref (WHOQOL-Bref). Cronbach's alpha ranged from 0,63 to 0,85, implying good instrument reliability. RESULTS: the study population consisted of 89 caregivers, with the youngest aged 23 and the oldest 60 years. Predominantly, mothers (85,4%) who had other children besides the asthmatic (72,9%), with a steady partner (65,2%) residing outside the metropolitan area of Goiania (53,9%), with secondary or higher education (62,9%), monthly personal income up to the minimum wage (57,3%), monthly family income between two and three minimum wages (65,2%) and belonging to Catholicism (47,2%). The majority of caregivers (64,0%) considered to have a good perception of quality of life and expressed satisfaction with their health. The median scores of the WHOQOL-Bref were higher in Psychological (70,83) and Social Relations (66,67) domains and the lower scores were obtained from the Environment (56,25) and Physical domains (60,71). Regarding potential factors associated with quality of life scores, it was concluded that there was a relationship with the following variables: bond caregiver, caregiver's age, number of children and schooling. CONCLUSION: this study allowed identifying the dimensions of life of caregivers that are affected, emphasizing the need to establish new strategies for quality care for these patients. In this context, we highlight the role of health professionals, who need to be able to provide humanized care and collaborate in awareness and autonomy of the care process.