Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale
Autor(a) principal: | |
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Data de Publicação: | 2013 |
Outros Autores: | , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Institucional da UNIFESP |
Texto Completo: | http://repositorio.unifesp.br/handle/11600/36979 http://dx.doi.org/10.1186/1477-7525-11-198 |
Resumo: | Background: This study aimed to translate the 'Pediatric Quality of Life Inventory (TM) (PedsQL (TM) 3.0) Cardiac Module' into Portuguese, adapt it to Brazilian culture, and assess its psychometric properties (validity and reproducibility), and to calculate health-related quality of life scores on the PedsQL 4.0 and PedsQL (TM) 3.0 Cardiac Module Scales for a group of patients 5 to 18 years old with rheumatic heart disease.Methods: the methods suggested by the authors of the original version of the questionnaire included 1) translation by an expert panel; 2) translation back into English and revision by the authors of the original version; 3) pilot study with seven children and parents in each of three age ranges (5 to 7, 8 to 12, and 13 to 18 years old); and 4) assessment of the measurement properties. in this stage, the PedsQL (TM) 3.0 Cardiac Module and the PedsQL 4.0 Generic Scale were applied to a sample comprising 109 children and adolescents with rheumatic heart disease and their parents or caregivers. the version for parents or caregivers was administered separately on the same day.Results: the values of Cronbach's alpha for all scales assessed in the questionnaire (heart problems and treatment [symptoms], problems with perceived physical appearance, treatment anxiety, cognitive problems, and communication problems) varied from 0.6 to 0.8, indicating good internal consistency. Correlation was found between the scores for the Cardiac Module and the Generic Scale (0.36-0.86), demonstrating convergent validity (Spearman's correlation coefficient, p < 0.01). the symptoms, problems with perceived physical appearance, and cognitive and communication problem domains were able to distinguish between groups of patients with mild and moderate/severe heart disease (Student's t-test, p < 0.05). the intraclass correlation of the interobserver reproducibility was adequate (0.76 to 0.94 among the patients [children/adolescents] and 0.76 to 0.84 among their caregivers). the correlation between the patients' scores and their parents' scores varied from 0.50 to 0.86 (Pearson's correlation coefficient, p < 0.01).Conclusions: the Brazilian version of the PedsQL (TM) 3.0 Cardiac Module was shown to be reliable. the application of this questionnaire in practice will be very useful for all professionals charged with the care of children and adolescents with heart diseases. |
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Moraes, Anabela do NascimentoTerreri, Maria Teresa Ramos Ascensao [UNIFESP]Hilario, Maria Odete Esteves [UNIFESP]Len, Claudio Arnaldo [UNIFESP]Universidade Federal do Pará (UFPA)Universidade Federal de São Paulo (UNIFESP)2016-01-24T14:34:43Z2016-01-24T14:34:43Z2013-11-15Health and Quality of Life Outcomes. London: Biomed Central Ltd, v. 11, 10 p., 2013.1477-7525http://repositorio.unifesp.br/handle/11600/36979http://dx.doi.org/10.1186/1477-7525-11-198WOS000328560100001.pdf10.1186/1477-7525-11-198WOS:000328560100001Background: This study aimed to translate the 'Pediatric Quality of Life Inventory (TM) (PedsQL (TM) 3.0) Cardiac Module' into Portuguese, adapt it to Brazilian culture, and assess its psychometric properties (validity and reproducibility), and to calculate health-related quality of life scores on the PedsQL 4.0 and PedsQL (TM) 3.0 Cardiac Module Scales for a group of patients 5 to 18 years old with rheumatic heart disease.Methods: the methods suggested by the authors of the original version of the questionnaire included 1) translation by an expert panel; 2) translation back into English and revision by the authors of the original version; 3) pilot study with seven children and parents in each of three age ranges (5 to 7, 8 to 12, and 13 to 18 years old); and 4) assessment of the measurement properties. in this stage, the PedsQL (TM) 3.0 Cardiac Module and the PedsQL 4.0 Generic