The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55

Detalhes bibliográficos
Autor(a) principal: Vieira, Naiana Gonçalves de Bitencourt
Data de Publicação: 2012
Outros Autores: Mendes, Natalia Carvalho, Frota, Lêda Maria da Costa Pinheiro, Frota, Mirna Albuquerque
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Brasileira em Promoção da Saúde
Texto Completo: https://ojs.unifor.br/RBPS/article/view/177
Resumo: Objective: To identify daily difficulties of the mothers with children bearers of cerebral paralysis. Methods: It was a descriptive study, with a qualitative approach, developed with 10 (ten) mothers of children with cerebral palsy, at the age group between two and eight years old, that were in treatment at the Nucleus of Treatment & Precocious Stimulation (NUTEP) of the Federal University of Ceará (UFC), for at least six months, during the period of August to September, 2006. To carry out the interviews, a semi-structured guide was applied. It was based on the knowledge of the mother on her child’s condition and what it brings about in her daily life; also, on both professional and family support. The data were analyzed through the content analysis method. Results: The following categories emerged from the data: the knowledge of the child’s condition; the difficulties faced by the mothers; interdisciplinary professional team support and family support. It was shown that the participants overpass diverse difficulties day-by-day close to their children, not receiving sufficient help from relatives in the carrying of the child and being responsible for all daily care. Final considerations: The support of a multidisciplinary team is important, by means of health education strategies that provide information to the mothers, consequently, improving the quality of life at the family environment.
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spelling The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55O cotidiano de mães com crianças portadoras de paralisia cerebral - doi:10.5020/18061230.2008.p55Paralisia CerebralPaisCrianças Portadoras de DeficiênciaPesquisa QualitativaObjective: To identify daily difficulties of the mothers with children bearers of cerebral paralysis. Methods: It was a descriptive study, with a qualitative approach, developed with 10 (ten) mothers of children with cerebral palsy, at the age group between two and eight years old, that were in treatment at the Nucleus of Treatment & Precocious Stimulation (NUTEP) of the Federal University of Ceará (UFC), for at least six months, during the period of August to September, 2006. To carry out the interviews, a semi-structured guide was applied. It was based on the knowledge of the mother on her child’s condition and what it brings about in her daily life; also, on both professional and family support. The data were analyzed through the content analysis method. Results: The following categories emerged from the data: the knowledge of the child’s condition; the difficulties faced by the mothers; interdisciplinary professional team support and family support. It was shown that the participants overpass diverse difficulties day-by-day close to their children, not receiving sufficient help from relatives in the carrying of the child and being responsible for all daily care. Final considerations: The support of a multidisciplinary team is important, by means of health education strategies that provide information to the mothers, consequently, improving the quality of life at the family environment.Objetivo: Identificar as dificuldades enfrentadas pelas mães no cotidiano de crianças com paralisia cerebral. Método: Tratou-se de um estudo descritivo, de abordagem qualitativa, desenvolvido com dez mães de crianças com paralisia cerebral, na faixa etária entre dois e oito anos, os quais estavam em tratamento no Núcleo de Tratamento e Estimulação Precoce (NUTEP) da Universidade Federal do Ceará (UFC), no mínimo há seis meses, durante o período de agosto a setembro de 2006. Para a realização das entrevistas, aplicou-se um roteiro semi-estruturado, com base no conhecimento da mãe sobre a doença de sua criança e o que a mesma acarreta no seu cotidiano; também no apoio profissional e familiar. Os dados foram analisados através da técnica de análise de conteúdo. Resultados: Dos dados emergiram as seguintes categorias: conhecimento da condição da criança; dificuldades enfrentadas pelas mães; apoio da equipe interdisciplinar e suporte familiar. Evidenciou-se que as participantes passam por diversas dificuldades no dia-a-dia junto ao filho, não recebendo ajuda suficiente dos familiares no cuidado do mesmo, responsabilizando-as por todos os cuidados diários. Considerações finais: É importante o apoio da equipe interdisciplinar, mediante estratégias educativas em saúde que proporcionem orientações as mães, conseqüentemente, melhoria na qualidade de vida no âmbito familiar.Universidade de Fortaleza2012-01-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion"Peer-reviewed Article""Avaliado pelos pares""Avaliado