Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência
Autor(a) principal: | |
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Data de Publicação: | 2009 |
Tipo de documento: | Dissertação |
Idioma: | por |
Título da fonte: | Biblioteca Digital de Teses e Dissertações do Mackenzie |
Texto Completo: | http://dspace.mackenzie.br/handle/10899/22652 |
Resumo: | This work intended to know how mothers of deaf, Down syndrome and cerebral palsy children received the news of their children‟s disability. It aimed to know feelings and maternal reactions to the diagnosis, as well as the attitudes of the professionals in that moment. 18 mothers of children (aged 5 to 12 years) participated in this study. Results showed that despite the kind of disability there is no difference in emotional reactions to the news. Communication of diagnosis is normally inadequate, showing a lack of technical ability, as well as emotional involvement of health professionals. Mothers‟ expectancies are different. Mothers of deaf children showed better expectancies related to their children‟s future, being school mostly responsible for that. Mothers of cerebral palsy children project their hopes in areas related to improvement of physical and motor conditions. Mothers of Down syndrome children haven‟t shown much expectancy for medium and long term future, expressing in their reports the goals already attained by the children. Concerning health professionals all the mothers suggest a true, informing and clear communication, considering possible treatments and resources. It is adamant for the mothers that professionals show respect and caring attitudes when communicating a disability. Regardless of the disability, parents experience a lot of suffering and the professional attitude concerning the communication of a disability is an essential factor for the acceptance and comprehension of the disabled child. |
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2016-03-15T19:40:43Z2020-03-19T15:20:20Z2009-11-192020-03-19T15:20:20Z2009-05-26http://dspace.mackenzie.br/handle/10899/22652This work intended to know how mothers of deaf, Down syndrome and cerebral palsy children received the news of their children‟s disability. It aimed to know feelings and maternal reactions to the diagnosis, as well as the attitudes of the professionals in that moment. 18 mothers of children (aged 5 to 12 years) participated in this study. Results showed that despite the kind of disability there is no difference in emotional reactions to the news. Communication of diagnosis is normally inadequate, showing a lack of technical ability, as well as emotional involvement of health professionals. Mothers‟ expectancies are different. Mothers of deaf children showed better expectancies related to their children‟s future, being school mostly responsible for that. Mothers of cerebral palsy children project their hopes in areas related to improvement of physical and motor conditions. Mothers of Down syndrome children haven‟t shown much expectancy for medium and long term future, expressing in their reports the goals already attained by the children. Concerning health professionals all the mothers suggest a true, informing and clear communication, considering possible treatments and resources. It is adamant for the mothers that professionals show respect and caring attitudes when communicating a disability. Regardless of the disability, parents experience a lot of suffering and the professional attitude concerning the communication of a disability is an essential factor for the acceptance and comprehension of the disabled child.O presente trabalho procurou conhecer como mães de crianças com deficiência auditiva, síndrome de Down e paralisia cerebral, receberam a noticia da deficiência de suas crianças. Buscou-se conhecer os sentimentos e reações maternas frente ao diagnóstico, assim como a postura adotada pelos profissionais nesse momento. Participaram deste estudo dezoito mães de crianças na faixa etária de 5 a 12 anos. Os resultados apontaram que independentemente da deficiência não há diferença nas reações emocionais frente à notícia. A comunicação do diagnóstico na maioria das vezes é inadequada, mostrando um despreparo técnico e emocional dos profissionais de saude. As expectativas maternas são diferenciadas. Mães de crianças com deficiência auditiva demonstraram uma expectativa melhor quanto ao futuro de seus filhos, sendo a escola em grande parte responsável por essa conquista. As mães de crianças com paralisia cerebral projetam suas expectativas nos aspectos relacionados à melhora das condições físicas e motoras. Mães de crianças com síndrome de Down, não demonstraram muitas expectativas para um futuro em médio e longo prazo, trazendo em seus depoimentos as conquistas já alcançadas pelas crianças. Quanto aos profissionais de saude as mães foram unânimes ao sugerir uma comunicação verdadeira, informativa e esclarecedora considerando os possíveis tratamentos e recursos. Para as mães é fundamental uma atitude profissional marcada pelo respeito e postura mais acolhedora por parte daquele que faz a comunicação. Conclui-se que independentemente da deficiência, os pais passam por grande sofrimento e a postura do profissional frente à comunicação pode ser um fator determinante para a aceitação e entendimento da criança com deficiência.Fundo Mackenzie de Pesquisaapplication/pdfporUniversidade Presbiteriana MackenzieDistúrbios