Being a mother of child hospitalized with a chronic illness

• Autor(a) principal: Souza, Marcela Astolphi de
• Data de Publicação: 2013
• Outros Autores: Melo, Luciana de Lione
• Tipo de documento: Artigo
• Idioma: por; eng
• Título da fonte: Reme (Online)
• Texto Completo: https://periodicos.ufmg.br/index.php/reme/article/view/50244
• topic: Criança Hospitalizada; Doença Crônica; Enfermagem Familiar; Relações Mãe-Filho; Pesquisa Qualitativa; Niño Hospitalizado; Enfermedad Crónica; Enfermería de la Familia; Relaciones Madre-Hijo; Investigación Cualitativa

This work is a phenomenological study whose objective was to understand mothers of children hospitalized with chronic illnesses. Access to subjects was performed at the Pediatric Nursing Unit in a university hospital in the countryside of the state of Sao Paulo, Brazil. Fourteen mothers in this situation were interviewed by answering the open question: "how is it to be the mother of a child with a chronic illness?" The mothers' answers were recorded and transcribed. The understanding of these discourses was performed by evaluating the mothers' descriptions of the given experiences according to the analysis of the specific phenomenon's structure. Being a mother of a child with a chronic illness involves multiple perspectives and understandings. From the mother's own introspection showing the changes resultingfrom the child's chronic illness to changes in family dynamics, the mothers traverse winding roads, at times more optimistically, at times powerless when facing the true reality of the disease.