pelos pares"application/pdfhttps://ojs.unifor.br/RBPS/article/view/17710.5020/177Brazilian Journal in Health Promotion; Vol. 21 No. 1 (2008); 55-60Revista Brasileña en Promoción de la Salud; Vol. 21 Núm. 1 (2008); 55-60Revista Brasileira em Promoção da Saúde; v. 21 n. 1 (2008); 55-601806-1230reponame:Revista Brasileira em Promoção da Saúdeinstname:Universidade de Fortaleza (Unifor)instacron:UFORporhttps://ojs.unifor.br/RBPS/article/view/177/2205Vieira, Naiana Gonçalves de BitencourtMendes, Natalia CarvalhoFrota, Lêda Maria da Costa PinheiroFrota, Mirna Albuquerqueinfo:eu-repo/semantics/openAccess2012-01-10T12:19:05Zoai:ojs.ojs.unifor.br:article/177Revistahttps://periodicos.unifor.br/RBPS/oai1806-12301806-1222opendoar:2012-01-10T12:19:05Revista Brasileira em Promoção da Saúde - Universidade de Fortaleza (Unifor)false
dc.title.none.fl_str_mv The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55
O cotidiano de mães com crianças portadoras de paralisia cerebral - doi:10.5020/18061230.2008.p55
title The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55
spellingShingle The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55
Vieira, Naiana Gonçalves de Bitencourt
Paralisia Cerebral
Pais
Crianças Portadoras de Deficiência
Pesquisa Qualitativa
title_short The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55
title_full The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55
title_fullStr The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55
title_full_unstemmed The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55
title_sort The daily routine of mothers with children bearers of cerebral palsy - doi:10.5020/18061230.2008.p55
author Vieira, Naiana Gonçalves de Bitencourt
author_facet Vieira, Naiana Gonçalves de Bitencourt
Mendes, Natalia Carvalho
Frota, Lêda Maria da Costa Pinheiro
Frota, Mirna Albuquerque
author_role author
author2 Mendes, Natalia Carvalho
Frota, Lêda Maria da Costa Pinheiro
Frota, Mirna Albuquerque
author2_role author
author
author
dc.contributor.author.fl_str_mv Vieira, Naiana Gonçalves de Bitencourt
Mendes, Natalia Carvalho
Frota, Lêda Maria da Costa Pinheiro
Frota, Mirna Albuquerque
dc.subject.por.fl_str_mv Paralisia Cerebral
Pais
Crianças Portadoras de Deficiência
Pesquisa Qualitativa
topic Paralisia Cerebral
Pais
Crianças Portadoras de Deficiência
Pesquisa Qualitativa
description Objective: To identify daily difficulties of the mothers with children bearers of cerebral paralysis. Methods: It was a descriptive study, with a qualitative approach, developed with 10 (ten) mothers of children with cerebral palsy, at the age group between two and eight years old, that were in treatment at the Nucleus of Treatment & Precocious Stimulation (NUTEP) of the Federal University of Ceará (UFC), for at least six months, during the period of August to September, 2006. To carry out the interviews, a semi-structured guide was applied. It was based on the knowledge of the mother on her child’s condition and what it brings about in her daily life; also, on both professional and family support. The data were analyzed through the content analysis method. Results: The following categories emerged from the data: the knowledge of the child’s condition; the difficulties faced by the mothers; interdisciplinary professional team support and family support. It was shown that the participants overpass diverse difficulties day-by-day close to their children, not receiving sufficient help from relatives in the carrying of the child and being responsible for all daily care. Final considerations: The support of a multidisciplinary team is important, by means of health education strategies that provide information to the mothers, consequently, improving the quality of life at the family environment.
publishDate 2012
dc.date.none.fl_str_mv 2012-01-04
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
"Peer-reviewed Article"
"Avaliado pelos pares"
"Avaliado pelos pares"
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://ojs.unifor.br/RBPS/article/view/177
10.5020/177
url https://ojs.unifor.br/RBPS/article/view/177
identifier_str_mv 10.5020/177
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://ojs.unifor.br/RBPS/article/view/177/2205
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade de Fortaleza
publisher.none.fl_str_mv Universidade de Fortaleza
dc.source.none.fl_str_mv Brazilian Journal in Health Promotion; Vol. 21 No. 1 (2008); 55-60
Revista Brasileña en Promoción de la Salud; Vol. 21 Núm. 1 (2008); 55-60
Revista Brasileira em Promoção da Saúde; v. 21 n. 1 (2008); 55-60
1806-1230
reponame:Revista Brasileira em Promoção da Saúde
instname:Universidade de Fortaleza (Unifor)
instacron:UFOR
instname_str Universidade de Fortaleza (Unifor)
instacron_str UFOR
institution UFOR
reponame_str Revista Brasileira em Promoção da Saúde
collection Revista Brasileira em Promoção da Saúde
repository.name.fl_str_mv Revista Brasileira em Promoção da Saúde - Universidade de Fortaleza (Unifor)
repository.mail.fl_str_mv
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