Quality of life assessment instruments for adults: a systematic review of population-based studies
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Publication Date: | 2020 |
Other Authors: | , , , |
Format: | Article |
Language: | eng |
Source: | Repositório Institucional da UFRN |
Download full: | https://repositorio.ufrn.br/handle/123456789/57949 http://dx.doi.org/10.1186/s12955-020-01347-7 |
Summary: | Background: Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-based studies with adults conducted around the world. Methods: A systematic review of original research published in all languages between 2008 and 2018 was conducted. Systematic reviews and meta-analyses were excluded. Results: Sixty-three articles (38.1% conducted in the Americas) fitted the eligibility criteria. Based on the AHRQ checklist for cross-sectional studies and the Newcastle-Ottawa scale for cohort studies, methodological quality was shown to be fair in the majority of studies (55.6%) and good in 44.4%. The country with the highest number of publications was Brazil (20.6%). Twelve types of generic instruments and 11 specific instruments were identified. The generic instrument SF-36 was the most frequently used measure (33.3% of studies). In-home interviewing was exclusively used by 47.6% of the studies, while 39 studies (61.9%) reported the use of self-administered questionnaires. Over two-thirds of the studies (34.9%) used questionnaires to investigate the association between chronic diseases and/or associated factors. Conclusions: It was concluded that the wide range of instruments and modes of questionnaire administration used by the studies may hinder comparisons between population groups with the same characteristics or needs. There is a lack of research on QoL and the factors affecting productive capacity. Studies of QoL in older persons should focus not only on the effects of disease and treatment, but also on the determinants of active aging and actions designed to promote it. Further research is recommended to determine which QoL instruments are best suited for population-based studies. |
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Lyra, Clélia de OliveiraPequeno, Nila Patrícia FreireCabral, Natália Louise de AraújoMarchioni, Dirce MariaLima, Severina Carla Vieira Cunha2024-03-26T20:40:54Z2024-03-26T20:40:54Z2020-06PEQUENO, Nila Patrícia Freire; CABRAL, Natália Louise de Araújo; MARCHIONI, Dirce Maria; LIMA, Severina Carla Vieira Cunha; LYRA, Clélia de Oliveira. Quality of life assessment instruments for adults: a systematic review of population-based studies. Health and Quality of Life Outcomes, [S.l.], v. 18, n. 1, p. 1-13, 30 jun. 2020. DOI: 10.1186/s12955-020-01347-7. Disponível em: https://hqlo.biomedcentral.com/articles/10.1186/s12955-020-01347-7. Acesso em: 14 mar. 2024.https://repositorio.ufrn.br/handle/123456789/57949http://dx.doi.org/10.1186/s12955-020-01347-7Health and Quality of Life OutcomesAttribution 3.0 Brazilhttp://creativecommons.org/licenses/by/3.0/br/info:eu-repo/semantics/openAccessQuality of lifeHealth-related quality of lifePopulation surveysSystematic reviewQuality of life assessment instruments for adults: a systematic review of population-based studiesinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleBackground: Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-based studies with adults conducted around the world. Methods: A systematic review of original research published in all languages between 2008 and 2018 was conducted. Systematic reviews and meta-analyses were excluded. Results: Sixty-three articles (38.1% conducted in the Americas) fitted the eligibility criteria. Based on the AHRQ checklist for cross-sectional studies and the Newcastle-Ottawa scale for cohort studies, methodological quality was shown to be fair in the majority of studies (55.6%) and good in 44.4%. The country with the highest number of publications was Brazil (20.6%). Twelve types of generic instruments and 11 specific instruments were identified. The generic instrument SF-36 was the most frequently used measure (33.3% of studies). In-home interviewing was exclusively used by 47.6% of the studies, while 39 studies (61.9%) reported the use of self-administered questionnaires. Over two-thirds of the studies (34.9%) used questionnaires to investigate the association between chronic diseases and/or associated factors. Conclusions: It was concluded that the wide range of instruments and modes of questionnaire administration used by the studies may hinder comparisons between population groups with the same characteristics or needs. There is a lack of research on QoL and the factors affecting productive capacity. Studies of QoL in older persons should focus not only on the effects of disease and treatment, but also on the determinants of active aging and actions designed to promote it. Further research is recommended to determine which QoL instruments are best suited for population-based studies.engreponame:Repositório Institucional da UFRNinstname:Universidade Federal do Rio Grande do Norte (UFRN)instacron:UFRNORIGINALQualityLife_Pequeno_2020.pdfQualityLife_Pequeno_2020.pdfapplication/pdf1312107https://repositorio.ufrn.br/bitstream/123456789/57949/1/QualityLife_Pequeno_2020.pdf9704cfba0db3d04da08e8b20adb17f05MD51CC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; charset=utf-8914https://repositorio.ufrn.br/bitstream/123456789/57949/2/license_rdf4d2950bda3d176f570a9f8b328dfbbefMD52LICENSElicense.txtlicense.txttext/plain; charset=utf-81484https://repositorio.ufrn.br/bitstream/123456789/57949/3/license.txte9597aa2854d128fd968be5edc8a28d9MD53123456789/579492024-03-26 17:40:55.417oai:https://repositorio.ufrn.br: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Repositório de PublicaçõesPUBhttp://repositorio.ufrn.br/oai/opendoar:2024-03-26T20:40:55Repositório Institucional da UFRN - Universidade Federal do Rio Grande do Norte (UFRN)false |
