Living with pain: the experience of children and adolescents in palliative care
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2014 |
| Outros Autores: | , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Revista da Escola de Enfermagem da USP (Online) |
| Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342014000700067 |
Resumo: | A qualitative study was conducted with semi-structured interviews with the aim of understanding the experience of children and adolescents under palliative care when managing pain daily and how they describe the intensity, quality and location of pain. We used Piaget’s theory of cognitive development as a theoretical framework and oral history as a methodological framework. We found four themes: describing pain; seeking a life closer to normality, despite pain and disease; using a variety of alternatives for pain control; and living with damaged physical appearance. Although pain is a limiting factor in the lives of children and adolescents, we found that they faced their daily pain and still had a life beyond pain and illness. In addition, we highlight the relevance of nurses’ understanding that effective management of pain in children is essential for a normal life and less suffering. |
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Living with pain: the experience of children and adolescents in palliative careChildAdolescentPain managementPalliative careSelf-imagePediatric nursingA qualitative study was conducted with semi-structured interviews with the aim of understanding the experience of children and adolescents under palliative care when managing pain daily and how they describe the intensity, quality and location of pain. We used Piaget’s theory of cognitive development as a theoretical framework and oral history as a methodological framework. We found four themes: describing pain; seeking a life closer to normality, despite pain and disease; using a variety of alternatives for pain control; and living with damaged physical appearance. Although pain is a limiting factor in the lives of children and adolescents, we found that they faced their daily pain and still had a life beyond pain and illness. In addition, we highlight the relevance of nurses’ understanding that effective management of pain in children is essential for a normal life and less suffering.Universidade de São Paulo, Escola de Enfermagem2014-08-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342014000700067Revista da Escola de Enfermagem da USP v.48 n.spe 2014reponame:Revista da Escola de Enfermagem da USP (Online)instname:Universidade de São Paulo (USP)instacron:USP10.1590/S0080-623420140000600010info:eu-repo/semantics/openAccessBorghi,Camila AmaralRossato,Lisabelle MarianoDamião,Elaine Buchhorn CintraGuedes,Danila Maria BatistaSilva,Ellen Maria Reimberg daBarbosa,Silvia Maria de MacedoPolastrini,Rita Tizianaeng2015-02-03T00:00:00Zoai:scielo:S0080-62342014000700067Revistahttp://www.scielo.br/reeuspPUBhttps://old.scielo.br/oai/scielo-oai.php||nursingscholar@usp.br1980-220X0080-6234opendoar:2015-02-03T00:00Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP)false |
| dc.title.none.fl_str_mv |
Living with pain: the experience of children and adolescents in palliative care |
| title |
Living with pain: the experience of children and adolescents in palliative care |
| spellingShingle |
Living with pain: the experience of children and adolescents in palliative care Borghi,Camila Amaral Child Adolescent Pain management Palliative care Self-image Pediatric nursing |
| title_short |
Living with pain: the experience of children and adolescents in palliative care |
| title_full |
Living with pain: the experience of children and adolescents in palliative care |
| title_fullStr |
Living with pain: the experience of children and adolescents in palliative care |
| title_full_unstemmed |
Living with pain: the experience of children and adolescents in palliative care |
| title_sort |
Living with pain: the experience of children and adolescents in palliative care |
| author |
Borghi,Camila Amaral |
| author_facet |
Borghi,Camila Amaral Rossato,Lisabelle Mariano Damião,Elaine Buchhorn Cintra Guedes,Danila Maria Batista Silva,Ellen Maria Reimberg da Barbosa,Silvia Maria de Macedo Polastrini,Rita Tiziana |
| author_role |
author |
| author2 |
Rossato,Lisabelle Mariano Damião,Elaine Buchhorn Cintra Guedes,Danila Maria Batista Silva,Ellen Maria Reimberg da Barbosa,Silvia Maria de Macedo Polastrini,Rita Tiziana |
| author2_role |
author author author author author author |
| dc.contributor.author.fl_str_mv |
Borghi,Camila Amaral Rossato,Lisabelle Mariano Damião,Elaine Buchhorn Cintra Guedes,Danila Maria Batista Silva,Ellen Maria Reimberg da Barbosa,Silvia Maria de Macedo Polastrini,Rita Tiziana |
| dc.subject.por.fl_str_mv |
Child Adolescent Pain management Palliative care Self-image Pediatric nursing |
| topic |
Child Adolescent Pain management Palliative care Self-image Pediatric nursing |
| description |
A qualitative study was conducted with semi-structured interviews with the aim of understanding the experience of children and adolescents under palliative care when managing pain daily and how they describe the intensity, quality and location of pain. We used Piaget’s theory of cognitive development as a theoretical framework and oral history as a methodological framework. We found four themes: describing pain; seeking a life closer to normality, despite pain and disease; using a variety of alternatives for pain control; and living with damaged physical appearance. Although pain is a limiting factor in the lives of children and adolescents, we found that they faced their daily pain and still had a life beyond pain and illness. In addition, we highlight the relevance of nurses’ understanding that effective management of pain in children is essential for a normal life and less suffering. |
| publishDate |
2014 |
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2014-08-01 |
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info:eu-repo/semantics/article |
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info:eu-repo/semantics/publishedVersion |
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article |
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publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342014000700067 |
| url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342014000700067 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
10.1590/S0080-623420140000600010 |
| dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
| eu_rights_str_mv |
openAccess |
| dc.format.none.fl_str_mv |
text/html |
| dc.publisher.none.fl_str_mv |
Universidade de São Paulo, Escola de Enfermagem |
| publisher.none.fl_str_mv |
Universidade de São Paulo, Escola de Enfermagem |
| dc.source.none.fl_str_mv |
Revista da Escola de Enfermagem da USP v.48 n.spe 2014 reponame:Revista da Escola de Enfermagem da USP (Online) instname:Universidade de São Paulo (USP) instacron:USP |
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Universidade de São Paulo (USP) |
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USP |
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USP |
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Revista da Escola de Enfermagem da USP (Online) |
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Revista da Escola de Enfermagem da USP (Online) |
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Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP) |
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||nursingscholar@usp.br |
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