Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease
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Publication Date: | 2012 |
Other Authors: | |
Format: | Article |
Language: | por |
Source: | Saúde e Sociedade (Online) |
Download full: | https://www.revistas.usp.br/sausoc/article/view/48754 |
Summary: | In recent years there has been a progressive increase in the number of families confronted with the situation of caring for elderly relatives in a dependent condition, principally as a result of Alzheimer's disease. The objective of the present study was to investigate the repercussions of such care in the life of family caregivers of elderly relatives with Alzheimer's disease. By means of qualitative epistemology, the interview technique was used in the thematic life history modality, and applied to 20 caregivers of elderly individuals enrolled in the Brazilian Association of Alzheimer's Disease in the State of Amazonas, Northern Brazil. The results showed that renouncements emerge in the caregivers' testimonies as a significant repercussion of care. Social deprivation is a reality that is present in the lives of all the caregivers who took part in this study. Anger, impatience, fear, loneliness and shame are feelings experienced by the caregivers in their everyday lives, intermingling with feelings of satisfaction, happiness, compassion and retribution. It is important to highlight that in the present study the care situation lived by the caregivers was permeated by opposing feelings, being considered unpleasant in certain moments and pleasant in others. Thus, it is perceived that it is possible and relevant for the health professionals to identify the pleasure-promoting aspects in the care relationship, praising them before the others. Therefore, the possibility of facing the mishaps in the best possible way should be considered as an eminently present reality in the daily routine of care. |
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Repercussions of care in the life of family caregivers of elderlies with Alzheimer's diseaseAs repercussões do cuidado na vida do cuidador familiar do idoso com demência de AlzheimerCuidado familiarIdosoAlzheimerFamily CareElderlyAlzheimerIn recent years there has been a progressive increase in the number of families confronted with the situation of caring for elderly relatives in a dependent condition, principally as a result of Alzheimer's disease. The objective of the present study was to investigate the repercussions of such care in the life of family caregivers of elderly relatives with Alzheimer's disease. By means of qualitative epistemology, the interview technique was used in the thematic life history modality, and applied to 20 caregivers of elderly individuals enrolled in the Brazilian Association of Alzheimer's Disease in the State of Amazonas, Northern Brazil. The results showed that renouncements emerge in the caregivers' testimonies as a significant repercussion of care. Social deprivation is a reality that is present in the lives of all the caregivers who took part in this study. Anger, impatience, fear, loneliness and shame are feelings experienced by the caregivers in their everyday lives, intermingling with feelings of satisfaction, happiness, compassion and retribution. It is important to highlight that in the present study the care situation lived by the caregivers was permeated by opposing feelings, being considered unpleasant in certain moments and pleasant in others. Thus, it is perceived that it is possible and relevant for the health professionals to identify the pleasure-promoting aspects in the care relationship, praising them before the others. Therefore, the possibility of facing the mishaps in the best possible way should be considered as an eminently present reality in the daily routine of care.Nos últimos anos tem aumentado progressivamente o número de famílias que se tem confrontado com a situação de cuidar de familiares idosos em condição de dependência, principalmente quando esta é provocada em virtude da Doença de Alzheimer (DA). O objetivo deste estudo é o de investigar as repercussões do cuidado na vida do cuidador familiar de idoso com demência de Alzheimer. Através da epistemologia qualitativa utilizou-se a técnica da entrevista na modalidade de história de vida temática aplicada a vinte cuidadores de idosos cadastrados na Associação Brasileira de Alzheimer do estado do Amazonas (ABRAZ-AM). Os resultados mostraram que as renúncias aparecem nos depoimentos dos familiares como uma repercussão significativa do cuidado. A privação social em função do cuidado é uma realidade presente na vida dos cuidadores deste estudo. A raiva, a impaciência, o medo, a solidão e a vergonha são sentimentos vivenciados pelos cuidadores em seu cotidiano, que se alternam com sentimentos de satisfação, felicidade, compaixão e de retribuição. É importante salientar que neste estudo, a situação de cuidado vivenciada pelos cuidadores é permeada por sentimentos que se contrapõem, em determinados momentos se configurando como desagradáveis e em outros momentos como agradáveis. Sendo assim, percebe-se que é possível e relevante os profissionais da saúde identificarem esses aspectos favorecedores de prazer na relação