dc.title.pt_BR.fl_str_mv |
Quality of life assessment instruments for adults: a systematic review of population-based studies |
title |
Quality of life assessment instruments for adults: a systematic review of population-based studies |
spellingShingle |
Quality of life assessment instruments for adults: a systematic review of population-based studies Lyra, Clélia de Oliveira Quality of life Health-related quality of life Population surveys Systematic review |
title_short |
Quality of life assessment instruments for adults: a systematic review of population-based studies |
title_full |
Quality of life assessment instruments for adults: a systematic review of population-based studies |
title_fullStr |
Quality of life assessment instruments for adults: a systematic review of population-based studies |
title_full_unstemmed |
Quality of life assessment instruments for adults: a systematic review of population-based studies |
title_sort |
Quality of life assessment instruments for adults: a systematic review of population-based studies |
author |
Lyra, Clélia de Oliveira |
author_facet |
Lyra, Clélia de Oliveira Pequeno, Nila Patrícia Freire Cabral, Natália Louise de Araújo Marchioni, Dirce Maria Lima, Severina Carla Vieira Cunha |
author_role |
author |
author2 |
Pequeno, Nila Patrícia Freire Cabral, Natália Louise de Araújo Marchioni, Dirce Maria Lima, Severina Carla Vieira Cunha |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Lyra, Clélia de Oliveira Pequeno, Nila Patrícia Freire Cabral, Natália Louise de Araújo Marchioni, Dirce Maria Lima, Severina Carla Vieira Cunha |
dc.subject.por.fl_str_mv |
Quality of life Health-related quality of life Population surveys Systematic review |
topic |
Quality of life Health-related quality of life Population surveys Systematic review |
description |
Background: Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-based studies with adults conducted around the world. Methods: A systematic review of original research published in all languages between 2008 and 2018 was conducted. Systematic reviews and meta-analyses were excluded. Results: Sixty-three articles (38.1% conducted in the Americas) fitted the eligibility criteria. Based on the AHRQ checklist for cross-sectional studies and the Newcastle-Ottawa scale for cohort studies, methodological quality was shown to be fair in the majority of studies (55.6%) and good in 44.4%. The country with the highest number of publications was Brazil (20.6%). Twelve types of generic instruments and 11 specific instruments were identified. The generic instrument SF-36 was the most frequently used measure (33.3% of studies). In-home interviewing was exclusively used by 47.6% of the studies, while 39 studies (61.9%) reported the use of self-administered questionnaires. Over two-thirds of the studies (34.9%) used questionnaires to investigate the association between chronic diseases and/or associated factors. Conclusions: It was concluded that the wide range of instruments and modes of questionnaire administration used by the studies may hinder comparisons between population groups with the same characteristics or needs. There is a lack of research on QoL and the factors affecting productive capacity. Studies of QoL in older persons should focus not only on the effects of disease and treatment, but also on the determinants of active aging and actions designed to promote it. Further research is recommended to determine which QoL instruments are best suited for population-based studies. |
publishDate |
2020 |
dc.date.issued.fl_str_mv |
2020-06 |
dc.date.accessioned.fl_str_mv |
2024-03-26T20:40:54Z |
dc.date.available.fl_str_mv |
2024-03-26T20:40:54Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.citation.fl_str_mv |
PEQUENO, Nila Patrícia Freire; CABRAL, Natália Louise de Araújo; MARCHIONI, Dirce Maria; LIMA, Severina Carla Vieira Cunha; LYRA, Clélia de Oliveira. Quality of life assessment instruments for adults: a systematic review of population-based studies. Health and Quality of Life Outcomes, [S.l.], v. 18, n. 1, p. 1-13, 30 jun. 2020. DOI: 10.1186/s12955-020-01347-7. Disponível em: https://hqlo.biomedcentral.com/articles/10.1186/s12955-020-01347-7. Acesso em: 14 mar. 2024. |
dc.identifier.uri.fl_str_mv |
https://repositorio.ufrn.br/handle/123456789/57949 |
dc.identifier.doi.none.fl_str_mv |
http://dx.doi.org/10.1186/s12955-020-01347-7 |
identifier_str_mv |
PEQUENO, Nila Patrícia Freire; CABRAL, Natália Louise de Araújo; MARCHIONI, Dirce Maria; LIMA, Severina Carla Vieira Cunha; LYRA, Clélia de Oliveira. Quality of life assessment instruments for adults: a systematic review of population-based studies. Health and Quality of Life Outcomes, [S.l.], v. 18, n. 1, p. 1-13, 30 jun. 2020. DOI: 10.1186/s12955-020-01347-7. Disponível em: https://hqlo.biomedcentral.com/articles/10.1186/s12955-020-01347-7. Acesso em: 14 mar. 2024. |
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https://repositorio.ufrn.br/handle/123456789/57949 http://dx.doi.org/10.1186/s12955-020-01347-7 |
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Attribution 3.0 Brazil http://creativecommons.org/licenses/by/3.0/br/ |
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Health and Quality of Life Outcomes |
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Health and Quality of Life Outcomes |
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