Challenges faced by people with sickle cell disease in crisis situations: Barriers to emergency

• Autor(a) principal: Lima, Débora Silveira de
• Data de Publicação: 2021
• Outros Autores: Figueiredo, Sarah Vieira, Silva, Ana Caroline Araujo da, Rodrigues, Maria Eunice Nogueira Galeno, Vasconcelos, Samila Sousa, Menezes, Cláudia Patrícia da Silva Ribeiro, Custodio , Lívia Lopes, Lima, Leticia Alexandre, Silva, Débora Pena Batista e, Costa, Débora Cristina Couto Oliveira, Santos, Macedônia Pinto dos, Gomes, Ilvana Lima Verde
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Research, Society and Development
• Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/15078
• topic: Sickle Cell Anemia; Chronic disease; Health assistance.; Anemia de células falciformes; Enfermedad crónica; Asistencia sanitaria.; Anemia falciforme; Doença Crônica; Assistência à saúde.

Objective: to identify the challenges faced by people with sickle cell disease in the Health Care Network. Method: a descriptive study with a qualitative approach, carried out entirely via text and audio instant messaging with 40 people, through a structured interview asking how much participants' satisfaction with the assistance they received during pain crises. Result: The average age was 18.7 with a prevalence of brown color. It was found that 85% of the public goes to public institutions during pain crises. It was also noticed that few professionals understand sickle cell disease and, therefore, provide low quality care. Conclusion: given the dissatisfaction with the current care model, especially in public institutions, it is necessary to invest in the training of health professionals at different levels of care, so that care is comprehensive and effective.