Experiences of family caregivers of people with Alzheimer's Disease
Autor(a) principal: | |
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Data de Publicação: | 2010 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Brasileira de Ciências do Envelhecimento Humano (Online) |
Texto Completo: | http://seer.upf.br/index.php/rbceh/article/view/360 |
Resumo: | Alzheimer disease may be considered as a familiar disease by interfering in the quotidian of families. The search seeks to know experiences of family with Alzheimer disease. It is qualitative, descriptive, comprising six familiar caregivers who got in tauch with the sick person continuously, residents in four cities in the northwest region of Rio Grande do Sul. The data collection occurred in November 2006, through open interview, with the following guiding question: "How is/was for you to take care of your familiar Alzheimer disease?". The data analysis followed the steps recommended for thematic analysis and the ethical aspects involving studies with people were observed. The analysis of the testimonies appeared the theme: Experiences of family caregivers of people with Alzheimer's Disease: the impact of the disease in everyday family. They expressed difficulties in the management of the patient, ignorance of the disease, sadness and insecurity. We can identify the need to home care by health professionals to the family caregivers of people with Alzheimer, including guidelines and support concerning the illness and care. The results of this research also show that the relatives are not element of intervention of health teams and the actions are fragmented and specific. |
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Experiences of family caregivers of people with Alzheimer's DiseaseVivências de cuidadores familiares de pessoas portadoras da doença de AlzheimerAlzheimer disease may be considered as a familiar disease by interfering in the quotidian of families. The search seeks to know experiences of family with Alzheimer disease. It is qualitative, descriptive, comprising six familiar caregivers who got in tauch with the sick person continuously, residents in four cities in the northwest region of Rio Grande do Sul. The data collection occurred in November 2006, through open interview, with the following guiding question: "How is/was for you to take care of your familiar Alzheimer disease?". The data analysis followed the steps recommended for thematic analysis and the ethical aspects involving studies with people were observed. The analysis of the testimonies appeared the theme: Experiences of family caregivers of people with Alzheimer's Disease: the impact of the disease in everyday family. They expressed difficulties in the management of the patient, ignorance of the disease, sadness and insecurity. We can identify the need to home care by health professionals to the family caregivers of people with Alzheimer, including guidelines and support concerning the illness and care. The results of this research also show that the relatives are not element of intervention of health teams and the actions are fragmented and specific.A Doença de Alzheimer pode ser considerada uma doença familiar por interferir no cotidiano das famílias. A pesquisa busca conhecer vivências de familiares cuidadores de pessoas com Doença de Alzheimer. É qualitativa, descritiva, compreendendo seis familiares/cuidadores que mantinham convívio direto com os doentes, residentes em quatro municípios da região noroeste do Rio Grande do Sul. A coleta de dados ocorreu em novembro de 2006, mediante entrevista aberta, com a seguinte questão norteadora: “Como é/foi para você cuidar de seu familiar com Doença de Alzheimer?”. A análise dos dados seguiu os passos preconizados para análise temática e os aspectos éticos que envolvem pesquisas com pessoas foram observados. Da análise dos depoimentos emergiu o tema: Vivências de familiares cuidadores de pessoas com Doença de Alzheimer: o impacto da enfermidade no cotidiano da família. Eles expressaram dificuldades no manejo do paciente, desconhecimento da doença, tristeza e insegurança. Identifica-se a necessidade de assistência domiciliária por profissionais da saúde aos familiares cuidadores de pessoas com Alzheimer, incluindo orientações e suporte referentes à enfermidade e aos cuidados necessários. Os resultados dessa pesquisa mostram também que os familiares não são elemento de intervenção das equipes de saúde e que as ações são fragmentadas e pontuais.Editora UPF2010-10-23info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado por paresapplication/pdfhttp://seer.upf.br/index.php/rbceh/article/view/36010.5335/rbceh.2012.360Revista Brasileira