Information demands from families of children with Autism Spectrum Disorder

Detalhes bibliográficos
Autor(a) principal: Weissheimer,Gisele
Data de Publicação: 2021
Outros Autores: Mazza,Verônica de Azevedo, Santana,Julia Mazul, Ruthes,Victoria Beatriz Trevisan Nobrega Martins, Freitas,Cibelly Aliny Siqueira Lima
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Revista Brasileira de Enfermagem (Online)
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000500152
Resumo: ABSTRACT Objective: to identify the information demands of families of children with Autism Spectrum Disorder. Method: this is a qualitative study conducted through semi-structured and audio-recorded interviews with 55 family members, in the states of Paraná, Ceará, and Macapá, between September 2018 and September 2019. Thematic category analysis and Qualitative Data Analysis Software resources were used for data organization. Results: it was identified that families need information regarding the characteristics of Autism Spectrum Disorder (definition, cause, possibility of cure, prognosis and the probability of having another child with Autism Spectrum Disorder); child’s routine and behavior; future rights and expectations. Final considerations: information demands are relevant to support professionals, health managers and other services in health care organization to support families of children with autism.
id ABEN-1_36162a4046aa65b9b960ec925a5f09af
oai_identifier_str oai:scielo:S0034-71672021000500152
network_acronym_str ABEN-1
network_name_str Revista Brasileira de Enfermagem (Online)
repository_id_str
spelling Information demands from families of children with Autism Spectrum DisorderAutism Spectrum DisorderInformationFamilyChildSocial SupportABSTRACT Objective: to identify the information demands of families of children with Autism Spectrum Disorder. Method: this is a qualitative study conducted through semi-structured and audio-recorded interviews with 55 family members, in the states of Paraná, Ceará, and Macapá, between September 2018 and September 2019. Thematic category analysis and Qualitative Data Analysis Software resources were used for data organization. Results: it was identified that families need information regarding the characteristics of Autism Spectrum Disorder (definition, cause, possibility of cure, prognosis and the probability of having another child with Autism Spectrum Disorder); child’s routine and behavior; future rights and expectations. Final considerations: information demands are relevant to support professionals, health managers and other services in health care organization to support families of children with autism.Associação Brasileira de Enfermagem2021-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000500152Revista Brasileira de Enfermagem v.74 n.5 2021reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2020-0642info:eu-repo/semantics/openAccessWeissheimer,GiseleMazza,Verônica de AzevedoSantana,Julia MazulRuthes,Victoria Beatriz Trevisan Nobrega MartinsFreitas,Cibelly Aliny Siqueira Limaeng2021-06-02T00:00:00Zoai:scielo:S0034-71672021000500152Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2021-06-02T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false
dc.title.none.fl_str_mv Information demands from families of children with Autism Spectrum Disorder
title Information demands from families of children with Autism Spectrum Disorder
spellingShingle Information demands from families of children with Autism Spectrum Disorder
Weissheimer,Gisele
Autism Spectrum Disorder
Information
Family
Child
Social Support
title_short Information demands from families of children with Autism Spectrum Disorder
title_full Information demands from families of children with Autism Spectrum Disorder
title_fullStr Information demands from families of children with Autism Spectrum Disorder
title_full_unstemmed Information demands from families of children with Autism Spectrum Disorder
title_sort Information demands from families of children with Autism Spectrum Disorder
author Weissheimer,Gisele
author_facet Weissheimer,Gisele
Mazza,Verônica de Azevedo
Santana,Julia Mazul
Ruthes,Victoria Beatriz Trevisan Nobrega Martins
Freitas,Cibelly Aliny Siqueira Lima
author_role author
author2 Mazza,Verônica de Azevedo
Santana,Julia Mazul
Ruthes,Victoria Beatriz Trevisan Nobrega Martins
Freitas,Cibelly Aliny Siqueira Lima
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Weissheimer,Gisele
Mazza,Verônica de Azevedo
Santana,Julia Mazul
Ruthes,Victoria Beatriz Trevisan Nobrega Martins
Freitas,Cibelly Aliny Siqueira Lima
dc.subject.por.fl_str_mv Autism Spectrum Disorder
Information
Family
Child
Social Support
topic Autism Spectrum Disorder
Information
Family
Child
Social Support
description ABSTRACT Objective: to identify the information demands of families of children with Autism Spectrum Disorder. Method: this is a qualitative study conducted through semi-structured and audio-recorded interviews with 55 family members, in the states of Paraná, Ceará, and Macapá, between September 2018 and September 2019. Thematic category analysis and Qualitative Data Analysis Software resources were used for data organization. Results: it was identified that families need information regarding the characteristics of Autism Spectrum Disorder (definition, cause, possibility of cure, prognosis and the probability of having another child with Autism Spectrum Disorder); child’s routine and behavior; future rights and expectations. Final considerations: information demands are relevant to support professionals, health managers and other services in health care organization to support families of children with autism.
publishDate 2021
dc.date.none.fl_str_mv 2021-01-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000500152
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000500152
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1590/0034-7167-2020-0642
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Associação Brasileira de Enfermagem
publisher.none.fl_str_mv Associação Brasileira de Enfermagem
dc.source.none.fl_str_mv Revista Brasileira de Enfermagem v.74 n.5 2021
reponame:Revista Brasileira de Enfermagem (Online)
instname:Associação Brasileira de Enfermagem (ABEN)
instacron:ABEN
instname_str Associação Brasileira de Enfermagem (ABEN)
instacron_str ABEN
institution ABEN
reponame_str Revista Brasileira de Enfermagem (Online)
collection Revista Brasileira de Enfermagem (Online)
repository.name.fl_str_mv Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)
repository.mail.fl_str_mv reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br
_version_ 1754303039839141888

Registros relacionados