Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease

Detalhes bibliográficos
Autor(a) principal: Oliveira, Ana Paula Pessoa de
Data de Publicação: 2012
Outros Autores: Caldana, Regina Helena Lima
Tipo de documento: Artigo
Idioma: por
Título da fonte: Saúde e Sociedade (Online)
Texto Completo: https://www.revistas.usp.br/sausoc/article/view/48754
Resumo: In recent years there has been a progressive increase in the number of families confronted with the situation of caring for elderly relatives in a dependent condition, principally as a result of Alzheimer's disease. The objective of the present study was to investigate the repercussions of such care in the life of family caregivers of elderly relatives with Alzheimer's disease. By means of qualitative epistemology, the interview technique was used in the thematic life history modality, and applied to 20 caregivers of elderly individuals enrolled in the Brazilian Association of Alzheimer's Disease in the State of Amazonas, Northern Brazil. The results showed that renouncements emerge in the caregivers' testimonies as a significant repercussion of care. Social deprivation is a reality that is present in the lives of all the caregivers who took part in this study. Anger, impatience, fear, loneliness and shame are feelings experienced by the caregivers in their everyday lives, intermingling with feelings of satisfaction, happiness, compassion and retribution. It is important to highlight that in the present study the care situation lived by the caregivers was permeated by opposing feelings, being considered unpleasant in certain moments and pleasant in others. Thus, it is perceived that it is possible and relevant for the health professionals to identify the pleasure-promoting aspects in the care relationship, praising them before the others. Therefore, the possibility of facing the mishaps in the best possible way should be considered as an eminently present reality in the daily routine of care.
id USP-6_2a0a7e86a56eddf0852bc56eb4522443
oai_identifier_str oai:revistas.usp.br:article/48754
network_acronym_str USP-6
network_name_str Saúde e Sociedade (Online)
repository_id_str
spelling Repercussions of care in the life of family caregivers of elderlies with Alzheimer's diseaseAs repercussões do cuidado na vida do cuidador familiar do idoso com demência de AlzheimerCuidado familiarIdosoAlzheimerFamily CareElderlyAlzheimerIn recent years there has been a progressive increase in the number of families confronted with the situation of caring for elderly relatives in a dependent condition, principally as a result of Alzheimer's disease. The objective of the present study was to investigate the repercussions of such care in the life of family caregivers of elderly relatives with Alzheimer's disease. By means of qualitative epistemology, the interview technique was used in the thematic life history modality, and applied to 20 caregivers of elderly individuals enrolled in the Brazilian Association of Alzheimer's Disease in the State of Amazonas, Northern Brazil. The results showed that renouncements emerge in the caregivers' testimonies as a significant repercussion of care. Social deprivation is a reality that is present in the lives of all the caregivers who took part in this study. Anger, impatience, fear, loneliness and shame are feelings experienced by the caregivers in their everyday lives, intermingling with feelings of satisfaction, happiness, compassion and retribution. It is important to highlight that in the present study the care situation lived by the caregivers was permeated by opposing feelings, being considered unpleasant in certain moments and pleasant in others. Thus, it is perceived that it is possible and relevant for the health professionals to identify the pleasure-promoting aspects in the care relationship, praising them before the others. Therefore, the possibility of facing the mishaps in the best possible way should be considered as an eminently present reality in the daily routine of care.Nos últimos anos tem aumentado progressivamente o número de famílias que se tem confrontado com a situação de cuidar de familiares idosos em condição de dependência, principalmente quando esta é provocada em virtude da Doença de Alzheimer (DA). O objetivo deste estudo é o de investigar as repercussões do cuidado na vida do cuidador familiar de idoso com demência de Alzheimer. Através da epistemologia qualitativa utilizou-se a técnica da entrevista na modalidade de história de vida temática aplicada a vinte cuidadores de idosos cadastrados na Associação Brasileira de Alzheimer do estado do Amazonas (ABRAZ-AM). Os resultados mostraram que as renúncias aparecem nos depoimentos dos familiares como uma repercussão significativa do cuidado. A privação social em função do cuidado é uma realidade presente na vida dos cuidadores deste estudo. A raiva, a impaciência, o medo, a solidão e a vergonha são sentimentos vivenciados pelos cuidadores em seu cotidiano, que se alternam com sentimentos de satisfação, felicidade, compaixão e de retribuição. É importante salientar que neste estudo, a situação de cuidado vivenciada pelos cuidadores é permeada por sentimentos que se contrapõem, em determinados momentos se configurando