de cuidado, buscando exaltá-los perante os outros. Dessa forma, a possibilidade de enfrentar da melhor forma os percalços deve ser considerada uma realidade eminentemente presente no cotidiano de cuidado.Universidade de São Paulo. Faculdade de Saúde Pública2012-09-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://www.revistas.usp.br/sausoc/article/view/4875410.1590/S0104-12902012000300013Saúde e Sociedade; v. 21 n. 3 (2012); 675-685Saúde e Sociedade; Vol. 21 No. 3 (2012); 675-685Saúde e Sociedade; Vol. 21 Núm. 3 (2012); 675-6851984-04700104-1290reponame:Saúde e Sociedade (Online)instname:Universidade de São Paulo (USP)instacron:USPporhttps://www.revistas.usp.br/sausoc/article/view/48754/52828Oliveira, Ana Paula Pessoa deCaldana, Regina Helena Limainfo:eu-repo/semantics/openAccess2012-12-20T18:22:31Zoai:revistas.usp.br:article/48754Revistahttp://www.scielo.br/sausocPUBhttps://old.scielo.br/oai/scielo-oai.phpsaudesoc@usp.br||lena@usp.br1984-04700104-1290opendoar:2012-12-20T18:22:31Saúde e Sociedade (Online) - Universidade de São Paulo (USP)false |
dc.title.none.fl_str_mv |
Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease As repercussões do cuidado na vida do cuidador familiar do idoso com demência de Alzheimer |
title |
Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease |
spellingShingle |
Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease Oliveira, Ana Paula Pessoa de Cuidado familiar Idoso Alzheimer Family Care Elderly Alzheimer |
title_short |
Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease |
title_full |
Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease |
title_fullStr |
Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease |
title_full_unstemmed |
Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease |
title_sort |
Repercussions of care in the life of family caregivers of elderlies with Alzheimer's disease |
author |
Oliveira, Ana Paula Pessoa de |
author_facet |
Oliveira, Ana Paula Pessoa de Caldana, Regina Helena Lima |
author_role |
author |
author2 |
Caldana, Regina Helena Lima |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Oliveira, Ana Paula Pessoa de Caldana, Regina Helena Lima |
dc.subject.por.fl_str_mv |
Cuidado familiar Idoso Alzheimer Family Care Elderly Alzheimer |
topic |
Cuidado familiar Idoso Alzheimer Family Care Elderly Alzheimer |
description |
In recent years there has been a progressive increase in the number of families confronted with the situation of caring for elderly relatives in a dependent condition, principally as a result of Alzheimer's disease. The objective of the present study was to investigate the repercussions of such care in the life of family caregivers of elderly relatives with Alzheimer's disease. By means of qualitative epistemology, the interview technique was used in the thematic life history modality, and applied to 20 caregivers of elderly individuals enrolled in the Brazilian Association of Alzheimer's Disease in the State of Amazonas, Northern Brazil. The results showed that renouncements emerge in the caregivers' testimonies as a significant repercussion of care. Social deprivation is a reality that is present in the lives of all the caregivers who took part in this study. Anger, impatience, fear, loneliness and shame are feelings experienced by the caregivers in their everyday lives, intermingling with feelings of satisfaction, happiness, compassion and retribution. It is important to highlight that in the present study the care situation lived by the caregivers was permeated by opposing feelings, being considered unpleasant in certain moments and pleasant in others. Thus, it is perceived that it is possible and relevant for the health professionals to identify the pleasure-promoting aspects in the care relationship, praising them before the others. Therefore, the possibility of facing the mishaps in the best possible way should be considered as an eminently present reality in the daily routine of care. |
publishDate |
2012 |
dc.date.none.fl_str_mv |
2012-09-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://www.revistas.usp.br/sausoc/article/view/48754 10.1590/S0104-12902012000300013 |
url |
https://www.revistas.usp.br/sausoc/article/view/48754 |
identifier_str_mv |
10.1590/S0104-12902012000300013 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://www.revistas.usp.br/sausoc/article/view/48754/52828 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade de São Paulo. Faculdade de Saúde Pública |
publisher.none.fl_str_mv |
Universidade de São Paulo. Faculdade de Saúde Pública |
dc.source.none.fl_str_mv |
Saúde e Sociedade; v. 21 n. 3 (2012); 675-685 Saúde e Sociedade; Vol. 21 No. 3 (2012); 675-685 Saúde e Sociedade; Vol. 21 Núm. 3 (2012); 675-685 1984-0470 0104-1290 reponame:Saúde e Sociedade (Online) instname:Universidade de São Paulo (USP) instacron:USP |
instname_str |
Universidade de São Paulo (USP) |
instacron_str |
USP |
institution |
USP |
reponame_str |
Saúde e Sociedade (Online) |
collection |
Saúde e Sociedade (Online) |
repository.name.fl_str_mv |
Saúde e Sociedade (Online) - Universidade de São Paulo (USP) |
repository.mail.fl_str_mv |
saudesoc@usp.br||lena@usp.br |
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1787713757796892672 |