Scale were applied to a sample comprising 109 children and adolescents with rheumatic heart disease and their parents or caregivers. the version for parents or caregivers was administered separately on the same day.Results: the values of Cronbach's alpha for all scales assessed in the questionnaire (heart problems and treatment [symptoms], problems with perceived physical appearance, treatment anxiety, cognitive problems, and communication problems) varied from 0.6 to 0.8, indicating good internal consistency. Correlation was found between the scores for the Cardiac Module and the Generic Scale (0.36-0.86), demonstrating convergent validity (Spearman's correlation coefficient, p < 0.01). the symptoms, problems with perceived physical appearance, and cognitive and communication problem domains were able to distinguish between groups of patients with mild and moderate/severe heart disease (Student's t-test, p < 0.05). the intraclass correlation of the interobserver reproducibility was adequate (0.76 to 0.94 among the patients [children/adolescents] and 0.76 to 0.84 among their caregivers). the correlation between the patients' scores and their parents' scores varied from 0.50 to 0.86 (Pearson's correlation coefficient, p < 0.01).Conclusions: the Brazilian version of the PedsQL (TM) 3.0 Cardiac Module was shown to be reliable. the application of this questionnaire in practice will be very useful for all professionals charged with the care of children and adolescents with heart diseases.Fed Univ Para, Bettina Ferro de Souza Univ Hosp, Univ Fed Para FAMED UFPA HUBFS, Pediat Serv,Med Sch, BR-66059 Belem, Para, BrazilUniversidade Federal de São Paulo, São Paulo Sch Med, Escola Paulista Med UNIFESP EPM, Rheumatol Unit,Dept Pediat, São Paulo, BrazilUniversidade Federal de São Paulo, São Paulo Sch Med, Escola Paulista Med UNIFESP EPM, Rheumatol Unit,Dept Pediat, São Paulo, BrazilWeb of Science10engBiomed Central LtdHealth and Quality of Life OutcomesQuality of lifeHeart diseasesRheumatic feverValidation studiesTranslationQuestionnairesHealth related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scaleinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UNIFESPinstname:Universidade Federal de São Paulo (UNIFESP)instacron:UNIFESPORIGINALWOS000328560100001.pdfapplication/pdf345475${dspace.ui.url}/bitstream/11600/36979/1/WOS000328560100001.pdf917ecca7698df2667c7bdffa2b390b08MD51open accessTEXTWOS000328560100001.pdf.txtWOS000328560100001.pdf.txtExtracted texttext/plain48350${dspace.ui.url}/bitstream/11600/36979/21/WOS000328560100001.pdf.txt34cd761ecaf038cc587319f139d276d3MD521open accessTHUMBNAILWOS000328560100001.pdf.jpgWOS000328560100001.pdf.jpgIM Thumbnailimage/jpeg6894${dspace.ui.url}/bitstream/11600/36979/23/WOS000328560100001.pdf.jpg49d5e11455441f0e8052a1d27b4d8546MD523open access11600/369792023-06-05 19:59:39.57open accessoai:repositorio.unifesp.br:11600/36979Repositório InstitucionalPUBhttp://www.repositorio.unifesp.br/oai/requestopendoar:34652023-06-05T22:59:39Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)false |
dc.title.en.fl_str_mv |
Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale |
title |
Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale |
spellingShingle |
Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale Moraes, Anabela do Nascimento Quality of life Heart diseases Rheumatic fever Validation studies Translation Questionnaires |
title_short |
Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale |
title_full |
Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale |
title_fullStr |
Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale |
title_full_unstemmed |
Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale |
title_sort |
Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory (TM) cardiac module scale |
author |
Moraes, Anabela do Nascimento |
author_facet |
Moraes, Anabela do Nascimento Terreri, Maria Teresa Ramos Ascensao [UNIFESP] Hilario, Maria Odete Esteves [UNIFESP] Len, Claudio Arnaldo [UNIFESP] |
author_role |
author |
author2 |
Terreri, Maria Teresa Ramos Ascensao [UNIFESP] Hilario, Maria Odete Esteves [UNIFESP] Len, Claudio Arnaldo [UNIFESP] |
author2_role |
author author author |
dc.contributor.institution.none.fl_str_mv |
