Experiences of family caregivers of people with Alzheimer's Disease

Detalhes bibliográficos
Autor(a) principal: Backes, Ana Janete
Data de Publicação: 2010
Outros Autores: Rosanelli, Cleci Lourdes Schmidt Piovesan, Hildebrandt, Leila Mariza, Stumm, Eniva Miladi Fernandes, Loro, Marli Maria
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Brasileira de Ciências do Envelhecimento Humano (Online)
Texto Completo: http://seer.upf.br/index.php/rbceh/article/view/360
Resumo: Alzheimer disease may be considered as a familiar disease by interfering in the quotidian of families. The search seeks to know experiences of family with Alzheimer disease. It is qualitative, descriptive, comprising six familiar caregivers who got in tauch with the sick person continuously, residents in four cities in the northwest region of Rio Grande do Sul. The data collection occurred in November 2006, through open interview, with the following guiding question: "How is/was for you to take care of your familiar Alzheimer disease?". The data analysis followed the steps recommended for thematic analysis and the ethical aspects involving studies with people were observed. The analysis of the testimonies appeared the theme: Experiences of family caregivers of people with Alzheimer's Disease: the impact of the disease in everyday family. They expressed difficulties in the management of the patient, ignorance of the disease, sadness and insecurity. We can identify the need to home care by health professionals to the family caregivers of people with Alzheimer, including guidelines and support concerning the illness and care. The results of this research also show that the relatives are not element of intervention of health teams and the actions are fragmented and specific.
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spelling Experiences of family caregivers of people with Alzheimer's DiseaseVivências de cuidadores familiares de pessoas portadoras da doença de AlzheimerAlzheimer disease may be considered as a familiar disease by interfering in the quotidian of families. The search seeks to know experiences of family with Alzheimer disease. It is qualitative, descriptive, comprising six familiar caregivers who got in tauch with the sick person continuously, residents in four cities in the northwest region of Rio Grande do Sul. The data collection occurred in November 2006, through open interview, with the following guiding question: "How is/was for you to take care of your familiar Alzheimer disease?". The data analysis followed the steps recommended for thematic analysis and the ethical aspects involving studies with people were observed. The analysis of the testimonies appeared the theme: Experiences of family caregivers of people with Alzheimer's Disease: the impact of the disease in everyday family. They expressed difficulties in the management of the patient, ignorance of the disease, sadness and insecurity. We can identify the need to home care by health professionals to the family caregivers of people with Alzheimer, including guidelines and support concerning the illness and care. The results of this research also show that the relatives are not element of intervention of health teams and the actions are fragmented and specific.A Doença de Alzheimer pode ser considerada uma doença familiar por interferir no cotidiano das famílias. A pesquisa busca conhecer vivências de familiares cuidadores de pessoas com Doença de Alzheimer. É qualitativa, descritiva, compreendendo seis familiares/cuidadores que mantinham convívio direto com os doentes, residentes em quatro municípios da região noroeste do Rio Grande do Sul. A coleta de dados ocorreu em novembro de 2006, mediante entrevista aberta, com a seguinte questão norteadora: “Como é/foi para você cuidar de seu familiar com Doença de Alzheimer?”. A análise dos dados seguiu os passos preconizados para análise temática e os aspectos éticos que envolvem pesquisas com pessoas foram observados. Da análise dos depoimentos emergiu o tema: Vivências de familiares cuidadores de pessoas com Doença de Alzheimer: o impacto da enfermidade no cotidiano da família. Eles expressaram dificuldades no manejo do paciente, desconhecimento da doença, tristeza e insegurança. Identifica-se a necessidade de assistência domiciliária por profissionais da saúde aos familiares cuidadores de pessoas com Alzheimer, incluindo orientações e suporte referentes à enfermidade e aos cuidados necessários. Os resultados dessa pesquisa mostram também que os familiares não são elemento de intervenção das equipes de saúde e que as ações são fragmentadas e pontuais.Editora UPF2010-10-23info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado por paresapplication/pdfhttp://seer.upf.br/index.php/rbceh/article/view/36010.5335/rbceh.2012.360Revista