A qualitative study exploring the process of postmortem brain tissue donation after suicide
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Outros Autores: | , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Institucional da UFRGS |
Texto Completo: | http://hdl.handle.net/10183/240407 |
Resumo: | Access to postmortem brain tissue can be valuable in refining knowledge on the pathophysiology and genetics of neuropsychiatric disorders. Obtaining postmortem consent for the donation after death by suicide can be difcult, as families may be overwhelmed by a violent and unexpected death. Examining the process of brain donation can inform on how the request can best be conducted. This is a qualitative study with in-depth interviews with forty-one people that were asked to consider brain donation—32 who had consented to donation and 9 who refused it. Data collection and analyses were carried out according to grounded theory. Five key themes emerged from data analysis: the context of the families, the invitation to talk to the research team, the experience with the request protocol, the participants’ assessment of the experience, and their participation in the study as an opportunity to heal. The participants indicated that a brain donation request that is respectful and tactful can be made without adding to the family distress brought on by suicide and pondering brain donation was seen as an opportunity to transform the meaning of the death and invest it with a modicum of solace for being able to contribute to research. |
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Padoan, Carolina StopinskiGarcia, Lucas FrançaCrespo, Kleber CardosoLongaray, Vanessa KenneMartini, MuriloContessa, Julia CamargoKapczinski, Flávio PereiraOliveira, Francine Hehn deGoldim, José RobertoMagalhães, Pedro Vieira da Silva2022-06-15T04:48:41Z20222045-2322http://hdl.handle.net/10183/240407001141226Access to postmortem brain tissue can be valuable in refining knowledge on the pathophysiology and genetics of neuropsychiatric disorders. Obtaining postmortem consent for the donation after death by suicide can be difcult, as families may be overwhelmed by a violent and unexpected death. Examining the process of brain donation can inform on how the request can best be conducted. This is a qualitative study with in-depth interviews with forty-one people that were asked to consider brain donation—32 who had consented to donation and 9 who refused it. Data collection and analyses were carried out according to grounded theory. Five key themes emerged from data analysis: the context of the families, the invitation to talk to the research team, the experience with the request protocol, the participants’ assessment of the experience, and their participation in the study as an opportunity to heal. The participants indicated that a brain donation request that is respectful and tactful can be made without adding to the family distress brought on by suicide and pondering brain donation was seen as an opportunity to transform the meaning of the death and invest it with a modicum of solace for being able to contribute to research.application/pdfengScientific reports. London. Vol. 12 (2022), 4710, 15 p.SuicídioCérebroObtenção de tecidos e órgãosA qualitative study exploring the process of postmortem brain tissue donation after suicideEstrangeiroinfo:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFRGSinstname:Universidade Federal do Rio Grande do Sul (UFRGS)instacron:UFRGSTEXT001141226.pdf.txt001141226.pdf.txtExtracted Texttext/plain80324http://www.lume.ufrgs.br/bitstream/10183/240407/2/001141226.pdf.txt24afba24554e35ff5e39a0ff8e4f1f5bMD52ORIGINAL001141226.pdfTexto completo (inglês)application/pdf1529678http://www.lume.ufrgs.br/bitstream/10183/240407/1/001141226.pdfd3f525516a6a266aa71e459af05d5421MD5110183/2404072022-06-16 04:42:15.705097oai:www.lume.ufrgs.br:10183/240407Repositório de PublicaçõesPUBhttps://lume.ufrgs.br/oai/requestopendoar:2022-06-16T07:42:15Repositório Institucional da UFRGS - Universidade Federal do Rio Grande do Sul (UFRGS)false |
dc.title.pt_BR.fl_str_mv |
A qualitative study exploring the process of postmortem brain tissue donation after suicide |
title |
A qualitative study exploring the process of postmortem brain tissue donation after suicide |
spellingShingle |
A qualitative study exploring the process of postmortem brain tissue donation after suicide Padoan, Carolina Stopinski Suicídio Cérebro Obtenção de tecidos e órgãos |
title_short |
A qualitative study exploring the process of postmortem brain tissue donation after suicide |
title_full |
A qualitative study exploring the process of postmortem brain tissue donation after suicide |
title_fullStr |
A qualitative study exploring the process of postmortem brain tissue donation after suicide |
title_full_unstemmed |
A qualitative study exploring the process of postmortem brain tissue donation after suicide |
title_sort |
A qualitative study exploring the process of postmortem brain tissue donation after suicide |
author |
Padoan, Carolina Stopinski |
author_facet |
Padoan, Carolina Stopinski Garcia, Lucas França Crespo, Kleber Cardoso Longaray, Vanessa Kenne Martini, Murilo Contessa, Julia Camargo Kapczinski, Flávio Pereira Oliveira, Francine Hehn de Goldim, José Roberto Magalhães, Pedro Vieira da Silva |
author_role |
author |
author2 |
Garcia, Lucas França Crespo, Kleber Cardoso Longaray, Vanessa Kenne Martini, Murilo Contessa, Julia Camargo Kapczinski, Flávio Pereira Oliveira, Francine Hehn de Goldim, José Roberto Magalhães, Pedro Vieira da Silva |
author2_role |
author author author author author author author author author |
dc.contributor.author.fl_str_mv |
Padoan, Carolina Stopinski Garcia, Lucas França Crespo, Kleber Cardoso Longaray, Vanessa Kenne Martini, Murilo Contessa, Julia Camargo Kapczinski, Flávio Pereira Oliveira, Francine Hehn de Goldim, José Roberto Magalhães, Pedro Vieira da Silva |
dc.subject.por.fl_str_mv |
Suicídio Cérebro Obtenção de tecidos e órgãos |
topic |
Suicídio Cérebro Obtenção de tecidos e órgãos |
description |
Access to postmortem brain tissue can be valuable in refining knowledge on the pathophysiology and genetics of neuropsychiatric disorders. Obtaining postmortem consent for the donation after death by suicide can be difcult, as families may be overwhelmed by a violent and unexpected death. Examining the process of brain donation can inform on how the request can best be conducted. This is a qualitative study with in-depth interviews with forty-one people that were asked to consider brain donation—32 who had consented to donation and 9 who refused it. Data collection and analyses were carried out according to grounded theory. Five key themes emerged from data analysis: the context of the families, the invitation to talk to the research team, the experience with the request protocol, the participants’ assessment of the experience, and their participation in the study as an opportunity to heal. The participants indicated that a brain donation request that is respectful and tactful can be made without adding to the family distress brought on by suicide and pondering brain donation was seen as an opportunity to transform the meaning of the death and invest it with a modicum of solace for being able to contribute to research. |
publishDate |
2022 |
dc.date.accessioned.fl_str_mv |
2022-06-15T04:48:41Z |
dc.date.issued.fl_str_mv |
2022 |
dc.type.driver.fl_str_mv |
Estrangeiro info:eu-repo/semantics/article |
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info:eu-repo/semantics/publishedVersion |
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http://hdl.handle.net/10183/240407 |
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2045-2322 |
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001141226 |
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http://hdl.handle.net/10183/240407 |
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eng |
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Scientific reports. London. Vol. 12 (2022), 4710, 15 p. |
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