Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente

Detalhes bibliográficos
Autor(a) principal: Silva, Barbara Cecilia Lima da
Data de Publicação: 2021
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Biblioteca Digital de Teses e Dissertações da UFRRJ
Texto Completo: https://tede.ufrrj.br/jspui/handle/jspui/5900
Resumo: Emerging adulthood is characterized as a transitional stage between adolescence and adulthood, which includes experimenting social roles and building life projects. At this stage of development, university experience can be an opportunity for growth and maturation in the intellectual sphere and in interpersonal relationships. However, when diagnosed with a chronic disease, young university students deal with biopsychosocial changes that make it difficult for them to adapt to academic requirements. Therefore, the objective of this qualitative research is to understand the impact of illness on the university life of emerging adults. For this, eight undergraduate students from a public university in the state of Rio de Janeiro, aged between 18 and 25 years and diagnosed with chronic non-communicable diseases, were invited to participate in a focus group carried out online. Students who accepted to participate in the study signed a consent form and answered individually, questionnaires to collect sociodemographic and medical-clinical data. The meetings, with three and five participants each, had a previously elaborated script, composed of guiding questions and dynamic acts that sought to investigate how the participants reconciled the university demands and care for their own health. The results were calculated using the descriptive phenomenological method. Four main thematic axes were highlighted: (1) self-care strategy: keeping the disease under control, (2) challenges of reconciling academic demands and health needs, (3) importance of social and institutional support: between the perceived and the desired and finally, (4) the potential of spaces for exchange and discussion about living with chronic diseases: support and dissemination. The groups allowed university students to express their emotions, thoughts and opinions about living with a chronic disease at the university, therefore, relevant aspects were learned to understand the unique needs and characteristics of this public. It is concluded that this knowledge is important to help prepare programs and/or guidance aimed at the well-being of university students who experience different types of chronic diseases.
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spelling Gonzalez, Lilian Maria Borges423.612.142-53http://lattes.cnpq.br/0531526137015076Gonzalez, Lilian Maria BorgesRocinholi, Luciene de F?timaVicente, Carla CristineSantos, S?lvia Renata Magalh?es Lordello Borba142.954.087-78http://lattes.cnpq.br/7528862366162651Silva, Barbara Cecilia Lima da2022-08-17T19:23:45Z2021-08-23SILVA, Barbara Cecilia Lima da. Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente. 2021. 73 f. Disserta??o (Mestrado em Psicologia) - Instituto de Educa??o, Universidade Federal Rural do Rio de Janeiro, Serop?dica, RJ, 2021.https://tede.ufrrj.br/jspui/handle/jspui/5900Emerging adulthood is characterized as a transitional stage between adolescence and adulthood, which includes experimenting social roles and building life projects. At this stage of development, university experience can be an opportunity for growth and maturation in the intellectual sphere and in interpersonal relationships. However, when diagnosed with a chronic disease, young university students deal with biopsychosocial changes that make it difficult for them to adapt to academic requirements. Therefore, the objective of this qualitative research is to understand the impact of illness on the university life of emerging adults. For this, eight undergraduate students from a public university in the state of Rio de Janeiro, aged between 18 and 25 years and diagnosed with chronic non-communicable diseases, were invited to participate in a focus group carried out online. Students who accepted to participate in the study signed a consent form and answered individually, questionnaires to collect sociodemographic and medical-clinical data. The meetings, with three and five participants each, had a previously elaborated script, composed of guiding questions and dynamic acts that sought to investigate how the participants reconciled the university demands and care for their own health. The results were calculated using the descriptive phenomenological method. Four main thematic axes were highlighted: (1) self-care strategy: keeping the disease under control, (2) challenges of reconciling academic demands and health needs, (3) importance of social and institutional support: between the perceived and the desired and finally, (4) the potential of spaces for exchange and discussion about living with chronic diseases: support and dissemination. The groups allowed university students to express their emotions, thoughts and opinions about living with a chronic disease at the university, therefore, relevant aspects were learned to understand the unique needs and characteristics of this public. It is concluded that this knowledge is important to help prepare programs and/or guidance aimed at the well-being of university students who experience different types of chronic diseases.A adultez emergente ? caracterizada como uma etapa de transi??o entre a adolesc?ncia e a idade adulta, que inclui experimenta??o de pap?is sociais e constru??o de projetos de vida. Nessa fase do desenvolvimento, a viv?ncia universit?ria pode constituir uma oportunidade de crescimento e amadurecimento no ?mbito intelectual e nas rela??es interpessoais. Mas, ao ser diagnosticado com uma doen?a cr?nica, o jovem universit?rio precisar? lidar