Family network of children with special health needs: implications for Nursing

Detalhes bibliográficos
Autor(a) principal: Neves, Eliane Tatsch
Data de Publicação: 2013
Outros Autores: Cabral, Ivone Evangelista, Silveira, Andressa da
Tipo de documento: Artigo
Idioma: eng
por
spa
Título da fonte: Revista Latino-Americana de Enfermagem (Online)
Texto Completo: https://www.revistas.usp.br/rlae/article/view/75958
Resumo: OBJECTIVE: to describe appropriate sources and resources for caregivers of children with special health needs in the community. METHOD: A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. RESULTS: the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. CONCLUSION: the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions.
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spelling Family network of children with special health needs: implications for Nursing La red familiar de niños con necesidades especiales de salud: implicaciones para la enfermería Rede familial de crianças com necessidades especiais de saúde: implicações para a enfermagem OBJECTIVE: to describe appropriate sources and resources for caregivers of children with special health needs in the community. METHOD: A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. RESULTS: the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. CONCLUSION: the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions. OBJETIVO: describir fuentes y recursos apropiados por las cuidadoras de niños con necesidades especiales de salud en la comunidad. MÉTODO: estudio cualitativo que utilizó la dinámica de creatividad y sensibilidad mapa hablante del método creativo sensible junto a 11 cuidadoras de niños con necesidades especiales de salud atendidas en un hospital de enseñanza de la región sur de Brasil. RESULTADOS: los mapas gráficamente representados en la forma de genograma y ecomapa revelaron que las mujeres cuidadoras se apropian de forma consistente y regular de los recursos de la red familiar interna y externa; de modo eventual e irregular, acceden a la red social de la comunidad para apoyarles física y espiritualmente. CONCLUSIÓN: el carácter aislado del cuidado a esos niños en el interior de la familia contribuye para su invisibilidad social. A partir de ese conocimiento nuevo, se recomienda que la enfermería se haga presente en el cuidado centrado en la familia de esos niños, atentando a las condiciones socioculturales. OBJETIVO: descrever fontes e recursos apropriados pelas cuidadoras de crianças com necessidades especiais de saúde, na comunidade. MÉTODO: estudo qualitativo onde se utilizou a dinâmica de criatividade e sensibilidade mapa falante do método criativo sensível, dinâmica essa da qual participaram 11 cuidadoras de crianças com necessidades especiais de saúde, atendidas em um hospital de ensino da região Sul do Brasil. RESULTADOS: os mapas graficamente representados na forma de genograma e ecomapa revelaram que as mulheres cuidadoras apropriam-se, de forma consistente e regular, dos recursos da rede familial interna e externa; de modo eventual e irregular, acessam a rede social da comunidade para apoiá-las física e espiritualmente. CONCLUSÃO: o caráter reclusivo do cuidado a essas crianças, no interior da família, contribui para a sua invisibilidade social. A partir desse conhecimento novo, recomenda-se que a enfermagem se faça presente no cuidado centrado na família dessas crianças, atentando para suas condições socioculturais. Universidade de São Paulo. Escola de Enfermagem de Ribeirão Preto2013-04-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfapplication/pdfhttps://www.revistas.usp.br/rlae/article/view/7595810.1590/S0104-11692013000200013Revista Latino-Americana de Enfermagem; v. 21 n. 2 (2013); 562-570Revista Latino-Americana de Enfermagem; Vol. 21 No. 2 (2013); 562-570Revista Latino-Americana de Enfermagem; Vol. 21 Núm. 2 (2013); 562-5701518-83450104-1169reponame:Revista Latino-Americana de Enfermagem (Online)instname:Universidade de São Paulo (USP)instacron:USPengporspahttps://www.revistas.usp.br/rlae/article/view/75958/79460https://www.revistas.usp.br/rlae/article/view/75958/79461https://www.revistas.usp.br/rlae/article/view/75958/79462Neves, Eliane Tatsch Cabral, Ivone Evangelista Silveira, Andressa da info:eu-repo/semantics/openAccess2014-03-10T18:50:37Zoai:revistas.usp.br:article/75958Revistahttp://www.scielo.br/rlaePUBhttps://old.scielo.br/oai/scielo-oai.phprlae@eerp.usp.br||shbcassi@eerp.usp.br1518-83450104-1169opendoar:2014-03-10T18:50:37Revista Latino-Americana de Enfermagem (Online) - Universidade de São Paulo (USP)false
dc.title.none.fl_str_mv Family network of children with special health needs: implications for Nursing
La red familiar de niños con necesidades especiales de salud: implicaciones para la enfermería
Rede familial de crianças com necessidades especiais de saúde: implicações para a enfermagem
title Family network of children with special health needs: implications for Nursing
spellingShingle Family network of children with special health needs: implications for Nursing
Neves, Eliane Tatsch
title_short Family network of children with special health needs: implications for Nursing
title_full Family network of children with special health needs: implications for Nursing
title_fullStr Family network of children with special health needs: implications for Nursing
title_full_unstemmed Family network of children with special health needs: implications for Nursing
title_sort Family network of children with special health needs: implications for Nursing
author Neves, Eliane Tatsch
author_facet Neves, Eliane Tatsch
Cabral, Ivone Evangelista
Silveira, Andressa da
author_role author
author2 Cabral, Ivone Evangelista
Silveira, Andressa da
author2_role author
author
dc.contributor.author.fl_str_mv Neves, Eliane Tatsch
Cabral, Ivone Evangelista
Silveira, Andressa da
description OBJECTIVE: to describe appropriate sources and resources for caregivers of children with special health needs in the community. METHOD: A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. RESULTS: the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. CONCLUSION: the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions.
publishDate 2013
dc.date.none.fl_str_mv 2013-04-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.revistas.usp.br/rlae/article/view/75958
10.1590/S0104-11692013000200013
url https://www.revistas.usp.br/rlae/article/view/75958
identifier_str_mv 10.1590/S0104-11692013000200013
dc.language.iso.fl_str_mv eng
por
spa
language eng
por
spa
dc.relation.none.fl_str_mv https://www.revistas.usp.br/rlae/article/view/75958/79460
https://www.revistas.usp.br/rlae/article/view/75958/79461
https://www.revistas.usp.br/rlae/article/view/75958/79462
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade de São Paulo. Escola de Enfermagem de Ribeirão Preto
publisher.none.fl_str_mv Universidade de São Paulo. Escola de Enfermagem de Ribeirão Preto
dc.source.none.fl_str_mv Revista Latino-Americana de Enfermagem; v. 21 n. 2 (2013); 562-570
Revista Latino-Americana de Enfermagem; Vol. 21 No. 2 (2013); 562-570
Revista Latino-Americana de Enfermagem; Vol. 21 Núm. 2 (2013); 562-570
1518-8345
0104-1169
reponame:Revista Latino-Americana de Enfermagem (Online)
instname:Universidade de São Paulo (USP)
instacron:USP
instname_str Universidade de São Paulo (USP)
instacron_str USP
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reponame_str Revista Latino-Americana de Enfermagem (Online)
collection Revista Latino-Americana de Enfermagem (Online)
repository.name.fl_str_mv Revista Latino-Americana de Enfermagem (Online) - Universidade de São Paulo (USP)
repository.mail.fl_str_mv rlae@eerp.usp.br||shbcassi@eerp.usp.br
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