Factors associated with family risk of children with special health care needs

• Autor(a) principal: Okido, Aline Cristiane Cavicchioli
• Data de Publicação: 2019
• Outros Autores: Neves, Eliane Tatsch, Cavicchioli, Giovana Natali, Jantsch, Leonardo Bigolin, Pereira, Fernanda Portela, Lima, Regina Aparecida Garcia
• Tipo de documento: Artigo
• Idioma: eng; por
• Título da fonte: Revista da Escola de Enfermagem da USP (Online)
• Texto Completo: https://www.revistas.usp.br/reeusp/article/view/155077
• topic: Disabled Child; Caregivers; Family; Pediatric Nursing; Health Vulnerability; Disabled Child; Caregivers; Family; Pediatric Nursing; Health Vulnerability

Objective: To identify the factors associated with family risk of children with special health care needs. Methods: Bicentric study, with a cross-sectional design and a quantitative approach, with family caregivers of children with special health care needs. Instruments were applied to obtain a sociodemographic characterization, and identify and classify the family risk. For analysis between variables, Mann-Whitney and Fisher’s exact tests were used and the Spearman’s correlation coefficient was calculated. Results: One hundred and eighteen caregivers participated in the study. The average family risk score was 3.53 (±3.76), with a median of 3.0, and minimum and maximum values of 0 and 16, respectively, with no significant difference between the two studied Brazilian municipalities. In municipality 1, the number of siblings presented a positive correlation with the average family risk score (0.011, p<0.05). Level of education and marital status of the caregiver showed a significant association with the result (0.038 and 0.002, respectively). The social classification variable presented a negative correlation with the outcome in municipalities 1 (0.003, p<0.01) and 2 (0.006, p<0.01). Conclusion: To classify the family risk and recognize associated factors can be taken as a basis for fair home care to children with special health care needs.