com mudan?as biopsicossociais que poder?o dificultar sua adapta??o ?s exig?ncias acad?micas. O objetivo dessa pesquisa qualitativa foi compreender o impacto do adoecimento sobre a vida universit?ria de adultos emergentes. Para isto, oito estudantes de gradua??o de uma universidade p?blica do estado do Rio de Janeiro, com idades entre 18 e 25 anos e diagnosticados com doen?as cr?nicas n?o transmiss?veis, foram convidados a participar de um Grupo Focal, realizado de modo online. Os alunos que aceitaram integrar o estudo assinaram um termo de consentimento e responderam, de modo individual, a question?rios para levantamento de dados sociodemogr?ficos e m?dico-cl?nicos. Os encontros, com tr?s e cinco participantes cada, contaram com um roteiro previamente elaborado, composto por quest?es norteadoras e din?micas de grupo que buscaram investigar como os participantes conciliavam as demandas universit?rias e os cuidados com a pr?pria sa?de. Os resultados foram analisados mediante o M?todo Fenomenol?gico Descritivo. Destacaram-se quatro eixos tem?ticos principais: (1) estrat?gias de autocuidado: mantendo a doen?a sob controle, (2) desafios da concilia??o entre demandas acad?micas e necessidades de sa?de, (3) import?ncia do suporte social e institucional: entre o percebido e o desejado e, por ?ltimo, (4) potencial dos espa?os de troca e discuss?o sobre viver com doen?as cr?nicas: apoio e visibilidade. Os grupos proporcionaram aos universit?rios expressarem suas emo??es, pensamentos e opini?es sobre viver com uma doen?a cr?nica na universidade, sendo, portanto, apreendidos aspectos relevantes para a compreens?o das necessidades e caracter?sticas singulares deste p?blico. Conclui-se que estes conhecimentos s?o importantes para auxiliar a elabora??o de programas e/ou orienta??es voltados para o bem-estar de universit?rios que vivenciam diferentes tipos de doen?as cr?nicas.Submitted by Jorge Silva (jorgelmsilva@ufrrj.br) on 2022-08-17T19:23:45Z No. of bitstreams: 1 2021 - Barbara Cecilia Lima da Silva.pdf: 1535510 bytes, checksum: aa5758787de3d0f93a41ef469794dda0 (MD5)Made available in DSpace on 2022-08-17T19:23:45Z (GMT). No. of bitstreams: 1 2021 - Barbara Cecilia Lima da Silva.pdf: 1535510 bytes, checksum: aa5758787de3d0f93a41ef469794dda0 (MD5) Previous issue date: 2021-08-23CAPES - Coordena??o de Aperfei?oamento de Pessoal de N?vel Superiorapplication/pdfhttps://tede.ufrrj.br/retrieve/70352/2021%20-%20Barbara%20Cecilia%20Lima%20da%20Silva.pdf.jpgporUniversidade Federal Rural do Rio de JaneiroPrograma de P?s-Gradua??o em PsicologiaUFRRJBrasilInstituto de Educa??oAlmeida, L. S. & Soares, A. P. (2004). Os estudantes universit?rios: sucesso escolar e desenvolvimento psicossocial. In Mercuri, E. & Polydoro, S. A. J. (Orgs.). Estudante universit?rio: caracter?sticas e experi?ncias de forma??o (Cap. 3, pp. 15-40). Taubat?: Cabral Editora e Livraria Universit?ria. Almeida, L. S. & Casanova, J. R. (2019). Desenvolvimento psicossocial e sucesso acad?mico no ensino superior. In Veiga, F. H. Psicologia da educa??o: temas de aprofundamento cient?fico (Cap. 3, pp. 101-128). Lisboa: Climepsi Editores. Amatuzzi, M. M. (2009). Psicologia fenomenol?gica: uma aproxima??o te?rica humanista. Estudos de Psicologia, 26(1), p. 93-100. Recuperado de https://www.scielo.br/pdf/estpsi/v26n1/a10v26n1.pdf Andrade, C. (2010). Transi??o para a idade adulta: das condi??es sociais ?s implica??es psicol?gicas. An?lise Psicol?gica, 2(28), p. 255-267. Recuperado de http://www.scielo.mec.pt/pdf/aps/v28n2/v28n2a02.pdf Andrade, A. M. J. (2014). Desempenho acad?mico, perman?ncia e desenvolvimento psicossocial de universit?rio: rela??o com indicadores de assist?ncia estudantil. (Disserta??o de mestrado) Universidade Federal do Rio Grande do Sul - UFRGS. Porto Alegre, RS, Brasil. Recuperado de http://lume.ufrgs.br/bitstream/handle/10183/148254/001000409.pdf?sequence=1&isAllo wed=v Arnett, J. (2000). Emerging adulthood: A theory of development from the late teens through the twenties. American Psychologist, 55(5),469-480. Retrieved from http://jeffreyarnett.com/ARNETT_Emerging_Adulthood_theory.pdf Arnett, J, J. (2006). Emerging adulthoog: understanding the new way of coming of age. In: Arnett, J. J.; Curtidor, J. L. (Ed.). Emerging adults in America: Coming of age in the 21st century (Cap. 1, pp. 3-19). Washington, DC: American Psychological Association. Arnett, J. J., Dutra-Thom?, L. & Koller, S. H. (2018). Adultez emergente: a proposta de uma nova perspectiva desenvolvimental sobre a transi??o para a vida adulta no brasil. In Dutra-Thom?, L., Pereira, A. S., Nu?ez, S. & Koller, S. H. (Orgs.) Adultez emergente no brasil: uma nova perspectiva desenvolvimental sobre a transi??o para a vida a adulta (Cap. 1, pp. 13-23). S?o Paulo: Vetor. Atobrah, D. (2012). When darkness falls at mid-day: young patients? perceptions and meanings of chronic illness and their implications for medical care. Ghana Medical Journal, 46(2), 46-53. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3645148/ Azevedo, V., Carvalho, M., Fernandes-Costa, F., Mesquita, S., Soares, J. Teixeira, F. & Maia, A. (2017). Transcrever entrevistas: quest?es conceptuais, orienta??es, pr?ticas e desafios. Revista de Enfermagem Refer?ncia, 4(14), 159-168. Recuperado de http://www.scielo.mec.pt/pdf/ref/vserIVn14/serIVn14a16.pdf Balistiere, A. S., & Tavares, C. M. M. (2013). A import?ncia do apoio s?cio-emocional em adolescentes e adultos jovens portadores de doen?a cr?nica: uma revis?o de literatura. Enfermer?a Global, 12(30), 399-409. Recuperado de http://scielo.isciii.es/pdf/eg/v12n30/pt_revision3.pdf Barreto, A. C. (2016). Paradigma sist?mico no desenvolvimento humano e familiar: a teoria bioecol?gica de urie bronfenbrenner. Psicologia em Revista, 22(2), 275-293. Recuperado de http://pepsic.bvsalud.org/pdf/per/v22n2/v22n2a03.pdf Barsaglini, R. (2019). Repercuss?es dos adoecimentos cr?nicos nos estudos de experi?ncia: tipos, momentos e mediadores. Oficina do Centro de Estudos Sociais, 452, p. 1-27. Recuperado de https://ces.uc.pt/publicacoes/oficina/ficheiros/26162_Oficina_do_CES_452.pdf Belsky, J. (2010). Construindo uma vida adulta. In Bueno, D. & Pereira, A. C. A. (Orgs.). Desenvolvimento humano: experienciando o ciclo da vida (Cap. 10, pp. 328 ? 