de Ciências do Envelhecimento Humano; v. 6 n. 2 (2009)2317-66951679-7930reponame:Revista Brasileira de Ciências do Envelhecimento Humano (Online)instname:Universidade de Passo Fundo (UPF)instacron:UPFporhttp://seer.upf.br/index.php/rbceh/article/view/360/795Backes, Ana JaneteRosanelli, Cleci Lourdes Schmidt PiovesanHildebrandt, Leila MarizaStumm, Eniva Miladi FernandesLoro, Marli Mariainfo:eu-repo/semantics/openAccess2022-11-08T14:05:31Zoai:seer.upf.br:article/360Revistahttp://www.upf.br/seer/index.php/rbcehhttp://www.upf.br/seer/index.php/rbceh/oairbceh@upf.br||pasqualotti@upf.br2317-66951679-7930opendoar:2022-11-08T14:05:31Revista Brasileira de Ciências do Envelhecimento Humano (Online) - Universidade de Passo Fundo (UPF)false |
dc.title.none.fl_str_mv |
Experiences of family caregivers of people with Alzheimer's Disease Vivências de cuidadores familiares de pessoas portadoras da doença de Alzheimer |
title |
Experiences of family caregivers of people with Alzheimer's Disease |
spellingShingle |
Experiences of family caregivers of people with Alzheimer's Disease Backes, Ana Janete |
title_short |
Experiences of family caregivers of people with Alzheimer's Disease |
title_full |
Experiences of family caregivers of people with Alzheimer's Disease |
title_fullStr |
Experiences of family caregivers of people with Alzheimer's Disease |
title_full_unstemmed |
Experiences of family caregivers of people with Alzheimer's Disease |
title_sort |
Experiences of family caregivers of people with Alzheimer's Disease |
author |
Backes, Ana Janete |
author_facet |
Backes, Ana Janete Rosanelli, Cleci Lourdes Schmidt Piovesan Hildebrandt, Leila Mariza Stumm, Eniva Miladi Fernandes Loro, Marli Maria |
author_role |
author |
author2 |
Rosanelli, Cleci Lourdes Schmidt Piovesan Hildebrandt, Leila Mariza Stumm, Eniva Miladi Fernandes Loro, Marli Maria |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Backes, Ana Janete Rosanelli, Cleci Lourdes Schmidt Piovesan Hildebrandt, Leila Mariza Stumm, Eniva Miladi Fernandes Loro, Marli Maria |
description |
Alzheimer disease may be considered as a familiar disease by interfering in the quotidian of families. The search seeks to know experiences of family with Alzheimer disease. It is qualitative, descriptive, comprising six familiar caregivers who got in tauch with the sick person continuously, residents in four cities in the northwest region of Rio Grande do Sul. The data collection occurred in November 2006, through open interview, with the following guiding question: "How is/was for you to take care of your familiar Alzheimer disease?". The data analysis followed the steps recommended for thematic analysis and the ethical aspects involving studies with people were observed. The analysis of the testimonies appeared the theme: Experiences of family caregivers of people with Alzheimer's Disease: the impact of the disease in everyday family. They expressed difficulties in the management of the patient, ignorance of the disease, sadness and insecurity. We can identify the need to home care by health professionals to the family caregivers of people with Alzheimer, including guidelines and support concerning the illness and care. The results of this research also show that the relatives are not element of intervention of health teams and the actions are fragmented and specific. |
publishDate |
2010 |
dc.date.none.fl_str_mv |
2010-10-23 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Avaliado por pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://seer.upf.br/index.php/rbceh/article/view/360 10.5335/rbceh.2012.360 |
url |
http://seer.upf.br/index.php/rbceh/article/view/360 |
identifier_str_mv |
10.5335/rbceh.2012.360 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
http://seer.upf.br/index.php/rbceh/article/view/360/795 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Editora UPF |
publisher.none.fl_str_mv |
Editora UPF |
dc.source.none.fl_str_mv |
Revista Brasileira de Ciências do Envelhecimento Humano; v. 6 n. 2 (2009) 2317-6695 1679-7930 reponame:Revista Brasileira de Ciências do Envelhecimento Humano (Online) instname:Universidade de Passo Fundo (UPF) instacron:UPF |
instname_str |
Universidade de Passo Fundo (UPF) |
instacron_str |
UPF |
institution |
UPF |
reponame_str |
Revista Brasileira de Ciências do Envelhecimento Humano (Online) |
collection |
Revista Brasileira de Ciências do Envelhecimento Humano (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Ciências do Envelhecimento Humano (Online) - Universidade de Passo Fundo (UPF) |
repository.mail.fl_str_mv |
rbceh@upf.br||pasqualotti@upf.br |
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1748937891389636608 |