Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://hdl.handle.net/1822/86720 |
Resumo: | Cerebral palsy (CP) can be considered the most frequent childhood physical disorder. The severity and type of dysfunction depend on the brain injury. Movement and posture are the most affected areas. CP is a lifelong condition, and parenting a child with this disorder brings additional challenges (e.g., dealing with grief) and needs (e.g., information). Identifying and characterizing their challenges and needs are pivotal to enrich the knowledge in this field and help draw more suitable support for parents. Interviews with 11 parents of children with CP attending elementary school were conducted. The discourse was transcribed, and a thematic analysis was performed. Three themes emerged from the data: (i) challenges of parenting a child with CP (e.g., internal challenges), (ii) crucial needs for parents to cope with a child with CP (e.g., information), and (iii) the intersection between challenges and needs of parents of children with CP (e.g., unawareness). Regarding the challenges and needs characterization, lifespan was the most frequent period of child development, and the microsystem was the context of life most reported. The findings may inform the design of educational and remediation interventions to support families of children with CP attending elementary school. |
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Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school childrenCerebral palsyParentingParenting challengesParenting needsPeriods of child developmentFamily life contextsCerebral palsy (CP) can be considered the most frequent childhood physical disorder. The severity and type of dysfunction depend on the brain injury. Movement and posture are the most affected areas. CP is a lifelong condition, and parenting a child with this disorder brings additional challenges (e.g., dealing with grief) and needs (e.g., information). Identifying and characterizing their challenges and needs are pivotal to enrich the knowledge in this field and help draw more suitable support for parents. Interviews with 11 parents of children with CP attending elementary school were conducted. The discourse was transcribed, and a thematic analysis was performed. Three themes emerged from the data: (i) challenges of parenting a child with CP (e.g., internal challenges), (ii) crucial needs for parents to cope with a child with CP (e.g., information), and (iii) the intersection between challenges and needs of parents of children with CP (e.g., unawareness). Regarding the challenges and needs characterization, lifespan was the most frequent period of child development, and the microsystem was the context of life most reported. The findings may inform the design of educational and remediation interventions to support families of children with CP attending elementary school.This study was conducted at the Psychology Research Center, School of Psychology, University of Minho, supported by the Fundação para a Ciência e a Tecnologia, I.P. (FCT) through the Portuguese State Budget (UIDB/01662/2020). A.G., and A.O. were supported by PhD fellowships from FCT (grants number 2021.04949.BD, and SFRH/BD/143471/2019, respectively).Multidisciplinary Digital Publishing Institute (MDPI)Universidade do MinhoGuimarães, AnaPereira, ArmandaOliveira, AndréLopes, SílviaNunes, Ana RitaZanatta, CleiaRosário, Pedro2023-02-212023-02-21T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://hdl.handle.net/1822/86720engGuimarães, A.; Pereira, A.; Oliveira, A.; Lopes, S.; Nunes, A.R.; Zanatta, C.; Rosário, P. Parenting in Cerebral Palsy: Understanding the Perceived Challenges and Needs Faced by Parents of Elementary School Children. Int. J. Environ. Res. Public Health 2023, 20, 3811. https://doi.org/10.3390/ijerph200538111661-78271660-460110.3390/ijerph20053811369008193811https://www.mdpi.com/1660-4601/20/5/3811info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-10-14T01:20:45Zoai:repositorium.sdum.uminho.pt:1822/86720Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:35:26.492528Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children |
title |
Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children |
spellingShingle |
Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children Guimarães, Ana Cerebral palsy Parenting Parenting challenges Parenting needs Periods of child development Family life contexts |
title_short |
Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children |
title_full |
Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children |
title_fullStr |
Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children |
title_full_unstemmed |
Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children |
title_sort |
Parenting in cerebral palsy: understanding the perceived challenges and needs faced by parents of elementary school children |
author |
Guimarães, Ana |
author_facet |
Guimarães, Ana Pereira, Armanda Oliveira, André Lopes, Sílvia Nunes, Ana Rita Zanatta, Cleia Rosário, Pedro |
author_role |
author |
author2 |
Pereira, Armanda Oliveira, André Lopes, Sílvia Nunes, Ana Rita Zanatta, Cleia Rosário, Pedro |
author2_role |
author author author author author author |
dc.contributor.none.fl_str_mv |
Universidade do Minho |
dc.contributor.author.fl_str_mv |
Guimarães, Ana Pereira, Armanda Oliveira, André Lopes, Sílvia Nunes, Ana Rita Zanatta, Cleia Rosário, Pedro |
dc.subject.por.fl_str_mv |
Cerebral palsy Parenting Parenting challenges Parenting needs Periods of child development Family life contexts |
topic |
Cerebral palsy Parenting Parenting challenges Parenting needs Periods of child development Family life contexts |
description |
Cerebral palsy (CP) can be considered the most frequent childhood physical disorder. The severity and type of dysfunction depend on the brain injury. Movement and posture are the most affected areas. CP is a lifelong condition, and parenting a child with this disorder brings additional challenges (e.g., dealing with grief) and needs (e.g., information). Identifying and characterizing their challenges and needs are pivotal to enrich the knowledge in this field and help draw more suitable support for parents. Interviews with 11 parents of children with CP attending elementary school were conducted. The discourse was transcribed, and a thematic analysis was performed. Three themes emerged from the data: (i) challenges of parenting a child with CP (e.g., internal challenges), (ii) crucial needs for parents to cope with a child with CP (e.g., information), and (iii) the intersection between challenges and needs of parents of children with CP (e.g., unawareness). Regarding the challenges and needs characterization, lifespan was the most frequent period of child development, and the microsystem was the context of life most reported. The findings may inform the design of educational and remediation interventions to support families of children with CP attending elementary school. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-02-21 2023-02-21T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://hdl.handle.net/1822/86720 |
url |
https://hdl.handle.net/1822/86720 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Guimarães, A.; Pereira, A.; Oliveira, A.; Lopes, S.; Nunes, A.R.; Zanatta, C.; Rosário, P. Parenting in Cerebral Palsy: Understanding the Perceived Challenges and Needs Faced by Parents of Elementary School Children. Int. J. Environ. Res. Public Health 2023, 20, 3811. https://doi.org/10.3390/ijerph20053811 1661-7827 1660-4601 10.3390/ijerph20053811 36900819 3811 https://www.mdpi.com/1660-4601/20/5/3811 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Multidisciplinary Digital Publishing Institute (MDPI) |
publisher.none.fl_str_mv |
Multidisciplinary Digital Publishing Institute (MDPI) |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799133617297817600 |