Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju

Detalhes bibliográficos
Autor(a) principal: Freitas, Mayanna Machado
Data de Publicação: 2013
Outros Autores: Santos, Allen Rafael Cardoso, Oliveira, Juciele Valéria Ribeiro de, Maia, Daniela da Costa, França, Rafael dos Reis
Tipo de documento: Artigo
Idioma: por
Título da fonte: Interfaces Científicas. Saúde e Ambiente (Online)
Texto Completo: https://periodicos.set.edu.br/saude/article/view/429
Resumo: The Duchenne Muscular Dystrophy is most common and the most severe of the muscular dystrophies, where the signals and symptoms are more severe with faster evolution, death can occur around the 2nd or 3nd decade of life. Currently, the incidence is estimated at around one for each three thousand five hundred male births. To determine the prevalence of Duchenne Muscular Dystrophy in the city of Aracaju-SE, and to characterize the functional profile presented by these patients. The study included all patients with Duchenne Muscular Dystrophy, assisted at the physiotherapy clinics in this city. The data were collected from January to April 2011; initially in the medical records of each patient, and subsequently, the identified patients were submitted for clinical and epidemiological evaluation. Among the functional limitations found in most patients studied, mainly includes the involvement of the lower limbs. The patients evaluated in Aracaju showed moderate functional impairment to perform activities of daily living, characterizing the need to implement actions and private and public policies aimed at the improvement of life quality of these patients.
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spelling Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of AracajuPerfil epidemiológico y el estado funcional de los pacientes con distrofia muscular de Duchenne visto en clínicas de fisioterapia en la ciudad de AracajuPerfil epidemiológico e funcional de pacientes com distrofia muscular de Duchenne atendidos em clínicas de fisioterapia na cidade de AracajuPhysiotherapyDuchenne Muscular DystrophyEpidemiologyTerapia FísicaDistrofia Muscular de DuchenneEpidemiologíaFisioterapiaDistrofia Muscular de DuchenneEpidemiologiaThe Duchenne Muscular Dystrophy is most common and the most severe of the muscular dystrophies, where the signals and symptoms are more severe with faster evolution, death can occur around the 2nd or 3nd decade of life. Currently, the incidence is estimated at around one for each three thousand five hundred male births. To determine the prevalence of Duchenne Muscular Dystrophy in the city of Aracaju-SE, and to characterize the functional profile presented by these patients. The study included all patients with Duchenne Muscular Dystrophy, assisted at the physiotherapy clinics in this city. The data were collected from January to April 2011; initially in the medical records of each patient, and subsequently, the identified patients were submitted for clinical and epidemiological evaluation. Among the functional limitations found in most patients studied, mainly includes the involvement of the lower limbs. The patients evaluated in Aracaju showed moderate functional impairment to perform activities of daily living, characterizing the need to implement actions and private and public policies aimed at the improvement of life quality of these patients.La distrofia muscular de Duchenne es la más común y la más grave de las distrofias musculares, donde los signos y síntomas son más intensos con una evolución más rápida y la muerte puede ocurrir alrededor de la 2ª o 3ª década de la vida. En la actualidad, la incidencia se estima en alrededor de uno por cada três mil quinientos nacidos vivos del sexo masculino. Conocer la prevalencia de la Distrofia Muscular de Duchenne en la ciudad de Aracaju-SE, así como caracterizar el perfil funcional que presentan estos pacientes. La población de estudio consistió en todos los pacientes con distrofia muscular de Duchenne, asistidos por clínicas de terapia física en esta ciudad. Los datos fueron recogidos entre enero y abril de 2011, inicialmente en los registros clínicos de cada paciente, y, posteriormente, los pacientes identificados fueron sometidos a evaluación clínico-epidemiológica. Entre las limitaciones funcionales que se encontraron en la mayoría de los pacientes estudiados, se destaca el acometimiento de los miembros inferiores. Los pacientes evaluados en la ciudad de Aracaju mostraron deterioro funcional moderado para realizar actividades de la vida diaria, lo que caracteriza  la necesidad de implementar acciones y políticas públicas y privadas dirigidas a mejorar la calidad de vida de estos pacientes.O presente artigo trata da Distrofia Muscular de Duchenne que é a mais comum e também a mais grave das distrofias musculares, onde os sinais e sintomas são mais severos com evolução mais rápida, podendo o óbito ocorrer por volta da 2ª ou 3ª década de vida. Atualmente, a incidência está estimada em torno de um para cada três mil e quinhentos nascidos vivos do sexo masculino. Os objetivos deste artigo são: conhecer a prevalência de Distrofia Muscular de Duchenne no município de Aracaju-SE, bem como caracterizar o perfil funcional apresentado por estes pacientes. A população de estudo compreendeu todos os pacientes com Distrofia Muscular de Duchenne, atendidos nas clínicas de fisioterapia desta cidade. Os dados foram coletados no período de janeiro a abril de 2011, inicialmente nos prontuários de cada paciente, e posteriormente, os pacientes identificados foram