como desagradáveis e em outros momentos como agradáveis. Sendo assim, percebe-se que é possível e relevante os profissionais da saúde identificarem esses aspectos favorecedores de prazer na relação de cuidado, buscando exaltá-los perante os outros. Dessa forma, a possibilidade de enfrentar da melhor forma os percalços deve ser considerada uma realidade eminentemente presente no cotidiano de cuidado.Universidade de São Paulo. Faculdade de Saúde Pública2012-09-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://www.revistas.usp.br/sausoc/article/view/4875410.1590/S0104-12902012000300013Saúde e Sociedade; v. 21 n. 3 (2012); 675-685Saúde e Sociedade; Vol. 21 No. 3 (2012); 675-685Saúde e Sociedade; Vol. 21 Núm. 3 (2012); 675-6851984-04700104-1290reponame:Saúde e Sociedade (Online)instname:Universidade de São Paulo (USP)instacron:USPporhttps://www.revistas.usp.br/sausoc/article/view/48754/52828Oliveira, Ana Paula Pessoa deCaldana, Regina Helena Limainfo:eu-repo/semantics/openAccess2012-12-20T18:22:31Zoai:revistas.usp.br:article/48754Revistahttp://www.scielo.br/sausocPUBhttps://old.scielo.br/oai/scielo-oai.phpsaudesoc@usp.br||lena@usp.br1984-04700104-1290opendoar:2012-12-20T18:22:31Saúde e Sociedade (Online) - Universidade de São Paulo (USP)false
dc.title.none.fl_str_mv Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
As repercussões do cuidado na vida do cuidador familiar do idoso com demência de Alzheimer
title Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
spellingShingle Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
Oliveira, Ana Paula Pessoa de
Cuidado familiar
Idoso
Alzheimer
Family Care
Elderly
Alzheimer
title_short Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
title_full Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
title_fullStr Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
title_full_unstemmed Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
title_sort Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
author Oliveira, Ana Paula Pessoa de
author_facet Oliveira, Ana Paula Pessoa de
Caldana, Regina Helena Lima
author_role author
author2 Caldana, Regina Helena Lima
author2_role author
dc.contributor.author.fl_str_mv Oliveira, Ana Paula Pessoa de
Caldana, Regina Helena Lima
dc.subject.por.fl_str_mv Cuidado familiar
Idoso
Alzheimer
Family Care
Elderly
Alzheimer
topic Cuidado familiar
Idoso
Alzheimer
Family Care
Elderly
Alzheimer
description In recent years there has been a progressive increase in the number of families confronted with the situation of caring for elderly relatives in a dependent condition, principally as a result of Alzheimer's disease. The objective of the present study was to investigate the repercussions of such care in the life of family caregivers of elderly relatives with Alzheimer's disease. By means of qualitative epistemology, the interview technique was used in the thematic life history modality, and applied to 20 caregivers of elderly individuals enrolled in the Brazilian Association of Alzheimer's Disease in the State of Amazonas, Northern Brazil. The results showed that renouncements emerge in the caregivers' testimonies as a significant repercussion of care. Social deprivation is a reality that is present in the lives of all the caregivers who took part in this study. Anger, impatience, fear, loneliness and shame are feelings experienced by the caregivers in their everyday lives, intermingling with feelings of satisfaction, happiness, compassion and retribution. It is important to highlight that in the present study the care situation lived by the caregivers was permeated by opposing feelings, being considered unpleasant in certain moments and pleasant in others. Thus, it is perceived that it is possible and relevant for the health professionals to identify the pleasure-promoting aspects in the care relationship, praising them before the others. Therefore, the possibility of facing the mishaps in the best possible way should be considered as an eminently present reality in the daily routine of care.
publishDate 2012
dc.date.none.fl_str_mv 2012-09-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.revistas.usp.br/sausoc/article/view/48754
10.1590/S0104-12902012000300013
url https://www.revistas.usp.br/sausoc/article/view/48754
identifier_str_mv 10.1590/S0104-12902012000300013
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://www.revistas.usp.br/sausoc/article/view/48754/52828
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade de São Paulo. Faculdade de Saúde Pública
publisher.none.fl_str_mv Universidade de São Paulo. Faculdade de Saúde Pública
dc.source.none.fl_str_mv Saúde e Sociedade; v. 21 n. 3 (2012); 675-685
Saúde e Sociedade; Vol. 21 No. 3 (2012); 675-685
Saúde e Sociedade; Vol. 21 Núm. 3 (2012); 675-685
1984-0470
0104-1290
reponame:Saúde e Sociedade (Online)
instname:Universidade de São Paulo (USP)
instacron:USP
instname_str Universidade de São Paulo (USP)
instacron_str USP
institution USP
reponame_str Saúde e Sociedade (Online)
collection Saúde e Sociedade (Online)
repository.name.fl_str_mv Saúde e Sociedade (Online) - Universidade de São Paulo (USP)
repository.mail.fl_str_mv saudesoc@usp.br||lena@usp.br
_version_ 1787713757796892672

Registros relacionados