359). Porto Alegre: Artmed. Boccoline, C. S. (2016). Morbimortalidade por doen?as cr?nicas no Brasil: situa??o atual e futura. Rio de Janeiro: Funda??o Oswaldo Cruz. Borges, C. D. & Santos, M. A. (2005). Aplica??es da t?cnica do grupo focal: fundamentos metodol?gicos, potencialidades e limites. Revista SAPAGESP, 6(1), p. 74-80. Recuperado de http://pepsic.bvsalud.org/pdf/rspagesp/v6n1/v6n1a10.pdf Brasil, Minist?rio da Sa?de. (2013). Diretrizes para o cuidado de pessoas com doen?as cr?nicas nas redes de aten??o ? sa?de e nas linhas de cuidado priorit?rias. In Brasil, Minist?rio da Sa?de. O que s?o doen?as cr?nicas? (Cap. 5, pp. 5-8). Bras?lia: Autor. Recuperado de http://bvsms.saude.gov.br/bvs/publicacoes/diretrizes%20_cuidado_pessoas%20_doencas _cronicas.pdf Brasil, Minist?rio da Sa?de. (2011). Plano de a??es estrat?gicas para o enfrentamento das doen?as cr?nicas n?o transmiss?veis (DCNT) no Brasil 2011-2022. Bras?lia: Autor. Recuperado de http://bvsms.saude.gov.br/bvs/publicacoes/plano_acoes_enfrent_dcnt_2011.pdf Brasil, Minist?rio da Sa?de. (2019). Vigitel Brasil: vigil?ncia de fatores de risco e prote??o para doen?as cr?nicas por meio de inqu?rito telef?nico. Bras?lia: Autor.Recuperado de vigitel-brasil-2019-vigilancia-fatores-risco.pdf (saude.gov.br) Bronfenbrenner, U. (1996). Conceitos b?sicos. In Bronfenbrenner, U. A ecologia do desenvolvimento humano: Experimentos naturais e planejados (Cap. 2, pp. 14-33). Porto Alegre: Artes M?dicas. Bronfenbrenner, U. & Morris, P. A. (2006). The bioecological model of human development. In Lerner, R. M. & Damon, W (Ed.), Handbook of child psychology: Theoretical models of human development (6a ed., 793-828). New Jersey: John Wiley & Sons Inc Bronfenbrenner, U. (2011). Sistemas de integra??o do desenvolvimento humano: Paradigmas de pesquisa. In Carvalho-Barreto, A (Trad.), Bioecologia do desenvolvimento humano: tornando os seres humanos mais humanos (103-126). Porto Alegre: Artmed Carneiro, V. T. & Sampaio, S. M. R. (2015). Adultez emergente: um fen?meno normativo?. Revista Sa?de e Ci?ncia, 4(1), p. 32-40. Recuperado de http://www.ufcg.edu.br/revistasaudeeciencia/index.php/RSC-UFCG/article/view/218 Caballero, L. G. R, Delgado, E. M.G., & L?pez, A. L. M. (2017). Prevalencia de factores de riesgo comportamentales modificables asociados a enfermedades no transmisibles en estudiantes universitarios latinoamericanos: una revisi?n sistem?tica. Nutrici?n Hospitalaria, 34(5), 1185-1197. Recubierto de http://www.redalyc.org/articulo.oa?id=309253341024. doi http://dx.doi.org/10.20960/nh.1057 Castellanos, M. E. P. (2015). Cronicidade: quest?es e conceitos formulados pelos estudos qualitativos de ci?ncias sociais em sa?de. In Castellanos, M. E. P., Trad. L. A. B., Jorge, M. S. B., Leit?o, I. M. T. A. (Orgs.). Cronicidade: experi?ncia do adoecimento e cuidado sob a ?ptica das ci?ncias sociais (pp. 35-60). Fortaleza: EdUECE. Castro. L. K., Ponciano, C. F. & Pinto, D. W. (2010). Autoefic?cia e qualidade de vida de jovens adultos com doen?as cr?nicas. Aletheia, 12(31), 137-148. Recuperado de http://pepsic.bvsalud.org/pdf/aletheia/n31/n31a12.pdf Coordenadoria de Comunica??o Social da UFRRJ. (2019). Cat?logo institucional da universidade federal rural do rio de janeiro. Serop?dica: Autor. Recuperado de http://institucional.ufrrj.br/ccs/files/2019/07/livreto_ufrrj_final_2019.pdf Czeresnia, D., Maciel, E. M. G. S. & Oviedo, R. A. M. (2013). Sentidos da sa?de. Os sentidos da sa?de e da doen?a (pp. 12-27). Rio de Janeiro: Editora Fiocruz Domith, X. A. & Gomes, B. C. (2018). Desafios ? compreens?o da adolesc?ncia, da adultez emergente e do relacionamento parental. Estudos Interdisciplinares em Psicologia, 9(2), 156-160). Recuperado de http://pepsic.bvsalud.org/pdf/eip/v9n2/a10.pdf. doi 10.5433/2236-6407.2016v9n1p156 Erikson. E.H. (1976). Identidade, juventude e crise (2a ed, Cabral. A.,Trad.). Rio de Janeiro: Zahar Editores. (Obra original publicada em 1968). Giorgi, A., Sousa, D. (2010). M?todo fenomenol?gico de investiga??o em psicologia. In Giorgi, A.; Sousa, D. M?todo fenomenol?gico de investiga??o em psicologia (pp. 74 - 134). Lisboa: Fim do s?culo. Giorgi, A., Giorgi, B. & Morley, J. (2017). The descritive phenomenological psychological method. The Sage Handbook of Qualitative Research In Psychology (2a ed, Cap. 11, pp. 176-192). Retrieved from https://www.researchgate.net/publication/318451180 Gra?as, E. M. (2000). Pesquisa qualitativa e perspectiva fenomenol?gica: fundamentos que norteiam sua trajet?ria. Revista Mineira de Enfermagem, 4(1), p. 28-33. Recuperado de https://cdn.publisher.gn1.link/reme.org.br/pdf/v4n1a06.pdf Guimar?es, S. S. (1999). Psicologia da Sa?de e doen?as cr?nicas. In R. R. Kerbauy (Org) Comportamento e Sa?de: Explorando Alternativas (pp. 22-45). Santo Andr?: ARBytes. Herts, K. L., Wallis, E. & Maslow, G. (2014). College freshmen with chronic illness: a comparison with healthy first-year students. Journal of College Student Development, 55(5), 475-480. Retrived from https://sci-hub.scihubtw.tw/10.1353/csd.2014.0052 Houman, K. M., & Staplay, J. C. (2013). The college experience for students with chronic illness: implications for academic advising. Nacada Journal, 33(1), 61-70. Retrived from https://www.nacadajournal.org/doi/full/10.12930/NACADA-13-227. doi 10.12930/NACADA-13-227 Hughes, K., Corcoran, T. & Slee, R. (2015). Health-inclusive higher education: listening to students with disabilities or chronic illnesses. Higher EducationResearch & Development, 4(21), 1-14. Retrived from https://scihub. scihubtw.tw/10.1080/07294360.2015.1107885. doi 10.1080/07294360.2015.1107885 Jeunesse, M. (2019, Agosto 6). How to Prepare for College If You Have a Chronic Illness [site]. Retrieved from https://www.teenvogue.com/story/how-to-prepare-for-college-ifyou- have-a-chronic-illness Jung, K. E. (2002). Chronic illness and educational equity: the politics of visibility. NWSA Journal, 14(3), 178-200. Retrived from https://sci-hub.scihubtw.tw/10.2307/4316930 Jung, K. E. (2003). Chronic illness and academic acoommodation: meeting disabled students? ?unique needs? and preserving the institutional order of the university. The Journal of Sociology & Social Welfare, 30(6), 91-112. Retrieved from https://scholarworks.wmich.edu/cgi/viewcontent.cgi?article=2875&context=jssw JMacDermott, S. (2014). Merging the person ans the illness: the lived experience of emerging adults with childhood onset chronic illness (Tese de Doutorado). Dublin City University - DCU, Dublin, Irlanda. Retrived from https://scihub. scihubtw.tw/10.7748/ncyp.28.4.67.s48 Kaushansky, D., Cox, J., Dodson, C., McNeeley, M., Kumar, S. & Iverson, E. (2016). Living a secret: Disclosure among adolescents and young adults with chronic illnesses. Cronic Illness, 0(0), 1-13. Retrieved from https://journals.sagepub.com/doi/abs/10.1177/1742395316655855 Lambert, A. S., Moreira, L. K. R. & Castro, R. C. M.(2018). Estudo da arte sobre adoecimento do estudante universit?rio brasileiro. Revista Brasileira de Educa??o e Sa?de, 8(2), 31-36. Recuperado de http://www.gvaa.com.br/revista/index.php/REBES/article/view/5987/508. doi http://dx.doi.org/10.18378/rebes.v8i2.5987 Lei n. 8.069, de 13 de julho de 1990. Estatuto da crian?a e do adolescente. Recuperado de http://www.chegadetrabalhoinfantil.org.br/wpcontent/ uploads/2017/06/LivroECA_2017_v05_INTERNET.pdf Martins, E. & Szymanski, H. (2004). A abordagem ecol?gica de urie bronfenbrenner em estudos com fam?lias. Estudos e Pesquisas em Psicologia, 4(1), 63-77. Recuperado de http://pepsic.bvsalud.org/pdf/epp/v4n1/v4n1a06.pdf Monteiro, S., Tavares, J. & Pereira, A. (2009). Adultez emergente: na fronteira entre a adolesc?ncia e a adultez. Ambiente e Educa??o, 2(1), 129-137. Recuperado de http://publicacoes.unicid.edu.br/index.php/ambienteeducacao/article/view/545/512 Moraes, E. N., Moraes, F. L., & Lima, S. P. P. (2010). Caracter?sticas biol?gicas e psicol?gicas do envelhecimento. Revista M?dica de Minas Gerais, 20(1), p. 67-73. Recuperado de http://www.observatorionacionaldoidoso.fiocruz.br/biblioteca/_artigos/197.pdf Nguyen. T., Henderson, D., Stewart, D., Hlyva, O., Punthakee, Z., & Gorter, J. W. (2016). You never transition alone! Exploring the experiences of youth with chronic health conditions, parents and healthcare providers on self-management. Child: care, health and development, 42(4), 464-472. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5021141/pdf/CCH-42-464.pdf. doi 10.1111/cch.12334 Oliver, D. G., Serovich, J. M., & Mason, T. L. (2005). Constraints and opportunities with interview transcription: Towards reflection in qualitative research. Social Forces, 84(2), 1273?1289. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1400594. doi:10.1353/sof.2006.0023 Papalia, D. E. & Feldman., R. D. (2013). Desenvolvimento f?sico e cognitivo no in?cio da vida adulta e no adulto jovem. In Papalia, D. E., & Feldman., R. D. Desenvolvimento humano (12a ed., Cap. 13, pp. 450-481). Porto Alegre: AMGH. Pillado, C. E. & Almagi?, E. B. (2018). Autoeficacia, apoyo social y bienestar psicol?gico en estudiantes universitarios asm?ticos. Revista de Psicol?g?a,14(28), 141-147. Recubierto de http://erevistas.uca.edu.ar/index.php/RPSI/article/view/1744/1631 Pr?-reitoria de assuntos estudantis. (2015). Cartilha dos programas e a??es de assist?ncia estudantil da ufrrj. Serop?dica: Autor. Recuperado de http://r1.ufrrj.br/sba/listas/CartilhaInformativa_2015.pdf Royster, L. & Marshall, O. (2008). The chronic illness initiative: supporting college students with chronic illness needs at depaul university. Journal of Postsecondary Education and Disability, 20(2), 120-125. Retrived from http://files.eric.ed.gov/fulltext/EJ825778.pdf Schmitt, R. E. (2016). A perman?ncia na universidade analisada sob a perspectiva bioecol?gica: integra??o entre teorias, vari?veis e percep??es estudantis (Tese de Doutorado). Universidade Cat?lica do Rio Grande do Sul ? PUCRS, Porto Alegre, RS, Brasil. Recuperado de http://tede2.pucrs.br/tede2/bitstream/tede/6690/2/TES_RAFAEL_EDUARDO_SCHMIT T_COMPLETO.pdf Shiu, S. (2001). Issues in the Education of Students with Chronic Illness. International Journal of Disability, Development and Education, 48(3), 269-281. Retrieved from https://www.tandfonline.com/doi/abs/10.1080/10349120120073412 Silva, E. F. G.; Santos, S. E. B. (2017). Fenomenologia existencial como caminho para pesquisa qualitativa em psicologia. Revista Nufen: Phenomenology and Interdisciplinarity, 9(3), p. 110-126. Recuperado de <http://pepsic.bvsalud.org/pdf/rnufen/v9n3/a08.pdf>. doi 10.26823/RevistadoNUFEN.vol09.n03artigo17 Shmuel Shulman, S. & Connolly, J. (2013). The challenge of romantic relationships in emerging adulthood: reconceptualization of the field. SAGE, 1(1), p. 27-39. Retrieved from https://journals.sagepub.com/doi/pdf/10.1177/2167696812467330. doi 10.1177/2167696812467330 Spencer, G., Lewis, S. & Reid, M. (2018). Living with a chronic health condition: Students? health narratives and negotiations of (ill) health at university. Healt Education Journal, 77(6), 631-643. Retrieved from https://journals.sagepub.com/doi/abs/10.1177/0017896917738120 Vieira, A. C. S. & Rava, P. G. S. (2010). Ninho cheio: uma nova etapa do ciclo familiar?. Barbar?i, (33), 118-134. Recuperado de http://pepsic.bvsalud.org/pdf/barbaroi/n33/n33a08.pdf Viegas, A. C., Muniz, R. M., Schwartz, E., Santos, B. P., Matos, M. R., & Monfrin, X. M. (2016). Social expectations experienced by young adults with chronic kidney disease. Revista Online de Pesquisa Cuidado ? Fundamental, 8(3), 4850-4856. Retrieved from http://dialnet.unirioja.es/servlet/articulo?codigo=5618258. doi http://dx.doi.org/10.9789/2175-5361.2016 OMS. (2018). World health statistics 2018: monitoring health for the SDGs, sustainable development goals. In Who. Status of the health-related SDGs (Cap. 2, pp. 5-11). Geneva: World Health Organization. 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dc.title.por.fl_str_mv Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente
dc.title.alternative.eng.fl_str_mv Living with chronic illness in a university context: challenges in emerging adulthood
title Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente
spellingShingle Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente
Silva, Barbara Cecilia Lima da
Adultez emergente
Universit?rios
Doen?a cr?nica
Emerging adulthood
University students
Chronic illness
Psicologia
title_short Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente
title_full Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente
title_fullStr Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente
title_full_unstemmed Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente
title_sort Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente
author Silva, Barbara Cecilia Lima da
author_facet Silva, Barbara Cecilia Lima da
author_role author
dc.contributor.advisor1.fl_str_mv Gonzalez, Lilian Maria Borges
dc.contributor.advisor1ID.fl_str_mv 423.612.142-53
dc.contributor.advisor1Lattes.fl_str_mv http://lattes.cnpq.br/0531526137015076
dc.contributor.referee1.fl_str_mv Gonzalez, Lilian Maria Borges
dc.contributor.referee2.fl_str_mv Rocinholi, Luciene de F?tima
dc.contributor.referee3.fl_str_mv Vicente, Carla Cristine
dc.contributor.referee4.fl_str_mv Santos, S?lvia Renata Magalh?es Lordello Borba
dc.contributor.authorID.fl_str_mv 142.954.087-78
dc.contributor.authorLattes.fl_str_mv http://lattes.cnpq.br/7528862366162651
dc.contributor.author.fl_str_mv Silva, Barbara Cecilia Lima da
contributor_str_mv Gonzalez, Lilian Maria Borges
Gonzalez, Lilian Maria Borges
Rocinholi, Luciene de F?tima
Vicente, Carla Cristine
Santos, S?lvia Renata Magalh?es Lordello Borba
dc.subject.por.fl_str_mv Adultez emergente
Universit?rios
Doen?a cr?nica
topic Adultez emergente
Universit?rios
Doen?a cr?nica
Emerging adulthood
University students
Chronic illness
Psicologia
dc.subject.eng.fl_str_mv Emerging adulthood
University students
Chronic illness
dc.subject.cnpq.fl_str_mv Psicologia
description Emerging adulthood is characterized as a transitional stage between adolescence and adulthood, which includes experimenting social roles and building life projects. At this stage of development, university experience can be an opportunity for growth and maturation in the intellectual sphere and in interpersonal relationships. However, when diagnosed with a chronic disease, young university students deal with biopsychosocial changes that make it difficult for them to adapt to academic requirements. Therefore, the objective of this qualitative research is to understand the impact of illness on the university life of emerging adults. For this, eight undergraduate students from a public university in the state of Rio de Janeiro, aged between 18 and 25 years and diagnosed with chronic non-communicable diseases, were invited to participate in a focus group carried out online. Students who accepted to participate in the study signed a consent form and answered individually, questionnaires to collect sociodemographic and medical-clinical data. The meetings, with three and five participants each, had a previously elaborated script, composed of guiding questions and dynamic acts that sought to investigate how the participants reconciled the university demands and care for their own health. The results were calculated using the descriptive phenomenological method. Four main thematic axes were highlighted: (1) self-care strategy: keeping the disease under control, (2) challenges of reconciling academic demands and health needs, (3) importance of social and institutional support: between the perceived and the desired and finally, (4) the potential of spaces for exchange and discussion about living with chronic diseases: support and dissemination. The groups allowed university students to express their emotions, thoughts and opinions about living with a chronic disease at the university, therefore, relevant aspects were learned to understand the unique needs and characteristics of this public. It is concluded that this knowledge is important to help prepare programs and/or guidance aimed at the well-being of university students who experience different types of chronic diseases.
publishDate 2021
dc.date.issued.fl_str_mv 2021-08-23
dc.date.accessioned.fl_str_mv 2022-08-17T19:23:45Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/masterThesis
format masterThesis
status_str publishedVersion
dc.identifier.citation.fl_str_mv SILVA, Barbara Cecilia Lima da. Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente. 2021. 73 f. Disserta??o (Mestrado em Psicologia) - Instituto de Educa??o, Universidade Federal Rural do Rio de Janeiro, Serop?dica, RJ, 2021.
dc.identifier.uri.fl_str_mv https://tede.ufrrj.br/jspui/handle/jspui/5900
identifier_str_mv SILVA, Barbara Cecilia Lima da. Viver com doen?a cr?nica em contexto universit?rio: desafios na adultez emergente. 2021. 73 f. Disserta??o (Mestrado em Psicologia) - Instituto de Educa??o, Universidade Federal Rural do Rio de Janeiro, Serop?dica, RJ, 2021.
