ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies
Autor(a) principal: | |
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Data de Publicação: | 2019 |
Outros Autores: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.18/6482 |
Resumo: | Background: Recent outbreaks of Candida auris further exemplify that invasive Candida infections are a substantial threat to patients and healthcare systems. Even short treatment delays are associated with higher mortality rates. Epidemiological shifts towards more resistant Candida spp. require careful surveillance. Objectives: Triggered by the emergence of C auris and by increasing antifungal resistance rates the European Confederation of Medical Mycology developed an international Candida Registry (FungiScope™ CandiReg) to allow contemporary multinational surveillance. Methods: CandiReg serves as platform for international cooperation to enhance research regarding invasive Candida infections. CandiReg uses the General Data Protection Regulation compliant data platform ClinicalSurveys.net that holds the electronic case report forms (eCRF). Data entry is supported via an interactive macro created by the software that can be accessed via any Internet browser. Results: CandiReg provides an eCRF for invasive Candida infections that can be used for a variety of studies from cohort studies on attributable mortality to evaluations of guideline adherence, offering to the investigators of the 28 ECMM member countries the opportunity to document their cases of invasive Candida infection. CandiReg allows the monitoring of epidemiology of invasive Candida infections, including monitoring of multinational outbreaks. Here, we describe the structure and management of the CandiReg platform. Conclusion: CandiReg supports the collection of clinical information and isolates to improve the knowledge on epidemiology and eventually to improve management of invasive Candida infections. CandiReg promotes international collaboration, improving the availability and quality of evidence on invasive Candida infection and contributes to improved patient management. |
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ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studiesCandidaCandidemiaCandida RegistryECMMEpidemiologyInvasive CandidiasisInvasive Fungal InfectionOutbreakInfecções Sistémicas e ZoonosesBackground: Recent outbreaks of Candida auris further exemplify that invasive Candida infections are a substantial threat to patients and healthcare systems. Even short treatment delays are associated with higher mortality rates. Epidemiological shifts towards more resistant Candida spp. require careful surveillance. Objectives: Triggered by the emergence of C auris and by increasing antifungal resistance rates the European Confederation of Medical Mycology developed an international Candida Registry (FungiScope™ CandiReg) to allow contemporary multinational surveillance. Methods: CandiReg serves as platform for international cooperation to enhance research regarding invasive Candida infections. CandiReg uses the General Data Protection Regulation compliant data platform ClinicalSurveys.net that holds the electronic case report forms (eCRF). Data entry is supported via an interactive macro created by the software that can be accessed via any Internet browser. Results: CandiReg provides an eCRF for invasive Candida infections that can be used for a variety of studies from cohort studies on attributable mortality to evaluations of guideline adherence, offering to the investigators of the 28 ECMM member countries the opportunity to document their cases of invasive Candida infection. CandiReg allows the monitoring of epidemiology of invasive Candida infections, including monitoring of multinational outbreaks. Here, we describe the structure and management of the CandiReg platform. Conclusion: CandiReg supports the collection of clinical information and isolates to improve the knowledge on epidemiology and eventually to improve management of invasive Candida infections. CandiReg promotes international collaboration, improving the availability and quality of evidence on invasive Candida infection and contributes to improved patient management.CandiReg is an academic project and funded by ECMM via the ECMM Candida III study (PI: Hoenigl, Co‐PI Cornely; supported by Scynexis) and the University of Cologne.Blackwell PublishingRepositório Científico do Instituto Nacional de SaúdeKoehler, PhilippArendrup, Maiken CavlingArikan‐Akdagli, SevtapBassetti, MatteoBretagne, StéphaneKlingspor, LenaLagrou, KatrienMeis, Jacques F.Rautemaa‐Richardson, RiinaSchelenz, SilkeHamprecht, AxelKoehler, Felix C.Kurzai, OliverSalmanton‐García, JonVehreschild, Jörg‐JanneAlanio, AlexandreAlastruey‐Izquierdo, AnaArsic Arsenijevic, ValentinaGangneux, Jean‐PierreGow, Neil A. R.Hadina, SuzanaHamal, PetrJohnson, ElizabethKlimko, NikolayLass‐Flörl, CorneliaMares, MihaiÖzenci, VolkanPapp, TamasRoilides, EmmanuelSabino, RaquelSegal, EstherTalento, Alida FeTortorano, Anna MariaVerweij, Paul E.Hoenigl, MartinCornely, Oliver A.European Confederation of Medical Mycology (ECMM)2020-04-22T15:15:36Z2019-08-012019-08-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.18/6482engMycoses. 2019 Oct;62(10):920-927. doi: 10.1111/myc.12963. Epub 2019 Aug 1.0933-740710.1111/myc.12963info:eu-repo/semantics/embargoedAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-07-20T15:41:32Zoai:repositorio.insa.pt:10400.18/6482Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T18:41:18.144528Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies |
title |
ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies |
spellingShingle |
ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies Koehler, Philipp Candida Candidemia Candida Registry ECMM Epidemiology Invasive Candidiasis Invasive Fungal Infection Outbreak Infecções Sistémicas e Zoonoses |
title_short |
ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies |
title_full |
ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies |
title_fullStr |
ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies |
title_full_unstemmed |
ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies |
title_sort |
ECMM CandiReg - A ready to use platform for outbreaks and epidemiological studies |
author |
Koehler, Philipp |
author_facet |
Koehler, Philipp Arendrup, Maiken Cavling Arikan‐Akdagli, Sevtap Bassetti, Matteo Bretagne, Stéphane Klingspor, Lena Lagrou, Katrien Meis, Jacques F. Rautemaa‐Richardson, Riina Schelenz, Silke Hamprecht, Axel Koehler, Felix C. Kurzai, Oliver Salmanton‐García, Jon Vehreschild, Jörg‐Janne Alanio, Alexandre Alastruey‐Izquierdo, Ana Arsic Arsenijevic, Valentina Gangneux, Jean‐Pierre Gow, Neil A. R. Hadina, Suzana Hamal, Petr Johnson, Elizabeth Klimko, Nikolay Lass‐Flörl, Cornelia Mares, Mihai Özenci, Volkan Papp, Tamas Roilides, Emmanuel Sabino, Raquel Segal, Esther Talento, Alida Fe Tortorano, Anna Maria Verweij, Paul E. Hoenigl, Martin Cornely, Oliver A. European Confederation of Medical Mycology (ECMM) |
author_role |
author |
author2 |
Arendrup, Maiken Cavling Arikan‐Akdagli, Sevtap Bassetti, Matteo Bretagne, Stéphane Klingspor, Lena Lagrou, Katrien Meis, Jacques F. Rautemaa‐Richardson, Riina Schelenz, Silke Hamprecht, Axel Koehler, Felix C. Kurzai, Oliver Salmanton‐García, Jon Vehreschild, Jörg‐Janne Alanio, Alexandre Alastruey‐Izquierdo, Ana Arsic Arsenijevic, Valentina Gangneux, Jean‐Pierre Gow, Neil A. R. Hadina, Suzana Hamal, Petr Johnson, Elizabeth Klimko, Nikolay Lass‐Flörl, Cornelia Mares, Mihai Özenci, Volkan Papp, Tamas Roilides, Emmanuel Sabino, Raquel Segal, Esther Talento, Alida Fe Tortorano, Anna Maria Verweij, Paul E. Hoenigl, Martin Cornely, Oliver A. European Confederation of Medical Mycology (ECMM) |
author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Repositório Científico do Instituto Nacional de Saúde |
dc.contributor.author.fl_str_mv |
Koehler, Philipp Arendrup, Maiken Cavling Arikan‐Akdagli, Sevtap Bassetti, Matteo Bretagne, Stéphane Klingspor, Lena Lagrou, Katrien Meis, Jacques F. Rautemaa‐Richardson, Riina Schelenz, Silke Hamprecht, Axel Koehler, Felix C. Kurzai, Oliver Salmanton‐García, Jon Vehreschild, Jörg‐Janne Alanio, Alexandre Alastruey‐Izquierdo, Ana Arsic Arsenijevic, Valentina Gangneux, Jean‐Pierre Gow, Neil A. R. Hadina, Suzana Hamal, Petr Johnson, Elizabeth Klimko, Nikolay Lass‐Flörl, Cornelia Mares, Mihai Özenci, Volkan Papp, Tamas Roilides, Emmanuel Sabino, Raquel Segal, Esther Talento, Alida Fe Tortorano, Anna Maria Verweij, Paul E. Hoenigl, Martin Cornely, Oliver A. European Confederation of Medical Mycology (ECMM) |
dc.subject.por.fl_str_mv |
Candida Candidemia Candida Registry ECMM Epidemiology Invasive Candidiasis Invasive Fungal Infection Outbreak Infecções Sistémicas e Zoonoses |
topic |
Candida Candidemia Candida Registry ECMM Epidemiology Invasive Candidiasis Invasive Fungal Infection Outbreak Infecções Sistémicas e Zoonoses |
description |
Background: Recent outbreaks of Candida auris further exemplify that invasive Candida infections are a substantial threat to patients and healthcare systems. Even short treatment delays are associated with higher mortality rates. Epidemiological shifts towards more resistant Candida spp. require careful surveillance. Objectives: Triggered by the emergence of C auris and by increasing antifungal resistance rates the European Confederation of Medical Mycology developed an international Candida Registry (FungiScope™ CandiReg) to allow contemporary multinational surveillance. Methods: CandiReg serves as platform for international cooperation to enhance research regarding invasive Candida infections. CandiReg uses the General Data Protection Regulation compliant data platform ClinicalSurveys.net that holds the electronic case report forms (eCRF). Data entry is supported via an interactive macro created by the software that can be accessed via any Internet browser. Results: CandiReg provides an eCRF for invasive Candida infections that can be used for a variety of studies from cohort studies on attributable mortality to evaluations of guideline adherence, offering to the investigators of the 28 ECMM member countries the opportunity to document their cases of invasive Candida infection. CandiReg allows the monitoring of epidemiology of invasive Candida infections, including monitoring of multinational outbreaks. Here, we describe the structure and management of the CandiReg platform. Conclusion: CandiReg supports the collection of clinical information and isolates to improve the knowledge on epidemiology and eventually to improve management of invasive Candida infections. CandiReg promotes international collaboration, improving the availability and quality of evidence on invasive Candida infection and contributes to improved patient management. |
publishDate |
2019 |
dc.date.none.fl_str_mv |
2019-08-01 2019-08-01T00:00:00Z 2020-04-22T15:15:36Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.18/6482 |
url |
http://hdl.handle.net/10400.18/6482 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Mycoses. 2019 Oct;62(10):920-927. doi: 10.1111/myc.12963. Epub 2019 Aug 1. 0933-7407 10.1111/myc.12963 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/embargoedAccess |
eu_rights_str_mv |
embargoedAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Blackwell Publishing |
publisher.none.fl_str_mv |
Blackwell Publishing |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
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1799132156969091072 |