Universidade Federal do Pará (UFPA) Universidade Federal de São Paulo (UNIFESP) |
dc.contributor.author.fl_str_mv |
Moraes, Anabela do Nascimento Terreri, Maria Teresa Ramos Ascensao [UNIFESP] Hilario, Maria Odete Esteves [UNIFESP] Len, Claudio Arnaldo [UNIFESP] |
dc.subject.eng.fl_str_mv |
Quality of life Heart diseases Rheumatic fever Validation studies Translation Questionnaires |
topic |
Quality of life Heart diseases Rheumatic fever Validation studies Translation Questionnaires |
description |
Background: This study aimed to translate the 'Pediatric Quality of Life Inventory (TM) (PedsQL (TM) 3.0) Cardiac Module' into Portuguese, adapt it to Brazilian culture, and assess its psychometric properties (validity and reproducibility), and to calculate health-related quality of life scores on the PedsQL 4.0 and PedsQL (TM) 3.0 Cardiac Module Scales for a group of patients 5 to 18 years old with rheumatic heart disease.Methods: the methods suggested by the authors of the original version of the questionnaire included 1) translation by an expert panel; 2) translation back into English and revision by the authors of the original version; 3) pilot study with seven children and parents in each of three age ranges (5 to 7, 8 to 12, and 13 to 18 years old); and 4) assessment of the measurement properties. in this stage, the PedsQL (TM) 3.0 Cardiac Module and the PedsQL 4.0 Generic Scale were applied to a sample comprising 109 children and adolescents with rheumatic heart disease and their parents or caregivers. the version for parents or caregivers was administered separately on the same day.Results: the values of Cronbach's alpha for all scales assessed in the questionnaire (heart problems and treatment [symptoms], problems with perceived physical appearance, treatment anxiety, cognitive problems, and communication problems) varied from 0.6 to 0.8, indicating good internal consistency. Correlation was found between the scores for the Cardiac Module and the Generic Scale (0.36-0.86), demonstrating convergent validity (Spearman's correlation coefficient, p < 0.01). the symptoms, problems with perceived physical appearance, and cognitive and communication problem domains were able to distinguish between groups of patients with mild and moderate/severe heart disease (Student's t-test, p < 0.05). the intraclass correlation of the interobserver reproducibility was adequate (0.76 to 0.94 among the patients [children/adolescents] and 0.76 to 0.84 among their caregivers). the correlation between the patients' scores and their parents' scores varied from 0.50 to 0.86 (Pearson's correlation coefficient, p < 0.01).Conclusions: the Brazilian version of the PedsQL (TM) 3.0 Cardiac Module was shown to be reliable. the application of this questionnaire in practice will be very useful for all professionals charged with the care of children and adolescents with heart diseases. |
publishDate |
2013 |
dc.date.issued.fl_str_mv |
2013-11-15 |
dc.date.accessioned.fl_str_mv |
2016-01-24T14:34:43Z |
dc.date.available.fl_str_mv |
2016-01-24T14:34:43Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.citation.fl_str_mv |
Health and Quality of Life Outcomes. London: Biomed Central Ltd, v. 11, 10 p., 2013. |
dc.identifier.uri.fl_str_mv |
http://repositorio.unifesp.br/handle/11600/36979 http://dx.doi.org/10.1186/1477-7525-11-198 |
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1477-7525 |
dc.identifier.file.none.fl_str_mv |
WOS000328560100001.pdf |
dc.identifier.doi.none.fl_str_mv |
10.1186/1477-7525-11-198 |
dc.identifier.wos.none.fl_str_mv |
WOS:000328560100001 |
identifier_str_mv |
Health and Quality of Life Outcomes. London: Biomed Central Ltd, v. 11, 10 p., 2013. 1477-7525 WOS000328560100001.pdf 10.1186/1477-7525-11-198 WOS:000328560100001 |
url |
http://repositorio.unifesp.br/handle/11600/36979 http://dx.doi.org/10.1186/1477-7525-11-198 |
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eng |
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Health and Quality of Life Outcomes |
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Biomed Central Ltd |
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Biomed Central Ltd |
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