url https://tede.ufrrj.br/jspui/handle/jspui/5900
dc.language.iso.fl_str_mv por
language por
dc.relation.references.por.fl_str_mv Almeida, L. S. & Soares, A. P. (2004). Os estudantes universit?rios: sucesso escolar e desenvolvimento psicossocial. In Mercuri, E. & Polydoro, S. A. J. (Orgs.). Estudante universit?rio: caracter?sticas e experi?ncias de forma??o (Cap. 3, pp. 15-40). Taubat?: Cabral Editora e Livraria Universit?ria. Almeida, L. S. & Casanova, J. R. (2019). Desenvolvimento psicossocial e sucesso acad?mico no ensino superior. In Veiga, F. H. Psicologia da educa??o: temas de aprofundamento cient?fico (Cap. 3, pp. 101-128). Lisboa: Climepsi Editores. Amatuzzi, M. M. (2009). Psicologia fenomenol?gica: uma aproxima??o te?rica humanista. Estudos de Psicologia, 26(1), p. 93-100. Recuperado de https://www.scielo.br/pdf/estpsi/v26n1/a10v26n1.pdf Andrade, C. (2010). Transi??o para a idade adulta: das condi??es sociais ?s implica??es psicol?gicas. An?lise Psicol?gica, 2(28), p. 255-267. Recuperado de http://www.scielo.mec.pt/pdf/aps/v28n2/v28n2a02.pdf Andrade, A. M. J. (2014). Desempenho acad?mico, perman?ncia e desenvolvimento psicossocial de universit?rio: rela??o com indicadores de assist?ncia estudantil. (Disserta??o de mestrado) Universidade Federal do Rio Grande do Sul - UFRGS. Porto Alegre, RS, Brasil. Recuperado de http://lume.ufrgs.br/bitstream/handle/10183/148254/001000409.pdf?sequence=1&isAllo wed=v Arnett, J. (2000). Emerging adulthood: A theory of development from the late teens through the twenties. American Psychologist, 55(5),469-480. Retrieved from http://jeffreyarnett.com/ARNETT_Emerging_Adulthood_theory.pdf Arnett, J, J. (2006). Emerging adulthoog: understanding the new way of coming of age. In: Arnett, J. J.; Curtidor, J. L. (Ed.). Emerging adults in America: Coming of age in the 21st century (Cap. 1, pp. 3-19). Washington, DC: American Psychological Association. Arnett, J. J., Dutra-Thom?, L. & Koller, S. H. (2018). Adultez emergente: a proposta de uma nova perspectiva desenvolvimental sobre a transi??o para a vida adulta no brasil. In Dutra-Thom?, L., Pereira, A. S., Nu?ez, S. & Koller, S. H. (Orgs.) Adultez emergente no brasil: uma nova perspectiva desenvolvimental sobre a transi??o para a vida a adulta (Cap. 1, pp. 13-23). S?o Paulo: Vetor. Atobrah, D. (2012). When darkness falls at mid-day: young patients? perceptions and meanings of chronic illness and their implications for medical care. Ghana Medical Journal, 46(2), 46-53. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3645148/ Azevedo, V., Carvalho, M., Fernandes-Costa, F., Mesquita, S., Soares, J. Teixeira, F. & Maia, A. (2017). Transcrever entrevistas: quest?es conceptuais, orienta??es, pr?ticas e desafios. Revista de Enfermagem Refer?ncia, 4(14), 159-168. Recuperado de http://www.scielo.mec.pt/pdf/ref/vserIVn14/serIVn14a16.pdf Balistiere, A. S., & Tavares, C. M. M. (2013). A import?ncia do apoio s?cio-emocional em adolescentes e adultos jovens portadores de doen?a cr?nica: uma revis?o de literatura. Enfermer?a Global, 12(30), 399-409. Recuperado de http://scielo.isciii.es/pdf/eg/v12n30/pt_revision3.pdf Barreto, A. C. (2016). Paradigma sist?mico no desenvolvimento humano e familiar: a teoria bioecol?gica de urie bronfenbrenner. Psicologia em Revista, 22(2), 275-293. Recuperado de http://pepsic.bvsalud.org/pdf/per/v22n2/v22n2a03.pdf Barsaglini, R. (2019). Repercuss?es dos adoecimentos cr?nicos nos estudos de experi?ncia: tipos, momentos e mediadores. Oficina do Centro de Estudos Sociais, 452, p. 1-27. Recuperado de https://ces.uc.pt/publicacoes/oficina/ficheiros/26162_Oficina_do_CES_452.pdf Belsky, J. (2010). Construindo uma vida adulta. In Bueno, D. & Pereira, A. C. A. (Orgs.). Desenvolvimento humano: experienciando o ciclo da vida (Cap. 10, pp. 328 ? 359). Porto Alegre: Artmed. Boccoline, C. S. (2016). Morbimortalidade por doen?as cr?nicas no Brasil: situa??o atual e futura. Rio de Janeiro: Funda??o Oswaldo Cruz. Borges, C. D. & Santos, M. A. (2005). Aplica??es da t?cnica do grupo focal: fundamentos metodol?gicos, potencialidades e limites. Revista SAPAGESP, 6(1), p. 74-80. Recuperado de http://pepsic.bvsalud.org/pdf/rspagesp/v6n1/v6n1a10.pdf Brasil, Minist?rio da Sa?de. (2013). Diretrizes para o cuidado de pessoas com doen?as cr?nicas nas redes de aten??o ? sa?de e nas linhas de cuidado priorit?rias. In Brasil, Minist?rio da Sa?de. O que s?o doen?as cr?nicas? (Cap. 5, pp. 5-8). Bras?lia: Autor. Recuperado de http://bvsms.saude.gov.br/bvs/publicacoes/diretrizes%20_cuidado_pessoas%20_doencas _cronicas.pdf Brasil, Minist?rio da Sa?de. (2011). Plano de a??es estrat?gicas para o enfrentamento das doen?as cr?nicas n?o transmiss?veis (DCNT) no Brasil 2011-2022. Bras?lia: Autor. Recuperado de http://bvsms.saude.gov.br/bvs/publicacoes/plano_acoes_enfrent_dcnt_2011.pdf Brasil, Minist?rio da Sa?de. (2019). Vigitel Brasil: vigil?ncia de fatores de risco e prote??o para doen?as cr?nicas por meio de inqu?rito telef?nico. Bras?lia: Autor.Recuperado de vigitel-brasil-2019-vigilancia-fatores-risco.pdf (saude.gov.br) Bronfenbrenner, U. (1996). Conceitos b?sicos. In Bronfenbrenner, U. A ecologia do desenvolvimento humano: Experimentos naturais e planejados (Cap. 2, pp. 14-33). Porto Alegre: Artes