Quality of life of patients living with psoriasis: a qualitative study
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Institucional da UNESP |
Texto Completo: | http://dx.doi.org/10.1186/s12895-020-00116-9 http://hdl.handle.net/11449/209759 |
Resumo: | Background Psoriasis is a multifactorial inflammatory disease prevalent in dermatology. We aimed to understand the perceptions of patients living with psoriasis in relation to their quality of life and to identify aspects to improve it. Methods This is qualitative research carried out in a dermatology outpatient clinic of the Sao Paulo State University (UNESP) medical school, Botucatu, Brazil, with 81 psoriasis patients. The interviews were transcribed and analysed using the Discourse of the Collective Subject method (DCS). Results Quality of life was linked to well-being, happiness, leisure, good food and financial stability. However, disease symptoms, social and clothing restrictions, impairment of professional activities and the absence of a cure, negatively influenced their perceptions. Suggestions for improvements included an increase of public awareness, stress reduction, disease acceptance and multidisciplinary care. Conclusion The meanings of quality of life revealed by the participants are subjective, multidimensional, linked to moments experienced by them and to the health-disease process. Public health policies promoting reduction in social stigma and stress as well as multidisciplinary approaches towards care can contribute to improvements of QoL in psoriasis. |
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Quality of life of patients living with psoriasis: a qualitative studyPsoriasisQuality of lifeDermatologyNursingBackground Psoriasis is a multifactorial inflammatory disease prevalent in dermatology. We aimed to understand the perceptions of patients living with psoriasis in relation to their quality of life and to identify aspects to improve it. Methods This is qualitative research carried out in a dermatology outpatient clinic of the Sao Paulo State University (UNESP) medical school, Botucatu, Brazil, with 81 psoriasis patients. The interviews were transcribed and analysed using the Discourse of the Collective Subject method (DCS). Results Quality of life was linked to well-being, happiness, leisure, good food and financial stability. However, disease symptoms, social and clothing restrictions, impairment of professional activities and the absence of a cure, negatively influenced their perceptions. Suggestions for improvements included an increase of public awareness, stress reduction, disease acceptance and multidisciplinary care. Conclusion The meanings of quality of life revealed by the participants are subjective, multidimensional, linked to moments experienced by them and to the health-disease process. Public health policies promoting reduction in social stigma and stress as well as multidisciplinary approaches towards care can contribute to improvements of QoL in psoriasis.Economic and Social Research Council (ESRC)Univ Estadual Paulista, Dept Nursing, Botucatu Med Sch, Sao Paulo, BrazilUniv Estadual Paulista, Botucatu Med Sch, Dept Dermatol, Sao Paulo, BrazilUCL, Dept Epidemiol & Publ Hlth, London, EnglandUniv Estadual Paulista, Dept Nursing, Botucatu Med Sch, Sao Paulo, BrazilUniv Estadual Paulista, Botucatu Med Sch, Dept Dermatol, Sao Paulo, BrazilEconomic and Social Research Council (ESRC): ES/T008822/11BmcUniversidade Estadual Paulista (Unesp)UCLMeneguin, Silmara [UNESP]Godoy, Natalia Aparecida de [UNESP]Pollo, Camila Fernandes [UNESP]Miot, Helio Amante [UNESP]Oliveira, Cesar de2021-06-25T12:28:17Z2021-06-25T12:28:17Z2020-12-10info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article6http://dx.doi.org/10.1186/s12895-020-00116-9Bmc Dermatology. London: Bmc, v. 20, n. 1, 6 p., 2020.1471-5945http://hdl.handle.net/11449/20975910.1186/s12895-020-00116-9WOS:000597624600001Web of Sciencereponame:Repositório Institucional da UNESPinstname:Universidade Estadual Paulista (UNESP)instacron:UNESPengBmc Dermatologyinfo:eu-repo/semantics/openAccess2021-10-23T19:49:59Zoai:repositorio.unesp.br:11449/209759Repositório InstitucionalPUBhttp://repositorio.unesp.br/oai/requestopendoar:29462021-10-23T19:49:59Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP)false |