submetidos à avaliação clínico epidemiológica. Dentre as limitações funcionais encontradas na maioria dos pacientes pesquisados, inclui principalmente o comprometimento de membros inferiores. Verificou-se que os pacientes avaliados no município de Aracaju apresentaram comprometimento funcional moderado para a realização das atividades de vida diária, caracterizando a necessidade de implantação de ações e políticas privadas e públicas voltadas para melhoria na qualidade de vida desses pacientes. Editora Universitária Tiradentes2013-02-16info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.set.edu.br/saude/article/view/42910.17564/2316-3798.2013v1n2p21-32Interfaces Científicas - Saúde e Ambiente; v. 1 n. 2 (2013); 21-322316-37982316-331310.17564/2316-3798.2013v1n2reponame:Interfaces Científicas. Saúde e Ambiente (Online)instname:Universidade Tiradentes (UNIT)instacron:UNITporhttps://periodicos.set.edu.br/saude/article/view/429/21410.17564/2316-3798.2013v1n2p21-32cFreitas, Mayanna MachadoSantos, Allen Rafael CardosoOliveira, Juciele Valéria Ribeiro deMaia, Daniela da CostaFrança, Rafael dos Reisinfo:eu-repo/semantics/openAccess2020-11-17T19:31:04Zoai:ojs.emnuvens.com.br:article/429Revistahttps://periodicos.set.edu.br/saudePRIhttps://periodicos.set.edu.br/index.php/saude/oai||crismporto@gmail.com||interfaces_saude_editor@yahoo.com.br2316-37982316-3313opendoar:2020-11-17T19:31:04Interfaces Científicas. Saúde e Ambiente (Online) - Universidade Tiradentes (UNIT)false
dc.title.none.fl_str_mv Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
Perfil epidemiológico y el estado funcional de los pacientes con distrofia muscular de Duchenne visto en clínicas de fisioterapia en la ciudad de Aracaju
Perfil epidemiológico e funcional de pacientes com distrofia muscular de Duchenne atendidos em clínicas de fisioterapia na cidade de Aracaju
title Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
spellingShingle Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
Freitas, Mayanna Machado
Physiotherapy
Duchenne Muscular Dystrophy
Epidemiology
Terapia Física
Distrofia Muscular de Duchenne
Epidemiología
Fisioterapia
Distrofia Muscular de Duchenne
Epidemiologia
title_short Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
title_full Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
title_fullStr Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
title_full_unstemmed Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
title_sort Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
author Freitas, Mayanna Machado
author_facet Freitas, Mayanna Machado
Santos, Allen Rafael Cardoso
Oliveira, Juciele Valéria Ribeiro de
Maia, Daniela da Costa
França, Rafael dos Reis
author_role author
author2 Santos, Allen Rafael Cardoso
Oliveira, Juciele Valéria Ribeiro de
Maia, Daniela da Costa
França, Rafael dos Reis
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Freitas, Mayanna Machado
Santos, Allen Rafael Cardoso
Oliveira, Juciele Valéria Ribeiro de
Maia, Daniela da Costa
França, Rafael dos Reis
dc.subject.por.fl_str_mv Physiotherapy
Duchenne Muscular Dystrophy
Epidemiology
Terapia Física
Distrofia Muscular de Duchenne
Epidemiología
Fisioterapia
Distrofia Muscular de Duchenne
Epidemiologia
topic Physiotherapy
Duchenne Muscular Dystrophy
Epidemiology
Terapia Física
Distrofia Muscular de Duchenne
Epidemiología
Fisioterapia
Distrofia Muscular de Duchenne
Epidemiologia
description The Duchenne Muscular Dystrophy is most common and the most severe of the muscular dystrophies, where the signals and symptoms are more severe with faster evolution, death can occur around the 2nd or 3nd decade of life. Currently, the incidence is estimated at around one for each three thousand five hundred male births. To determine the prevalence of Duchenne Muscular Dystrophy in the city of Aracaju-SE, and to characterize the functional profile presented by these patients. The study included all patients with Duchenne Muscular Dystrophy, assisted at the physiotherapy clinics in this city. The data were collected from January to April 2011; initially in the medical records of each patient, and subsequently, the identified patients were submitted for clinical and epidemiological evaluation. Among the functional limitations found in most patients studied, mainly includes the involvement of the lower limbs. The patients evaluated in Aracaju showed moderate functional impairment to perform activities of daily living, characterizing the need to implement actions and private and public policies aimed at the improvement of life quality of these patients.
publishDate 2013
dc.date.none.fl_str_mv 2013-02-16
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dc.identifier.uri.fl_str_mv https://periodicos.set.edu.br/saude/article/view/429
10.17564/2316-3798.2013v1n2p21-32
url https://periodicos.set.edu.br/saude/article/view/429
identifier_str_mv 10.17564/2316-3798.2013v1n2p21-32
dc.language.iso.fl_str_mv por
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dc.relation.none.fl_str_mv https://periodicos.set.edu.br/saude/article/view/429/214
10.17564/2316-3798.2013v1n2p21-32c
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
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dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Editora Universitária Tiradentes
publisher.none.fl_str_mv Editora Universitária Tiradentes
dc.source.none.fl_str_mv Interfaces Científicas - Saúde e Ambiente; v. 1 n. 2 (2013); 21-32
2316-3798
2316-3313
10.17564/2316-3798.2013v1n2
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