Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)

Detalhes bibliográficos
Autor(a) principal: Morais, Schirley Oliveira
Data de Publicação: 2022
Outros Autores: Santana, Geovana Guimarães, Silva, Hellen Bomfim, Santos, Gabriela Oliveira, Dutra, Laisla Pires
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/30898
Resumo: The Down Syndrome (DS) is a genetic disorder, its characteristics may impact functional skills. The instrument “Pediatric Evaluation of Disability Inventory'' (PEDI) does mensureant the functional independence degree in the mobility area, self-care and social function. Therefore, this study aims to describe the functional performance level of DS children, according to PEDI. It is a descriptive research, with quantitative approach, it was made in the Associação de Pais e Amigos Excepcionais (APAE) in a city of Bahia southwest. Ten caregivers of SD children participated in the survey, with both genders, with ages between 2 to 6 years old and 11 months old that were registered in the health services of APAE. It was used to data collection a sociodemographic information questionnaire built by the researches of the study and the PEDI, it was done through interviews with the same caregivers. As a result, it was observed that 63,3% of the children presented an score under the expected to their ages, in the functional skills area and 66,6% of them presented a lower score in the part of the caregiver support, pointing out that there is a delay in the acquisition of functional capacity of these ones. It is necessary the knowledge of these data by the early intervention professionals that assist these individuals, about the stimulus of functionals skills, such as the guideline and the incentive to the caregivers about the continued stimulus in the household environment giving them the opportunity to realize their actions with independence or minimum assistance.
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spelling Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)Desempeño Funcional de Niños con Síndrome de Down, según el Pediatric Evaluation of Disability Inventory (PEDI)Desempenho Funcional de Crianças com Síndrome de Down, segundo o Pediatric Evaluation of Disability Inventory (PEDI)Síndrome de DownDesenvolvimento InfantilHabilidades motoras.Sindrome de DownDesarrollo infantilHabilidades motoras.Down's syndromeChild developmentMotor skills.The Down Syndrome (DS) is a genetic disorder, its characteristics may impact functional skills. The instrument “Pediatric Evaluation of Disability Inventory'' (PEDI) does mensureant the functional independence degree in the mobility area, self-care and social function. Therefore, this study aims to describe the functional performance level of DS children, according to PEDI. It is a descriptive research, with quantitative approach, it was made in the Associação de Pais e Amigos Excepcionais (APAE) in a city of Bahia southwest. Ten caregivers of SD children participated in the survey, with both genders, with ages between 2 to 6 years old and 11 months old that were registered in the health services of APAE. It was used to data collection a sociodemographic information questionnaire built by the researches of the study and the PEDI, it was done through interviews with the same caregivers. As a result, it was observed that 63,3% of the children presented an score under the expected to their ages, in the functional skills area and 66,6% of them presented a lower score in the part of the caregiver support, pointing out that there is a delay in the acquisition of functional capacity of these ones. It is necessary the knowledge of these data by the early intervention professionals that assist these individuals, about the stimulus of functionals skills, such as the guideline and the incentive to the caregivers about the continued stimulus in the household environment giving them the opportunity to realize their actions with independence or minimum assistance.El Síndrome de Down (SD) es una condición de origen genético, cuyas características manifestadas pueden impactar en las capacidades funcionales. El instrumento Pediatric Evaluation of Disability Inventory (PEDI) mide el grado de independencia funcional en las áreas de movilidad, autocuidado y función social. Así, el estudio tiene como objetivo describir el nivel de desempeño funcional de los niños con SD, según el PEDI. La encuesta es una investigación descriptiva, con enfoque cuantitativo, realizada en la Asociación de Padres y Amigos Excepcionales (APAE), en una ciudad del sudoeste de Bahía. Participaron de la encuesta diez cuidadores de niños con SD de ambos sexos, cuya edad varió de 2 a 6 años y 11 meses, registradas en los servicios de salud de la APAE. Se utilizó un cuestionario para recolectar información sociodemográfica, así como el instrumento de evaluación PEDI, realizado a través de entrevistas con los cuidadores. Como resultado, se observó que 63,3% de los niños tienen una puntuación inferior a la esperada para su edad en el área de Habilidades Funcionales, y 66,6% tienen una puntuación inferior en la parte de Asistencia al Cuidador, o sea, existe un retraso en la adquisición de su capacidad funcional. Es necesario que esos datos sean de conocimiento de los profesionales de intervención temprana que atenden a ese público, acerca de la estimulación de habilidades funcionales, así como la orientación y incentivo a los cuidadores sobre la estimulación continuada en el ámbito domiciliario, brindándoles la oportunidad de realizar acciones con independencia o mínima asistencia.A Síndrome de Down (SD) é uma condição de origem genética, cujas características exibidas podem impactar nas habilidades funcionais. O instrumento Pediatric Evaluation of Disability Inventory (PEDI) faz mensuração do grau de independência funcional nas áreas de mobilidade, autocuidado e função social. Desse modo, o estudo objetiva descrever o nível de desempenho funcional de crianças com SD, segundo a PEDI. Trata-se de uma pesquisa descritiva, com abordagem quantitativa, realizada na Associação de Pais e Amigos Excepcionais (APAE) de um município do sudoeste da Bahia. Participaram dez cuidadores de crianças com SD, de ambos os sexos, com idade de 2 anos a 6 anos e 11 meses, cadastrados nos serviços de saúde da APAE. Utilizou-se para coleta de dados um questionário de informações sociodemográficas, construído pelas pesquisadoras do estudo e a PEDI, sendo realizada através de entrevista com os mesmos cuidadores. Como resultado, observou-se que 63,3% das crianças apresentaram escore abaixo do esperado para a idade, na área de Habilidades Funcionais e 66,6% delas apresentaram menor escore na parte de Assistência do Cuidador, destacando que há um atraso na aquisição de capacidade funcional destas. É necessário o conhecimento destes dados pelos profissionais de intervenção precoce que atendem este público, sobre o estímulo das habilidades funcionais, como também, a orientação e incentivo aos cuidadores sobre estímulo continuado em ambiente domiciliar, oportunizando-as de realizar suas ações com independência ou mínima assistência.Research, Society and Development2022-06-14info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/3089810.33448/rsd-v11i8.30898Research, Society and Development; Vol. 11 No. 8; e15711830898Research, Society and Development; Vol. 11 Núm. 8; e15711830898Research, Society and Development; v. 11 n. 8; e157118308982525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/30898/26366Copyright (c) 2022 Schirley Oliveira Morais; Geovana Guimarães Santana; Hellen Bomfim Silva; Gabriela Oliveira Santos; Laisla Pires Dutrahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessMorais, Schirley Oliveira Santana, Geovana Guimarães Silva, Hellen Bomfim Santos, Gabriela Oliveira Dutra, Laisla Pires 2022-07-01T13:34:06Zoai:ojs.pkp.sfu.ca:article/30898Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:47:28.695593Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)
Desempeño Funcional de Niños con Síndrome de Down, según el Pediatric Evaluation of Disability Inventory (PEDI)
Desempenho Funcional de Crianças com Síndrome de Down, segundo o Pediatric Evaluation of Disability Inventory (PEDI)
title Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)
spellingShingle Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)
Morais, Schirley Oliveira
Síndrome de Down
Desenvolvimento Infantil
Habilidades motoras.
Sindrome de Down
Desarrollo infantil
Habilidades motoras.
Down's syndrome
Child development
Motor skills.
title_short Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)
title_full Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)
title_fullStr Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)
title_full_unstemmed Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)
title_sort Functional Performace of Children with Down Syndrome, according to the Pediatric Evaluation of Disability Inventory (PEDI)
author Morais, Schirley Oliveira
author_facet Morais, Schirley Oliveira
Santana, Geovana Guimarães
Silva, Hellen Bomfim
Santos, Gabriela Oliveira
Dutra, Laisla Pires
author_role author
author2 Santana, Geovana Guimarães
Silva, Hellen Bomfim
Santos, Gabriela Oliveira
Dutra, Laisla Pires
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Morais, Schirley Oliveira
Santana, Geovana Guimarães
Silva, Hellen Bomfim
Santos, Gabriela Oliveira
Dutra, Laisla Pires
dc.subject.por.fl_str_mv Síndrome de Down
Desenvolvimento Infantil
Habilidades motoras.
Sindrome de Down
Desarrollo infantil
Habilidades motoras.
Down's syndrome
Child development
Motor skills.
topic Síndrome de Down
Desenvolvimento Infantil
Habilidades motoras.
Sindrome de Down
Desarrollo infantil
Habilidades motoras.
Down's syndrome
Child development
Motor skills.
description The Down Syndrome (DS) is a genetic disorder, its characteristics may impact functional skills. The instrument “Pediatric Evaluation of Disability Inventory'' (PEDI) does mensureant the functional independence degree in the mobility area, self-care and social function. Therefore, this study aims to describe the functional performance level of DS children, according to PEDI. It is a descriptive research, with quantitative approach, it was made in the Associação de Pais e Amigos Excepcionais (APAE) in a city of Bahia southwest. Ten caregivers of SD children participated in the survey, with both genders, with ages between 2 to 6 years old and 11 months old that were registered in the health services of APAE. It was used to data collection a sociodemographic information questionnaire built by the researches of the study and the PEDI, it was done through interviews with the same caregivers. As a result, it was observed that 63,3% of the children presented an score under the expected to their ages, in the functional skills area and 66,6% of them presented a lower score in the part of the caregiver support, pointing out that there is a delay in the acquisition of functional capacity of these ones. It is necessary the knowledge of these data by the early intervention professionals that assist these individuals, about the stimulus of functionals skills, such as the guideline and the incentive to the caregivers about the continued stimulus in the household environment giving them the opportunity to realize their actions with independence or minimum assistance.
publishDate 2022
dc.date.none.fl_str_mv 2022-06-14
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
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dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/30898
10.33448/rsd-v11i8.30898
url https://rsdjournal.org/index.php/rsd/article/view/30898
identifier_str_mv 10.33448/rsd-v11i8.30898
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dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/30898/26366
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 11 No. 8; e15711830898
Research, Society and Development; Vol. 11 Núm. 8; e15711830898
Research, Society and Development; v. 11 n. 8; e15711830898
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
instacron:UNIFEI
instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
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