Brasileira de Ciências do Envelhecimento Humano; v. 6 n. 2 (2009)2317-66951679-7930reponame:Revista Brasileira de Ciências do Envelhecimento Humano (Online)instname:Universidade de Passo Fundo (UPF)instacron:UPFporhttp://seer.upf.br/index.php/rbceh/article/view/360/795Backes, Ana JaneteRosanelli, Cleci Lourdes Schmidt PiovesanHildebrandt, Leila MarizaStumm, Eniva Miladi FernandesLoro, Marli Mariainfo:eu-repo/semantics/openAccess2022-11-08T14:05:31Zoai:seer.upf.br:article/360Revistahttp://www.upf.br/seer/index.php/rbcehhttp://www.upf.br/seer/index.php/rbceh/oairbceh@upf.br||pasqualotti@upf.br2317-66951679-7930opendoar:2022-11-08T14:05:31Revista Brasileira de Ciências do Envelhecimento Humano (Online) - Universidade de Passo Fundo (UPF)false
dc.title.none.fl_str_mv Experiences of family caregivers of people with Alzheimer's Disease
Vivências de cuidadores familiares de pessoas portadoras da doença de Alzheimer
title Experiences of family caregivers of people with Alzheimer's Disease
spellingShingle Experiences of family caregivers of people with Alzheimer's Disease
Backes, Ana Janete
title_short Experiences of family caregivers of people with Alzheimer's Disease
title_full Experiences of family caregivers of people with Alzheimer's Disease
title_fullStr Experiences of family caregivers of people with Alzheimer's Disease
title_full_unstemmed Experiences of family caregivers of people with Alzheimer's Disease
title_sort Experiences of family caregivers of people with Alzheimer's Disease
author Backes, Ana Janete
author_facet Backes, Ana Janete
Rosanelli, Cleci Lourdes Schmidt Piovesan
Hildebrandt, Leila Mariza
Stumm, Eniva Miladi Fernandes
Loro, Marli Maria
author_role author
author2 Rosanelli, Cleci Lourdes Schmidt Piovesan
Hildebrandt, Leila Mariza
Stumm, Eniva Miladi Fernandes
Loro, Marli Maria
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Backes, Ana Janete
Rosanelli, Cleci Lourdes Schmidt Piovesan
Hildebrandt, Leila Mariza
Stumm, Eniva Miladi Fernandes
Loro, Marli Maria
description Alzheimer disease may be considered as a familiar disease by interfering in the quotidian of families. The search seeks to know experiences of family with Alzheimer disease. It is qualitative, descriptive, comprising six familiar caregivers who got in tauch with the sick person continuously, residents in four cities in the northwest region of Rio Grande do Sul. The data collection occurred in November 2006, through open interview, with the following guiding question: "How is/was for you to take care of your familiar Alzheimer disease?". The data analysis followed the steps recommended for thematic analysis and the ethical aspects involving studies with people were observed. The analysis of the testimonies appeared the theme: Experiences of family caregivers of people with Alzheimer's Disease: the impact of the disease in everyday family. They expressed difficulties in the management of the patient, ignorance of the disease, sadness and insecurity. We can identify the need to home care by health professionals to the family caregivers of people with Alzheimer, including guidelines and support concerning the illness and care. The results of this research also show that the relatives are not element of intervention of health teams and the actions are fragmented and specific.
publishDate 2010
dc.date.none.fl_str_mv 2010-10-23
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Avaliado por pares
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status_str publishedVersion
dc.identifier.uri.fl_str_mv http://seer.upf.br/index.php/rbceh/article/view/360
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url http://seer.upf.br/index.php/rbceh/article/view/360
identifier_str_mv 10.5335/rbceh.2012.360
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language por
dc.relation.none.fl_str_mv http://seer.upf.br/index.php/rbceh/article/view/360/795
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eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Editora UPF
publisher.none.fl_str_mv Editora UPF
dc.source.none.fl_str_mv Revista Brasileira de Ciências do Envelhecimento Humano; v. 6 n. 2 (2009)
2317-6695
1679-7930
reponame:Revista Brasileira de Ciências do Envelhecimento Humano (Online)
instname:Universidade de Passo Fundo (UPF)
instacron:UPF
instname_str Universidade de Passo Fundo (UPF)
instacron_str UPF
institution UPF
reponame_str Revista Brasileira de Ciências do Envelhecimento Humano (Online)
collection Revista Brasileira de Ciências do Envelhecimento Humano (Online)
repository.name.fl_str_mv Revista Brasileira de Ciências do Envelhecimento Humano (Online) - Universidade de Passo Fundo (UPF)
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