Daily life of informal caregivers: perspectives from occupational therapy

Detalhes bibliográficos
Autor(a) principal: Seguel Albornoz, Francisca Michelle
Data de Publicação: 2023
Outros Autores: Rosas Tripailaf, Javiera Alicia, Caucaman Provost, Marilene Fanye, Lefián Huerta, Constanza Tamara, Gallegos Rocha, Alexandra Nicol, Cirineu, Cleber Tiago
Tipo de documento: Artigo
Idioma: eng
spa
Título da fonte: Cadernos Brasileiros de Terapia Ocupacional
Texto Completo: https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3440
Resumo: Introduction: This article proposes to understand the daily life of informal caregivers through their narratives from the perspective of Occupational Therapy under the implications in occupational areas. Objective: Analyze from the occupation areas of selfcare, productivity and leisure, the narratives of women who exercise the role of informal caregiver. Method: Qualitative research, with a narrative approach to obtain the experience of the caregivers since they assumed this role, through a semi-structured interview that was carried out with five informal caregivers belonging to the Valdivia commune, Los Ríos Region (Chile). Results: Repercussions were identified in the selfcare area, expressed in overload, multiplicity of roles, mood and sleep disorders. In terms of productivity, these women manage to reconcile their daily lives with their work, the support of third parties being a protective factor. Finally, in leisure time, the space for themselves is drastically reduced by both the work and the health situation, making it impossible to balance their routines. Conclusions: Exercising the role of caregiver implies a change in occupational areas, which directly and indirectly affects daily life, since there is an abrupt break in the routine, enhanced by the lack of social support and / or the normalization of the performance of this role by women. In addition, the confinement measures due to COVID-19 increased the impact of the role of caregiver in the daily life of these women, expressed in a greater workload and a significant decrease in self-care.
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spelling Daily life of informal caregivers: perspectives from occupational therapyCotidiano de cuidadoras informales: perspectivas desde la terapia ocupacionalCotidiano de cuidadoras informais: perspectivas da terapia ocupacionalTerapia OcupacionalActividades CotidianasCuidadoresTerapia OcupacionalAtividades CotidianasCuidadoresOccupational TherapyActivities of Daily LivingCaregiversIntroduction: This article proposes to understand the daily life of informal caregivers through their narratives from the perspective of Occupational Therapy under the implications in occupational areas. Objective: Analyze from the occupation areas of selfcare, productivity and leisure, the narratives of women who exercise the role of informal caregiver. Method: Qualitative research, with a narrative approach to obtain the experience of the caregivers since they assumed this role, through a semi-structured interview that was carried out with five informal caregivers belonging to the Valdivia commune, Los Ríos Region (Chile). Results: Repercussions were identified in the selfcare area, expressed in overload, multiplicity of roles, mood and sleep disorders. In terms of productivity, these women manage to reconcile their daily lives with their work, the support of third parties being a protective factor. Finally, in leisure time, the space for themselves is drastically reduced by both the work and the health situation, making it impossible to balance their routines. Conclusions: Exercising the role of caregiver implies a change in occupational areas, which directly and indirectly affects daily life, since there is an abrupt break in the routine, enhanced by the lack of social support and / or the normalization of the performance of this role by women. In addition, the confinement measures due to COVID-19 increased the impact of the role of caregiver in the daily life of these women, expressed in a greater workload and a significant decrease in self-care.Introducción: El presente artículo propone comprender el cotidiano de mujeres cuidadoras informales a través de sus narrativas desde la perspectiva de la Terapia Ocupacional bajo las implicancias en las áreas ocupacionales. Objetivo: Analizar desde las áreas de ocupación de autocuidado, productividad y ocio, las narrativas de mujeres quienes ejercen el rol de cuidadora informal. Método: Investigación cualitativa, con abordaje narrativo para obtener la experiencia de las cuidadoras desde que asumieron este rol, a través de una entrevista semiestructurada que fue realizada a cinco cuidadoras informales