dc.title.none.fl_str_mv |
Quality of life of patients living with psoriasis: a qualitative study |
title |
Quality of life of patients living with psoriasis: a qualitative study |
spellingShingle |
Quality of life of patients living with psoriasis: a qualitative study Meneguin, Silmara [UNESP] Psoriasis Quality of life Dermatology Nursing |
title_short |
Quality of life of patients living with psoriasis: a qualitative study |
title_full |
Quality of life of patients living with psoriasis: a qualitative study |
title_fullStr |
Quality of life of patients living with psoriasis: a qualitative study |
title_full_unstemmed |
Quality of life of patients living with psoriasis: a qualitative study |
title_sort |
Quality of life of patients living with psoriasis: a qualitative study |
author |
Meneguin, Silmara [UNESP] |
author_facet |
Meneguin, Silmara [UNESP] Godoy, Natalia Aparecida de [UNESP] Pollo, Camila Fernandes [UNESP] Miot, Helio Amante [UNESP] Oliveira, Cesar de |
author_role |
author |
author2 |
Godoy, Natalia Aparecida de [UNESP] Pollo, Camila Fernandes [UNESP] Miot, Helio Amante [UNESP] Oliveira, Cesar de |
author2_role |
author author author author |
dc.contributor.none.fl_str_mv |
Universidade Estadual Paulista (Unesp) UCL |
dc.contributor.author.fl_str_mv |
Meneguin, Silmara [UNESP] Godoy, Natalia Aparecida de [UNESP] Pollo, Camila Fernandes [UNESP] Miot, Helio Amante [UNESP] Oliveira, Cesar de |
dc.subject.por.fl_str_mv |
Psoriasis Quality of life Dermatology Nursing |
topic |
Psoriasis Quality of life Dermatology Nursing |
description |
Background Psoriasis is a multifactorial inflammatory disease prevalent in dermatology. We aimed to understand the perceptions of patients living with psoriasis in relation to their quality of life and to identify aspects to improve it. Methods This is qualitative research carried out in a dermatology outpatient clinic of the Sao Paulo State University (UNESP) medical school, Botucatu, Brazil, with 81 psoriasis patients. The interviews were transcribed and analysed using the Discourse of the Collective Subject method (DCS). Results Quality of life was linked to well-being, happiness, leisure, good food and financial stability. However, disease symptoms, social and clothing restrictions, impairment of professional activities and the absence of a cure, negatively influenced their perceptions. Suggestions for improvements included an increase of public awareness, stress reduction, disease acceptance and multidisciplinary care. Conclusion The meanings of quality of life revealed by the participants are subjective, multidimensional, linked to moments experienced by them and to the health-disease process. Public health policies promoting reduction in social stigma and stress as well as multidisciplinary approaches towards care can contribute to improvements of QoL in psoriasis. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-12-10 2021-06-25T12:28:17Z 2021-06-25T12:28:17Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://dx.doi.org/10.1186/s12895-020-00116-9 Bmc Dermatology. London: Bmc, v. 20, n. 1, 6 p., 2020. 1471-5945 http://hdl.handle.net/11449/209759 10.1186/s12895-020-00116-9 WOS:000597624600001 |
url |
http://dx.doi.org/10.1186/s12895-020-00116-9 http://hdl.handle.net/11449/209759 |
identifier_str_mv |
Bmc Dermatology. London: Bmc, v. 20, n. 1, 6 p., 2020. 1471-5945 10.1186/s12895-020-00116-9 WOS:000597624600001 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Bmc Dermatology |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
6 |
dc.publisher.none.fl_str_mv |
Bmc |
publisher.none.fl_str_mv |
Bmc |
dc.source.none.fl_str_mv |
Web of Science reponame:Repositório Institucional da UNESP instname:Universidade Estadual Paulista (UNESP) instacron:UNESP |
instname_str |
Universidade Estadual Paulista (UNESP) |
instacron_str |
UNESP |
institution |
UNESP |
reponame_str |
Repositório Institucional da UNESP |
collection |
Repositório Institucional da UNESP |
repository.name.fl_str_mv |
Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP) |
repository.mail.fl_str_mv |
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1799965215206408192 |