Technology-dependent children: the maternal care experience

• Autor(a) principal: Okido, Aline Cristiane Cavicchioli
• Data de Publicação: 2012
• Outros Autores: Pizzignacco, Tainá Maués Pelúcio, Furtado, Maria Cândida de Carvalho, Lima, Regina Aparecida Garcia
• Tipo de documento: Artigo
• Idioma: por; eng
• Título da fonte: Revista da Escola de Enfermagem da USP (Online)
• Texto Completo: https://www.revistas.usp.br/reeusp/article/view/48126
• topic: Criança; Doença crônica; Família; Enfermagem pediátrica; Cuidados de enfermagem; Nino; Enfermedad crônica; Família; Enfermería pediátrica; Cuidados de enfermería; Child; Chronic disease; Family; Pediatric nursing; Nursing care

The objective of this study is to understand the maternal experience of caring for a technology-dependent child. We used the ethnographic case study approach, as well as the genogram, ecomap, open interview and observation methods as data collection instruments. The data were organized into three meaning units: the search for causes and culprits; hospital discharge and the demand for care; and the support networks. The study allowed for an understanding of the mother's experience of searching for explanations, as well as feelings of distrust, insecurity and dissatisfaction towards the health service provided. In addition, the mother's organization regarding the child's care and in terms of readying the home environment to receive the child, the use of support networks, and particularly the need for attachment with family and neighbors and the formal and informal search to assure the subsistence of her ill child as well as her other children were explored.