pertenecientes a la comuna de Valdivia, Región de Los Ríos (Chile). Resultados: Se identificaron repercusiones en el área de autocuidado, expresada en sobrecarga, multiplicidad de roles, trastornos del ánimo y sueño. En productividad, estas mujeres logran compatibilizar su cotidiano con la labor, siendo un factor protector el apoyo de terceros. Por último, en ocio los espacios para sí mismas se ven reducidos drásticamente tanto por la labor, como por la situación sanitaria, imposibilitando un equilibrio en sus rutinas. Conclusión: Ejercer el rol de cuidadora implica un cambio en las áreas ocupacionales, que directa e indirectamente afectan su cotidiano, puesto que hay una ruptura abrupta en su rutina, siendo potenciada por la falta de apoyo social y/o por la normalización del desempeño de este rol por mujeres. Además, las medidas de confinamiento por COVID-19 aumentaron el impacto del rol de cuidadora en el cotidiano de estas mujeres, expresada en una mayor carga de trabajo y una disminución significativa del autocuidado.Introdução: Este artigo se propõe a abordar e compreender o cotidiano de cuidadoras informais e analisar suas narrativas na perspectiva da terapia ocupacional, sob as implicações nas áreas ocupacionais. Objetivo:Analisar a partir das áreas de autocuidado, produtividade e lazer, as narrativas de mulheres que exercem a função de cuidadora informal. Método: Pesquisa qualitativa, com abordagem narrativa para obter a história e a experiência das cuidadoras desde que assumiram esse papel, por meio de uma entrevista semiestruturada realizada com cinco cuidadoras informais pertencentes à comuna de Valdivia, Região de Los Ríos (Chile). Resultados: Foram identificadas repercussões na área de autocuidado, expressas em sobrecarga, multiplicidade de papéis, distúrbios de humor e sono. Em termos de produtividade, essas mulheres conseguiram conciliar o seu cotidiano com o trabalho, sendo o apoio de terceiros um fator de proteção. Por último, no lazer, os espaços próprios são drasticamente reduzidos tanto pelo trabalho como pela situação de saúde, impossibilitando o equilíbrio em suas rotinas. Conclusão: O exercício do papel de cuidadora implica uma mudança nas áreas ocupacionais, o que afeta direta e indiretamente o seu cotidiano, visto que ocorre uma ruptura abrupta em sua rotina, sendo potencializada pela falta de apoio social e/ou pela normalização do desempenho desse papel por mulheres. Além disso, as medidas de confinamento devido à COVID-19 aumentaram o impacto do papel de cuidadora no cotidiano dessas mulheres, expresso em maior carga de trabalho e diminuição significativa do autocuidado.Brazilian Journal of Occupational TherapyCuadernos Brasilenos de Terapia OcupacionalCadernos Brasileiros de Terapia Ocupacional2023-09-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/344010.1590/2526-8910.ctoAO263434403Brazilian Journal of Occupational Therapy; Vol. 31 (2023); e3440Cuadernos Brasilenos de Terapia Ocupacional; Vol. 31 (2023); e3440Cadernos Brasileiros de Terapia Ocupacional; v. 31 (2023); e34402526-8910reponame:Cadernos Brasileiros de Terapia Ocupacionalinstname:Universidade Federal de São Carlos (UFSCAR-DTO)instacron:UFSCARengspahttps://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3440/3852https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3440/3853Copyright (c) 2023 Cadernos Brasileiros de Terapia Ocupacionalhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSeguel Albornoz, Francisca MichelleRosas Tripailaf, Javiera AliciaCaucaman Provost, Marilene FanyeLefián Huerta, Constanza TamaraGallegos Rocha, Alexandra NicolCirineu, Cleber Tiago2023-07-31T11:17:24Zoai:ojs.www.cadernosdeterapiaocupacional.ufscar.br:article/3440Revistahttp://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/indexPUBhttps://old.scielo.br/oai/scielo-oai.phpcadto@ufscar.br||cadto@ufscar.br2526-89102526-8910opendoar:2023-07-31T11:17:24Cadernos Brasileiros de Terapia Ocupacional - Universidade Federal de São Carlos (UFSCAR-DTO)false
dc.title.none.fl_str_mv Daily life of informal caregivers: perspectives from occupational therapy
Cotidiano de cuidadoras informales: perspectivas desde la terapia ocupacional
Cotidiano de cuidadoras informais: perspectivas da terapia ocupacional
title Daily life of informal caregivers: perspectives from occupational therapy
spellingShingle Daily life of informal caregivers: perspectives from occupational therapy
Seguel Albornoz, Francisca Michelle
Terapia Ocupacional
Actividades Cotidianas
Cuidadores
Terapia Ocupacional
Atividades Cotidianas
Cuidadores
Occupational Therapy
Activities of Daily Living
Caregivers
title_short Daily life of informal caregivers: perspectives from occupational therapy