M?dicas. Bronfenbrenner, U. & Morris, P. A. (2006). The bioecological model of human development. In Lerner, R. M. & Damon, W (Ed.), Handbook of child psychology: Theoretical models of human development (6a ed., 793-828). New Jersey: John Wiley & Sons Inc Bronfenbrenner, U. (2011). Sistemas de integra??o do desenvolvimento humano: Paradigmas de pesquisa. In Carvalho-Barreto, A (Trad.), Bioecologia do desenvolvimento humano: tornando os seres humanos mais humanos (103-126). Porto Alegre: Artmed Carneiro, V. T. & Sampaio, S. M. R. (2015). Adultez emergente: um fen?meno normativo?. Revista Sa?de e Ci?ncia, 4(1), p. 32-40. Recuperado de http://www.ufcg.edu.br/revistasaudeeciencia/index.php/RSC-UFCG/article/view/218 Caballero, L. G. R, Delgado, E. M.G., & L?pez, A. L. M. (2017). Prevalencia de factores de riesgo comportamentales modificables asociados a enfermedades no transmisibles en estudiantes universitarios latinoamericanos: una revisi?n sistem?tica. Nutrici?n Hospitalaria, 34(5), 1185-1197. Recubierto de http://www.redalyc.org/articulo.oa?id=309253341024. doi http://dx.doi.org/10.20960/nh.1057 Castellanos, M. E. P. (2015). Cronicidade: quest?es e conceitos formulados pelos estudos qualitativos de ci?ncias sociais em sa?de. In Castellanos, M. E. P., Trad. L. A. B., Jorge, M. S. B., Leit?o, I. M. T. A. (Orgs.). Cronicidade: experi?ncia do adoecimento e cuidado sob a ?ptica das ci?ncias sociais (pp. 35-60). Fortaleza: EdUECE. Castro. L. K., Ponciano, C. F. & Pinto, D. W. (2010). Autoefic?cia e qualidade de vida de jovens adultos com doen?as cr?nicas. Aletheia, 12(31), 137-148. Recuperado de http://pepsic.bvsalud.org/pdf/aletheia/n31/n31a12.pdf Coordenadoria de Comunica??o Social da UFRRJ. (2019). Cat?logo institucional da universidade federal rural do rio de janeiro. Serop?dica: Autor. Recuperado de http://institucional.ufrrj.br/ccs/files/2019/07/livreto_ufrrj_final_2019.pdf Czeresnia, D., Maciel, E. M. G. S. & Oviedo, R. A. M. (2013). Sentidos da sa?de. Os sentidos da sa?de e da doen?a (pp. 12-27). Rio de Janeiro: Editora Fiocruz Domith, X. A. & Gomes, B. C. (2018). Desafios ? compreens?o da adolesc?ncia, da adultez emergente e do relacionamento parental. Estudos Interdisciplinares em Psicologia, 9(2), 156-160). Recuperado de http://pepsic.bvsalud.org/pdf/eip/v9n2/a10.pdf. doi 10.5433/2236-6407.2016v9n1p156 Erikson. E.H. (1976). Identidade, juventude e crise (2a ed, Cabral. A.,Trad.). Rio de Janeiro: Zahar Editores. (Obra original publicada em 1968). Giorgi, A., Sousa, D. (2010). M?todo fenomenol?gico de investiga??o em psicologia. In Giorgi, A.; Sousa, D. M?todo fenomenol?gico de investiga??o em psicologia (pp. 74 - 134). Lisboa: Fim do s?culo. Giorgi, A., Giorgi, B. & Morley, J. (2017). The descritive phenomenological psychological method. The Sage Handbook of Qualitative Research In Psychology (2a ed, Cap. 11, pp. 176-192). Retrieved from https://www.researchgate.net/publication/318451180 Gra?as, E. M. (2000). Pesquisa qualitativa e perspectiva fenomenol?gica: fundamentos que norteiam sua trajet?ria. Revista Mineira de Enfermagem, 4(1), p. 28-33. Recuperado de https://cdn.publisher.gn1.link/reme.org.br/pdf/v4n1a06.pdf Guimar?es, S. S. (1999). Psicologia da Sa?de e doen?as cr?nicas. In R. R. Kerbauy (Org) Comportamento e Sa?de: Explorando Alternativas (pp. 22-45). Santo Andr?: ARBytes. Herts, K. L., Wallis, E. & Maslow, G. (2014). College freshmen with chronic illness: a comparison with healthy first-year students. Journal of College Student Development, 55(5), 475-480. Retrived from https://sci-hub.scihubtw.tw/10.1353/csd.2014.0052 Houman, K. M., & Staplay, J. C. (2013). The college experience for students with chronic illness: implications for academic advising. Nacada Journal, 33(1), 61-70. Retrived from https://www.nacadajournal.org/doi/full/10.12930/NACADA-13-227. doi 10.12930/NACADA-13-227 Hughes, K., Corcoran, T. & Slee, R. (2015). Health-inclusive higher education: listening to students with disabilities or chronic illnesses. Higher EducationResearch & Development, 4(21), 1-14. Retrived from https://scihub. scihubtw.tw/10.1080/07294360.2015.1107885. doi 10.1080/07294360.2015.1107885 Jeunesse, M. (2019, Agosto 6). How to Prepare for College If You Have a Chronic Illness [site]. Retrieved from https://www.teenvogue.com/story/how-to-prepare-for-college-ifyou- have-a-chronic-illness Jung, K. E. (2002). Chronic illness and educational equity: the politics of visibility. NWSA Journal, 14(3), 178-200. Retrived from https://sci-hub.scihubtw.tw/10.2307/4316930 Jung, K. E. (2003). Chronic illness and academic acoommodation: meeting disabled students? ?unique needs? and preserving the institutional order of the university. The Journal of Sociology & Social Welfare, 30(6), 91-112. Retrieved from https://scholarworks.wmich.edu/cgi/viewcontent.cgi?article=2875&context=jssw JMacDermott, S. (2014). Merging the person ans the illness: the lived experience of emerging adults with childhood onset chronic illness (Tese de Doutorado). Dublin City University - DCU, Dublin, Irlanda. Retrived from https://scihub. scihubtw.tw/10.7748/ncyp.28.4.67.s48 Kaushansky, D., Cox, J., Dodson, C., McNeeley, M., Kumar, S. & Iverson, E. (2016). Living a secret: Disclosure among adolescents and young adults with chronic illnesses. Cronic Illness, 0(0), 1-13. Retrieved from https://journals.sagepub.com/doi/abs/10.1177/1742395316655855 Lambert, A. S., Moreira, L. K. R. & Castro, R. C. M.