do DesenvolvimentoUPMBRPsicologiadeficiência auditivasíndrome de Downparalisia cerebralmães, sentimentosreaçõesnotíciadeafnessDown syndromecerebral palsymothersfeelingsreactionsnewsCNPQ::CIENCIAS HUMANAS::PSICOLOGIARelatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiênciainfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisFiamenghi Jr, Geraldo Antôniohttp://lattes.cnpq.br/6680842792627452http://lattes.cnpq.br/7638182460216019Sanches, Luciana de Assis Silva ehttp://tede.mackenzie.br/jspui/retrieve/4018/Luciana%20de%20Assis%20Silva%20e%20Sanches.pdf.jpghttp://tede.mackenzie.br/jspui/bitstream/tede/1735/1/Luciana%20de%20Assis%20Silva%20e%20Sanches.pdfinfo:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações do Mackenzieinstname:Universidade Presbiteriana Mackenzie (MACKENZIE)instacron:MACKENZIE10899/226522020-03-19 12:20:20.578Biblioteca Digital de Teses e Dissertaçõeshttp://tede.mackenzie.br/jspui/PRI |
dc.title.por.fl_str_mv |
Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência |
title |
Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência |
spellingShingle |
Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência Sanches, Luciana de Assis Silva e deficiência auditiva síndrome de Down paralisia cerebral mães, sentimentos reações notícia deafness Down syndrome cerebral palsy mothers feelings reactions news CNPQ::CIENCIAS HUMANAS::PSICOLOGIA |
title_short |
Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência |
title_full |
Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência |
title_fullStr |
Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência |
title_full_unstemmed |
Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência |
title_sort |
Relatos de mães sobre o momento do diagnóstico em diferentes contextos da deficiência |
author |
Sanches, Luciana de Assis Silva e |
author_facet |
Sanches, Luciana de Assis Silva e |
author_role |
author |
dc.contributor.advisor1.fl_str_mv |
Fiamenghi Jr, Geraldo Antônio |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/6680842792627452 |
dc.contributor.authorLattes.fl_str_mv |
http://lattes.cnpq.br/7638182460216019 |
dc.contributor.author.fl_str_mv |
Sanches, Luciana de Assis Silva e |
contributor_str_mv |
Fiamenghi Jr, Geraldo Antônio |
dc.subject.por.fl_str_mv |
deficiência auditiva síndrome de Down paralisia cerebral mães, sentimentos reações notícia |
topic |
deficiência auditiva síndrome de Down paralisia cerebral mães, sentimentos reações notícia deafness Down syndrome cerebral palsy mothers feelings reactions news CNPQ::CIENCIAS HUMANAS::PSICOLOGIA |
dc.subject.eng.fl_str_mv |
deafness Down syndrome cerebral palsy mothers feelings reactions news |
dc.subject.cnpq.fl_str_mv |
CNPQ::CIENCIAS HUMANAS::PSICOLOGIA |
description |
This work intended to know how mothers of deaf, Down syndrome and cerebral palsy children received the news of their children‟s disability. It aimed to know feelings and maternal reactions to the diagnosis, as well as the attitudes of the professionals in that moment. 18 mothers of children (aged 5 to 12 years) participated in this study. Results showed that despite the kind of disability there is no difference in emotional reactions to the news. Communication of diagnosis is normally inadequate, showing a lack of technical ability, as well as emotional involvement of health professionals. Mothers‟ expectancies are different. Mothers of deaf children showed better expectancies related to their children‟s future, being school mostly responsible for that. Mothers of cerebral palsy children project their hopes in areas related to improvement of physical and motor conditions. Mothers of Down syndrome children haven‟t shown much expectancy for medium and long term future, expressing in their reports the goals already attained by the children. Concerning health professionals all the mothers suggest a true, informing and clear communication, considering possible treatments and resources. It is adamant for the mothers that professionals show respect and caring attitudes when communicating a disability. Regardless of the disability, parents experience a lot of suffering and the professional attitude concerning the communication of a disability is an essential factor for the acceptance and comprehension of the disabled child. |
publishDate |
2009 |
dc.date.available.fl_str_mv |
2009-11-19 2020-03-19T15:20:20Z |
dc.date.issued.fl_str_mv |
2009-05-26 |
dc.date.accessioned.fl_str_mv |
2016-03-15T19:40:43Z 2020-03-19T15:20:20Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/masterThesis |
format |
masterThesis |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://dspace.mackenzie.br/handle/10899/22652 |
url |
http://dspace.mackenzie.br/handle/10899/22652 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Presbiteriana Mackenzie |
dc.publisher.program.fl_str_mv |
Distúrbios do Desenvolvimento |
dc.publisher.initials.fl_str_mv |
UPM |
dc.publisher.country.fl_str_mv |
BR |
dc.publisher.department.fl_str_mv |
Psicologia |
publisher.none.fl_str_mv |
Universidade Presbiteriana Mackenzie |
dc.source.none.fl_str_mv |
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MACKENZIE |
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Biblioteca Digital de Teses e Dissertações do Mackenzie |
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Biblioteca Digital de Teses e Dissertações do Mackenzie |
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