title_full Daily life of informal caregivers: perspectives from occupational therapy
title_fullStr Daily life of informal caregivers: perspectives from occupational therapy
title_full_unstemmed Daily life of informal caregivers: perspectives from occupational therapy
title_sort Daily life of informal caregivers: perspectives from occupational therapy
author Seguel Albornoz, Francisca Michelle
author_facet Seguel Albornoz, Francisca Michelle
Rosas Tripailaf, Javiera Alicia
Caucaman Provost, Marilene Fanye
Lefián Huerta, Constanza Tamara
Gallegos Rocha, Alexandra Nicol
Cirineu, Cleber Tiago
author_role author
author2 Rosas Tripailaf, Javiera Alicia
Caucaman Provost, Marilene Fanye
Lefián Huerta, Constanza Tamara
Gallegos Rocha, Alexandra Nicol
Cirineu, Cleber Tiago
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Seguel Albornoz, Francisca Michelle
Rosas Tripailaf, Javiera Alicia
Caucaman Provost, Marilene Fanye
Lefián Huerta, Constanza Tamara
Gallegos Rocha, Alexandra Nicol
Cirineu, Cleber Tiago
dc.subject.por.fl_str_mv Terapia Ocupacional
Actividades Cotidianas
Cuidadores
Terapia Ocupacional
Atividades Cotidianas
Cuidadores
Occupational Therapy
Activities of Daily Living
Caregivers
topic Terapia Ocupacional
Actividades Cotidianas
Cuidadores
Terapia Ocupacional
Atividades Cotidianas
Cuidadores
Occupational Therapy
Activities of Daily Living
Caregivers
description Introduction: This article proposes to understand the daily life of informal caregivers through their narratives from the perspective of Occupational Therapy under the implications in occupational areas. Objective: Analyze from the occupation areas of selfcare, productivity and leisure, the narratives of women who exercise the role of informal caregiver. Method: Qualitative research, with a narrative approach to obtain the experience of the caregivers since they assumed this role, through a semi-structured interview that was carried out with five informal caregivers belonging to the Valdivia commune, Los Ríos Region (Chile). Results: Repercussions were identified in the selfcare area, expressed in overload, multiplicity of roles, mood and sleep disorders. In terms of productivity, these women manage to reconcile their daily lives with their work, the support of third parties being a protective factor. Finally, in leisure time, the space for themselves is drastically reduced by both the work and the health situation, making it impossible to balance their routines. Conclusions: Exercising the role of caregiver implies a change in occupational areas, which directly and indirectly affects daily life, since there is an abrupt break in the routine, enhanced by the lack of social support and / or the normalization of the performance of this role by women. In addition, the confinement measures due to COVID-19 increased the impact of the role of caregiver in the daily life of these women, expressed in a greater workload and a significant decrease in self-care.
publishDate 2023
dc.date.none.fl_str_mv 2023-09-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3440
10.1590/2526-8910.ctoAO263434403
url https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3440
identifier_str_mv 10.1590/2526-8910.ctoAO263434403
dc.language.iso.fl_str_mv eng
spa
language eng
spa
dc.relation.none.fl_str_mv https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3440/3852
https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3440/3853
dc.rights.driver.fl_str_mv Copyright (c) 2023 Cadernos Brasileiros de Terapia Ocupacional
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Cadernos Brasileiros de Terapia Ocupacional
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Brazilian Journal of Occupational Therapy
Cuadernos Brasilenos de Terapia Ocupacional
Cadernos Brasileiros de Terapia Ocupacional
publisher.none.fl_str_mv Brazilian Journal of Occupational Therapy
Cuadernos Brasilenos de Terapia Ocupacional
Cadernos Brasileiros de Terapia Ocupacional
dc.source.none.fl_str_mv Brazilian Journal of Occupational Therapy; Vol. 31 (2023); e3440
Cuadernos Brasilenos de Terapia Ocupacional; Vol. 31 (2023); e3440
Cadernos Brasileiros de Terapia Ocupacional; v. 31 (2023); e3440
2526-8910
reponame:Cadernos Brasileiros de Terapia Ocupacional
instname:Universidade Federal de São Carlos (UFSCAR-DTO)
instacron:UFSCAR
instname_str Universidade Federal de São Carlos (UFSCAR-DTO)
instacron_str UFSCAR
institution UFSCAR
reponame_str Cadernos Brasileiros de Terapia Ocupacional
collection Cadernos Brasileiros de Terapia Ocupacional
repository.name.fl_str_mv Cadernos Brasileiros de Terapia Ocupacional - Universidade Federal de São Carlos (UFSCAR-DTO)
repository.mail.fl_str_mv cadto@ufscar.br||cadto@ufscar.br
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