(2018). Estudo da arte sobre adoecimento do estudante universit?rio brasileiro. Revista Brasileira de Educa??o e Sa?de, 8(2), 31-36. Recuperado de http://www.gvaa.com.br/revista/index.php/REBES/article/view/5987/508. doi http://dx.doi.org/10.18378/rebes.v8i2.5987 Lei n. 8.069, de 13 de julho de 1990. Estatuto da crian?a e do adolescente. Recuperado de http://www.chegadetrabalhoinfantil.org.br/wpcontent/ uploads/2017/06/LivroECA_2017_v05_INTERNET.pdf Martins, E. & Szymanski, H. (2004). A abordagem ecol?gica de urie bronfenbrenner em estudos com fam?lias. Estudos e Pesquisas em Psicologia, 4(1), 63-77. Recuperado de http://pepsic.bvsalud.org/pdf/epp/v4n1/v4n1a06.pdf Monteiro, S., Tavares, J. & Pereira, A. (2009). Adultez emergente: na fronteira entre a adolesc?ncia e a adultez. Ambiente e Educa??o, 2(1), 129-137. Recuperado de http://publicacoes.unicid.edu.br/index.php/ambienteeducacao/article/view/545/512 Moraes, E. N., Moraes, F. L., & Lima, S. P. P. (2010). Caracter?sticas biol?gicas e psicol?gicas do envelhecimento. Revista M?dica de Minas Gerais, 20(1), p. 67-73. Recuperado de http://www.observatorionacionaldoidoso.fiocruz.br/biblioteca/_artigos/197.pdf Nguyen. T., Henderson, D., Stewart, D., Hlyva, O., Punthakee, Z., & Gorter, J. W. (2016). You never transition alone! Exploring the experiences of youth with chronic health conditions, parents and healthcare providers on self-management. Child: care, health and development, 42(4), 464-472. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5021141/pdf/CCH-42-464.pdf. doi 10.1111/cch.12334 Oliver, D. G., Serovich, J. M., & Mason, T. L. (2005). Constraints and opportunities with interview transcription: Towards reflection in qualitative research. Social Forces, 84(2), 1273?1289. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1400594. doi:10.1353/sof.2006.0023 Papalia, D. E. & Feldman., R. D. (2013). Desenvolvimento f?sico e cognitivo no in?cio da vida adulta e no adulto jovem. In Papalia, D. E., & Feldman., R. D. Desenvolvimento humano (12a ed., Cap. 13, pp. 450-481). Porto Alegre: AMGH. Pillado, C. E. & Almagi?, E. B. (2018). Autoeficacia, apoyo social y bienestar psicol?gico en estudiantes universitarios asm?ticos. Revista de Psicol?g?a,14(28), 141-147. Recubierto de http://erevistas.uca.edu.ar/index.php/RPSI/article/view/1744/1631 Pr?-reitoria de assuntos estudantis. (2015). Cartilha dos programas e a??es de assist?ncia estudantil da ufrrj. Serop?dica: Autor. Recuperado de http://r1.ufrrj.br/sba/listas/CartilhaInformativa_2015.pdf Royster, L. & Marshall, O. (2008). The chronic illness initiative: supporting college students with chronic illness needs at depaul university. Journal of Postsecondary Education and Disability, 20(2), 120-125. Retrived from http://files.eric.ed.gov/fulltext/EJ825778.pdf Schmitt, R. E. (2016). A perman?ncia na universidade analisada sob a perspectiva bioecol?gica: integra??o entre teorias, vari?veis e percep??es estudantis (Tese de Doutorado). Universidade Cat?lica do Rio Grande do Sul ? PUCRS, Porto Alegre, RS, Brasil. Recuperado de http://tede2.pucrs.br/tede2/bitstream/tede/6690/2/TES_RAFAEL_EDUARDO_SCHMIT T_COMPLETO.pdf Shiu, S. (2001). Issues in the Education of Students with Chronic Illness. International Journal of Disability, Development and Education, 48(3), 269-281. Retrieved from https://www.tandfonline.com/doi/abs/10.1080/10349120120073412 Silva, E. F. G.; Santos, S. E. B. (2017). Fenomenologia existencial como caminho para pesquisa qualitativa em psicologia. Revista Nufen: Phenomenology and Interdisciplinarity, 9(3), p. 110-126. Recuperado de <http://pepsic.bvsalud.org/pdf/rnufen/v9n3/a08.pdf>. doi 10.26823/RevistadoNUFEN.vol09.n03artigo17 Shmuel Shulman, S. & Connolly, J. (2013). The challenge of romantic relationships in emerging adulthood: reconceptualization of the field. SAGE, 1(1), p. 27-39. Retrieved from https://journals.sagepub.com/doi/pdf/10.1177/2167696812467330. doi 10.1177/2167696812467330 Spencer, G., Lewis, S. & Reid, M. (2018). Living with a chronic health condition: Students? health narratives and negotiations of (ill) health at university. Healt Education Journal, 77(6), 631-643. Retrieved from https://journals.sagepub.com/doi/abs/10.1177/0017896917738120 Vieira, A. C. S. & Rava, P. G. S. (2010). Ninho cheio: uma nova etapa do ciclo familiar?. Barbar?i, (33), 118-134. Recuperado de http://pepsic.bvsalud.org/pdf/barbaroi/n33/n33a08.pdf Viegas, A. C., Muniz, R. M., Schwartz, E., Santos, B. P., Matos, M. R., & Monfrin, X. M. (2016). Social expectations experienced by young adults with chronic kidney disease. Revista Online de Pesquisa Cuidado ? Fundamental, 8(3), 4850-4856. Retrieved from http://dialnet.unirioja.es/servlet/articulo?codigo=5618258. doi http://dx.doi.org/10.9789/2175-5361.2016 OMS. (2018). World health statistics 2018: monitoring health for the SDGs, sustainable development goals. In Who. Status of the health-related SDGs (Cap. 2, pp. 5-11). Geneva: World Health Organization. Retrieved from http://apps.who.int/iris/bitstream/handle/10665/272596/9789241565585-eng.pdf
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